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Review of 103 Swedish healthcare quality registries
Örebro University, School of Medicine, Örebro University, Sweden. Primary Care Research Unit, Vårdcentralen Värmlands Nysäter, Värmland County, Sweden; Department of Health Management and Health Economy, Institute of Health and Society, University of Oslo, Oslo, Norway.
Department of Medical Sciences, Cardiology, and Uppsala Clinical Research Center, University of Uppsala, Uppsala, Sweden.
National Board of Health and Welfare, Stockholm, Sweden .
Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; Regional Cancer Centre, Uppsala, Sweden.
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2015 (English)In: Journal of Internal Medicine, ISSN 0954-6820, E-ISSN 1365-2796, Vol. 277, no 1, 94-136 p.Article in journal (Refereed) Published
Abstract [en]

Background and objectives: In the past two decades, an increasing number of nationwide, Swedish Healthcare Quality Registries (QRs) focusing on specific disorders have been initiated, mostly by physicians. Here, we describe the purpose, organization, variables, coverage and completeness of 103 Swedish QRs.

Methods: From March to September 2013, we examined the 2012 applications of 103 QRs to the Swedish Association of Local Authorities and Regions (SALAR) and also studied the annual reports from the same QRs. After initial data abstraction, the coordinator of each QR was contacted at least twice between June and October 2013 and asked to confirm the accuracy of the data retrieved from the applications and reports.

Results: About 60% of the QRs covered 80% of their target population (completeness). Data recorded in Swedish QRs include aspects of disease management (diagnosis, clinical characteristics, treatment and lead times). In addition, some QRs retrieve data on self-reported quality of life (EQ5D, SF-36 and disease-specific measures), lifestyle (smoking) and general health status (World Health Organization performance status, body mass index and blood pressure).

Conclusion: Detailed clinical data available in Swedish QRs complement information from government-administered registries and provide an important source not only for assessment and development of quality of care but also for research.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2015. Vol. 277, no 1, 94-136 p.
Keyword [en]
adult, child, life quality, morbidity, register, registry
National Category
Medical and Health Sciences
Research subject
Medicine
Identifiers
URN: urn:nbn:se:oru:diva-42363DOI: 10.1111/joim.12303ISI: 000346652000009PubMedID: 25174800Scopus ID: 2-s2.0-84916899809OAI: oai:DiVA.org:oru-42363DiVA: diva2:785915
Note

Funding Agency:

Swedish Association of Local Authorities and Regions (SALAR; Swedish: 'SKL')

Available from: 2015-02-04 Created: 2015-02-03 Last updated: 2017-10-18Bibliographically approved

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Emilsson, LouiseLudvigsson, Jonas F.
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School of Medicine, Örebro University, SwedenÖrebro University Hospital
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CiteExportLink to record
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Cite
Citation style
  • apa
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More languages
Output format
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