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Ongoing research: a social and learning community to support self-management in childbearing women with type 1 diabetes
Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden. (Modiab-Web)
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. (Complications in the Reproductive Life of Women)ORCID iD: 0000-0002-2577-1632
Department of Applied IT, University of Gothenburg, Gothenburg, Sweden. (Modiab-Web)
Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden . (Modiab-Web)
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2013 (English)In: Medicine 2.0.: 6th World Congress on Social Media, Mobile Apps, Internet/Web 2.0. London, 23-24 September 2013, London, United Kingdom, 2013, 226-227 p.Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Background: Women with type 1 diabetes have a demanding life situation during the period of pregnancy and early motherhood. There is a need to develop person-centered models of care for women with type 1 diabetes in relation to pregnancy and early motherhood. People, who share a concern for something, learn together as they regularly interact. For example, people learn from each other as they discuss experiences, treatment and self-management issues in daily life. To empower women during with type 1 diabetes during pregnancy and in early motherhood, a website promoting self-management through a social and learning community has been developed.

Objectives: To describe the design and content of a specially designed person-centered web support for women with type 1 diabetes during the period of pregnancy through early motherhood. This web-based support aims at improving the women’s self-management of diabetes and overall well-being.

Methods: The web-based support has been developed through a participatory design involving different stakeholders such as health care professionals, mothers with type 1 diabetes, web designers and researchers. The project is under evaluation in a randomized controlled trial. Women with type 1 diabetes are randomized in early pregnancy to either usual care or web-based support in addition to usual care. All study participants are followed from baseline in early pregnancy to six months after childbirth.

Results: The developed person-centered web-basedsupport consists of three complementary parts: 1) specific information about pregnancy, childbirth and early motherhood in relation to type 1 diabetes; 2) a self-care diary including a device for documenting and evaluating blood glucose levels, insulin doses, food intake, physical activities and overall well-being; and 3) a forum for communication between women with type 1 diabetes in the childbearing period. The support is developed for computer and mobile use.

Conclusions: This website for self-care, self-learning and peer support is a person-centered and easy accessible service. Taking a person-centered approach means that the pregnant women with diabetes must be treated and supported in ways that allow them to be people rather than objectified as individuals with a chronic illness. The website can complement usual health care organizational arrangements and provides possibilities for documenting health and related issues. This social and learning community may strengthen self-care ability by empowering women with type 1 diabetes during a vulnerable period.

Place, publisher, year, edition, pages
London, United Kingdom, 2013. 226-227 p.
Keyword [en]
Diabetes type 1, Pregnancy Web-based support
National Category
Nursing Obstetrics, Gynecology and Reproductive Medicine
Research subject
Caring sciences; Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-36143OAI: oai:DiVA.org:oru-36143DiVA: diva2:742293
Conference
Medicine 2.0, Sept 23-24 2013, London, UK
Projects
Modiab-Web
Available from: 2014-09-01 Created: 2014-08-27 Last updated: 2017-10-17Bibliographically approved

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Adolfsson, Annsofie

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