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A comparison of the concept of patient participation and patients' descriptions as related to healthcare definitions
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.ORCID iD: 0000-0002-7737-169X
Institute of Health and Care Sciences, Sahlgrenska Academy, Göteborg University, Göteborg, Sweden.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
2010 (English)In: International Journal of Nursing Terminologies and Classifications, ISSN 2047-3087, E-ISSN 2047-3095, Vol. 21, no 1, p. 21-32Article in journal (Refereed) Published
Abstract [en]

Purpose: To depict what patients describe as patient participation and whether descriptions of patient participation are affected by gender, age, healthcare contact, and duration of disease.

Data sources: Current patients (n= 362) responded to a questionnaire on participation.

Data synthesis: Patients' descriptions focused on having knowledge, rather than being informed, and on interacting with health professionals, rather than merely partaking in decision making.

Conclusions: Patients' descriptions of participation correspond with the International Classification of Functioning, Disability and Health's definition, which includes "being involved in a life situation." Healthcare legislation and professionals employ a narrower concept of patient participation as defined by, e.g., Medical Subject Headings.

Practice implications: Findings suggest that health professionals need to embrace what patients describe as participation.

Place, publisher, year, edition, pages
Malden, USA: Wiley-Blackwell, 2010. Vol. 21, no 1, p. 21-32
Keywords [en]
Concept analysis, content analysis, patient participation, questionnaire
National Category
Medical and Health Sciences Nursing
Identifiers
URN: urn:nbn:se:oru:diva-41330DOI: 10.1111/j.1744-618X.2009.01141.xISI: 000208327000005PubMedID: 20132355Scopus ID: 2-s2.0-77950918800OAI: oai:DiVA.org:oru-41330DiVA, id: diva2:780338
Available from: 2015-01-14 Created: 2015-01-14 Last updated: 2018-04-24Bibliographically approved

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Eldh, Ann CatrineEhnfors, Margareta

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