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Reciprocal struggling in person transfer tasks - Caregivers’ experiences in dementia care
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Mälardalen university, Västerås, Sweden.
Mälardalen university, Västerås, Sweden.
Mälardalen university, Västerås, Sweden.
Mälardalen university, Västerås, Sweden.
2012 (English)In: Advances in Physiotherapy, ISSN 1403-8196, E-ISSN 1651-1948, Vol. 14, no 4, 175-182 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: This study describes caregivers’ experiences of person transfer situations involving people with dementia.

Method: Qualitative focus group interviews were conducted with a total of 10 caregivers; two groups with five persons each, including two men and eight women. The resulting data were extracted and condensed into meaning units and codes using content analysis.

Findings: One main theme was formulated that represents the caregivers’ experiences of person transfer situations involving people with dementia: "Reciprocal struggle in person transfer tasks". Five categories were formulated: "Becoming familiar and making contact", "Risking one’s own body to protect the resident from injury", "Focused yet aware of the surroundings", "Identifying needs to facilitate the person transfer" and "Struggling to be understood".

Conclusion: Person transfer situations involving people with dementia are subject to sudden changes. The ongoing challenge is to ensure a dynamic approach that can be adapted to the needs of the person with dementia at any given time. There is a need for more studies within the field about care and rehabilitation among people with dementia. We suggest that assessment of person transfer situations involving people with dementia and their caregivers is an important issue for further investigation and physiotherapeutic interventions.

Place, publisher, year, edition, pages
Informa Healthcare, 2012. Vol. 14, no 4, 175-182 p.
Keyword [en]
article; caregiver; caregiver support; cognition; dementia; health care quality; human; nonverbal communication; patient care; patient mobility; physiotherapist; physiotherapy; verbal communication
National Category
Geriatrics
Identifiers
URN: urn:nbn:se:oru:diva-45733DOI: 10.3109/14038196.2012.725184Scopus ID: 2-s2.0-84870533043OAI: oai:DiVA.org:oru-45733DiVA: diva2:852277
Available from: 2015-09-08 Created: 2015-09-08 Last updated: 2017-10-17Bibliographically approved
In thesis
1. Exploring dementia care dyads' person transfer situations from a behavioral medicine perspective in physiotherapy: development of an assessment scale
Open this publication in new window or tab >>Exploring dementia care dyads' person transfer situations from a behavioral medicine perspective in physiotherapy: development of an assessment scale
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Individuals who suffer from severe dementia require assistance when performing activities of daily living. The highly important person transfer situation is influenced by complex, intertwined biopsychosocial factors that are related to the expression of personal, environmental and behavioral variables, which can interfere with the performance of dementia-care dyads' transfer situations.

The overall aim of this study was to leverage a behavioral medicine perspective in physiotherapy to explore, intervene in, and develop an assessment scale for problematic person transfer situations including persons with dementia and the interaction with the caregiver in these transfer situations.

Interviews were performed with ten caregivers who were recruited to two focus groups and worked in a special care unit for persons with dementia; interviewees described their experiences pursuant to assisting persons with dementia in transfer situations (I).

Literature review and video recordings elicited 93 possible items for the new scale. Expert opinions and item-content validity index reduced the number of items to 17 that spanned two areas. Eight items related to the actions of persons with dementias, whereas nine related to caregiver actions. The feasibility testing of the scale in eight person transfer situations showed that the scale was ready for inter- and intra-rated reliability testing (II). Inter- and intra- rater reliability was good (III). In two single-case experimental design studies, the new scale was shown to contribute to a substantial gathering of data on behaviors in care dyads' person transfer situations (IV). In summary, the results of the thesis show that person transfer situations in dementia special care units are influenced by different biopsychosocial factors and that the new assessment scale can support decision-making about treatment strategies. These findings are important in promoting evidence-based behavior change strategies that can facilitate both sets of individuals—i.e., both persons with dementia and caregivers—in transfer situations. The results highlight important research issues that merit attention in future studies.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2015. 97 p.
Series
Örebro Studies in Care Sciences, ISSN 1652-1153 ; 126
Keyword
Behavioral medicine in physiotherapy, Care dyad, Dementia, Intervention, Scale development, Transfer problems
National Category
Geriatrics
Research subject
Nursing Science; Geriatrics
Identifiers
urn:nbn:se:oru:diva-45277 (URN)978-91-7529-090-4 (ISBN)
Public defence
2015-10-02, Prismahuset, Hörsal 2, Örebro universitet, Fakultetsgatan 1, Örebro, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2015-07-20 Created: 2015-07-20 Last updated: 2017-10-17Bibliographically approved

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Citation style
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Output format
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