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Life situation of adults with congenital limb reduction deficiency in Sweden
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Paediatrics, Limb Deficiency and Arm Prosthesis Centre, Örebro University Hospital, Örebro, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Centre for Health Care Sciences, Örebro University, Örebro, Sweden.ORCID iD: 0000-0002-9760-3785
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
2014 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 38, no 18, p. 1562-1571Article in journal (Refereed) Published
Abstract [en]

Purpose: To describe the current life situation of adults with congenital limb reduction deficiencies (CLRD), living in Sweden, regarding their main daily occupation, leisure activities and self-reported general health.

Method: A cross-sectional survey was conducted using a study-specific questionnaire, sent by post. A hundred and seventeen persons with different extent, forms, and levels of CLRD (mean age 33 years) responded to the questionnaire.

Results: Work or study was the main occupation for 86 % of the participants and 50 % had completed a college or university education. Seven per cent were unemployed and three per cent were on sick leave. The participants were highly involved in social and physical activities during leisure time. The majority reported good or very good general health.

Conclusion: This study is the first investigation of the life situation of adults with CLRD described with a perspective from Swedish society. The participants were educated and worked to a great extent, which corresponds well to the Swedish population as a whole. Further research is needed especially with a focus on the internal perspective of life situation, different aspects of work capacity, occurences of strain injuries and the benefit of assistive devices among adults with CLRD.

Place, publisher, year, edition, pages
Informa Healthcare, 2014. Vol. 38, no 18, p. 1562-1571
Keywords [en]
adults, congenital limb reduction deficiency, daily occupation, life situation
National Category
Nursing
Research subject
Occupational therapy
Identifiers
URN: urn:nbn:se:oru:diva-32602DOI: 10.3109/09638288.2013.854839ISI: 000341971300013PubMedID: 24236497Scopus ID: 2-s2.0-84907061453OAI: oai:DiVA.org:oru-32602DiVA, id: diva2:669428
Note

Funding agencies:

Norrbacka Eugenia-foundation, Stockholm  

Centre for Health Care Sciences, Örebro University Hospital

Available from: 2013-12-03 Created: 2013-12-03 Last updated: 2018-06-04Bibliographically approved

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Sjöberg, LisNilsagård, YlvaFredriksson, Carin

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