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Impact of incontinence on the quality of life of caregivers of older persons with incontinence: a qualitative study in four European Countries
Istituto Nazionale di Riposo e Cura per Anziani (INRCA), Ancona, Italy.
Department of Urology, Örebro University Hospital, Örebro, Sweden. (FAMN)ORCID iD: 0000-0002-9062-8840
Istituto Nazionale di Riposo e Cura per Anziani (INRCA), Ancona, Italy.
2016 (English)In: Archives of gerontology and geriatrics (Print), ISSN 0167-4943, E-ISSN 1872-6976, Vol. 63, p. 92-101Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to assess the impact of incontinence management on informal caregivers of older persons with incontinence. In order to investigate this phenomenon in different welfare systems via qualitative interviews and a content analysis methodology, the study was carried out in four European countries (Italy, the Netherlands, Slovak Republic and Sweden). To this purpose, 50 semi-structured interviews were conducted with spouses and children of older people receiving their help to manage the consequences of involuntary urinary and/or faecal leakage. Findings show that incontinence has a remarkably strong effect on caregivers’ quality of life, because it results in progressive social isolation, causing them financial problems as well as psychological and physical exhaustion. The lack of appropriate support and the general silence regarding the problem, which is still considered a taboo by many, aggravate thecaregivers’ situation. It is therefore crucial that caregivers can count on a strong public andprivate support network, appropriate information and suitable incontinent products, in orderto better handle incontinence and care tasks in general.

Place, publisher, year, edition, pages
Clare, Ireland: Elsevier, 2016. Vol. 63, p. 92-101
Keywords [en]
Older people, incontinence, caregivers’ burden, isolation, supports, pad, taboo
National Category
Medical and Health Sciences Gerontology, specialising in Medical and Health Sciences
Identifiers
URN: urn:nbn:se:oru:diva-46603DOI: 10.1016/j.archger.2015.10.013ISI: 000368014500014PubMedID: 26620553Scopus ID: 2-s2.0-84958174009OAI: oai:DiVA.org:oru-46603DiVA, id: diva2:872481
Available from: 2015-11-19 Created: 2015-11-19 Last updated: 2018-07-09Bibliographically approved

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