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Adults with Deafblindness: What Are Their Supportive Needs to Live the Life They Want?
Örebro University, School of Health Sciences. Örebro University Hospital. Audiological Research Center, Faculty of Medicine and Health, Örebro University; The Swedish National Resource Center for Deafblindness, Sweden.ORCID iD: 0000-0002-6965-6820
2023 (English)Conference paper, Oral presentation with published abstract (Other academic)
Abstract [en]

The aim was to explore and describe the experiences and needs of support for everyday life for adults with deafblindness. Persons with deafblindness need lifelong support to be able to be active and involved in their everyday life. If support is not provided the results might be negative resulting in physical and mental illness and social isolation. Interviews were performed with 16 adult persons with deafblindness, age ranged from 24 to75 years. Interviews were individual or in focus groups. They were audio or video recorded depending on communication of the participants. Thematic analysis was used to analyze transcribed interviews. An overreaching theme was identified: The importance of being treated as the unique individual I am. The theme constitutes the foundation of the nine other themes identified to be able to live an active everyday life. Support offered must be tailored to the current needs and situation. Positive and negative experiences of emotional and practical support was described. The mobile phone was expressed as the most important aid. A shared communication was expressed as a need within the theme of family support, also a need for more knowledge about deafblindness for family members. Peer support was described as essential to the participants. The results shared by the participants indicate that the support from society needs to be tailored to a greater extent than what is done today. The participants want to be encountered by interested professionals that have knowledge of deafblindness and its consequences as well as their whole life situation. This will be further elaborated on at the presentation.

Place, publisher, year, edition, pages
2023.
National Category
Nursing
Identifiers
URN: urn:nbn:se:oru:diva-109879OAI: oai:DiVA.org:oru-109879DiVA, id: diva2:1814481
Conference
Dbl 18th International World Conference, Ottawa, Ontario, Canada, 22-28 July, 2023
Available from: 2023-11-24 Created: 2023-11-24 Last updated: 2023-11-24Bibliographically approved

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Wahlqvist, Moa

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CiteExportLink to record
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Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
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Language
  • de-DE
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  • en-US
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More languages
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