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Being a Next of Kin: experiences of Burden and Quality of Life
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.ORCID iD: 0000-0002-2873-4247
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Faculty of Health Sciences, Buskerud University College, Buskerud, Norway.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.ORCID iD: 0000-0002-4226-6064
2014 (English)In: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 4, no 4, p. 275-286Article in journal (Refereed) Published
Abstract [en]

Aim and Objectives: To increase the understanding of next of kin’s life situation in the context of supporting persons who are long term ill, disabled and/or older by describing their experienced burden and quality of life and also the relationship between QoL, burden and socioeconomic variables.

Methods: Cross-sectional, descriptive and correlative design. Eighty-four next of kin answered two questionnaires: the Caregiver Burden Scale and the Subjective Quality of Life.

Results: Next of kin experienced a high burden in their life situation although they, at the same time, experienced a good quality of life. In the results gender differences were found. Females next of kin to a higher extent were disappointed, more emotionally involved, and they also estimated their economic situation as more unsatisfactory than the males next of kin.

Conclusion: Healthcare personnel meet next of kin, persons in need of care, within all healthcare and social care in society.Therefore it is important to have a general knowledge and ability to understand the next of kin’s life situation, thus making it possible to focus the nursing interventions on individual support regardless of the care receiver’s diagnosis.

Place, publisher, year, edition, pages
2014. Vol. 4, no 4, p. 275-286
Keywords [en]
next of kin, informal caregiver, quality of life, burden, life situation
National Category
Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-34658DOI: 10.4236/ojn.2014.44032OAI: oai:DiVA.org:oru-34658DiVA, id: diva2:711033
Available from: 2014-04-09 Created: 2014-04-09 Last updated: 2017-12-05Bibliographically approved
In thesis
1. Life situation of next of kin to persons in need of care-cronic sorrow, burden, quality of life
Open this publication in new window or tab >>Life situation of next of kin to persons in need of care-cronic sorrow, burden, quality of life
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Nursing research has been performed during the last 20-30 years, about the next of kin’s vulnerability. Despite this, the health care system has had difficulties to integrate the next of kin in a way that gives support. The overall aim of the thesis was to describe and further explore the life situation of the next of kin to persons who are long-term ill, disabled, and/or older, and in need of care. Method: Multiple methods were used. Study I had a descriptive design, 44 next of kin of patients with multiple sclerosis were interviewed, latent content analysis was used for the analysis. Study II had a mixed method approach; the descriptive core study was analyzed with directed content analysis. The supplementary study with descriptive, correlative design was analyzed with descriptive and correlative statistics. Forty-four next of kin of patients with multiple sclerosis were interviewed; thereafter 37 of them answered a questionnaire about Quality of Life. Study III had a descriptive, explorative design. Twelve next of kin of older persons were interviewed with repeated informal conversational interviews, analyzed with latent content analysis. Study IV was cross-sectional with a descriptive, correlative design. Eighty-four next of kin of persons who were long-term ill, disabled, and/or older answered two questionnaires about Burden and Quality of Life that were analyzed with descriptive and correlative statistics. Results and Conclusions: Next of kin described a balance/imbalance in their relations to others and a high burden, but in general a good Quality of Life. Some next of kin also experienced chronic sorrow. Significant correlations were found between interpersonal relations and Quality of Life as a whole. Love and obligations were two anchor points on a continuum, describing the next of kin’s relationship to the ill/disabled person. The relationship with the health care personnel was described through cooperation and obligations. Good communication was seen as the key to balance the relationship with others. One possibility to achieve symmetrical communications is to adapt the Partnership Model, as a tool for creating good relationships. Honest and specific communication between the health care personnel, the next of kin, and the care receiver are necessary.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2014. p. 84
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 85
Keywords
life situation, next of kin, informal caregiving, chronic sorrow, burden, quality of life, Partnership model
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:oru:diva-33839 (URN)978-91-7529-009-6 (ISBN)
Public defence
2014-04-11, Hörsal P1, Prismahuset, Örebro universitet, Fakultetsgatan 1, 702 81 Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2014-02-19 Created: 2014-02-19 Last updated: 2017-10-17Bibliographically approved

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Liedström, ElisabethKihlgren, AnnicaSkovdahl, KirstiWindahl, Jenny [Larsson]

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