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Differentiating activity and participation of children and youth with disability in Sweden: a third qualifier in the International Classification of Functioning, Disability, and Health for Children and Youth?
School of Health Sciences, Jönköping University, Jönköping, Sweden.
School of Health Sciences, Jönköping University, Jönköping, Sweden.
School of Health Sciences, Jönköping University, Jönköping, Sweden.
School of Education and Communication, Jönköping University, Jönköping, Sweden.
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2012 (English)In: American Journal of Physical Medicine & Rehabilitation, ISSN 0894-9115, E-ISSN 1537-7385, Vol. 91, no 13 Suppl 1, p. s84-s96Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: This article discusses the use of a third qualifier, subjective experience of involvement, as a supplement to the qualifiers of capacity and performance, to anchor activity and participation as separate endpoints on a continuum of actions.

DESIGN: Empirical data from correlational studies were used for secondary analyses. The analyses were focused on the conceptual roots of the participation construct as indicated by the focus of policy documents, the support for a third qualifier as indicated by correlational data, differences between self-ratings and ratings by others in measuring subjective experience of involvement, and the empirical support for a split between activity and participation in different domains of the activity and participation component.; RESULTS: Participation seems to have two conceptual roots, one sociologic and one psychologic. The correlational pattern between the qualifiers of capacity, performance, and subjective experience of involvement indicates a possible split between activity and participation. Self-ratings of participation provide information not obtained through ratings by others, and later domains in the activities and participation component fit better with measures of experienced involvement than earlier domains did.

CONCLUSIONS: The results from secondary analyses provide preliminary support for the use of a third qualifier measuring subjective experience of involvement to facilitate the split between activity and participation in the International Classification of Functioning, Disability and Health, Children and Youth version, activity and participation domain.

Place, publisher, year, edition, pages
2012. Vol. 91, no 13 Suppl 1, p. s84-s96
National Category
Social Work
Research subject
Social Work
Identifiers
URN: urn:nbn:se:oru:diva-32505DOI: 10.1097/PHM.0b013e31823d5376ISI: 000208868800012OAI: oai:DiVA.org:oru-32505DiVA, id: diva2:666541
Available from: 2013-11-22 Created: 2013-11-22 Last updated: 2018-05-12Bibliographically approved
In thesis
1. Assessment of participation in people with a mild intellectual disability
Open this publication in new window or tab >>Assessment of participation in people with a mild intellectual disability
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this doctoral thesis was to explore an assessment of participation according to the International Classification of Functioning, Disability and Health (ICF) in people with a mild intellectual disability.

Study I used secondary data and explored how participation can be assessed. Study II-IV explored participation empirically regarding 68 everyday activities from all nine life domains according to the ICF. Study II explored assessment of self-rated participation by investigating to what extent perceived ability, actual performance and perceived importance correlated. Study III-IV explored the contribution of perceived importance to an assessment of participation; study III by investigating frequencies of everyday activities regarding performance and importance separately as well as regarding combined measures of performance and perceived importance, and study IV by comparing proxy ratings with self-rated measures regarding ability and measures of participation. Study III also correlated measures of participation with a single-item measure of subjective general well-being and study II and IV investigated internal consistency in terms of Cronbach’s alpha. Study II and III included 55 and 69 individuals with intellectual disability respectively. Study IV included 40 individuals with intellectual disability and 40 proxy persons. The informants from the target group were partly the same.

Study II and IV supported the suggestions from study I that participation should be assessed by self-ratings and study II found that this is an appropriate method also to people with a mild intellectual disability. Study III showed that participation is related to subjective well-being. Study III-IV found somewhat different results if measuring participation as performance solely or as a combination of performance and perceived importance. Overall, the results of the thesis suggest that performance solely might be sufficient to assess participation at a group level but in a clinical context, when the knowledge of a certain individual is of interest, the perceived aspect of involvement is necessary to include in an assessment of participation.

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2013. p. 89
Series
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 55
Keywords
assessment, clinimetrics, ICF, intellectual disability, participation, participation restrictions, self-ratings
National Category
Social Work
Research subject
Disability Research
Identifiers
urn:nbn:se:oru:diva-32018 (URN)978-91-7668-974-5 (ISBN)
Public defence
2013-11-22, Hörsal P2, Prismahuset, Örebro universitet, Fakultetsgatan 1, 701 82, 13:15 (Swedish)
Opponent
Supervisors
Available from: 2013-10-15 Created: 2013-10-15 Last updated: 2017-10-17Bibliographically approved

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