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Parental burnout in relation to sociodemographic, psychosocial and personality factors as well as disease duration and glycaemic control in children with Type 1 diabetes mellitus
Örebro University, School of Health and Medical Sciences.
Örebro University, School of Health and Medical Sciences.
2011 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 100, no 7, p. 1011-1017Article in journal (Refereed) Published
Abstract [en]

Aim: To examine associations between burnout and sociodemographic, psychosocial, personality and medical factors in parents of children with Type 1 Diabetes Mellitus (T1DM). Methods: A total of 252 parents of children with T1DM participated in a population-based study. We used self-report questionnaires to assess symptoms of burnout and background factors. Results: Psychosocial background factors were significantly associated with burnout in parents, whereas there were no associations between sociodemographic or medical factors and burnout. For both genders, parental burnout was associated with low social support, lack of leisure time, financial concerns and a perception that the child's disease affects everyday life. Low self-esteem and high need for control were risk factors for maternal burnout. Conclusion: In the screening of risk factors for long-term stress in parents of children with T1DM, we should recognize parents' attitudes as well as situational psychosocial issues. In clinics, we need to pay attention to the day-to-day life circumstances in the support of these parents. Certain factors were associated with the risk for burnout only for mothers, which warrant further investigation of gender aspects. Continued research about the causal relationship between the parental responsibility, psychosocial factors and burnout is warranted.

Place, publisher, year, edition, pages
2011. Vol. 100, no 7, p. 1011-1017
National Category
Pediatrics General Practice
Research subject
Pediatrics; Family Medicine
Identifiers
URN: urn:nbn:se:oru:diva-18695DOI: 10.1111/j.1651-2227.2011.02155.xISI: 000291224200029PubMedID: 21414025Scopus ID: 2-s2.0-79958058968OAI: oai:DiVA.org:oru-18695DiVA, id: diva2:444652
Available from: 2011-09-29 Created: 2011-09-29 Last updated: 2018-01-12Bibliographically approved
In thesis
1. Burnout in parents of chronically ill children
Open this publication in new window or tab >>Burnout in parents of chronically ill children
2016 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2016. p. 101
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 131
Keywords
Burnout, long-term stress, parents, children, chronic illness, T1DM, IBD, intervention group
National Category
General Practice
Research subject
Family Medicine
Identifiers
urn:nbn:se:oru:diva-47391 (URN)978-91-7529-116-1 (ISBN)
Public defence
2016-02-19, Universitetssjukhuset, Wilandersalen, Södra Grev Rosengatan, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2016-01-13 Created: 2016-01-13 Last updated: 2018-04-25Bibliographically approved

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Lindström, CaisaÅman, Jan

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