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Being in the Patient Position: Experiences of Health Care Among People With Irritable Bowel Syndrome
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska University, Stockholm, Sweden and Ersta Hospital, Stockholm, Sweden.
Örebro University, School of Health and Medical Sciences. (Omvårdnad gör skillnad)ORCID iD: 0000-0003-3702-3831
Department of Palliative Care Reserach, Ersta Sköndla University College, Stockholm, Sweden.
2010 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 20, no 8, 1116-1127 p.Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was to gain in-depth understanding of what it is like for a person with irritable bowel syndrome to be in the patient position in encounters with health care providers. We conducted qualitative interviews with nine individuals. Our analysis, guided by interpretive description, revealed experiences of unsupportive and supportive encounters. Unsupportive encounters were shaped by humiliation, insignificance, and abandonment. Not feeling believed and acknowledged as persons made the participants lose trust in their own experience, which enhanced their unfamiliar mood of being in the world. Supportive encounters were less prominent. These were characterized by openness and acknowledgment of the patient’s lifeworld. Feeling significant and being listened to promoted feelings of being in a partnered, cocreating relationship. It is reasonable to assume that care originating in the patient’s lifeworld would support the patients to use their strength to manage illness and regain familiarity in everyday life.

Place, publisher, year, edition, pages
Thousand Oaks, USA: Sage Publications, 2010. Vol. 20, no 8, 1116-1127 p.
Keyword [en]
Chronic illness, embodiment, health care, culture of, holistic care, lived experience, relationships
National Category
Nursing Social Sciences Interdisciplinary
Research subject
Caring Sciences w. Medical Focus
Identifiers
URN: urn:nbn:se:oru:diva-10776DOI: 10.1177/1049732310369914ISI: 000280044200008PubMedID: 20463359Scopus ID: 2-s2.0-77954898292OAI: oai:DiVA.org:oru-10776DiVA: diva2:320343
Available from: 2010-05-25 Created: 2010-05-24 Last updated: 2017-02-14Bibliographically approved

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Håkanson, CeciliaSahlberg-Blom, EvaTernestedt, Britt-Marie
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CiteExportLink to record
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Citation style
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