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Meeting needs of family members of persons with life-threatening illness: a support group program during ongoing palliative care
Örebro University, School of Health and Medical Sciences.
Linnéuniversitetet, Växjö, Sweden.
Ersta Sköndal högskola, Stockholm, Sweden.
Örebro University, School of Health and Medical Sciences.
2011 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 9, no 3, p. 263-271Article in journal (Refereed) Published
Abstract [en]

Objective: The aim of the study was to describe family members’ experiences of content, structure, and approach of a potential intervention including a support group program for family members of persons with life-threatening illness.

Method: The study was a pilot project in a developmental phase in which a potential intervention, a support group program, was investigated. The design of the study was qualitative descriptive. Twenty-nine family members were interviewed by telephone after taking part in the program. The interviews were analyzed using qualitative content analysis.

Results: The results indicate that the support group program could work as an acceptable and useful intervention for family members. The program was experienced to cover topics of immediate interest reflecting life close to severely ill persons. The structure of the program was found to be inviting, offering an opportunity to establish relationships with other participants and the caring team in a warm atmosphere.

Significance of results: The study indicates the importance of health professionals inviting and interacting with family members during ongoing palliative care. The results could inspire nursing staff to initiate, develop, and deliver similar interventions.

Place, publisher, year, edition, pages
Cambridge University Press, 2011. Vol. 9, no 3, p. 263-271
Keywords [en]
Family, Intervention, Life-threatening illness, Palliative care, Support group
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-22652DOI: 10.1017/S1478951511000216ISI: 000309995700004PubMedID: 21838947Scopus ID: 2-s2.0-84855368590OAI: oai:DiVA.org:oru-22652DiVA, id: diva2:517609
Available from: 2012-04-24 Created: 2012-04-24 Last updated: 2018-05-03Bibliographically approved
In thesis
1. A support group programme for family members: an interverntion during ongoing palliative care
Open this publication in new window or tab >>A support group programme for family members: an interverntion during ongoing palliative care
2012 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Family members are central in providing care for patients with lifethreatening illness, but they often experience a lack of necessary preparation and knowledge, with a need for information and psychosocial support. The overall aim of this thesis was to investigate participant’s experiences as well as effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

Methods: A mixed method design was used. Study I was retrospective descriptive and used a phenomenological method to analyse 10 face-to-face interviews about experiences of participating in the programme. Study II was retrospective descriptive and used qualitative content analysis to analyse 29 telephone interviews about experiences of the programme design. Study III was correlational and used a confirmatory factor analysis to psychometrically evaluate the preparedness for caregiving scale(PCS), caregiver competence scale(CCS) and rewards of caregiving scale(RCS) in 124 family members. Study IV was prospective quasi-experimental and used interferential statistics to investigate effects of the programme, assessing preparedness, competence, rewards, anxiety, depression, hope and health in 125 family members.

Results: The main experiences of participation in the programme were; a sense of safety and belonging, confirmation, insight into the gravity of the illness, and a moment of rest. The programme was experienced as covering topics of interest, structured to make participants feel invited by the caring team and using an open approach that fostered a warm atmosphere. The Swedish versions of PCS, CCS and RCS were shown to be valid and reliable. Family members who participated in the programme significantly increased in preparedness, competence and rewards in relation to caregiving. No significant changes were shown for anxiety, depression, hope and health.

Clinical implications: The results should provide encouragement in the challenging work to develop and deliverer interventions, with the explicit purpose of supporting family members in palliative care.

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2012. p. 109
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 37
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-22107 (URN)978-91-7668-869-4 (ISBN)
Public defence
2012-05-25, Dalens sjukhus, aulan., Åstorpsringen 8, 121 31 Enskede, Stockholm, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2012-03-16 Created: 2012-03-16 Last updated: 2017-10-17Bibliographically approved

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Henriksson, AnetteTernestedt, Britt-MarieAndershed, Birgitta

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