oru.sePublikationer
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Treatment with botulinum toxin in children with cerebral palsy: a qualitative study of parents' experiences
Child and Youth Habilitation Centre, Region Örebro County, Örebro, Sweden.
Örebro University, School of Health Sciences.ORCID iD: 0000-0002-6768-5740
2016 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 42, no 4, 494-502 p.Article in journal (Refereed) Published
Abstract [en]

Background: In children with cerebral palsy everyday movements such as walking, standing and using one's hands can be difficult to perform because of spasticity. Botulinum neurotoxin type A (BoNT-A) are often used to reduce spasticity. The aim of this study was to describe how parents of children with cerebral palsy experienced the child's treatment with BoNT-A, how the child was affected by the treatment and how spasticity affected the child.

Methods: A qualitative study in which 15 parents of children (6-13 years old) with cerebral palsy were interviewed about their experiences of the BoNT-A treatment. The children had received several BoNT-A treatments. An interview guide was used with topics: the child's functions before and after the treatment, the outcomes of the treatment and how they valued the BoNT-A treatment. Content analysis was used to analyse the interviews.

Results: The analyses resulted in two themes: 'When softness comes and goes' and 'Both want and do not want'. The reduction of spasticity - softness - was described to promote motor functions, and facilitate the next step in motor development. The children were described as being more active out of their own initiative and having a happier mood. Spasticity, described as stiffness, was described to make walking more strenuous as well as interfering with activities. The BoNT-A injection procedure was perceived as troublesome and painful for the child, and sometimes traumatic for both children and parents.

Conclusions: Treatment with BoNT-A was described as facilitating motor development and activity. The children's and the parents' negative experiences of the injection procedure should be addressed.

Place, publisher, year, edition, pages
Wiley-Blackwell Publishing Inc., 2016. Vol. 42, no 4, 494-502 p.
Keyword [en]
Botulinum toxin, cerebral palsy, experiences, parents, qualitative study, spasticity
National Category
Pediatrics Psychology
Identifiers
URN: urn:nbn:se:oru:diva-50388DOI: 10.1111/cch.12350ISI: 000380903900006PubMedID: 27198886Scopus ID: 2-s2.0-84973497834OAI: oai:DiVA.org:oru-50388DiVA: diva2:931739
Note

Funding Agency:

Centre for Rehabilitation Research, Region Örebro County

Available from: 2016-05-30 Created: 2016-05-24 Last updated: 2016-09-20Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full textPubMedScopus

Search in DiVA

By author/editor
Forsberg, Anette
By organisation
School of Health Sciences
In the same journal
Child Care Health and Development
PediatricsPsychology

Search outside of DiVA

GoogleGoogle Scholar

Altmetric score

Total: 175 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf