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Learning to live with irritabel bowel syndrome: the influence of a group-based patient education programme on peoples' ability to manage illness in everyday life
Ersta Hosp, Stockholm, Sweden; Dept Neurobiol Care Sci & Soc, Div Nursing, Karolinska Inst, Stockholm, Sweden.
Örebro University, School of Health and Medical Sciences.ORCID iD: 0000-0003-3702-3831
Dept Neurobiol Care Sci & Soc, Div Nursing, Karolinska Inst, Stockholm, Sweden; Dept Palliat Care Res, Ersta Sköndal Univ Coll, Stockholm, Sweden; Res Dev & Educ Unit, Stockholms Sjukhem Fdn, Stockholm, Sweden.
Gastro Ctr, Karolinska Univ Hosp, Huddinge, Sweden.
2011 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, no 3, p. 491-498Article in journal (Refereed) Published
Abstract [en]

Background: Living with chronic irritable bowel syndrome sets limitations in peoples’ everyday lives. This is due to bad health and the difficulty to find strategies that will manage their problem. In encounters with health care providers, these people feel that they are not getting the appropriate support to manage their illness-related troubles, and they perceive themselves to be insufficiently informed about the disease.

Aim: To evaluate the influence of a group-based patient education programme about irritable bowel syndrome, on people’s ability to manage their illness in everyday life.

Methods: The study used an evaluative research design. Fifty-one individuals with irritable bowel syndrome completed the ways of coping questionnaire, and the irritable bowel syndrome severity scoring system, before and after participating in a multidisciplinary group-based patient education programme.

Results: In the participants’ self assessments, statistical significances (p > 0.05) were found for the mean frequency of efforts used on the coping strategies distancing and escape-avoidance. Distancing was used more often after the education programme, while escape-avoidance, was used more seldom. The proportional use of the strategy self-controlling (relative score) was enhanced after the education programme. The participants’ overall severity of symptoms was significantly reduced after the education programme. The individuals with a clinically noteworthy improvement in symptom severity (decrease ≤ 50) had greater changes in relative score values than those that showed a lesser improvement in symptom severity.

Conclusion: Coping patterns were changed and symptoms were scored significantly less severe among the participants who participated in the education programme. Controlled studies following individuals over a longer period are suggested to establish the validity and sustainability of these changes, and qualitative interview studies would provide additional understanding about the significance of the separate parts of the education programme, and about the meaning of the programme to peoples’ everyday lives as a whole.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2011. Vol. 25, no 3, p. 491-498
Keywords [en]
Gastrointestinal disorders, empowerment, questionnaire, experiences, knowledge, severity, disease, women, IBS, irritable bowel syndrome, patient education, coping, learning, chronic illness, self-management
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-14754DOI: 10.1111/j.1471-6712.2010.00855.xISI: 000293756500011PubMedID: 21175733Scopus ID: 2-s2.0-80051571649OAI: oai:DiVA.org:oru-14754DiVA, id: diva2:401170
Available from: 2011-03-01 Created: 2011-03-01 Last updated: 2018-05-02Bibliographically approved

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Håkanson, CeciliaSahlberg-Blom, EvaTernestedt, Britt-Marie

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