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"It is always on my mind": women's experiences of their bodies when living with hirsutism
Örebro University, School of Health and Medical Sciences.
2009 (English)In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 30, no 5, p. 358-372Article in journal (Refereed) Published
Abstract [en]

Many women suffer from excessive hair growth, often in combination with polycystic ovarian syndrome (PCOS). It is unclear how hirsutism influences such women's experiences of their bodies. Our aim is to describe and interpret women's experiences of their bodies when living with hirsutism. Interviews were conducted with 10 women with hirsutism. We used a qualitative latent content analysis. Four closely intertwined themes were disclosed: the body was experienced as a yoke, a freak, a disgrace, and as a prison. Hirsutism deeply affects women's experiences of their bodies in a negative way.

Place, publisher, year, edition, pages
London: Taylor & Francis , 2009. Vol. 30, no 5, p. 358-372
National Category
Medical and Health Sciences Dermatology and Venereal Diseases
Research subject
Dermatology and Venerology
Identifiers
URN: urn:nbn:se:oru:diva-11650DOI: 10.1080/07399330902785133PubMedID: 19350434OAI: oai:DiVA.org:oru-11650DiVA, id: diva2:345894
Available from: 2010-08-27 Created: 2010-08-27 Last updated: 2017-12-12Bibliographically approved
In thesis
1. Hirsutism and quality of life with aspects on social support, anxiety and depression
Open this publication in new window or tab >>Hirsutism and quality of life with aspects on social support, anxiety and depression
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Hirsutism is excessive hair growth in women. The prevalence is estimated at 5%. The aim of this thesis was to describe different aspects of how life is affected for women suffering from hirsutism. Both qualitative and quantitative methods were used. Study I showed that hirsutism deeply affects women’s experiences of their bodies in a negative way and was experienced as a life sorrow. In Study II the patient-physician relationship was described. The patient-physician relationship from the patient’s perspective was suboptimal, as most meetings included feelings of being rejected and even humiliation. In Study III the aim was to translate and psychometrically evaluate an instrument that measures perceived social support, “The Multidimensional Scale of Perceived Social Support” (MSPSS). The translation was performed according to WHO:s official process, and validation was performed in a sample that consisted of 281 participants, 127 women with hirsutism (main sample) and 154 nursing students. MSPSS had good psychometric properties with regard to factor structure, construct validity, internal consistency and reproducibility. Study IV described different aspects of HRQoL in the main sample, the correlation of anxiety, depression, level of hairiness, age and BMI. The F-G scores were dichotomized into minor (F-G ≤14) and major (F-G≥15) hair growth. Higher levels of hair growth were significantly correlated to a lower level of QoL measured by DLQI, EQ-5D and symptoms of both anxiety and depression measured by HADS. Study V investigated if social support was associated with quality of life and outcome of HRQoL compared to a reference group of women (n=1115). SF-36, the MSPSS and the F-G scale were used. Compared to the reference group, women with hirsutism reported lower quality of life in all dimensions of SF-36 (p<0.01) The dimension most affected was vitality (VT=41.2), which had a lower value than has been reported for patients with MS and myasthenia gravis. A Multiple Regression Analysis showed a significant relation between quality of life and social support, indicating its importance for the ability to adapt, in spite of low quality of life.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2013. p. 90
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 98
Keywords
hirsutism, HRQoL, EQ-5D, DLQI, HADS, SF-36, MSPSS
National Category
Medical and Health Sciences
Research subject
Medicine
Identifiers
urn:nbn:se:oru:diva-32020 (URN)978-91-7668-979-0 (ISBN)
Public defence
2013-12-13, Bomanssonsalen, Örebro universitetssjukhus, S Grev Rosengatan, 703 62 Örebro, 13:00 (English)
Opponent
Supervisors
Available from: 2013-10-15 Created: 2013-10-15 Last updated: 2017-10-17Bibliographically approved

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Ekbäck, Maria [Palmetun]

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