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Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts
Department of Women's and Children's Health, Uppsala University, Sweden; Faculty of Health, University of Plymouth, Plymouth, United Kingdom.
Department of Women's and Children's Health, Uppsala University, Sweden; Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, USA.
Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway.
Norwegian Centre for E-health Research, University Hospital of North Norway, Tromsø, Norway; Institute for Health and Society, Faculty of Medicine, University of Oslo, Norway.
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2024 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 310, p. 114-118Article in journal (Refereed) Published
Abstract [en]

While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.

Place, publisher, year, edition, pages
IOS Press, 2024. Vol. 310, p. 114-118
Keywords [en]
EHR, ORA, PAEHR, Patient accessible electronic health records, electronic health record, online record access, patient portal
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:oru:diva-111045DOI: 10.3233/SHTI230938ISI: 001281987600023PubMedID: 38269776Scopus ID: 2-s2.0-85183589806OAI: oai:DiVA.org:oru-111045DiVA, id: diva2:1832955
Available from: 2024-01-31 Created: 2024-01-31 Last updated: 2024-09-13Bibliographically approved

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Scandurra, Isabella

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