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Important aspects of participation and participation restrictions in people with a mild intellectual disability
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Swedish Institute for Disability Research, Örebro University, Örebro Sweden; Centre for Research & Development, Uppsala University/County Council of Gävleborg, Sweden.
Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; CHILD, and Swedish Institute for Disability Research, Jönköping University, Jönköping, Sweden.
3Rheumatology, Department of Clinical and Experimental Medicine Linköping University, Linköping, Sweden.
Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; Rehabilitation Medicine, Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
(English)Manuscript (preprint) (Other academic)
Abstract [en]

Purpose This study explored a possibility to assess the concepts of participation and participation restrictions in the International Classification of Functioning, Disability and Health (ICF) by combining self-ratings of the perceived importance with the actual performance of different everyday activities in people with a mild intellectual disability.

Method Structured interviews regarding 68 items from the ICF activity/participation domain were conducted (n=69). The items were ranked by perceived importance, performance and by combined measures. Also, the measures were related to a single question about subjective general well-being.

Results Rankings of performance highlighted about the same items as ‘important participation’, while rankings of low performance addressed quite different items compared with ‘important participation restriction’. Significant correlations were found between subjective general well-being and: high performance (r=0.56), high performance/high importance (‘important participation’) (r=0.56), low performance (r=-0.56), and low performance/high importance (‘important participation restriction’ (r=-0.55).

Conclusions The results support the clinical relevance of the ICF and the studied selection of 68 items. Although performance only may sometimes be a relevant aspect, knowledge about the relationship between the perceived importance and the actual performance is essential for clinical interventions and for research aiming to understand specific needs regarding participation.

Keywords [en]
Assessment, ICF, intellectual disability, participation, self-ratings
National Category
Social Work
Research subject
Disability Research
Identifiers
URN: urn:nbn:se:oru:diva-32543OAI: oai:DiVA.org:oru-32543DiVA, id: diva2:667446
Available from: 2013-11-26 Created: 2013-11-26 Last updated: 2017-10-17Bibliographically approved
In thesis
1. Assessment of participation in people with a mild intellectual disability
Open this publication in new window or tab >>Assessment of participation in people with a mild intellectual disability
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this doctoral thesis was to explore an assessment of participation according to the International Classification of Functioning, Disability and Health (ICF) in people with a mild intellectual disability.

Study I used secondary data and explored how participation can be assessed. Study II-IV explored participation empirically regarding 68 everyday activities from all nine life domains according to the ICF. Study II explored assessment of self-rated participation by investigating to what extent perceived ability, actual performance and perceived importance correlated. Study III-IV explored the contribution of perceived importance to an assessment of participation; study III by investigating frequencies of everyday activities regarding performance and importance separately as well as regarding combined measures of performance and perceived importance, and study IV by comparing proxy ratings with self-rated measures regarding ability and measures of participation. Study III also correlated measures of participation with a single-item measure of subjective general well-being and study II and IV investigated internal consistency in terms of Cronbach’s alpha. Study II and III included 55 and 69 individuals with intellectual disability respectively. Study IV included 40 individuals with intellectual disability and 40 proxy persons. The informants from the target group were partly the same.

Study II and IV supported the suggestions from study I that participation should be assessed by self-ratings and study II found that this is an appropriate method also to people with a mild intellectual disability. Study III showed that participation is related to subjective well-being. Study III-IV found somewhat different results if measuring participation as performance solely or as a combination of performance and perceived importance. Overall, the results of the thesis suggest that performance solely might be sufficient to assess participation at a group level but in a clinical context, when the knowledge of a certain individual is of interest, the perceived aspect of involvement is necessary to include in an assessment of participation.

Place, publisher, year, edition, pages
Örebro: Örebro universitet, 2013. p. 89
Series
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 55
Keywords
assessment, clinimetrics, ICF, intellectual disability, participation, participation restrictions, self-ratings
National Category
Social Work
Research subject
Disability Research
Identifiers
urn:nbn:se:oru:diva-32018 (URN)978-91-7668-974-5 (ISBN)
Public defence
2013-11-22, Hörsal P2, Prismahuset, Örebro universitet, Fakultetsgatan 1, 701 82, 13:15 (Swedish)
Opponent
Supervisors
Available from: 2013-10-15 Created: 2013-10-15 Last updated: 2017-10-17Bibliographically approved

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