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A lonely life journey bordered with struggle: being a sibling of an individual with psychosis
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. School of Health and Social Studies, Dalarna University, Falun, Sweden.
Department of Health Care Sciences, Ersta Sköndal University College, Stockholm, Sweden.
Division of Nursing, Karolinska Institute, Stockholm, Sweden.
Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; Department of Nursing, Gjövik University College, Gjövik, Norway.
2012 (English)In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 33, no 3, p. 157-164Article in journal (Refereed) Published
Abstract [en]

Research suggests that siblings of individuals with severe mental illness are affected by the situation of their affected sibling and that the health care services seem to partly fail in meeting their needs for support. The aim of this study was therefore to explore how siblings of individuals with a psychotic illness, and who have participated in a support group, experience their situation. Thirteen informants participated in focus group interviews, which were analysed by inductive content analysis. The findings were interpreted in an overall single theme: A lonely life journey bordered with struggle. This theme consists of three categories: facing existential thoughts, facing ambiguity in approach and engagement, and facing disparate attitudes and expectations.

Place, publisher, year, edition, pages
Philadelphia, USA: Informa Healthcare, 2012. Vol. 33, no 3, p. 157-164
Keywords [en]
Qualitative content analysis, Focus group interview, Mutal support group, Psychotic illnesses, Siblings
National Category
Medical and Health Sciences Nursing
Research subject
Medicine
Identifiers
URN: urn:nbn:se:oru:diva-21647DOI: 10.3109/01612840.2011.633735PubMedID: 22364427Scopus ID: 2-s2.0-84857585605OAI: oai:DiVA.org:oru-21647DiVA, id: diva2:501392
Available from: 2012-02-14 Created: 2012-02-14 Last updated: 2018-05-08Bibliographically approved
In thesis
1. Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
Open this publication in new window or tab >>Familjemedlem till person med psykossjukdom: bemötande och utanförskap i psykiatrisk vård
2012 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.

A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).

The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).

Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area. 

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2012. p. 82
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 35
Keywords
Alienation, Family participation, Support group, Professional´s approach, Psychiatric health care services, Sibling.
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-21460 (URN)978-91-7668-858-8 (ISBN)
Public defence
2012-03-26, Örebro universitet, Hörsal P1, Fakultetsgatan 1, Örebro, 14:00 (Swedish)
Opponent
Supervisors
Available from: 2012-02-02 Created: 2012-02-02 Last updated: 2017-10-17Bibliographically approved

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Ewertzon, MatsLützén, KimAndershed, Birgitta

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