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The experience of a multidisciplinary programme of pulmonary rehabilitation in primary health care from the next of kin's perspective: a qualitative study
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Orebro University Hospital. Family Medicine Research Centre, Örebro; Centre for Assessment of Medical Technology, Örebro.
Primary Care Research Unit, County Council of Värmland, Karlstad; Department of Nursing, Karlstad University, Karlstad.
Orebro University Hospital. Centre for Health Care Sciences.ORCID iD: 0000-0001-7352-8234
2013 (English)In: Primary Care Respiratory Journal, ISSN 1471-4418, E-ISSN 1475-1534, Vol. 22, no 4, 459-465 p.Article in journal (Refereed) Published
Abstract [en]

Background: Pulmonary rehabilitation increases functional capacity and quality of life and decrease exacerbations in patients with chronic obstructive pulmonary disease (COPD), but there is little knowledge of how it influences their next of kin.

Aims: To describe the experience of a multidisciplinary programme of pulmonary rehabilitation in primary health care from the perspective of the next of kin.

Methods: A descriptive qualitative study was undertaken as part of a longitudinal study comprising a multidisciplinary programme for patients with COPD where the next of kin were invited to one session. Semi-structured interviews were conducted with 20 next of kin and analysed by qualitative content analysis.

Results: One main theme emerged — Life still remains overshadowed by illness. There were three sub-themes: a sense of deepened understanding; a sense of personal vulerability; and a sense of relief of burden.

Conclusions: The next of kin's life was still overshadowed by illness, despite the multidisciplinary programme. Although experiencing positive outcomes two years after the programme, the next of kin expressed a need for more support. This study has shown that next of kin could benefit from their own participation and/or that of the patient in a multidisciplinary programme of pulmonary rehabilitation. We believe that next of kin should be offered primary health care support for the sake of their own health, but also in order to manage their informal caregiver role. The experiences described here could form a basis for further development of interventions for next of kin of patients with COPD.

Place, publisher, year, edition, pages
Lockerbie, United Kingdom: Primary Care Respiratory SOC-PCRS UK , 2013. Vol. 22, no 4, 459-465 p.
Keyword [en]
Chronic obstructive pulmonary disease, nurse, primary care, rehabilitation, qualitative study
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:oru:diva-41198DOI: 10.4104/pcrj.2013.00094ISI: 000328434600016PubMedID: 24301859Scopus ID: 2-s2.0-84888609113OAI: oai:DiVA.org:oru-41198DiVA: diva2:779879
Note

Funding Agency: Foundation of Maja Johansson; Maria Brantefors scholarship fund in Orebro University for developmental work in the area of health and medical services

Available from: 2015-01-13 Created: 2015-01-13 Last updated: 2017-03-24Bibliographically approved

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