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Experiences among patients with COPD one year after attending a primary care nurse-led multidisciplinary programme
Örebro University, School of Health and Medical Sciences.
Örebro University, School of Health and Medical Sciences.ORCID iD: 0000-0001-7352-8234
(English)Manuscript (preprint) (Other academic)
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-20125OAI: oai:DiVA.org:oru-20125DiVA, id: diva2:450166
Available from: 2011-10-19 Created: 2011-10-19 Last updated: 2017-10-17Bibliographically approved
In thesis
1. Management of patients with chronic obstructive pulmonary disease in primary health care: a study of a nurse-led multidisciplinary programme of pulmonary rehabilitation
Open this publication in new window or tab >>Management of patients with chronic obstructive pulmonary disease in primary health care: a study of a nurse-led multidisciplinary programme of pulmonary rehabilitation
2011 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this thesis was to modify and evaluate effects, as well as todescribe experiences of a nurse-led multidisciplinary programme of pulmonaryrehabilitation in primary health care for patients with chronicobstructive pulmonary disease (COPD) and their next of kin.Interviews were performed with 12 COPD nurses about their experiencesof patient education (I). Forty-nine patients participated in the interventiongroup and 54 in the control group in a quasi-experimentalstudy which investigated the effects of the programme on functional capacity,quality of life and exacerbation frequency during one year (II).Interviews were performed related to the experiences of 20 patients whohad participated in the six-week programme (III) and the experiences of20 next of kin to the patients that had participated (IV).The results showed that COPD nurses fluctuated between security andinsecurity in patient education and were in need of support, time, structureand collaboration to develop their patient education (I). In Study IIthere were no differences between the groups with regard to functionalcapacity and quality of life, but the number of exacerbations decreased inthe intervention group and increased in the control group (II). The patientsin study III had allowed themselves to live at their own pace followingthe programme but a constant fear was present in spite of the programme(III). Next of kin in Study IV had a life that remained overshadowedby illness but there were positive outcomes of the programme aslong as two years afterwards. The next of kin also had constant fear,however (IV).In conclusion, the six week programme brought about results in changingeveryday life. Nevertheless, all lived in the shadow of fear and uncertaintyin spite of the programme. More research is needed to address therequirements of COPD nurses, patients and next of kin.

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2011. p. 82
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 59
Keywords
COPD, exacerbations, experiences, functional capacity, next of kin, nursing care, primary care, quality of life
National Category
Health Sciences Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-15732 (URN)978-91-7668-819-9 (ISBN)
Public defence
2011-11-18, Wilandersalen, Universitetssjukhuset, Örebro, 13:00
Opponent
Supervisors
Available from: 2011-05-27 Created: 2011-05-27 Last updated: 2017-10-17Bibliographically approved

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Zakrisson, Ann-BrittAnderzén Carlsson, Agneta

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
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  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
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  • Other locale
More languages
Output format
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  • asciidoc
  • rtf