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Finding a wider horizon: experiences of being a next-of-kin of a person suffering from colorectal cancer as told after having participated in a psychoeducational program
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Department of Surgery.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; Department of Nursing, Gjøvik University College, Gjøvik, Norway.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. (Perioperativ omvårdnad)ORCID iD: 0000-0001-5403-4183
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Centre for Health Care Sciences.ORCID iD: 0000-0001-7352-8234
2013 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 17, no 3, p. 324-330Article in journal (Refereed) Published
Abstract [en]

Aim

The aim of this study was twofold: first, to describe the experience of being the next-of-kin of a person suffering from colorectal cancer (CRC), and second, to describe how a psychoeducational program (PEP) might contribute to the next-of-kin's life experience. Psychosocial interventions for next-of-kin to cancer patients are effective in improving quality of life issues, although there are conflicting results in previous studies. Most studies have evaluated the effects of PEP for mixed cancer groups but there is little knowledge about how next-of-kin to a person treated for CRC describe their experience of life and their experience of participating in a PEP.

Methods

The study used a qualitative descriptive design. Individual, open-ended interviews with each of the 18 next-of-kin, of persons receiving treatment for CRC, who participated in a PEP. Data were analyzed using content analysis.

Results

Based on the experiences described by the next-of-kin to a person treated for CRC, the subtheme; Facing a personal challenge was developed. From their described experiences of participating in a PEP, the subtheme Obtaining New Insights and Perspectives emerged. One main theme was finally identified; Finding a Wider Horizon. The study illuminates the importance of integrating the next-of-kin/family in the colorectal cancer care.

Conclusion

The findings from this study can be used to plan future interventions for next-of-kin to patients with CRC as it offers possibilities to understand the next-of-kin's situation and experience from participating in a PEP.

Place, publisher, year, edition, pages
2013. Vol. 17, no 3, p. 324-330
Keywords [en]
colorectal cancer, patient, next-of-kin, psychoeducational program, content analysis, caregiver
National Category
Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-26793DOI: 10.1016/j.ejon.2012.09.001ISI: 000318466500010PubMedID: 23036312Scopus ID: 2-s2.0-8487630177OAI: oai:DiVA.org:oru-26793DiVA, id: diva2:583310
Available from: 2013-01-07 Created: 2013-01-07 Last updated: 2017-12-06Bibliographically approved
In thesis
1. Colorectal cancer: patients’ and next-of-kin’s experiences and the effects of a psycho-educational program
Open this publication in new window or tab >>Colorectal cancer: patients’ and next-of-kin’s experiences and the effects of a psycho-educational program
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Purpose: To test whether a psycho-educational program affects mental wellbeing in persons treated for colorectal cancer and their next-of-kin.

Design: A prospective, longitudinal, randomized controlled trial.

Setting: Surgical clinic at a university hospital in Sweden.

Sample: 105 colorectal cancer patients and 71 next-of-kin were allocated to a psycho­educational program or to standard care.

Methods: Mental wellbeing was evaluated with the Mood Adjective Check List and The Hospital Anxiety and Depression Scale at baseline and at 1, 6, and 12 months. The program consisted of seven meetings, including lecture and time for reflection with other patients/next­of-kin.

Main Research Variable: Overall mood, activity, calmness, pleasantness, anxiety, and depression.

Findings: The psycho-educational program increased overall mood, calmness, and pleasantness among patients after one month but had no effect on activity, anxiety, or depression. The program had no effect on the overall mood, activity, calmness, pleasantness, anxiety, or depression among next-of-kin.

Conclusion: The psycho-educational program had a short-term effect on overall patient mood, calmness, and pleasantness but not on next-of-kin. Implications for Nursing: A psycho-educational program including lecture and time for reflection can be used with a colorectal cancer patient population to improve some aspects of their mental wellbeing.

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2013. p. 91
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 49
Keywords
colorectal cancer, caregiver, next-of-kin, psycho-educational program, cancer rehabilitation, RCT
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-30323 (URN)978-91-7668-972-1 (ISBN)
Public defence
2013-11-15, Wilandersalen, Universitetsjukhuset, S. Grev Roseng. 18, Örebro, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2013-08-26 Created: 2013-08-26 Last updated: 2017-10-17Bibliographically approved

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Ohlsson-Nevo, EmmaAndershed, BirgittaNilsson, Ulrica GAnderzen-Carlsson, Agneta

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