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Balancing everyday life two years after falling ill with Guillain-Barre syndrome: a qualitative study
Örebro University Hospital. Division of Neurology, Karolinska Institutet, Stockholm; Family Medicine Research Centre, Örebro County Council, Örebro, Sweden.ORCID iD: 0000-0002-6768-5740
Division of Neurology, Karolinska Institutet, Stockholm; Division of Physiotherapy, Karolinska Institutet, Stockholm.
Department of Health Sciences, Lund University, Lund.ORCID iD: 0000-0001-6230-7583
2015 (English)In: Clinical Rehabilitation, ISSN 0269-2155, E-ISSN 1477-0873, Vol. 29, no 6, 601-610 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim was to describe experiences of disability in everyday life and managing the recovery process two years after falling ill with Guillain-Barré syndrome.

Design: Qualitative interview study.

Methods: Interviews were conducted with 35 persons (22 male, mean age 50 years) two years after the onset of Guillain-Barré syndrome. The interviews were transcribed verbatim and analysed using content analysis.

Results: The analysis revealed four categories and an overall theme: ‘Striving for balance in everyday life’. The participants described persistent lived body restrictions that affected their arms, legs, and face. Bodily symptoms and loss of energy limited or restricted many everyday activities. In connection with healthcare, both satisfaction and feeling vulnerable in a critical situation were described. Experiences of the recovery process varied. The participants described acceptance and reappraisal of a new life situation despite their limitations, and having gained the knowledge that life can change suddenly. However, they also expressed disappointment following an overly positive prognosis in the early stages, and over a continuous wait for recovery. For some participants life had returned to as before.

Conclusion: The participants experienced limitations in everyday life and decreased functioning in several parts of the body. The recovery process may still be ongoing two years after onset. Rehabilitation intervention with an extended focus on supporting individualized coping processes could facilitate ways to live with persistent disability.

Place, publisher, year, edition, pages
London, United Kingdom: Sage Publications, 2015. Vol. 29, no 6, 601-610 p.
Keyword [en]
Guillain-Barré Syndrome, qualitative studies, recovery process, disability
National Category
Occupational Therapy Other Health Sciences
Identifiers
URN: urn:nbn:se:oru:diva-42583DOI: 10.1177/0269215514549564ISI: 000356241800009PubMedID: 25200880Scopus ID: 2-s2.0-84930828783OAI: oai:DiVA.org:oru-42583DiVA: diva2:787772
Note

Funding Agencies:

Swedish Association of Persons with Neurological Disabilities

Board of Research for Health and Caring Sciences, Karolinska Institutet, Sweden

Available from: 2015-02-11 Created: 2015-02-11 Last updated: 2017-10-18Bibliographically approved

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