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The ICF core sets for hearing loss project: Functioning and disability from the patient perspective
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; HEAD Graduate School, Linköping University, Linköping, Sweden.ORCID iD: 0000-0002-2298-6806
Department of Otolaryngology - Head and Neck Surgery, Audiology Section, Vrije University Medical Center, Amsterdam, The Netherlands; EMGO, Institute for Health and Care Research, Amsterdam, The Netherlands.
Department of Speech-Language Pathology and Audiology, University of Pretoria, Pretoria, South Africa; Ear Sciences Centre, School of Surgery, The University of Western Australia, Perth, Australia; Ear Science Institute Australia, Subiaco, Australia.
Department of Otolaryngology - Head and Neck Surgery, Audiology Section, Vrije University Medical Center, EMGO, Institute for Health and Care Research, Amsterdam, The Netherlands.
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2014 (English)In: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 53, no 11, p. 777-786Article in journal (Refereed) Published
Abstract [en]

Objective: To explore areas of functioning, disability, and environmental factors of adults with hearing loss (HL) by using the ICF classification as a tool to determine and document each element. Design: A qualitative study applying mainly focus-group methodology was applied.

Study sample: Thirty-six Dutch and South African adults (18 years of age) with HL (20–95 dB HL) who used oral communication as first communication. Summative content analysis was performed on the transcripts by linkage to appropriate ICF categories.

Results: 143 ICF categories were identified, most of which belonged to the Activities & Participation (d) component, closely followed by the Environmental factors component. Participants specifically mentioned categories related to oral communication and interaction. Assistive technology (such as hearing aids), noise, and support by and attitudes of others in the environment of the participants were considered highly influential for functioning and disability.

Conclusions: The present study illustrates the complex and encompassing nature of aspects involved in functioning and disability of adults with HL. Findings highlight the necessity of using a multidimensional tool, such as the ICF, to map functioning and disability with hearing loss, allowing consideration and evaluation of aspects that are both internal and external.

Place, publisher, year, edition, pages
London, UK: Informa Healthcare, 2014. Vol. 53, no 11, p. 777-786
Keywords [en]
ICF, ICF core sets, focus groups, qualitative study, patient perspective
National Category
Other Health Sciences Otorhinolaryngology
Research subject
Disability Science
Identifiers
URN: urn:nbn:se:oru:diva-39251DOI: 10.3109/14992027.2014.938370ISI: 000343928200001PubMedID: 25311099Scopus ID: 2-s2.0-84911460995OAI: oai:DiVA.org:oru-39251DiVA, id: diva2:767766
Note

Funding Agency:

Oticon Foundation  

Available from: 2014-12-02 Created: 2014-12-02 Last updated: 2018-06-14Bibliographically approved
In thesis
1. Functioning and disability in adults with hearing loss: the preparatory studies in the ICF Core sets for hearing loss project
Open this publication in new window or tab >>Functioning and disability in adults with hearing loss: the preparatory studies in the ICF Core sets for hearing loss project
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Hearing loss (HL) is a health condition that affects more than 360 million people worldwide. The findings from previous research point at the adverse relationship between adults with hearing loss and important aspects of everyday life such as social relations, communication and work-related tasks. However, the overall picture concerning the functional and disabling aspects of adults with HL re- mains incomplete. To identify the functional and disabling aspects, a conceptual and/or theoretical framework is required. The International Classification of Functioning, Disability and Health (ICF) offer a multidimensional framework based on bio-psycho-social assumptions about health. In previous research inves- tigations in which the ICF has been used, some utility problems in the linking (relating) of data to the classification have been highlighted.

The aims of the present thesis were to explore the areas of functioning and disability of relevance for adults with HL and to explore how audiological data can be linked to ICF. The aims were explored by applying the methodology of the ‘interdisciplinary evidence-based approach to functioning and disability in adults with HL’, acknowledging the merging of three perspectives designated the Researcher, the Patient and the Professional perspective. Four studies that focus on the three perspectives were conducted. All results were linked to the ICF classification. The results were merged into a model designated ‘the integrative model of functioning and disability in adults with HL’.

When the three perspectives were linked, the results revealed several aspects of relevance for the target group. Bodily (individual) dimensions, such as hear- ing, auditory perception, memory, attention, energy, and emotions, were acknowledged. Aspects of everyday life such as conversations, the usage of communication strategies, family relationships and work, were highlighted. Influential environmental factors, such as noise, assistive technical devices, the design of public buildings, social support and the attitudes of people in the envi- ronment, were also identified. In conclusion, interactions seemed to be vital as almost all identified aspects highlighted or were tied to this dimension of human functioning. Further, concerning the linking of the data it was acknowledged that the ICF and the research area of adult HL do not fully comply. Suggestions for improvements in future revisions of the ICF were highlighted and discussed.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2015. p. 139
Series
Studies from The Swedish Institute for Disability Research, ISSN 1650-1128 ; 73
Keywords
hearing loss, adults, ICF, classification, functioning, disability, linking
National Category
Other Health Sciences Otorhinolaryngology
Research subject
Disability Science
Identifiers
urn:nbn:se:oru:diva-45274 (URN)978-91-7529-086-7 (ISBN)
Public defence
2015-09-11, Prismahuset, Hörsal 2, Örebro universitet, Fakultetsgatan 1, Örebro, 13:00 (English)
Opponent
Supervisors
Note

Funding agency: Oticon Foundation; Hörselforskningsfonden (Swedish HearingResearch Foundation); the Foundation for Audiological Research (FAR) Forskningskommitten, Region Örebro County

Available from: 2015-07-20 Created: 2015-07-20 Last updated: 2017-10-17Bibliographically approved

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Granberg, SarahHjaldahl, JennieMöller, ClaesDanermark, Berth

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