oru.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
CHARGE syndrome: a five case study of the syndrome characteristics and health care consumption during the first year in life
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Audiological Research Centre, Region Örebro County, Örebro University Hospital, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro, Sweden.ORCID iD: 0000-0001-7352-8234
2015 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 30, no 1, p. 6-16Article in journal (Refereed) Published
Abstract [en]

CHARGE syndrome is characterized by impaired vision and hearing, as well as physical malformations. The aim of this study is to describe the characteristics of the malformations and the health care consumption during the first year, in a Swedish sample having CHARGE syndrome. Three of the five individuals fulfilled all the traditional criteria for a clinical diagnosis of CHARGE syndrome. All infants were hospitalized from 26 to 230. days, subjected to 10-34 different diagnostic procedures and prescribed 10-28 different medications during their first year. Coordinated and individually adapted care is urged, as these infants and their families are in of need multiple health care contacts.

Place, publisher, year, edition, pages
Elsevier, 2015. Vol. 30, no 1, p. 6-16
Keywords [en]
CHARGE syndrome; Deafblindness; Health care consumption; Long-term conditions; Medical complexity; Nursing care
National Category
Other Health Sciences
Research subject
Disability Science
Identifiers
URN: urn:nbn:se:oru:diva-41208DOI: 10.1016/j.pedn.2014.09.008ISI: 000347722600003PubMedID: 25308400Scopus ID: 2-s2.0-84920781611OAI: oai:DiVA.org:oru-41208DiVA, id: diva2:779890
Note

Funding Agencies:

National Resource Center for Deafblindness

Stiftelsen Mo Gard

Note: The Swedish Institute for Disability Research (SIDR). SIDR was established in 2000 as a joint initiative by Linköping University and Örebro University and in 2012 the University of Jönköping

Available from: 2015-01-13 Created: 2015-01-13 Last updated: 2018-06-26Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMedScopus

Authority records BETA

Anderzén-Carlsson, Agneta

Search in DiVA

By author/editor
Anderzén-Carlsson, Agneta
By organisation
School of Health and Medical Sciences, Örebro University, SwedenÖrebro University Hospital
In the same journal
Journal of Pediatric Nursing: Nursing Care of Children and Families
Other Health Sciences

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 415 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf