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Effects of a support group programme for patients with life-threatening illness during ongoing palliative care
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
School of Health and Caring Sciences, Linnaeus University, Sweden; Department of Medical and Health Sciences, Linköping University, Sweden.
School of Health and Caring Sciences, Linnaeus University, Sweden; Department of Palliative Care Research, Ersta Sköndal University College, Sweden.
Department of Palliative Care Research, Ersta Sköndal University College, Sweden; Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institute, Sweden; Research and Development Unit, Stockholms Sjukhem Foundation, Sweden.
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2013 (English)In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 3, p. 257-264Article in journal (Refereed) Published
Abstract [en]

Background: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support.

Aim: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

Design: A prospective quasi-experimental design, including an intervention group and a comparison group, was used. Settings/participants: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons.

Results: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes.

Conclusions: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

Place, publisher, year, edition, pages
London, United Kingdom: Sage Publications, 2013. Vol. 27, no 3, p. 257-264
Keywords [en]
Palliative care, family members, intervention, support groups
National Category
Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-28909DOI: 10.1177/0269216312446103ISI: 000316752200006PubMedID: 22562965Scopus ID: 2-s2.0-84879741967OAI: oai:DiVA.org:oru-28909DiVA, id: diva2:619657
Note

Funding Agencies:

Health Care Sciences Postgraduate School 

Erling-Person Family Foundation 

Signhild Engkvist Foundation 

Available from: 2013-05-06 Created: 2013-05-03 Last updated: 2017-12-06Bibliographically approved

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Henriksson, AnetteTernestedt, Britt-MarieAndershed, Birgitta

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Palliative Medicine: A Multiprofessional Journal
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