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Lived experiences of women with recurring ovarian cancer
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; Department of Neurobiology, Caring Sciences and Society, Karolinska Institute, Stockholm, Sweden; Research and Development Department, Stockholms Sjukhem Foundation, Stockholm, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Department of Gynaecological Oncology, Örebro University Hospital, Örebro, Sweden.ORCID iD: 0000-0002-5063-631X
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Neurological Medicine, Örebro University Hospital, Örebro, Sweden.
2014 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 18, no 1, p. 104-109Article in journal (Refereed) Published
Abstract [en]

Background: Women with recurring ovarian cancer are living longer, due to advances in treatment options. They are now often outpatients, experiencing rapid encounters on treatment days. Whether this shift in care meets women’s needs has been scarcely explored scientifically.

Purpose of the study: This study aimed to illuminate the phenomenon of living with recurring ovarian cancer as experienced by women in that condition.

Methods and sample: A descriptive phenomenological method was used. Eight open-ended interviews with four women were performed approximately three and five years after the first recurrence of ovarian cancer. During these years the women had repeated clinically and radiologically verified recurrence requiring chemotherapy.

Key results:The phenomenon of living with recurring ovarian cancer meant that the women felt forced to pay attention to the failing body in order to avoid a potential breakdown. The growing limitation of their intermittent strength meant that strength had to be captured and protected. Sharing their lives with others was difficult, due to the different living conditions. The women found no space to mediate their experiences, either in close relationships or with health care professionals. But, the circumstances they lived under also generated a gratitude for the unexpected extra time.

Conclusions: The findings revealed that the four women were grateful to live a while longer, but needed to share their state of being. The findings are indeed directed to health care professionals, who need to provide a more patient-centred care to meet the women’s needs.

Place, publisher, year, edition, pages
Elsevier, 2014. Vol. 18, no 1, p. 104-109
Keywords [en]
Phenomenology, Recurring ovarian cancer, Outpatient chemotherapy
National Category
Cancer and Oncology Nursing
Research subject
Nursing Science; Oncology
Identifiers
URN: urn:nbn:se:oru:diva-31895DOI: 10.1016/j.ejon.2013.08.002ISI: 000331859800017PubMedID: 24054734Scopus ID: 2-s2.0-84893669145OAI: oai:DiVA.org:oru-31895DiVA, id: diva2:655394
Available from: 2013-10-11 Created: 2013-10-11 Last updated: 2018-06-04Bibliographically approved

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Ekwall, EvaTernestedt, Britt-MarieSorbe, BengtSunvisson, Helena

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School of Health and Medical Sciences, Örebro University, SwedenÖrebro University Hospital
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European Journal of Oncology Nursing
Cancer and OncologyNursing

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