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Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden; Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden .
Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden; Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden .
Department of Clinical Science, Lund University, Institute for Palliative Care at Lund University and Region Skåne, Lund, Sweden .
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden; School of Health and Medical Sciences, Örebro University, Örebro, Sweden .
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2015 (English)In: BMC Palliative Care, ISSN 1472-684X, Vol. 14, 16Article in journal (Refereed) Published
Abstract [en]

Background: Family caregivers in palliative care have a need for knowledge and support from health professionals, resulting in the need for educational and supportive interventions. However, research has mainly focused on the experiences of family caregivers taking part in interventions. To gain an increased understanding of complex interventions, it is necessary to integrate the perspectives of health professionals and family caregivers. Hence, the aim of this study is to explore the perspectives of health professionals and family caregivers of delivering and participating in a psycho-educational intervention in palliative home care.

Methods: A psycho-educational intervention was designed for family caregivers based on a theoretical framework describing family caregiver's need for knowing, being and doing. The intervention was delivered over three sessions, each of which included a presentation by healthcare professionals from an intervention manual. An interpretive descriptive design was chosen and data were collected through focus group discussions with health professionals and individual interviews with family caregivers. Data were analysed using framework analysis.

Results: From the perspectives of both health professionals and family caregivers, the delivering and participating in the intervention was a positive experience. Although the content was not always adjusted to the family caregivers' individual situation, it was perceived as valuable. Consistently, the intervention was regarded as something that could make family caregivers better prepared for caregiving. Health professionals found that the work with the intervention demanded time and engagement from them and that the manual needed to be adjusted to suit group characteristics, but the experience of delivering the intervention was still something that gave them satisfaction and contributed to them finding insights into their work.

Conclusions: The theoretical framework used in this study seems appropriate to use for the design of interventions to support family caregivers. In the perspectives of health professionals and family caregivers, the psycho-educational intervention had important benefits and there was congruence between the two groups in that it provided reward and support. In order for health professionals to carry out psycho-educational interventions, they may be in need of support and supervision as well as securing appropriate time and resources in their everyday work.

Place, publisher, year, edition, pages
2015. Vol. 14, 16
Keyword [en]
Family caregivers; Health professionals; Home care; Palliative care; Psycho-educational intervention; Support
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Health and Medical Care Research
Identifiers
URN: urn:nbn:se:oru:diva-44677DOI: 10.1186/s12904-015-0015-1ISI: 000353625800001PubMedID: 25903781Scopus ID: 2-s2.0-84928523226OAI: oai:DiVA.org:oru-44677DiVA: diva2:813268
Funder
Swedish Cancer Society
Note

Funding Agencies:

Erling-Persson Family Foundation

Ragnhild and Einar Lundström 

Available from: 2015-05-22 Created: 2015-05-22 Last updated: 2015-05-22Bibliographically approved

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CiteExportLink to record
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Citation style
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