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Family members' involvement in psychiatric care: experiences of the healthcare professionals' approach and feeling of alienation
Örebro University, School of Health and Medical Sciences. Hogskolan Dalarna, Sch Hlth Care & Social Sci, SE-79188 Falun, Sweden.
Hogskolan Dalarna, Sch Hlth Care & Social Sci, SE-79188 Falun, Sweden; School of Health and Medical Sciences, Örebro, Sweden.
Örebro University, Swedish Business School at Örebro University.ORCID iD: 0000-0001-7210-1925
Örebro University, School of Health and Medical Sciences. Ersta Skondal Univ Coll, Dept Palliat Care Res, Stockholm, Sweden.
2010 (English)In: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 17, no 5, 422-432 p.Article in journal (Refereed) Published
Abstract [en]

The involvement of family members in psychiatric care is important for the recovery of persons with psychotic disorders and subsequently reduces the burden on the family. Earlier qualitative studies suggest that the participation of family members can be limited by how they experience the professionals’ approach, which suggests a connection to the concept of alienation. Thus, the aim of this study was in a national sample investigate family members’ experiences of the psychiatric health-care professionals’ approach. Data were collected by the Family Involvement and Alienation Questionnaire (FIAQ). The median level and quartiles were used to describe the distributions and data were analysed with non-parametric statistical methods. Seventy family members of persons receiving psychiatric care participated in the study.  

The results indicate that a majority of the participants respond that they have experiencing a negative approach from the professionals, indicating lack of confirmation and cooperation. The results also indicate that a majority of the participants felt powerlessness and social isolation in the care being provided, indicating feelings of alienation. A significant but weak association was found between the family members´ experiences of the professionals´ approach and their feelings of alienation.

Place, publisher, year, edition, pages
Oxford: Blackwell Publishing , 2010. Vol. 17, no 5, 422-432 p.
Keyword [en]
Family participation, professional-family relations, psychiatric care
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-11685DOI: 10.1111/j.1365-2850.2009.01539.xISI: 000277869300005OAI: oai:DiVA.org:oru-11685DiVA: diva2:346380
Available from: 2010-08-31 Created: 2010-08-31 Last updated: 2017-12-12Bibliographically approved
In thesis
1. Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
Open this publication in new window or tab >>Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
2012 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.

A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).

The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).

Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area. 

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2012. 82 p.
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 35
Keyword
Alienation, Family participation, Support group, Professional´s approach, Psychiatric health care services, Sibling.
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-21460 (URN)978-91-7668-858-8 (ISBN)
Public defence
2012-03-26, Örebro universitet, Hörsal P1, Fakultetsgatan 1, Örebro, 14:00 (Swedish)
Opponent
Supervisors
Available from: 2012-02-02 Created: 2012-02-02 Last updated: 2017-10-17Bibliographically approved

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Ewertzon, MatsSvensson, ElisabethAndershed, Birgitta

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