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Chronic sorrow in next of kin of patients with multiple sclerosis
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
Örebro University, School of Health and Medical Sciences.
School of Health Sciences, Jönköping University, Jönköping, Sweden .
2008 (English)In: The Journal of neuroscience nursing, ISSN 0888-0395, Vol. 40, no 5, 304-311 p.Article in journal (Refereed) Published
Abstract [en]

The well-being of patients' next of kin can be an important factor with regard to the care and rehabilitation of patients with multiple sclerosis (MS). The aim of this qualitative study was to explore the presence and meaning of chronic sorrow in a group of next of kin of patients with MS. Using a semistructured interview guide as a basis, 44 next of kin were interviewed. The results showed that 35 (80%) of the participants were considered to have chronic sorrow based on predetermined criteria. Three main themes characterized the meaning of chronic sorrow: loss of security, loss of sense of community in family life, and loss of joy and recreation. This study indicates that nurses need to devote greater attention to the well-being of next of kin, offering support programs to help them cope with chronic sorrow.

Place, publisher, year, edition, pages
London: Lippincott Williams & Wilkins , 2008. Vol. 40, no 5, 304-311 p.
Keyword [en]
Adult; Aged; Family; Female; Grief; Humans; Male; Middle Aged; Multiple Sclerosis; Professional-Family Relations; Qualitative Research
National Category
Neurology Nursing
Research subject
Nursing Science; Neurology
Identifiers
URN: urn:nbn:se:oru:diva-6947DOI: 10.1097/01376517-200810000-00009ISI: 000271577400009PubMedID: 18856252Scopus ID: 2-s2.0-58149299705OAI: oai:DiVA.org:oru-6947DiVA: diva2:219391
Available from: 2009-05-27 Created: 2009-05-27 Last updated: 2017-10-18Bibliographically approved
In thesis
1. Life situation of next of kin to persons in need of care-cronic sorrow, burden, quality of life
Open this publication in new window or tab >>Life situation of next of kin to persons in need of care-cronic sorrow, burden, quality of life
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Nursing research has been performed during the last 20-30 years, about the next of kin’s vulnerability. Despite this, the health care system has had difficulties to integrate the next of kin in a way that gives support. The overall aim of the thesis was to describe and further explore the life situation of the next of kin to persons who are long-term ill, disabled, and/or older, and in need of care. Method: Multiple methods were used. Study I had a descriptive design, 44 next of kin of patients with multiple sclerosis were interviewed, latent content analysis was used for the analysis. Study II had a mixed method approach; the descriptive core study was analyzed with directed content analysis. The supplementary study with descriptive, correlative design was analyzed with descriptive and correlative statistics. Forty-four next of kin of patients with multiple sclerosis were interviewed; thereafter 37 of them answered a questionnaire about Quality of Life. Study III had a descriptive, explorative design. Twelve next of kin of older persons were interviewed with repeated informal conversational interviews, analyzed with latent content analysis. Study IV was cross-sectional with a descriptive, correlative design. Eighty-four next of kin of persons who were long-term ill, disabled, and/or older answered two questionnaires about Burden and Quality of Life that were analyzed with descriptive and correlative statistics. Results and Conclusions: Next of kin described a balance/imbalance in their relations to others and a high burden, but in general a good Quality of Life. Some next of kin also experienced chronic sorrow. Significant correlations were found between interpersonal relations and Quality of Life as a whole. Love and obligations were two anchor points on a continuum, describing the next of kin’s relationship to the ill/disabled person. The relationship with the health care personnel was described through cooperation and obligations. Good communication was seen as the key to balance the relationship with others. One possibility to achieve symmetrical communications is to adapt the Partnership Model, as a tool for creating good relationships. Honest and specific communication between the health care personnel, the next of kin, and the care receiver are necessary.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2014. 84 p.
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 85
Keyword
life situation, next of kin, informal caregiving, chronic sorrow, burden, quality of life, Partnership model
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-33839 (URN)978-91-7529-009-6 (ISBN)
Public defence
2014-04-11, Hörsal P1, Prismahuset, Örebro universitet, Fakultetsgatan 1, 702 81 Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2014-02-19 Created: 2014-02-19 Last updated: 2017-10-17Bibliographically approved

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Liedström, ElisabethIsaksson, Ann-KristinAhlström, Gerd

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School of Health and Medical Sciences, Örebro University, SwedenSchool of Health and Medical Sciences
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