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The factor structure of the Burden Assessment Scale and the perceived burden of caregivers for individuals with severe mental disorders
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
2004 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, no 2, 396-401 p.Article in journal (Refereed) Published
Abstract [en]

The aims of this study were to test the construct validity and the homogeneity of the Swedish version of the Burden Assessment Scale (BAS) and study perceived burden in daily life among family caregivers of individuals with severe mental disorders. A total of 256 caregivers took part in the study. The participants completed two questionnaires. One was the BAS, a brief scale that focuses on specific subjective and objective consequences of families caring for individuals with severe mental disorders. The other one was a questionnaire constructed for the study including demographic data. A principal component analysis yielded three factors: 'activity limitation', 'feelings of worry and guilt' and 'social strain'. The internal consistency calculated by Cronbach's alpha coefficients varied between 0.73 and 0.88 for the three factors. The findings indicated that the caregivers experienced more 'activity limitation' and 'social strain' in relation to the youngest and to those who had an elementary educational level than they did for comparison groups. There were no differences found between the caregivers in relation to clients' daily occupation outside home. The results confirm that family caregiver burden is complex and includes several areas such as activities in daily life, worry and social strain. Given this knowledge about caregivers' situation, it is critical that families be given opportunities to identify what support might help. Further research is needed to identify such support.

Place, publisher, year, edition, pages
2004. no 2, 396-401 p.
Keyword [en]
family burden; severe mental disorders; daily occupation; factor analysis
National Category
Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-37315DOI: 10.1111/j.1471-6712.2004.00298.xISI: 000226103100008OAI: oai:DiVA.org:oru-37315DiVA: diva2:751520
Available from: 2014-10-01 Created: 2014-10-01 Last updated: 2017-10-17Bibliographically approved
In thesis
1. Occupational Performance in Individuals with Severe Mental Disorders: Assessment and Family Burden
Open this publication in new window or tab >>Occupational Performance in Individuals with Severe Mental Disorders: Assessment and Family Burden
2002 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of the present thesis was three-fold. The first was to study occupational performance in individuals with severe mental disorders and their experiences of occupational therapy, the second to study experienced burden of family caregivers and the third to test the validity and the homogeneity of assessment tools in this area. The samples consisted of individuals with severe mental disorders participating in organised occupations (n= 112), occupational therapy records (n=64), occupational therapists working in mental health care (n=7) and family caregivers of individuals with severe mental disorders (n=256). Data were collected by questionnaires, structured and narrative interviews, observations and occupational therapy records. Individuals with severe mental disorders reported problems related to leisure and work activities and the occupational therapists recorded problems concerning how to organise and structure occupational performance. Individuals functioning on a high cognitive level experienced problems related to work and productive activities. Participation in occupational therapy strengthened their confidence in their own ability. The “Experience of Occupational Performance Questionnaire” (EOPQ) was developed from data on the experiences of women participating in occupational therapy. A principal component analysis gave seven factors with acceptable homogeneity. There is a need for assessment tools to evaluate occupational therapy. The EOPQ represents an attempt to fulfil this need. Family caregivers experienced limitations of daily activities as a burden. The ability to perform daily activities was studied from three perspectives, the individuals’, the occupational therapists’, and the experienced burden of the family caregivers. These perspectives are complementary and thus necessary for planning and implementation of individually adapted occupational therapy as well as for the evaluation of outcomes.

Place, publisher, year, edition, pages
Uppsala: Uppsala University, Tryck & Medier, 2002. 41 p.
Series
Comprehensive summaries of Uppsala Dissertations form the Faculty of Social Sciences, ISSN 0282-7492 ; 118
Keyword
Mental disorders, occupational performance, activities in daily life, factor analysis.
National Category
Social Sciences
Research subject
Occupational therapy
Identifiers
urn:nbn:se:oru:diva-37423 (URN)01-554-5432-1 (ISBN)
Public defence
2002-11-08, Uppsala, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2014-10-21 Created: 2014-10-02 Last updated: 2017-10-17Bibliographically approved

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Citation style
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