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Group intervention for burnout in parents of chronically ill children: a small-scale study
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Pediatrics.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Pediatrics.
Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Centre for Health Care Science.ORCID iD: 0000-0001-7352-8234
Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden.
2016 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 30, no 4, 678-686 p.Article in journal (Refereed) Published
Abstract [en]

Background: Long-term stress leading to burnout symptoms is prevalent in parents of chronically ill children. The aim of the study was to evaluate the effect of a group intervention by measuring changes in self-rated clinical burnout and performance-based self-esteem. In addition, the parental perceptions of the acceptability of the intervention were explored.

Methods: Previously, we have explored the prevalence of clinical burnout in parents of patients 1–18 years with type 1 diabetes mellitus (T1DM) and inflammatory bowel disease (IBD) in the county of Örebro. All parents who exhibited clinical burnout symptoms in accordance with the Shirom–Melamed Burnout Questionnaire (SMBQ) were then invited to participate in a group intervention, which was evaluated in the present small-scale study. The group intervention consisted of eight sessions over a 12-week period, including education about behaviour, cognition and symptoms associated with burnout, intending to help the parents to develop adequate strategies for coping with and reducing stress. We evaluated the effect of the intervention in terms of self-rated clinical burnout and performance-based self-esteem (PBSE). In addition, the acceptability of the intervention was evaluated by analyses of recruitment and retention and self-reports from parents.

Results: Sixteen parents (13 of children with TIDM and three of children with IBD) out of 104 reporting clinical burnout participated in the intervention. All participants completed the intervention, and the mean attendance rate at all sessions was 90%. Parents’ subjective evaluations were mainly positive, and SMBQ (p = 0.01) and PBSE scale (p = 0.04) measurements were significantly reduced, which effects remained 6 months after completion of the intervention.

Conclusions: Despite the small-scale study, we consider that this intervention for parents with clinical burnout was appreciated and well accepted. The significant reduction in clinical burnout symptoms requires further evaluation in randomised controlled studies based on larger groups of parents.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2016. Vol. 30, no 4, 678-686 p.
Keyword [en]
burnout, chronic illness, diabetes, inflammatory bowel disease, intervention, parenting stress
National Category
Nursing
Research subject
Caring sciences
Identifiers
URN: urn:nbn:se:oru:diva-47759DOI: 10.1111/scs.12287ISI: 000389453000005PubMedID: 26395446Scopus ID: 2-s2.0-84945262059OAI: oai:DiVA.org:oru-47759DiVA: diva2:897405
Note

Funding Agencies:

Research Committe of Örebro County Council OLL-180151

Örebro University

Available from: 2016-01-25 Created: 2016-01-25 Last updated: 2017-10-18Bibliographically approved
In thesis
1. Burnout in parents of chronically ill children
Open this publication in new window or tab >>Burnout in parents of chronically ill children
2016 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.

Place, publisher, year, edition, pages
Örebro: Örebro university, 2016. 101 p.
Series
Örebro Studies in Medicine, ISSN 1652-4063 ; 131
Keyword
Burnout, long-term stress, parents, children, chronic illness, T1DM, IBD, intervention group
National Category
Family Medicine
Research subject
Family Medicine
Identifiers
urn:nbn:se:oru:diva-47391 (URN)978-91-7529-116-1 (ISBN)
Public defence
2016-02-19, Universitetssjukhuset, Wilandersalen, Södra Grev Rosengatan, Örebro, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2016-01-13 Created: 2016-01-13 Last updated: 2017-10-17Bibliographically approved

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