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Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Division of Psychiatry, Skaraborg Hospital, Skövde, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Vårdvetenskapligt forskningscentrum, Örebro Läns Landsting, Örebro, Sweden.ORCID iD: 0000-0001-7352-8234
Margretelunds Ungdomshem, Statens Institutionsstyrelse (National Board of Institutional Care), Lidköping, Sweden.
Department of Nursing, NTNU (Norges teknisk-naturvetenskapliga universitet), Gjøvik, Norway; Ersta Sköndal University College, Stockholm, Sweden.
2012 (English)In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 3, no 2, p. 109-117Article in journal (Refereed) Published
Abstract [en]

The purpose of this study is to describe the everyday life experiences of fathers of adult children who have various forms of long-term mental illness. Ten fathers were interviewed. Content analysis revealed one main theme: Maintaining a strong façade while balancing on a thin line, and two sub-themes: (1) A constant struggle and (2) A feeling of powerlessness. The fathers demonstrated great engagement and good will to participate in their child's life. A sense of powerlessness and frustration at not having or being allowed freedom of action emerged. Cooperation between children, parents, the care service providers, and the authorities could increase the parents’ abilities to provide adequate support to the child as well as helping them to understand and make the incomprehensible manageable.

Place, publisher, year, edition, pages
Philadelphia, USA: Taylor & Francis, 2012. Vol. 3, no 2, p. 109-117
National Category
Medical and Health Sciences Nursing
Research subject
Medicine
Identifiers
URN: urn:nbn:se:oru:diva-27598DOI: 10.3109/01612840.2011.627106PubMedID: 22273345Scopus ID: 2-s2.0-84856368647OAI: oai:DiVA.org:oru-27598DiVA, id: diva2:605959
Available from: 2013-03-22 Created: 2013-02-16 Last updated: 2018-05-12Bibliographically approved
In thesis
1. Ändlös omsorg och utmätt hälsa: Föräldraskapets paradoxer när ett vuxet barn har långvarig psykisk sjukdom
Open this publication in new window or tab >>Ändlös omsorg och utmätt hälsa: Föräldraskapets paradoxer när ett vuxet barn har långvarig psykisk sjukdom
2014 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to deepen knowledge of what it means to be a parent of an adult child who suffers from long-term mental illness. Data collection in studies I-III consisted of qualitative interviews with 26 parents. In study I, 16 mothers and, in study II, 10 fathers were interviewed about the way in which their everyday life was affected when an adult child suffers from long-term mental illness. Data were analysed using qualitative content analysis. In study III, the same 26 parents participated as in studies I-II. The aim of the study was to investigate parents’ conceptions of the mental health care. Data were analysed by means of the phenomenographic method. Study IV is based on questionnaires completed by 151 parents. The aim was to investigate mothers’ and fathers’ health related quality of life (HRQOL) focusing on self-rated symptoms of anxiety, depression and burden as well as their experiences of encounters with the mental health services. Data were analysed for the most part by means of non-parametric method.

The mothers’ everyday life was characterized by constant preparedness to adapt their life situation to the needs of their child (I). The fathers’ inherent ongoing struggle to ensure the child’s well-being required both strength and courage. Fathers attempted to maintain a good balance in life; this balancing act depended on collaboration between those involved in the child’s life, the family, the healthcare services and other authorities (II). The parents described feeling excluded from professional care and questioned its quality and accessibility (III). Mothers’ self-rated HRQOL was lower and they were also affected by burden and mental ill health to a greater extent than the fathers (IV).

The results highlight shortcomings in the interaction between parents and mental health professionals. This highlights the importance of interventions that support and strengthen cooperation between parents and mental health professionals in the care of children who suffer from mental illness.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2014. p. 79
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 53
Keywords
parent, mother, father, adult child, mental illness, mental healthcare, health-related quality of life
National Category
Medical and Health Sciences Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-34609 (URN)978-91-7529-016-4 (ISBN)
Public defence
2014-05-16, Prismahuset, Hörsal 2, Örebro universitet, Fakultetsgatan 1, Örebro, 13:00 (Swedish)
Opponent
Available from: 2014-04-08 Created: 2014-04-08 Last updated: 2017-10-17Bibliographically approved

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Johansson, AnitaAnderzen-Carlsson, AgnetaAndershed, Birgitta

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