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Patients' knowledge and experience of adjuvant endocrine therapy for early breast cancer: a European study
European Oncology Nursing Society, Department for Neurobiology, Care Science and Society, Division for Nursing, Karolinska Institutet, 23300, Huddinge, Sweden.
European School of Oncology & Doyen IMO Clinique de Genolier, 1 route du Muids, Genolier, Switzerland.
Novartis Farma S.p.A., Largo Boccioni 1, Origgio, Italy.
Adelphi International Research, Adelphi Mill, Grimshaw Lane, Bollington, Cheshire , UK.
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2007 (English)In: Breast, ISSN 0960-9776, E-ISSN 1532-3080, Vol. 16, no 5, 462-468 p.Article in journal (Refereed) Published
Abstract [en]

Little is known about patients' experience of, and knowledge about adjuvant endocrine therapy. A European survey was carried out to explore this knowledge gap. The 547 post-menopausal women with early breast cancer, from 9 European countries, completed a questionnaire about their experience and knowledge of their therapy. Forty one percent of women surveyed were not at all involved in the decision to start adjuvant endocrine therapy and only 10% were fully involved. Only 57% received information about possible side effects, 26% about the risk of their cancer returning and 15% about the possible long term effects of treatment. Older women, Less educated women or those without Internet access were less likely to receive information or be involved in decision making. Women's right to information and involvement in decision making are not respected. Greater efforts are required to ensure that all patients understand how different therapies work so that they can make informed decisions. (c) 2007 Elsevier Ltd. ALL rights reserved.

Place, publisher, year, edition, pages
2007. Vol. 16, no 5, 462-468 p.
Keyword [en]
adjuvant endocrine therapy, decision making, early breast cancer, information needs, post-menopausal, recurrence risk
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:oru:diva-36344DOI: 10.1016/j.breast.2007.02.007ISI: 000257274100006PubMedID: 17449249Scopus ID: 2-s2.0-34848830716OAI: oai:DiVA.org:oru-36344DiVA: diva2:745903
Available from: 2014-09-11 Created: 2014-09-02 Last updated: 2017-10-17Bibliographically approved

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CiteExportLink to record
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