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Important aspects of health care for women with gynecologic cancer
Örebro University, School of Health and Medical Sciences. (vård i livets slutskede)
Institutionen för vårdvetenskap, Ersta Sköndals Högskola, Stockholm. (vård i livets slutskede)
Örebro University, School of Health and Medical Sciences.ORCID iD: 0000-0002-5063-631X
2003 (English)In: Oncology Nursing Forum, ISSN 0190-535X, E-ISSN 1538-0688, Vol. 30, no 2, 313-319 p.Article in journal (Refereed) Published
Abstract [en]

Purpose/Objectives: To describe what women diagnosed with primary gynecologic cancer reported to be important during their interacion with the healthcare system.

Design: Qualitative.

Setting: A specialized gynecologic cancer care unit in central Sweden.

Sample: 14 women diagnosed with primary gynecologic cancer were recruited. The women had been referred to the specialized care unit for radiation or cytostatic therapy.

Methods: Tape-recorded interviews were transcnbed, coded, categoized, and analyzed.

Main Research Variables: Primary diagnosed women with cancer and their experience with quality of care during diagnosis and treatment.

Findings: Three partly overlapping categories (i.e., optima! care,good communication, and self-image and sexuality) were found to be of central importance in quality of health care. Participants stated that health care should be based on their own perceptions of the need for information and dialogue and how the disease and treatment would affect their health, self-image, and sexuality. Everyday conversations also were very important.

Conclusions: Central importance in health care for the women included both rational and human aspects. The primary need of participants was available, competent, and coordinated.

Implications for Nursing: Women with gynecologic cancer should be given individualized information and care to satisfy their individual needs and reinforce their self-image. Nurses have an important role in strengthening women´s  feelings of hope and supporting them in maintaining as positive a self-image as possible. Information and everyday conversation are of great significance. Sexuality should be an integral part of holistic care; to this end, inclusion of each woman's sexual partner may be helpful when discussions concerning sexuality occur.

Place, publisher, year, edition, pages
Pittsburg: Oncology Nursing Society , 2003. Vol. 30, no 2, 313-319 p.
National Category
Nursing Social Sciences Interdisciplinary Surgery
Research subject
Surgery
Identifiers
URN: urn:nbn:se:oru:diva-8575DOI: 10.1188/03.ONF.313-319OAI: oai:DiVA.org:oru-8575DiVA: diva2:277132
Available from: 2009-11-16 Created: 2009-11-13 Last updated: 2017-12-12Bibliographically approved
In thesis
1. Women's experiences of gynecological cancer and interaction with the health care system through different phases of the disease
Open this publication in new window or tab >>Women's experiences of gynecological cancer and interaction with the health care system through different phases of the disease
2009 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis explores women’s experiences of being diagnosed with gynecological cancer, during different phases of the disease trajectory. The women were undergoing treatment for primary gynecological cancer (study I) and for recurring ovarian cancer (studies II–IV). The focus of studies I and III was the women’s interactions with the health care system, while the experience of recurring ovarian cancer was sought in studies II and IV. Interviews were made and the text was tape-recorded and transcribed. The women in studies I-III were interviewed at the end of their treatment periods.

The method used in studies I and III was subjected to qualitative content analysis.

The aim of study I was to illuminate what women, diagnosed with primary gynecological cancer, reported to be important in their interactions with the health care system. Fourteen women were interviewed. The results were described in three categories: optimal care, good communication, and maintained self-image and sexuality.

The aim in study III was to explore what women with the first recurrence of ovarian cancer perceived as important in their interactions with the health care team. Twelve women were interviewed. The main finding was that the women needed help from the health care team to familiarize themselves with the disease. This theme was supported by the following sub-themes: being confirmed as a person, getting help in making sense of the information about the disease and its treatment, having the opportunity to be involved and to share responsibility, and feeling confident that medical expertise is good enough.

A phenomenological method was used in studies II and IV. The aim of study II was to deepen the understanding of women’s experiences of the first recurrence of ovarian cancer. Twelve women were interviewed. The findings showed three key constituents: being denied one’s future while simultaneously hoping to be able to delay the cancer’s advancement; feeling alienated from both oneself and one’s surroundings; and being responsible. The key constituents was integrated into a structure: living in limbo, characteristic of an existential loneliness.

In study IV, four of the women from studies II–III were interviewed twice, three and five years after the first recurrence. The aim was to illuminate the phenomenon of living with life-prolonging treatment of recurring ovarian cancer. The analysis started with creation of the situated structure for each woman. The situated structures were transformed into a general structure of living with life-prolonging treatment of recurring ovarian cancer that was formulated as follows: time was experienced as short, yet extendable; the body became increasingly fragile; strength proved itself to be unpredictable; and the wish to share the meaning of the disease with others was experienced as unattainable.

The findings produced important knowledge that increases the understanding of the needs of women living with gynecological cancer. This knowledge provides a basis to shape health care delivery in accordance with the needs of the women.

 

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2009. 68 p.
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 37
Keyword
Women`s perspective, gynecological cancer, recurring ovarian cancer, professional-patient relations.
National Category
Surgery Nursing
Research subject
Surgery
Identifiers
urn:nbn:se:oru:diva-8588 (URN)978-91-7668-701-7 (ISBN)
Public defence
2009-12-10, Wilandersalen, M-huset, Universitetssjukhuset, 701 85 Örebro, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2009-11-16 Created: 2009-11-16 Last updated: 2017-10-18Bibliographically approved

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Ekwall, EwaSorbe, Bengt

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