oru.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Life is back to normal and yet not: partners' and patient's experiences of life of the first year after colorectal cancer surgery
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Department of Surgery.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; Department of Nursing, Gjøvik University College, Gjøvik, Norway.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Centre for Health Care Sciences, Örebro Country Council, Örebro, Sweden; Department of Nursing, Umeå University, Umeå, Sweden.ORCID iD: 0000-0001-5403-4183
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Centre for Health Care Sciences.ORCID iD: 0000-0001-7352-8234
2012 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 3-4, p. 555-563Article in journal (Refereed) Published
Abstract [en]

Aim: To describe the experience of life the first year after surgery from the perspective of persons treated for colorectal cancer and their partners.

Background: Colorectal cancer is a common cancer form, and treatment can cause unpleasant side effects such as sexual dysfunction and bowel problems. Partners struggle to keep family life normal and provide support. Little is known about couples' experiences a year after treatment for colorectal cancer.

Design: Qualitative descriptive. Methods. Individual semi-structured interviews with 13 persons treated for colorectal cancer and their partners, a total of 26 participants.

Results: One theme was identified in the study; ` Life is back to normal and yet not': participants described living a normal but different life than before. Three subthemes were identified; ` Life has a shadow of death', ` The treated body sets the rules' and ` To share or not share the illness'.

Conclusions: Findings showed that both the patients' and their partners' lives were influenced by uncertainty and the condition of the patient. Attitudes varied towards sharing the illness. It was found that information needs varied both within and between couples. A future challenge to healthcare personnel is the obligation to meet the needs of both patients and their partners on the illness trajectory and recovery after treatment for colorectal cancer.

Relevance to clinical practice: Findings enhance the understanding of the impact of colorectal cancer on both patients and partners. Healthcare personnel need to assess both the patient's and partner's need for information, support and assistance. Support groups could be an effective tool for providing information, communication and support. Future studies are needed to evaluate such groups.

Place, publisher, year, edition, pages
Hoboken, USA: Wiley-Blackwell, 2012. Vol. 21, no 3-4, p. 555-563
Keywords [en]
Colorectal cancer, couples, nurses, nursing, partners, patients, qualitative study
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-22130DOI: 10.1111/j.1365-2702.2011.03830.xISI: 000298793400026PubMedID: 21883573Scopus ID: 2-s2.0-84855358473OAI: oai:DiVA.org:oru-22130DiVA, id: diva2:510504
Available from: 2012-03-16 Created: 2012-03-16 Last updated: 2018-05-08Bibliographically approved
In thesis
1. Colorectal cancer: patients’ and next-of-kin’s experiences and the effects of a psycho-educational program
Open this publication in new window or tab >>Colorectal cancer: patients’ and next-of-kin’s experiences and the effects of a psycho-educational program
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Purpose: To test whether a psycho-educational program affects mental wellbeing in persons treated for colorectal cancer and their next-of-kin.

Design: A prospective, longitudinal, randomized controlled trial.

Setting: Surgical clinic at a university hospital in Sweden.

Sample: 105 colorectal cancer patients and 71 next-of-kin were allocated to a psycho­educational program or to standard care.

Methods: Mental wellbeing was evaluated with the Mood Adjective Check List and The Hospital Anxiety and Depression Scale at baseline and at 1, 6, and 12 months. The program consisted of seven meetings, including lecture and time for reflection with other patients/next­of-kin.

Main Research Variable: Overall mood, activity, calmness, pleasantness, anxiety, and depression.

Findings: The psycho-educational program increased overall mood, calmness, and pleasantness among patients after one month but had no effect on activity, anxiety, or depression. The program had no effect on the overall mood, activity, calmness, pleasantness, anxiety, or depression among next-of-kin.

Conclusion: The psycho-educational program had a short-term effect on overall patient mood, calmness, and pleasantness but not on next-of-kin. Implications for Nursing: A psycho-educational program including lecture and time for reflection can be used with a colorectal cancer patient population to improve some aspects of their mental wellbeing.

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2013. p. 91
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 49
Keywords
colorectal cancer, caregiver, next-of-kin, psycho-educational program, cancer rehabilitation, RCT
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-30323 (URN)978-91-7668-972-1 (ISBN)
Public defence
2013-11-15, Wilandersalen, Universitetsjukhuset, S. Grev Roseng. 18, Örebro, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2013-08-26 Created: 2013-08-26 Last updated: 2017-10-17Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMedScopus

Authority records BETA

Ohlsson-Nevo, EmmaAndershed, BirgittaNilsson, UlricaAnderzen-Carlsson, Agneta

Search in DiVA

By author/editor
Ohlsson-Nevo, EmmaAndershed, BirgittaNilsson, UlricaAnderzen-Carlsson, Agneta
By organisation
School of Health and Medical Sciences, Örebro University, SwedenÖrebro University Hospital
In the same journal
Journal of Clinical Nursing
Nursing

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 680 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf