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Pregnant women's and their partners' perception of an information model on prenatal screening
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Family Medicine Research Center, AFC, Örebro, Sweden.ORCID iD: 0000-0002-5316-0492
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.ORCID iD: 0000-0002-9209-5179
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Obstetrics and Gynaecology, Örebro University Hospital, Örebro, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.ORCID iD: 0000-0003-3702-3831
2012 (English)In: Prenatal Diagnosis, ISSN 0197-3851, E-ISSN 1097-0223, Vol. 32, no 5, p. 461-466Article in journal (Refereed) Published
Abstract [en]

Objective: Extended verbal information on prenatal screening was given when combined ultrasound and biochemistry screening test was offered at Örebro County Council, Sweden, in 2008. The aim of this study was to describe pregnant women's and her partners' perceptions of this information model.

Method: The interviews were semi-structured, and altogether, 26 interviews were performed with pregnant women and partners. Qualitative content analysis was used to analyze the data.

Results: The result consists of two main categories, ‘form and content’ and ‘managing the information’, to describe the couples' perceptions of the information given. Nine categories describe the information model in: voluntariness, a separate visit, a special midwife, the content, missing information, ethical considerations, a visit on equal terms, communication within the couple, communication with other people, and emotional management.

Conclusion: The information model helps expecting parents to focus on prenatal screening. Only information about prenatal screening and diagnosis was not enough for everybody; some couples want this to be an opportunity to discuss with a professional the pros and cons of prenatal screening as well as ethical considerations. The information visit gives the partner a chance to be involved and an opportunity for the couple to discuss the subject.

Place, publisher, year, edition, pages
Malden, USA: Wiley-Blackwell, 2012. Vol. 32, no 5, p. 461-466
Keywords [en]
Prenatal screening, CUB, Information model, Qualitative study
National Category
Medical and Health Sciences Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-22685DOI: 10.1002/pd.2940ISI: 000303797700010PubMedID: 22505351Scopus ID: 2-s2.0-84860770397OAI: oai:DiVA.org:oru-22685DiVA, id: diva2:523928
Note

Funding Agencies:

Örebro County Council, Sweden 

Signhild Engkvist Foundation, Sweden

Available from: 2012-04-27 Created: 2012-04-27 Last updated: 2018-05-08Bibliographically approved
In thesis
1. Couples' experiences of an extended information visit about prenatal screening: decision making and satisfaction
Open this publication in new window or tab >>Couples' experiences of an extended information visit about prenatal screening: decision making and satisfaction
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to describe pregnant women's and partners' views and experiences on early prenatal screening with the combined test, with special focus on the two-step information model.

Interviews were performed with 15 couples who had taken part in the extended information visit about prenatal screening, describing their perceptions of the information model (I) and ten couples or women of those, for a follow-up interview exploring their decision-making process (II). Seven couples, who had not taken part in the extended information visit, were interviewed describing their views and experiences about prenatal screening (III). A questionnaire was answered by 295 women and by 223 partners about their satisfaction about the decision whether or not to participate in the combined test, and their assessment of whether or not this choice had been difficult (IV).

The results showed that different opinions were expressed about the offer of the extended information visit. The separate visit was welcomed by most couples (I). The decision-making process regarding whether to take part in the test or not was described by most couples as a fairly straightforward decision, while for others it was a more complex process that required a great deal of consideration (II). An apprehension of the test, by some of those who had refrained the extended information visit, was that it was an expression of society's involvement in decisions that belong to the expectant parents (III). Ninety-three percent of both women and partners considered the decision about participating in the combined tests as uncomplicated, and well over 90%, of both women and partners were satisfied with their decision (IV).

The conclusions in this thesis, are that the decision whether or not to participate in the combined test is multidimensional and influenced by different views. The two-step information model helped the pregnant woman and the partner to make a decision in a fairly straightforward process or a more complex process with mixed feelings.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2014. p. 69
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 59
Keywords
decision-making, patient education, patient satisfaction, prenatal screening
National Category
Nursing
Research subject
Caring sciences
Identifiers
urn:nbn:se:oru:diva-36105 (URN)978-91-7529-045-4 (ISBN)
Public defence
2014-11-21, Prismahuset, Hörsal 2, Örebro universitet, Fakultetsgatan 1, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2014-08-25 Created: 2014-08-25 Last updated: 2017-10-17Bibliographically approved

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Wätterbjörk, IngerBlomberg, KarinNilsson, KerstinSahlberg-Blom, Eva

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