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Views on prenatal screening among pregnant women and partners declining an extended information
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.ORCID iD: 0000-0002-5316-0492
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.ORCID iD: 0000-0003-3702-3831
Örebro University, School of Medicine, Örebro University, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.ORCID iD: 0000-0002-9209-5179
(English)Article in journal (Refereed) Submitted
Abstract [en]

Objective: A County Council in Sweden has implemented a two-step information model about prenatal screening. In addition to the regular brief information delivered by the midwife at the first routine visit at the maternal health care centre, the two-step model includes an offer of extended information at a separate visit. However, a substantial number of the couples decline and there is a lack of knowledge about their reasons. The aim of this study was to describe views about prenatal screening among couples who had not taken part in an extended information visit, to increase understanding of the perspectives of prenatal screening in this group.

Method: Qualitative interviews were performed with seven couples not participating in an extended information visit about prenatal screening. Data were analysed using Interpretive Description. Results: The results showed two themes. In the theme “From an individual view”, with the subthemes Declining further information and, Position taken against prenatal screening, the couples saw the invitation and prenatal screening from their own points of view. They refrained because they did not want to receive any more information. In the other theme, “From a societal view”, with the subthemes Society has a hidden agenda and, The health care service’s responsibilities, the couples perceived the offer as part of a societal view on prenatal screening, that they could not support.

Conclusion: The findings in this group of couples shows that couples’ perceptions of prenatal screening are multidimensional and influenced by different views, from both an individual perspective and a more societal one.

Practice Implications: Health care professionals should be aware that some persons could be reluctant to accept health care service, and that the challenge is to meet all individuals, without violating their autonomy. Person-centred care could assist with an approach to meeting the person as an individual.

Keyword [en]
prenatal screening, extended information
National Category
Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-38382OAI: oai:DiVA.org:oru-38382DiVA: diva2:761479
Available from: 2014-11-06 Created: 2014-11-06 Last updated: 2017-10-17Bibliographically approved
In thesis
1. Couples' experiences of an extended information visit about prenatal screening: decision making and satisfaction
Open this publication in new window or tab >>Couples' experiences of an extended information visit about prenatal screening: decision making and satisfaction
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to describe pregnant women's and partners' views and experiences on early prenatal screening with the combined test, with special focus on the two-step information model.

Interviews were performed with 15 couples who had taken part in the extended information visit about prenatal screening, describing their perceptions of the information model (I) and ten couples or women of those, for a follow-up interview exploring their decision-making process (II). Seven couples, who had not taken part in the extended information visit, were interviewed describing their views and experiences about prenatal screening (III). A questionnaire was answered by 295 women and by 223 partners about their satisfaction about the decision whether or not to participate in the combined test, and their assessment of whether or not this choice had been difficult (IV).

The results showed that different opinions were expressed about the offer of the extended information visit. The separate visit was welcomed by most couples (I). The decision-making process regarding whether to take part in the test or not was described by most couples as a fairly straightforward decision, while for others it was a more complex process that required a great deal of consideration (II). An apprehension of the test, by some of those who had refrained the extended information visit, was that it was an expression of society's involvement in decisions that belong to the expectant parents (III). Ninety-three percent of both women and partners considered the decision about participating in the combined tests as uncomplicated, and well over 90%, of both women and partners were satisfied with their decision (IV).

The conclusions in this thesis, are that the decision whether or not to participate in the combined test is multidimensional and influenced by different views. The two-step information model helped the pregnant woman and the partner to make a decision in a fairly straightforward process or a more complex process with mixed feelings.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2014. 69 p.
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 59
Keyword
decision-making, patient education, patient satisfaction, prenatal screening
National Category
Nursing
Research subject
Caring sciences
Identifiers
urn:nbn:se:oru:diva-36105 (URN)978-91-7529-045-4 (ISBN)
Public defence
2014-11-21, Prismahuset, Hörsal 2, Örebro universitet, Fakultetsgatan 1, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2014-08-25 Created: 2014-08-25 Last updated: 2017-10-17Bibliographically approved

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Wätterbjörk, IngerSahlberg-Blom, EvaNilsson, KerstinBlomberg, Karin
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