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  • 1.
    Abdi, Yasmin
    Örebro University, School of Health Sciences.
    Tinnitus i relation till livskvalité: En jämförande studie mellan personer med normal hörsel och personer med hörselnedsättning2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2.
    Abu-Zidan, Fikri M.
    et al.
    Department of Surgery, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    Östlundh, Linda
    National Medical Library, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    The nature and consequences of camel-related injuries: Is this a scoping review?2022In: Injury, ISSN 0020-1383, E-ISSN 1879-0267, Vol. 53, no 7, p. 2693-2693Article in journal (Refereed)
  • 3.
    Adaszak, Sofie
    et al.
    Örebro University, School of Health Sciences.
    Gustafsson, Johanna
    Örebro University, School of Health Sciences.
    Källström, Åsa
    Örebro University, School of Behavioural, Social and Legal Sciences.
    Holmefur, Marie
    Örebro University, School of Health Sciences.
    Farias Vera, Lisette
    DepaKarolinska Institutet, Stockholm, Sweden.
    Navigating barriers and facilitators to support victims of violence in a close relationship with cognitive disability: Social workers´ perspectives2023Conference paper (Other academic)
    Abstract [en]

    The risk of violence in close relationships is higher for people with cognitive disabilities than in the general population. This is due to social isolation, and physical or financial dependence on others in everyday activities. To enable adequate protection for these victims, social workers need to take decisions and provide support that is based on knowledge about both violence and disability-related needs. By contrast, people with cognitive disabilities are de facto less likely to be provided with support adapted to their needs. Therefore, this study explores how social workers navigate barriers and facilitating aspects to support victims of violence with cognitive disabilities.Data were collected in individual interviews with 18 social workers, and analysed using content analysis. The inclusion criteria were 3 years or more experience in identifying and/or assessing exposure to violence in close relationships among people with cognitive disabilities.

    The emerging categories illustrate how social workers face dilemmas when navigating the balance between individuals’ rights for self-determination and complex needs for protection and support. The policies that frame social workers' practice in Sweden are discussed in relation to the need for flexible interventions and accessible support based on interprofessional collaboration related to violence and cognitive disability. The categories also problematize the power dynamics involved and how different actors’ experiences, values, and power influence the support process. The different actors involved add to the complexity that social workers need to navigate.

    This presentation focus on how social workers' practice is governed and hindered by policy, a focus on individuals' rights for self-determination, and the need to support and protect a group that may have difficulties to identify both violence and their needs for support.

  • 4.
    Ahn, Song-ee
    et al.
    Department of Behavioural Sciences and Learning, Linköping University, Linköping, Sweden.
    Edelbring, Samuel
    Örebro University, School of Health Sciences.
    Designing a virtual patient as an interprofessional enactment: lessons learnt from the process2020In: International Journal of Learning Technology, ISSN 1477-8386, E-ISSN 1741-8119, Vol. 15, no 3, p. 204-218Article in journal (Refereed)
    Abstract [en]

    This study is based on observations of the design process of a virtual patient (VP), which aimed to facilitate interprofessional learning. By following the design process of this particular VP, this study aimed to trace how different practices and the knowledge within these practices were enacted as a VP and to understand the design team's difficulties and challenges. Drawing upon actor-network theory (ANT), the study demonstrates how technology and various practices in healthcare and education were enrolled to build the VP and the different translations that took place during the process. We discuss the results by reflecting on the intertwined relationship among the different enactments of a patient in the different professional practices, the enactment of pedagogical intentions and the role of technology in the design process.

  • 5.
    Algilani, Samal
    Örebro University, School of Health Sciences.
    To be at one's best: The evolution of Optimal Functionality and its possible implementation in an ICT-platform2016Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    At the Nutrition and Physical Activity Research Centre for Optimal Health and Functionality through Life (NUPARC), a research gap was uncovered regarding the concept optimal functionality based on the older adult’s own perspective. The overall aim was to explore the concept of optimal functionality among older adults and the possibility of creating and developing an ICT-platform to measure it. Method: An existing cohort from NUPARC was used for recruitment in studies I-III and to some extent study IV. A scoping study design and framework was adopted for the inclusion of the articles in Study I. Study II had a descriptive design. Six focus group discussions were conducted and analysed using qualitative deductive content analysis to extend the qualitative understanding. Study III used a phenomenological approach describing the experience of mental health and its impact on the ability to function as optimally as possible. Six interviews were analysed using Giorgi’s phenomenological approach. Study IV was a feasibility study and included 8 older adults using an ICTplatform for a period of four weeks. Results: Optimal Functionality comprises three major corner stones: Body-related factors, Self-related factors and External factors (I) accompanied by nine aspects, and according to older adults it is a matter of functioning as optimally as possible (II). The three major cornerstones are intricately linked and all but the mental aspects were included in the discussions (II). Life situations affecting mental health, consequences of mental health and strategies for maintaining good mental health were described by older adults as having an impact on mental health and affecting their ability to function as optimally as possible (III). The older adults managed the usage of an ICT-tool well and it was perceived as meaningful (IV). Conclusion: Optimal functionality is holistic, subjective, dynamic and applicable to all older adults. Identification of the factors involved can help the older adults on their path to health. An ICT-platform can facilitate the identification of the factors for optimal functionality and the eventual measurement of it.

    List of papers
    1. Exploring the concept of optimal functionality in old age
    Open this publication in new window or tab >>Exploring the concept of optimal functionality in old age
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    2014 (English)In: Journal of Multidisciplinary Healthcare, ISSN 1178-2390, E-ISSN 1178-2390, Vol. 7, p. 69-79Article, review/survey (Refereed) Published
    Abstract [en]

    BACKGROUND: Aging is characterized by loss of function and represents a perspective that puts the focus on the negative aspects of aging. Thus, it is fundamental to shift the focus from loss of function to maintaining good health and personal satisfaction through life; in other words, to promote optimal functionality at a level appropriate for older adults. However, it is not yet known what constitutes optimal functionality from the older adult's own perspective.

    OBJECTIVE: To explore the concept of optimal functionality in old age from the older adult's perspective (ie, people over 65 years of age) in industrialized Western countries.

    METHODS: We undertook a scoping review and searched two electronic databases (PubMed and the Cumulative Index to Nursing and Allied Health Literature [CINAHL]) from January 2002 to July 2013 for scientific studies, using the key search term personal satisfaction. In total, 25 scientific studies were analyzed.

    RESULTS: Only six of the included articles applied a qualitative methodology. By analyzing the results of these articles, three major themes were identified as cornerstones in the concept of optimal functionality at old age: 1) self-related factors (eg, mental well-being); 2) body-related factors (eg, physical well-being); and 3) external factors equal to demographic and environmental factors.

    CONCLUSION: There is a lack of qualitative studies in the current literature, and hence of what constitutes optimal functionality from the older adult's perspective. The results outlined in this review identify three cornerstones (self-related factors, body-related factors, and external factors) of what constitutes optimal functionality at old age. However, it is vital that these findings are taken further and are evaluated through qualitative studies to reflect older adults' opinions.

    Place, publisher, year, edition, pages
    Dove Medical Press, 2014
    Keywords
    optimal functionality, aging, personal satisfaction
    National Category
    Nursing
    Research subject
    Medicine; Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-33866 (URN)10.2147/JMDH.S55178 (DOI)24516333 (PubMedID)2-s2.0-84893293812 (Scopus ID)
    Available from: 2014-02-20 Created: 2014-02-20 Last updated: 2024-01-03Bibliographically approved
    2. Increasing the qualitative understanding of optimal functionality in older adults: a focus group based study
    Open this publication in new window or tab >>Increasing the qualitative understanding of optimal functionality in older adults: a focus group based study
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    2016 (English)In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 16, no 1, article id 70Article in journal (Refereed) Published
    Abstract [en]

    Background: Decreased independence and loss of functional ability are issues regarded as inevitably connected to old age. This ageism may have negative influences on older adults' beliefs about aging, making it difficult for them to focus on their current ability to maintain a good health. It is therefore important to change focus towards promoting Optimal Functionality (OF). OF is a concept putting the older adult's perspective on health and function in focus, however, the concept is still under development. Hence, the aim was to extend the concept of optimal functionality in various groups of older adults.

    Methods: A qualitative study was conducted based on focus group discussions (FGD). In total 6 FGDs were performed, including 37 older adults from three different groups: group 1) senior athletes, group 2) free living older adults, group 3) older adults living in senior living homes. All data was transcribed verbatim and analyzed following the process of deductive content analysis.

    Results: The principal outcome of the analysis was "to function as optimally as you possibly can", which was perceived as the core of the concept. Further, the concept of OF was described as multifactorial and several new factors could be added to the original model of OF. Additionally the findings of the study support that all three cornerstones comprising OF have to occur simultaneously in order for the older adult to function as optimal as possible.

    Conclusions: OF is a multifaceted and subjective concept, which should be individually defined by the older adult. This study further makes evident that older adults as a group are heterogeneous in terms of their preferences and views on health and should thus be approached as such in the health care setting. Therefore it is important to promote an individualized approach as a base when caring for older adults.

    Place, publisher, year, edition, pages
    London, United Kingdom: BioMed Central, 2016
    Keywords
    Older adults, optimal functionality, person centered care, focus group discussions
    National Category
    Geriatrics
    Research subject
    Geriatrics
    Identifiers
    urn:nbn:se:oru:diva-49605 (URN)10.1186/s12877-016-0244-z (DOI)000372822200002 ()27007861 (PubMedID)2-s2.0-84966415363 (Scopus ID)
    Funder
    Knowledge Foundation, 20110225
    Note

    Funding Agencies:

    Olle Engkvist Byggmästare Foundation

    Faculty of Medicine and Health at Örebro University

    Available from: 2016-04-02 Created: 2016-04-02 Last updated: 2023-12-08Bibliographically approved
    3. Mental health as a prerequisite for functioning as optimally as possible in old age: a phenomenological approach
    Open this publication in new window or tab >>Mental health as a prerequisite for functioning as optimally as possible in old age: a phenomenological approach
    Show others...
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-50048 (URN)
    Available from: 2016-04-29 Created: 2016-04-29 Last updated: 2017-10-17Bibliographically approved
    4. An interactive ICT-platform for early assessment and management of patient-reported concerns among older adults living in Ordinary Housing: Development and Feasibility
    Open this publication in new window or tab >>An interactive ICT-platform for early assessment and management of patient-reported concerns among older adults living in Ordinary Housing: Development and Feasibility
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-50049 (URN)
    Available from: 2016-04-29 Created: 2016-04-29 Last updated: 2017-10-17Bibliographically approved
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  • 6.
    Algilani, Samal
    et al.
    Örebro University, School of Health Sciences.
    Langius-Ekelöf, Ann
    Karolinska Institutet, Stockholm, Sweden.
    Kihlgren, Annica
    Örebro University, School of Health Sciences.
    Blomberg, Karin
    Örebro University, School of Health Sciences.
    An interactive ICT-platform for early assessment and management of patient-reported concerns among older adults living in Ordinary Housing: Development and FeasibilityManuscript (preprint) (Other academic)
  • 7.
    Algilani, Samal
    et al.
    Örebro University, School of Health Sciences.
    Östlund-Lagerström, Lina
    Örebro University, School of Medical Sciences.
    Kihlgren, Annica
    Örebro University, School of Health Sciences.
    Schoultz, Ida
    Örebro University, School of Medical Sciences.
    Schröder, Agneta
    Örebro University, School of Health Sciences.
    Mental health as a prerequisite for functioning as optimally as possible in old age: a phenomenological approachManuscript (preprint) (Other academic)
  • 8.
    Alm, Fredrik
    Örebro University, School of Health Sciences.
    Postoperative recovery in children after tonsil surgery: with a focus on pain and pain management from the child's, caregivers', and professionals' perspectives2021Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Tonsil surgery is one of the most common surgical procedures in children. Although there are several health benefits associated with this surgery, the recovery can be challenging. The overall aim of this thesis was to explore varied perspectives of the recovery process following pediatric tonsil surgery, with a focus on postoperative pain and pain management at home. Study I used data from the National Tonsil Surgery Register in Sweden (n=32,225) to investigate factors affecting pain after pediatric tonsil surgery. Age, surgical method, and indication for surgery influenced the outcome of the patient-reported pain-related outcome measures. In Study II, children (n=299) and their caregiver(s) filled in a diary containing age-appropriate instruments, up to 12 days postoperatively. Data were then analyzed to explore the severity and duration of postoperative pain, the management of analgesics, and postoperative recovery. Children and caregivers reported significant pain for several days, along with a range of physical symptoms and impact on daily activities and emotional state. There was a lack of regular administration of analgesics in the home, particularly during late evening and night. In Study III, interviews with children (n=20) and their caregivers were performed to explore experiences and management of postoperative recovery at home. The results showed that the families struggled to establish resilience during the challenging recovery. The families used both pharmacological and complementary strategies to manage this period. Some families reported insufficient analgesia in preventing breakthrough pain, a lack of preparedness, inadequate information, and insufficient support from the healthcare. In Study IV, nurses and physicians (n=139) from Swedish ear, nose, and throat departments (n=48) responded to a questionnaire covering their opinions of and adherence to the Swedish guidelines for the treatment of pain in pediatric tonsil surgery. In accordance with the guidelines, the departments provided instructions for a multimodal analgesic regimen to manage pain in the home after tonsil surgery. Still, differences were noted between the departments regarding doses and routines around rescue analgesics. Overall, the experience of pain was significant, and often complex to manage. Besides pain, the postoperative period included several troublesome experiences for which neither the children nor the caregivers were informed or prepared. These findings offer knowledge to multidisciplinary teams which can help them improve the support they give to families and increase the child’s participation during the recovery process after tonsil surgery.

    List of papers
    1. Patient reported outcome of pain after tonsil surgery: An analysis of 32,225 children from the National Tonsil Surgery Register in Sweden 2009-2016
    Open this publication in new window or tab >>Patient reported outcome of pain after tonsil surgery: An analysis of 32,225 children from the National Tonsil Surgery Register in Sweden 2009-2016
    2017 (English)Conference paper, Poster (with or without abstract) (Refereed)
    Abstract [en]

    Tonsil surgery is common surgical procedure in children and cause significant pain under postoperative recovery. The objective of this register study was to explore factors affecting pain after pediatric tonsil surgery, using patient-reported outcomes from questionnaires in the National Tonsil Surgery Registry in Sweden, 30 days after surgery. A total of 32,225 tonsil surgeries on children (aged 1-18 years) during January 2009- November 2016 were included; 13,904 tonsillectomies with or without adenoidectomy (TE±A) and 18,321 tonsillotomies with or without adenoidectomy (TT±A). In surgery cases of indication obstruction, the TT±A stopped taking painkillers and returned to normal eating habits sooner, and had less contact with health care services due to pain, compared to TE±A. After TE±A, the indication infection group had more days on analgesics and more contacts with health care services due to pain, compared to the indication obstruction group. TE±A with cold-dissection technique resulted in fewer days on painkillers compared to warm-technique, and reduced the number of contacts with health care services due to pain. Older children were affected by more days of morbidity than the younger ones, but there was no gender difference after adjustment for age, dissection technique and hemostasis technique. Implementation of national guidelines for pain treatment (2013) and patient information on the website tonsilloperation.se seems to have increased the days on analgesics after surgery. Pain after tonsil surgery depends on the surgical procedure and technique, as well as factors such as the patient’s age and surgical indication. More studies including pain interventions are needed to improve the care of tonsillectomy patients.

    National Category
    Surgery Otorhinolaryngology Nursing
    Research subject
    Caring Sciences w. Medical Focus; Oto-Rhino-Laryngology; Anaesthesiology
    Identifiers
    urn:nbn:se:oru:diva-58197 (URN)
    Conference
    Nordic Pediatric Pain Symposium 2017, Stockholm, Sweden, March 30-31, 2017
    Available from: 2017-06-22 Created: 2017-06-22 Last updated: 2021-05-18Bibliographically approved
    2. Postoperative pain, pain management, and recovery at home after pediatric tonsil surgery
    Open this publication in new window or tab >>Postoperative pain, pain management, and recovery at home after pediatric tonsil surgery
    2021 (English)In: European Archives of Oto-Rhino-Laryngology, ISSN 0937-4477, E-ISSN 1434-4726, Vol. 278, p. 451-461Article in journal (Refereed) Published
    Abstract [en]

    PURPOSE: To explore the severity and duration of postoperative pain, the management of analgesics, and postoperative recovery in children undergoing tonsil surgery.

    METHOD: Participants included 299 children aged 4-17 years undergoing tonsillotomy ± adenoidectomy (TT ± A) or tonsillectomy ± adenoidectomy (TE ± A). Data were collected up to 12 days. The child rated pain on the Face Pain Scale-Revised (FPS-R) and recovery using the Postoperative Recovery in Children (PRiC) questionnaire. Caregivers assessed their child's pain, anxiety, and nausea on a numeric analog scale and kept a log of analgesic administration.

    RESULTS: High pain levels (FPS-R ≥ 4) were reported in all surgical and age groups (TT ± A age 4-11, TE ± A age 4-11, TE ± A age 12-17), but there were variations in pain intensity and duration within and between groups. The TE ± A group scored more days with moderate to very excruciating pain and lower recovery than the TT ± A group, with the worst outcomes reported by older TE ± A children. The majority of the children used paracetamol + COX-inhibitors at home, but regular administration of analgesics was lacking, particularly during late evening and at night. Few were received rescue medication (opioid or clonidine) despite severe pain. Physical symptoms and daily life activities were affected during the recovery period. There was moderate agreement between child and the caregiver's pain assessment scores.

    CONCLUSION: Children reported a troublesome recovery with significant postoperative pain, particularly older children undergoing tonsillectomy. Pain treatment at home was suboptimal and lacked regular analgesic administration. Patient information needs to be improved regarding the importance of regular administration of analgesics and rescue medication.

    Place, publisher, year, edition, pages
    Springer, 2021
    Keywords
    Analgesics, Morbidity, Pain, Pain management, Pediatric, Postoperative recovery, Tonsil surgery, Tonsillectomy, Tonsillotomy
    National Category
    Pediatrics Otorhinolaryngology
    Identifiers
    urn:nbn:se:oru:diva-86089 (URN)10.1007/s00405-020-06367-z (DOI)000572863900002 ()32980893 (PubMedID)2-s2.0-85091606845 (Scopus ID)
    Note

    Funding Agencies:

    Örebro University  

    Research Committee at Region Örebro County, Örebro University Hospital Research Foundation, Sweden  

    Research Foundation of Majblomman, Sweden 

    Available from: 2020-09-30 Created: 2020-09-30 Last updated: 2021-05-18Bibliographically approved
    3. Establishment of resilience in a challenging recovery at home after pediatric tonsil surgery: Children’s and caregivers’ perspectives
    Open this publication in new window or tab >>Establishment of resilience in a challenging recovery at home after pediatric tonsil surgery: Children’s and caregivers’ perspectives
    2021 (English)In: Paediatric and Neonatal Pain, ISSN 2379-5824, Vol. 3, no 2, p. 75-86Article in journal (Refereed) Published
    Abstract [en]

    The objective of this study was to explore children's and caregivers' experiences and management of postoperative recovery at home after tonsil surgery. The study had an explorative qualitative design with an inductive approach. Twenty children (5-12 years of age) undergoing tonsillectomy or tonsillotomy with or without adenoidectomy participated along with their caregivers in semi-structured interviews at a mean time of 28 days after surgery. The interviews were analyzed with content analysis. One main category emerged from the interviews: children and caregivers struggle to establish resilience in a challenging recovery. The families' resilience relied on their situational awareness and capacity to act, which in turn formed a basis for the ability to return to normal daily life. Children and caregivers described the recovery as an evident interruption of daily life which had an impact on the children's physical and psychological well-being. Both children and caregivers described the pain as a central concern. The families used different pharmacological and complementary strategies to manage the pain, which in some cases were complex. Some families said that the analgesics were insufficient in preventing breakthrough pain, and spoke about a lack of support as well as inadequate and contradictory information from healthcare staff. Caregivers also expressed uncertainty, ambivalence, or anxiety about the responsibility associated with their child's recovery. To optimize and support the recovery after tonsil surgery, it is crucial to obtain knowledge of children's and caregivers' perspectives of postoperative recovery at home. The results indicate that the postoperative period included several troublesome experiences for which neither the children nor the caregivers were informed or prepared. The experience of pain was significant, and often complex to manage. To increase families' resilience, the information provided by healthcare professionals needs to be broadened. Multidisciplinary teamwork is necessary to achieve this goal.

    Place, publisher, year, edition, pages
    John Wiley & Sons, 2021
    Keywords
    caregivers, child, postoperative pain management, recovery, tonsil surgery
    National Category
    Pediatrics Nursing
    Identifiers
    urn:nbn:se:oru:diva-91848 (URN)10.1002/pne2.12051 (DOI)35547595 (PubMedID)
    Note

    Funding:

    Research Committee at Region Örebro County

    Örebro University Hospital Research Foundation

    Research Foundation of Majblomman

    Available from: 2021-05-18 Created: 2021-05-18 Last updated: 2022-05-16Bibliographically approved
    4. Adherence to Swedish guidelines for pain treatment in relation to pediatric tonsil surgery: A survey of the multidisciplinary team
    Open this publication in new window or tab >>Adherence to Swedish guidelines for pain treatment in relation to pediatric tonsil surgery: A survey of the multidisciplinary team
    2017 (English)In: International Journal of Pediatric Otorhinolaryngology, ISSN 0165-5876, E-ISSN 1872-8464, Vol. 101, p. 123-131Article in journal (Refereed) Published
    Abstract [en]

    Background: Pain management in children after tonsil surgery is essential, and optimal pain treatment has been discussed for many years. Data from the National Tonsil Register in Sweden (NTRS) and a national mapping system have demonstrated the need for national pain treatment guidelines for pediatric tonsil surgery. As a result, Swedish national guidelines, together with updated patient information on the website tonsilloperation.se, were developed and implemented in 2013.

    Objectives The objective of this study was to evaluate the professionals’ opinions of and adherence to pain treatment guidelines for pediatric tonsil surgery patients in a two-year follow-up.

    Method: This descriptive cross-sectional study was based on data from an inter-professional questionnaire, which was validated by an expert group using a content validity index (S-CVI 0.93). The questionnaire was sent to all Swedish ear, nose and throat (ENT) departments (n=49) that the NTRS identified as performing tonsil surgery on children younger than 18 years of age. In each clinic, we asked for responses from staff in each of the following professions: ENT physicians, anesthesia physicians, registered nurse anesthetists, and registered nurses in the ENT departments.

    Results: Respondents from 48 ENT departments participated, and 139/163 (85%) completed questionnaires were returned. The guidelines were reported as being clear, ensuring patient safety and providing optimal pharmacological treatment. Treatment was given according to the guidelines: Half of the departments gave pre- or intraoperative treatment with clonidine, betamethasone and high-dose paracetamol (acetaminophen). A multimodal pain approach (paracetamol and COX inhibitors) after hospital discharge was prescribed by all departments after tonsillectomy and, more extensively, after tonsillotomy. One-third of the departments prescribed paracetamol with a higher normal dose for the first three postoperative days. Half of the departments prescribed rescue analgesics, clonidine or opioids after tonsillectomy. None of the departments prescribed codeine or tramadol, drugs that are discouraged in the guidelines. The majority of the departments used the website tonsilloperation.se to provide information to the patients and their caregivers.

    Conclusion: The respondents' opinions of and the ENT departments adherence to the Swedish national guidelines were considered to be good. The national implementation process in Sweden has impacted the manner in which ENT departments treat pain after tonsil surgery.

    Place, publisher, year, edition, pages
    Elsevier, 2017
    Keywords
    Children, Guidelines, Pain Management, Tonsillectomy, Tonsillotomy
    National Category
    Otorhinolaryngology Pediatrics
    Research subject
    Caring Sciences w. Medical Focus; Oto-Rhino-Laryngology; Anaesthesiology
    Identifiers
    urn:nbn:se:oru:diva-59058 (URN)10.1016/j.ijporl.2017.07.040 (DOI)000413713100022 ()28964282 (PubMedID)2-s2.0-85026786151 (Scopus ID)
    Projects
    Effective postoperative pain management in children after tonsil surgery: barriers and possible solutions
    Note

    Funding agencies:

    Research Committee at Region Örebro County

    Örebro University Hospital Research Foundation OLL674631

    Available from: 2017-08-07 Created: 2017-08-07 Last updated: 2021-05-24Bibliographically approved
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  • 9.
    Amer, Ahmed
    Örebro University, School of Health Sciences.
    Cross-cultural adaptation and psychometric properties of two questionnaires for the assessment of occupational performance in children with disability: Children's Hand-use Experience Questionnaire (CHEQ) and Pediatric Evaluation of Disability Inventory (PEDI)2021Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Globally, 93–150 million children live with some form of disability, most of them live in developing countries. Occupational performance describes a person’s ability to execute tasks that are meaningful, in the context in which the person lives. The Children’s Hand-use Experience Questionnaire (CHEQ) and the Pediatric Evaluation of Disability Inventory (PEDI) are measurement tools developed to measure different aspects of occupational performance. However, before using these tools in another cultural context, evidence of validity in that context should be established.

    The overall aim of this thesis was to investigate the evidence of validity for CHEQ and the Uganda version of PEDI (PEDI-UG).

    Study I established the validity of revised CHEQ 1.0 for children with unilateral cerebral palsy (CP). The study suggested improvements and inclusion of younger children. This led to the development of CHEQ 2.0, which was culturally adapted and validated for Jordan in Study II. Study III indicated that PEDI-UG had good psychometric properties when tested on typically developing children, and it suggested improvements and further analysis in children with disability. Therefore, study IV investigated the psychometric properties on Ugandan children with CP and confirmed the instrument’s validity. However, the differential item functioning analysis comparing children with CP and typically developing children, and the developmental trajectories for both groups, suggested that a separate conversion table should be used to transform the total sum score from raw scores to a 0–100 scaled score. This thesis shows the importance of cultural adaptations and psychometric validation of measurement tools before they can be used in new cultural contexts. The Arabic CHEQ 2.0and PEDI-UG can be used in the evaluation of rehabilitation interventions and will help to fill the need for measurement tools in these countries.

    List of papers
    1. Validity and test-retest reliability of Children's Hand-use Experience Questionnaire in children with unilateral cerebral palsy
    Open this publication in new window or tab >>Validity and test-retest reliability of Children's Hand-use Experience Questionnaire in children with unilateral cerebral palsy
    2016 (English)In: Developmental Medicine & Child Neurology, ISSN 0012-1622, E-ISSN 1469-8749, Vol. 58, no 7, p. 743-749Article in journal (Refereed) Published
    Abstract [en]

    Aim: To investigate the validity of the internet-based version of the Children's Hand-use Experience Questionnaire (CHEQ) by testing the new four-category rating scale, internal structure, and test-retest reliability.

    Method: Data were collected for 242 children with unilateral cerebral palsy (CP) (137 males and 105 females; mean age 9y 10mo, SD 3y 5mo, range 6-18y). Twenty children from the study sample (mean age 11y 8mo, SD 3y 10mo) participated in a retest within 7 to 14 days. Validity was tested by Rasch analysis based on a rating scale model and test-retest reliability by Kappa analysis and intraclass correlation coefficient (ICC).

    Results: The four-category rating scale was within recommended criteria for rating scale structure. One item was removed because of misfit. CHEQ showed good scale structure according to the criteria. The effective operational range was >90% for two of the CHEQ scales. Test-retest reliability for the three CHEQ scales was: grasp efficacy, ICC=0.91; time taken, ICC=0.88; and feeling bothered, ICC=0.91.

    Interpretation: The internet-based CHEQ with a four-category rating scale is valid and reliable for use in children with unilateral CP. Further studies are needed to investigate the validity of the internet-based version of CHEQ for children with upper limb reduction deficiency or obstetric brachial plexus palsy and the validity of the recommended improvements to the current version.

    Place, publisher, year, edition, pages
    Wiley-Blackwell, 2016
    Keywords
    CHEQ, Validity, Test-retest reliability, Rasch
    National Category
    Neurology Pediatrics
    Research subject
    Neurology; Pediatrics
    Identifiers
    urn:nbn:se:oru:diva-47181 (URN)10.1111/dmcn.12991 (DOI)000382854000024 ()26610725 (PubMedID)2-s2.0-84975136147 (Scopus ID)
    Funder
    Swedish Research Council, 521-211-2655 521-2011-456
    Note

    Funding Agencies:

    Stiftelsen Frimurarna Barnhuset

    Centre for Rehabilitation Research, Region Örebro County

    Available from: 2015-12-21 Created: 2015-12-21 Last updated: 2021-05-21Bibliographically approved
    2. Cross-cultural Adaptation and Validation of the Arabic Version of Children’s Hand-use Experience Questionnaire (CHEQ)
    Open this publication in new window or tab >>Cross-cultural Adaptation and Validation of the Arabic Version of Children’s Hand-use Experience Questionnaire (CHEQ)
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    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-91643 (URN)
    Available from: 2021-05-06 Created: 2021-05-06 Last updated: 2021-05-24Bibliographically approved
    3. The Ugandan version of the Pediatric Evaluation of Disability Inventory (PEDI-UG). Part II: Psychometric properties
    Open this publication in new window or tab >>The Ugandan version of the Pediatric Evaluation of Disability Inventory (PEDI-UG). Part II: Psychometric properties
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    2018 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 44, no 4, p. 562-571Article in journal (Refereed) Published
    Abstract [en]

    Background: The Pediatric Evaluation of Disability Inventory (PEDI) has been recommended as a gold standard in paediatric rehabilitation. A Ugandan version of PEDI (PEDI-UG) has been developed by culturally adapting and translating the original PEDI. The aim of this study was to investigate the psychometric properties of the PEDI-UG in Ugandan children by testing the instrument's rating scale functioning, internal structure, and test-retest reliability.

    Methods: Two hundred forty-nine Ugandan children (125 girls) aged 6 months to 7.5 years (Mean = 3.4, SD = 1.9) with typical development were tested using the PEDI-UG. Forty-nine children were tested twice to assess test-retest reliability. Validity was investigated by Rasch analysis and reliability by intraclass correlation coefficient.

    Results: The PEDI-UG domains showed good unidimensionality based on principal component analysis of residuals. Most activities (95%) showed acceptable fit to the Rasch model. Six misfit items were deleted from the Functional Skills scales and one from the Caregiver Assistance scales. The category steps on the Caregiver Assistance scales' rating scale were reversed but functioned well when changed from a 6-point to 4-point rating scale. The reliability was excellent; intraclass correlation coefficient was 0.87-0.92 for the domains of the Functional Skills scales and 0.86-0.88 for the domains of the Caregiver Assistance scales.

    Conclusion: The PEDI-UG has good to excellent psychometric properties and provides a valid measure of the functional performance of typically developing children from the age of 6 months to 7.5 years in Uganda. Further analysis of all items, including misfit and deleted items, in children with functional disability is recommended.

    Place, publisher, year, edition, pages
    John Wiley & Sons, 2018
    Keywords
    children, disability, PEDI, Uganda, validation studies
    National Category
    Pediatrics Psychology (excluding Applied Psychology)
    Identifiers
    urn:nbn:se:oru:diva-65823 (URN)10.1111/cch.12562 (DOI)000435441700007 ()29532497 (PubMedID)2-s2.0-85043570914 (Scopus ID)
    Funder
    Sida - Swedish International Development Cooperation AgencySwedish Research Council, 5925
    Note

    Funding Agencies:

    Frimurare Barnhus Foundation  

    African Population and Health Research Center (APHRC)  

    International Development Research Center (IDRC)  

    Ford Foundation  

    Karolinska Institutet  

    Belgian Technical Cooperation (BTC)  L07UGA023 

    Available from: 2018-03-15 Created: 2018-03-15 Last updated: 2021-05-21Bibliographically approved
    4. Validity and test-retest reliability of the Ugandan version of the Pediatric Evaluation of Disability Inventory (PEDI-UG) in children and youth with cerebral palsy
    Open this publication in new window or tab >>Validity and test-retest reliability of the Ugandan version of the Pediatric Evaluation of Disability Inventory (PEDI-UG) in children and youth with cerebral palsy
    Show others...
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-91644 (URN)
    Available from: 2021-05-06 Created: 2021-05-06 Last updated: 2021-05-21Bibliographically approved
    Download full text (pdf)
    Cross-cultural adaptation and psychometric properties of two questionnaires for the assessment of occupational performance in children with disability: Children's Hand-use Experience Questionnaire (CHEQ) and Pediatric Evaluation of Disability Inventory (PEDI)
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  • 10.
    Amer, Ahmed
    et al.
    Örebro University, School of Health Sciences. University Health Care Research Centre.
    Alomari, Mahmoud
    Department of Physical Education, Qatar University, Doha, Qatar; Division of Physical Therapy, Department of Rehabilitation Sciences, Jordan University of Science and Technology, Irbid, Jordan.
    Hermansson, Liselotte
    Örebro University, School of Health Sciences. University Health Care Research Centre.
    Eliasson, Ann-Christin
    Karolinska Institutet, Stockholm, Sweden.
    Jarl, Gustav
    Örebro University Hospital. Örebro University, School of Health Sciences. University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Department of Prosthetics and Orthotics, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Cross-cultural Adaptation and Validation of the Arabic Version of Children’s Hand-use Experience Questionnaire (CHEQ)Manuscript (preprint) (Other academic)
  • 11.
    Amer, Ahmed
    et al.
    Örebro University, School of Health Sciences. University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Department of Prosthetics and Orthotics, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Hermansson, Liselotte
    Örebro University, School of Health Sciences. Örebro University Hospital. University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Department of Prosthetics and Orthotics, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Jarl, Gustav
    Örebro University Hospital. Örebro University, School of Health Sciences. University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Department of Prosthetics and Orthotics, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Andrews, C.
    Paediatric Neurology, Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden.
    Kakooza-Mwesige, A.
    Paediatric Neurology, Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden; Department of Pediatrics and Child Health, Makerere University, Kampala, Uganda.
    Eliasson, Ann-Christin
    Paediatric Neurology, Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden.
    Validity and test-retest reliability of the Ugandan version of the Pediatric Evaluation of Disability Inventory (PEDI-UG) in children and youth with cerebral palsyManuscript (preprint) (Other academic)
  • 12.
    Anderzen-Carlsson, Agneta
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Knowledge, skills and information needs on older residents’ hearing loss and hearing aids: Translation and adaptation of a Norwegian instrument2020Conference paper (Refereed)
  • 13.
    Anderzen-Carlsson, Agneta
    et al.
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Bergström, Mattias
    Mäkki-Torkko, Elina
    Carlsson, Per-Inge
    Örebro University, School of Medical Sciences.
    Bjuresäter, Kaisa
    Knowledge, skills and information needs on older residents’ hearing loss and hearing aids: Translation and adaptation of a Norwegian instrument2022Conference paper (Refereed)
    Abstract [en]

    Objective: The objective with the project is to find a valid and culturally appropriate instrument for measuring the professionals' knowledge, skills and information needs on older residents’ hearing loss and hearing aids. Such an instrument could optimally be used in clinical praxis, as well as in research, for cross-sectional studies and for measuring change related to educational interventions.

    Materials: The Norwegian instrument Knowledge, skills and information needs on residents’ hearing loss and hearing aids was identified in the literature. Its content was, by the research group regarded as relevant in a Swedish setting, although some cultural adaptations seemed to be necessary.

    Methods: The translation and cultural adaptations were performed in line with the International Society For Pharmacoeconomics and Outcomes Research (ISPOR) Task Force For Translation and Cultural Adapation, as outlined below:

    1. We first asked one of the original authors for permission to translate the instrument.

    2. Two of the authors (KB and MB) individually translated the content of the instrument. Their first language is Swedish, but both are familiar with the Norwegian language.

    3. The other authors individually and together checked the translations and judged whether the statements were comprehensible in Swedish, and made necessary cultural adaptations. For example, the nursing home settings, and job types within this sector are not identical in the two countries.

    4. An independent person, with knowledge of both Swedish and Norwegian (Norwegian being the first language), but with no previous knowledge of the instrument made a back-translation. This person had good knowledge of the setting, being a professor in geriatrics.

    5. The authors compared the original version of the instrument with the back-translated version and discussed some inconsistences with the first author of the original instrument, before we all agreed on a first preliminary Swedish version.

    6. 12 professionals having audiological competence, experience of nursing older people or teaching in nursing piloted the first preliminary Swedish version. They suggested some reformulations of questions and responses, which were discussed and decided on within the research group.

    7. The next step is to test the preliminary Swedish version of the instrument, which will take place during the winter of 2019-2020. A sample of professionals working in different nursing homes in two Swedish counties will be invited to participate. The plan is to include 400 professionals. The sample size is based on an optimal sample for performing a factor analysis as part of the assessment of the psychometric properties of the preliminary Swedish version. It also allows cross-sectional sub-analyses, based on different groups of professionals and level of nursing home.

    8. The project will be presented in a scientific journal, and used in a future intervention study. The instrument can also be used in clinical improvement work.

    Conclusion: The results are promising. To the best of our knowledge, there is no Swedish instrument available for measuring professionals' knowledge, skills and information needs on older residents’ hearing loss and hearing aids. It seems necessary to have such an instrument, as the number of older people increases in Sweden, as well as worldwide. Impaired hearing, as well as assistive needs increase with age, and thus it is of great importance to ensure that professionals working with older people have sufficient knowledge to assist them.

  • 14.
    Anderzen-Carlsson, Agneta
    et al.
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Huus, Karina
    Wahlqvist, Moa
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Björk, Maria
    Health related quality of life, family climate and sense of coherence in family members in families where a parent has deafblindness2020Conference paper (Refereed)
  • 15.
    Anderzen-Carlsson, Agneta
    et al.
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Huus, Karina
    Wahlqvist, Moa
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Björk, Maria
    The experience of family life when one parent has deafblindness: the partner’s perspective2020Conference paper (Refereed)
  • 16.
    Anderzén-Carlsson, Agneta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Audiological Research Centre, Region Örebro County, Örebro University Hospital, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro, Sweden.
    CHARGE syndrome: a five case study of the syndrome characteristics and health care consumption during the first year in life2015In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 30, no 1, p. 6-16Article in journal (Refereed)
    Abstract [en]

    CHARGE syndrome is characterized by impaired vision and hearing, as well as physical malformations. The aim of this study is to describe the characteristics of the malformations and the health care consumption during the first year, in a Swedish sample having CHARGE syndrome. Three of the five individuals fulfilled all the traditional criteria for a clinical diagnosis of CHARGE syndrome. All infants were hospitalized from 26 to 230. days, subjected to 10-34 different diagnostic procedures and prescribed 10-28 different medications during their first year. Coordinated and individually adapted care is urged, as these infants and their families are in of need multiple health care contacts.

  • 17.
    Arnell, Susann
    Örebro University, School of Health Sciences.
    Participation in physical activity among adolescents with autism spectrum disorder: the perspectives of adolescents, parents and professionals2022Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Findings from previous research show generally lower levels of physical activity (PA) among adolescents with autism spectrum disorder (ASD). The reasons for the low PA participation are complex and depend on several factors, often described as barriers to PA. However, the overall picture concerning participation in PA among adolescents with ASD remains incomplete, as it lacks the adolescents’ own perspectives. The mission to promote healthy PA habits is shared by several actors, including the family or parents and the education, health and municipal services. In order to understand and comprehensively describe these adolescents’ PA participation, different PA contexts and perspectives need to be included. The overall aim of this thesis was therefore to study participation in PA among adolescents with ASD from the adolescents’ (study I), parents’ (study II) and professionals’ (study III) perspectives. The findings from study I showed a conditional participation behaviour in PA among adolescents with ASD. In studies II and III, the results revealed a need to give PA issues increased priority and support through collaborative efforts. Complementary roles are needed to promote participation in PA. In study IV, the feasibility of using a Q-sort tool to map conditions for participation in PA was investigated. The results showed that Q-sort is a feasible method that can be used to offer tailored support according to the adolescents’ individual-specific conditions for participation. In conclusion, a condition-controlled behaviour when participating in PA was described in all four studies. When promoting participation in PA, these individual-specific conditions for participation need to be recognized and tailored support offered. 

    List of papers
    1. Perceptions of Physical Activity Participation Among Adolescents with Autism Spectrum Disorders: A Conceptual Model of Conditional Participation
    Open this publication in new window or tab >>Perceptions of Physical Activity Participation Among Adolescents with Autism Spectrum Disorders: A Conceptual Model of Conditional Participation
    2018 (English)In: Journal of autism and developmental disorders, ISSN 0162-3257, E-ISSN 1573-3432, Vol. 48, no 5, p. 1792-1802Article in journal (Refereed) Published
    Abstract [en]

    Adolescents with an autism spectrum disorder (ASD) are less physically active compared to typically developing peers. The reasons for not being physically active are complex and depend on several factors, which have not been comprehensively described from the adolescent's perspective. Therefore, the aim was to describe how adolescents with an ASD perceive, experience and reflect on their participation in physical activity. Interviews with 24 adolescents diagnosed with high-functioning ASD, aged 12-16 years, were analysed with qualitative content analysis with an inductive approach. They expressed a variety of reasons determining their willingness to participate, which were conceptualized as: Conditional participation in physical activities. The present study presents an alternative perspective on participation in physical activity, with impact on intervention design.

    Place, publisher, year, edition, pages
    New York, NY, USA: Springer, 2018
    Keywords
    Autism spectrum disorder; Adolescent; Physical activity; Participation
    National Category
    Occupational Health and Environmental Health Psychology (excluding Applied Psychology)
    Identifiers
    urn:nbn:se:oru:diva-63403 (URN)10.1007/s10803-017-3436-2 (DOI)000429476300029 ()29236210 (PubMedID)2-s2.0-85037992493 (Scopus ID)
    Note

    Funding Agencies:

    Sunnerdahls Handikappfond  

    Kempe-Carlgrenska fonden  

    Region Örebro County, Sweden 

    Available from: 2017-12-19 Created: 2017-12-19 Last updated: 2022-11-02Bibliographically approved
    2. Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder
    Open this publication in new window or tab >>Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder
    2020 (English)In: Autism, ISSN 1362-3613, E-ISSN 1461-7005, Vol. 24, no 8, p. 2243-2255, article id 1362361320942092Article in journal (Refereed) Published
    Abstract [en]

    The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits, and they possess important knowledge about the adolescents' needs when it comes to enhancing participation in physical activity. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe parents' perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. The interviews were analyzed using an inductive content analysis approach. The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation. Lay abstract What is already known about the topic?The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe the parental perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. What this paper adds?The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. Implications for practice, research, or policy.The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation.

    Place, publisher, year, edition, pages
    Sage Publications, 2020
    Keywords
    adolescent, autism spectrum disorder, family, parent, participation, physical activity
    National Category
    Psychology
    Identifiers
    urn:nbn:se:oru:diva-85046 (URN)10.1177/1362361320942092 (DOI)000552729100001 ()32713182 (PubMedID)2-s2.0-85088439335 (Scopus ID)
    Note

    Funding Agency:

    Region Örebro County, Sweden

    Available from: 2020-08-27 Created: 2020-08-27 Last updated: 2022-11-02Bibliographically approved
    3. Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder
    Open this publication in new window or tab >>Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder
    2022 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, no 9, p. 1728-1736Article in journal (Refereed) Published
    Abstract [en]

    PURPOSE: Various stakeholders contribute to the development of healthy physical activity habits in adolescents with autism spectrum disorder (ASD). Parents and stakeholders seek collaborative actions but little is still known about such efforts. The purpose of this study was thus to explore how professionals from different services experience stakeholder collaboration when promoting participation in physical activity for these adolescents.

    METHOD: Five focus group discussions were held with 17 professionals from education, health care, community, and sports organizations, engaged in the promotion of physical activity in adolescents with ASD. The data were analyzed with qualitative content analysis.

    RESULTS: . The professionals though experienced that this collaboration was hampered by the low priority given to physical activity issues within different organizations, by limited resources, lack of knowledge, and unclear roles.

    CONCLUSIONS: Notwithstanding the professionals' different roles, all agreed that physical activity issues need to be prioritized and that each stakeholder needs to acknowledge the shared responsibility of collaboration. However, more clear routines for collaboration that include joined efforts but also highlight the organization-specific responsibilities might enhance the collaborative efforts.

    • In-depth understanding of both the adolescents' needs and the environments in which physical activity is promoted is required if participation in physical activity among adolescents with ASD is to be enhanced.
    • Families and professionals within different organizations need to be supported to collaborate when mapping and meeting the adolescents' physical activity needs.
    • Issues regarding developing physical activity habits need to be prioritized.
    • Professionals, such as education, health, and community professionals who are important for the promotion of healthy physical activity habits need to be included in multi-stakeholder meetings.
    Place, publisher, year, edition, pages
    Informa Healthcare, 2022
    Keywords
    Autism spectrum disorder, adolescent, collaboration, participation, physical activity
    National Category
    Psychiatry Health Care Service and Management, Health Policy and Services and Health Economy
    Identifiers
    urn:nbn:se:oru:diva-89922 (URN)10.1080/09638288.2021.1887944 (DOI)000620890000001 ()33621137 (PubMedID)2-s2.0-85101405257 (Scopus ID)
    Note

    Funding Agency:

    Region Örebro County, Sweden 

    Available from: 2021-02-25 Created: 2021-02-25 Last updated: 2023-12-08Bibliographically approved
    4. Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorder
    Open this publication in new window or tab >>Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorder
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-100810 (URN)
    Available from: 2022-08-24 Created: 2022-08-24 Last updated: 2022-11-02Bibliographically approved
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  • 18.
    Arnell, Susann
    et al.
    Örebro University, School of Health Sciences. University Health Care Research Center (UFC) Region Örebro County, Örebro, Sweden.
    Jerlinder, K.
    Faculty of Health and Occupational Studies, University of Gävle, Gävle , Sweden.
    Lundqvist, Lars-Olov
    Örebro University, School of Law, Psychology and Social Work. University Health Care Research Center (UFC) Region Örebro County, Örebro, Sweden.
    Participation in physical activities: a multilevel challenge for adolescents with autism spectrum disorders2017Conference paper (Other academic)
    Abstract [en]

    Introduction: Physical inactivity is one of the biggest current public health problems. Few adolescents with autism spectrum disorder (ASD) achieve the recommendation of daily physical activity (PA). The reasons for not being physically active depend on several complex factors, yet not comprehensively described from the adolescents’point of view. The absence of their perspective means that intervention strategies for health enhancing physical activity may not encompass the experiences of the adolescents themselves. Therefore the purpose of this study was to develop an understanding of the perceptions, experiences and reflections of adolescents with ASDs’participation in PA.

    Participants and methods: Twenty-four adolescents, diagnosed with ASD without a co-occurring intellectual disability, aged 12-16 years, participated in the study.Data was collected using qualitative interviews and inductively analyzed using qualitative content analysis.

    Results: Adolescents with ASD were a heterogeneous group in regard to their current PA habits and preferences. Their willingness to participate in PA was conditioned regarding; what, where, when and with whom. They described challenges in the activity and the social context during PA, especially during the mandatory physical education. Perceived demands, freedom of choice, physical ability and sense of control affected their PA participation.

    Conclusion: Findings indicate that the adolescents’willingness to participate was associated with interacting and individual-related conditions, which can be misinterpreted as unwillingness to participate in PA. Thus aspects of autonomy and knowledge about individual conditions and needs have to be recognized when intervention strategies for health enhancing physical activities are planned for this population.

  • 19.
    Arnell, Susann
    et al.
    Örebro University, School of Health Sciences. University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Jerlinder, Kajsa
    Faculty of Health and Occupational Studies, University of Gävle, Gävle, Sweden.
    Lundqvist, Lars-Olov
    Örebro University, School of Health Sciences. The Swedish Institute for Disability Research (SIDR).
    Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorderManuscript (preprint) (Other academic)
  • 20.
    Arvidsson, Jessica
    et al.
    Halmstad University, Halmstad, Sweden.
    Staland-Nyman, Carin
    Halmstad University, Halmstad, Sweden.
    Widén, Stephen
    Örebro University, School of Health Sciences.
    Tideman, Magnus
    Halmstad University, Halmstad, Sweden.
    Sysselsättning för unga med intellektuell funktionsnedsättning: Betydelsen av föräldrars utbildningsnivå och geografiska härkomst2020In: Socialvetenskaplig tidskrift, ISSN 1104-1420, Vol. 27, no 1, p. 25-49Article in journal (Refereed)
  • 21.
    Arvidsson Lindvall, Mialinn
    Örebro University, School of Health Sciences.
    Physiotherapeutic perspectives on balance control after stroke: exercises, experiences and measures2018Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this thesis was to investigate physiotherapeutic perspectives on balance after stroke, in terms of exercises, experiences and measurements. Study I was a pilot randomized controlled trial with 46 persons who had had a stroke, 24 of whom were included in the intervention group and 22 who were included in the control group. The intervention consisted of 8 weeks of body awareness therapy (BAT). There were no significant differences over time between the groups in the outcome measures of balance, walking, self-reported balance confidence and quality of life. Study II had a qualitative design using content analysis. Participants in the intervention group from Study I and the four physiotherapists who had been in charge of the BAT were interviewed. One overall theme emerged: "Simple yet challenging", which was based on six categories. Study III investigated the validity and test-retest reliability of the Six-Spot Step test (SSST), an instrument used to assess the ability to take load on each leg. A cross-sectional design with 81 persons who had had stroke was performed. The convergent validity was strong to moderate, and the test-retest reliability was good. In Study IV a mixed method design including both qualitative and quantitative data collection was used. The participants’ experiences of balance and its influence in everyday life were presented in two themes: "Feeling dizzy and unstable is a continuous challenge" and "Feeling trust and confidence despite dizziness and unsteadiness". Taken together, the different data sets provided complementary and confirmatory information about balance. All participants experienced the balance limitations as a continuous challenge in everyday life, yet they also felt trust and confidence.

    In summary, BAT can be a complement in physiotherapeutic stroke rehabilitation and the SSST can be used as a measuring instrument of walking balance in persons with stroke. Living with balance limitations was experienced as a challenge but the participants were still able to manage their everyday life and activities.

    List of papers
    1. Body awareness therapy in persons with stroke: a pilot randomised controlled trial
    Open this publication in new window or tab >>Body awareness therapy in persons with stroke: a pilot randomised controlled trial
    2014 (English)In: Clinical Rehabilitation, ISSN 0269-2155, E-ISSN 1477-0873, Vol. 28, no 12, p. 1180-1188Article in journal (Refereed) Published
    Abstract [en]

    Objective: To investigate the effects of body awareness therapy on balance, mobility, balance confidence, and subjective health status in persons with stroke.

    Design: A pilot randomized controlled study with follow-up at one and 4–6 weeks after the intervention period.

    Setting: Four primary healthcare centres in Örebro County Council.

    Subjects: Persons more than six months post stroke, with walking ability of 100 metres.

    Intervention: The experimental intervention was body awareness therapy in groups once a week for eight weeks. The controls were instructed to continue their usual daily activities.

    Main measures: Berg Balance Scale, Timed Up and Go Test, Timed Up and Go Test with a cognitive component, 6-minute walk test, and Timed-Stands Test. Self-rated balance confidence was assessed using the Activities-specific Balance Confidence Scale, and subjective health status using the Short Form 36 (SF-36) questionnaire.

    Results: A total of 46 participants were included (mean age 64 years); 24 in the experimental intervention group and 22 in the control group. No significant differences in changed scores over time were found between the groups. Within the experimental intervention group, significant improvements over time was found for the tests Berg Balance Scale, Timed Up and Go cognitive, and 6-minute walk test. Within the control group, significant improvements over time were found for the Timed Up and Go Cognitive, and the Timed-Stands Test.

    Conclusion: In comparison to no intervention, no effects were seen on balance, mobility, balance confidence, and subjective health status after eight weeks of body awareness therapy.

    Place, publisher, year, edition, pages
    Sage Publications, 2014
    Keywords
    Body awareness therapy, postural control, physiotherapy, stroke
    National Category
    Health Sciences Nursing
    Research subject
    Health and Medical Care Research; Rehabilitation Medicine
    Identifiers
    urn:nbn:se:oru:diva-35843 (URN)10.1177/0269215514527994 (DOI)000347118700004 ()24668360 (PubMedID)2-s2.0-84921668455 (Scopus ID)
    Note

    Funding Agencies:

    Swedish Stroke Association

    Norrbacka Eugenia Foundation 803-11

    Research Committee Orebro County Council OLL-227701

    Available from: 2014-08-04 Created: 2014-08-04 Last updated: 2022-11-02Bibliographically approved
    2. Basic Body Awareness Therapy for patients with stroke: Experiences among participating patients and physiotherapists
    Open this publication in new window or tab >>Basic Body Awareness Therapy for patients with stroke: Experiences among participating patients and physiotherapists
    2016 (English)In: Journal of Bodywork & Movement Therapies, ISSN 1360-8592, E-ISSN 1532-9283, Vol. 20, no 1, p. 83-89Article in journal (Refereed) Published
    Abstract [en]

    Background: After a stroke many patients have muscle weakness, spasticity and compromised sensation leading to decreased postural stability. Basic Body Awareness Therapy includes slow movements that challenge postural control.

    Aim: The aim was to describe experiences of 8 weeks of Basic Body Awareness Therapy from the perspective of both patients with stroke and physiotherapists.

    Method: This study had a qualitative design. Twenty-one patients and four physiotherapists were interviewed. The interviews were analysed using manifest and latent content analysis.

    Results: One overall theme emerged "Simple yet challenging" which was based on six categories: "Facing one's limitations", "Individualized movements", "A feeling of harmony", "Improved balance", "Integrated knowledge" and "Frustration and doubt". The patients described improvement in balance and stability, as well as increased wellbeing.

    Conclusion: The patients and physiotherapists related that Basic Body Awareness Therapy challenges balance but also provides an opportunity to reflect on the body.

    Place, publisher, year, edition, pages
    Elsevier, 2016
    Keywords
    Basic Body Awareness Therapy, Physiotherapy, Qualitative study, Stroke
    National Category
    Nursing
    Research subject
    Rehabilitation Medicine
    Identifiers
    urn:nbn:se:oru:diva-52163 (URN)10.1016/j.jbmt.2015.06.004 (DOI)000381689000012 ()26891641 (PubMedID)2-s2.0-84958039596 (Scopus ID)
    Available from: 2016-09-14 Created: 2016-09-14 Last updated: 2022-11-02Bibliographically approved
    3. Validity and test-retest reliability of the Six-Spot Step Test in persons after stroke
    Open this publication in new window or tab >>Validity and test-retest reliability of the Six-Spot Step Test in persons after stroke
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-66907 (URN)
    Available from: 2018-05-09 Created: 2018-05-09 Last updated: 2022-11-02Bibliographically approved
    4. "I can still manage": a mixed-method study of balance after stroke
    Open this publication in new window or tab >>"I can still manage": a mixed-method study of balance after stroke
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-66909 (URN)
    Available from: 2018-05-09 Created: 2018-05-09 Last updated: 2022-11-02Bibliographically approved
    Download full text (pdf)
    Physiotherapeutic perspectives on balance control after stroke: exercises, experiences and measures
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  • 22.
    Arvidsson Lindvall, Mialinn
    et al.
    Örebro University, School of Health Sciences.
    Anderzén-Carlsson, Agneta
    Örebro University, School of Health Sciences. Örebro University Hospital. Karlstad University, Karlstad, Sweden.
    Appelros, Peter
    Department of University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Forsberg, Anette
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Validity and test-retest reliability of the Six-Spot Step Test in persons after strokeManuscript (preprint) (Other academic)
  • 23.
    Arvidsson Lindvall, Mialinn
    et al.
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Appelros, Peter
    University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Forsberg, Anette
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Anderzen-Carlsson, Agneta
    Örebro University, School of Health Sciences. Örebro University Hospital.
    LIVING WITH BALANCE LIMITATIONS AFTER FIRST-EVER STROKE2020In: International Journal of Stroke, ISSN 1747-4930, E-ISSN 1747-4949, Vol. 15, no Suppl. 1, p. 257-257Article in journal (Other academic)
    Abstract [en]

    Background: Stroke is the leading cause of serious, long-term disability among adults. Balance can be limited after stroke and the limitations affect walking and independence in activities of daily living. Having good balance has been described as an important factor in outdoor walking and for participation in exercises. Studies in which persons with stroke describe their experience of balance in everyday life are scarce.

    Aim: To describe experiences of living with balance limitations after first-ever stroke.

    Methods: A qualitative design, comprising interviews with 19 persons with first-ever stroke, ten women and nine men, aged between 42–92 years. Inclusion criteria were: having had a first-ever stroke and self-reported impaired balance, unaffected speech, independence in toileting and dressing, and walking ability indoors and outdoors with or without a walking aid. Data was analysed by means of an inductive content analysis covering both the manifest and the latent content of the transcribed interviews.

    Results: The results are presented in two themes illustrating the latent content of the data. “Feeling dizzy and unstable is a continuous challenge” revolves around participants’ descriptions of balance as a constant feeling of dizziness and unsteadiness. “Feeling trust and confidence despite dizziness and unsteadiness” is about perceived abilities and feelings of confidence about still being able to do things oneself, despite the dizziness and unsteadiness.

    Conclusion: All participants experienced the balance limitations as a continuous challenge in everyday life, yet they also felt trust and confidence and experienced that they still managed their everyday life.

  • 24.
    Arvidsson Lindvall, Mialinn
    et al.
    Örebro University, School of Health Sciences.
    Forsberg, Anette
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Appelros, Peter
    Department of University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Anderzén-Carlsson, Agneta
    Örebro University, School of Health Sciences. Örebro University Hospital.
    "I can still manage": a mixed-method study of balance after strokeManuscript (preprint) (Other academic)
  • 25.
    Badache, Andreea-Corina
    et al.
    Örebro University, School of Health Sciences. Swedish Institute for Disability Research.
    Mäki-Torkko, Elina
    Örebro University, School of Medical Sciences. Audiological Research Center, Faculty of Medicine, and Health, Örebro University, Örebro Sweden .
    Widén, Stephen
    Örebro University, School of Health Sciences.
    Fors, Stefan
    Aging Research Center, Karolinska Institutet and Stockholm University, Stockholm, Sweden; Centre for Epidemiology and Community Medicine, Region Stockholm, Stockholm, Sweden; Department of Public Health Sciences, Stockholm University, Stockholm, Sweden.
    A descriptive epidemiological study of the prevalence of self-reported sensory difficulties by age group, sex, education, disability, and migration status in Sweden in 2020Manuscript (preprint) (Other academic)
  • 26.
    Badache, Andreea-Corina
    et al.
    Örebro University, School of Health Sciences. Swedish Institute for Disability Research.
    Rehnberg, Johan
    Aging Research Center, Karolinska Institutet and Stockholm University, Stockholm, Sweden.
    Mäki-Torkko, Elina
    Örebro University, School of Medical Sciences. Audiological Research Center, Faculty of Medicine, and Health, Örebro University, Örebro Sweden .
    Widén, Stephen
    Örebro University, School of Health Sciences.
    Fors, Stefan
    Aging Research Center, Karolinska Institutet and Stockholm University, Stockholm, Sweden; Centre for Epidemiology and Community Medicine, Region Stockholm, Stockholm, Sweden; Department of Public Health Sciences, Stockholm University, Stockholm, Sweden.
    Longitudinal associations between sensory and cognitive functioning in adults 60 years or older in Sweden and DenmarkManuscript (preprint) (Other academic)
  • 27.
    Barzangi, Jir
    Örebro University, School of Health Sciences.
    Infant Dental Enucleation in Sweden: Perspectives on a Practice among Residents of Eastern African Origin2017Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Infant dental enucleation (IDE) is a practice consisting of the removal of deciduous canine tooth buds in infants. Practiced mainly in Eastern Africa, the purpose is to treat or to prevent bodily symptoms and diseases. IDE can cause both general and oral complications. The occurrence of IDE among Eastern African immigrants in a few European countries has been reported. However, knowledge surrounding the practice in Sweden was poor. The overall aim of this work was to explore IDE in the Swedish context. Four studies were conducted. Paper I presents a review of scientific publications. An overview of IDE was gained, and some knowledge gaps were identified. Paper II describes a cross-sectional study to determine the prevalence of IDE in small children. Dental records of 1133 children (mean age 4.6 years, SD 1.4) from a multi-ethnic area were studied. Missing deciduous canines without any registered reason were documented. One or more deciduous canines were missing in 21% of the children with known Eastern African origin (n=101), compared to only three children in the rest of the population (n=1032). Six adults of Somali origin were interviewed to explore their experiences and perceptions of IDE (paper III). These experiences and perceptions were categorised in four essentially different ways: an effective and necessary treatment, a disputed tradition, an option to failure and a desperate measure. Their experiences and perceptions were found to be highly influenced by contexts. In the final study (paper IV), the knowledge, experiences and attitudes among dental and health care personnel were examined. Questionnaires were sent to licensed personnel working in emergency departments, midwifery and child health centres, school health services and public dental health services in ten municipalities. Less than 20% had any knowledge of IDE, while 12.5% of the respondents encountering children had seen at least one patient subjected to IDE. Different attitudes were reported between clinical settings regarding responsibilities and possibilities concerning the management and prevention of IDE. From the findings presented in this thesis, it was concluded that there is a need for initiatives to increase awareness of and knowledge on IDE among dental and health care professionals. Legally obligated responsibilities in these professions regarding IDE need to be clarified, and initiatives should include guidelines regarding both the management of IDE and its prevention in Sweden. Educational programmes should also be produced for residents of Eastern African origin to change their perceptions of IDE, and a culturally sensitive approach should be adopted to ensure that such programmes are effective.

    List of papers
    1. Infant dental enucleation: A literature review on a traditional remedial practice in East Africa
    Open this publication in new window or tab >>Infant dental enucleation: A literature review on a traditional remedial practice in East Africa
    2014 (English)In: Acta Odontologica Scandinavica, ISSN 0001-6357, E-ISSN 1502-3850, Vol. 72, no 3, p. 168-178Article, review/survey (Refereed) Published
    Abstract [en]

    Objective. To summarize and review the literature on infant dental enucleation, a traditional remedial procedure prevalent mainly in East Africa.

    Materials and methods. Literature searches were made electronically using general and specialized search engines. The main search was performed through a systematic strategy in PubMed, comprising tabulated keywords, search codes, and translated and transliterated terms. Criteria for the selection of studies were designed to provide a general understanding of the procedure. The findings were synthesized into two sections: a summary of the population prevalence studies, and a thematic literature review.

    Results. An overview of the known prevalence and clinical specifications was established. Insight was gained into the purpose of the procedure and the factors influencing its performance. Diverging suggestions were seen with regard to the rationale for use of infant dental enucleation between different populations. Moreover, reports of complications and consequences involving the general health and the dentoalveolar structures of patients were examined.

    Conclusions. Prevalence, clinical features and risks of infant dental enucleation point to a need for greater awareness of the procedure. Further, there is a need for specific guidelines regarding management of suspected cases within dental and healthcare communities.

    Place, publisher, year, edition, pages
    London: Informa Healthcare, 2014
    Keywords
    African traditional medicine, attitude to health, cuspid, post-operative complications, tooth germ surgery
    National Category
    Dentistry
    Research subject
    Medicine
    Identifiers
    urn:nbn:se:oru:diva-34848 (URN)10.3109/00016357.2013.817603 (DOI)000333047400002 ()2-s2.0-84898946480 (Scopus ID)
    Note

    Funding Agencies:

    Public Dental Health Organizations of the county of Västmanland, Sweden

    Public Dental Health Organizations of the county of Örebro, Sweden

    Available from: 2014-04-28 Created: 2014-04-25 Last updated: 2023-12-08Bibliographically approved
    2. Infant dental enucleation in an East African population in Sweden: a cross-sectional study on dental records
    Open this publication in new window or tab >>Infant dental enucleation in an East African population in Sweden: a cross-sectional study on dental records
    Show others...
    2014 (English)In: International Journal of Paediatric Dentistry, ISSN 0960-7439, E-ISSN 1365-263X, Vol. 24, no 3, p. 209-214Article in journal (Refereed) Published
    Abstract [en]

    Aim: To examine the prevalence of infant dental enucleation (IDE) of primary canines, an East African traditional remedial procedure, in a multiethnic population of children in Sweden.

    Design: A cross-sectional study was conducted of dental records of 1133 patients (mean age 4.6years, SD +/- 1.4) attending one public dental service clinic in Sweden. The clinic was located in an area with a large multiethnic community. All were born within the years 2002-2006 and had received a check-up in one of the years 2007-2009. A registry was made of missing primary canines where no reason could be found. In documented cases, information about ethnic origin was extracted. Statistical grouping was made according to known East African ethnicities.

    Results: At least 36 ethnicities were recorded. Twenty-four (2.1%) patients were missing one or more canines according to the criteria for IDE. Significant difference was seen when comparison was made between patients of known East African ethnicities, of whom 20.8% (21/101) manifested findings consistent with the criteria, and the rest of the population (3/1032; P<0.001).

    Conclusions: Prevalence of cases suggestive of IDE among patients of East African origin points to a need for increased awareness within dental and healthcare communities.

    Place, publisher, year, edition, pages
    Hoboken: Wiley-Blackwell, 2014
    Keywords
    NORTHERN UGANDA; WEST ETHIOPIA; CHILD HEALTH; MUTILATION; MORBIDITY; MORTALITY; MAASAI; SUDAN; EBINO; JUBA
    National Category
    Dentistry
    Research subject
    Medicine
    Identifiers
    urn:nbn:se:oru:diva-34940 (URN)10.1111/ipd.12063 (DOI)000333828800007 ()2-s2.0-84897962413 (Scopus ID)
    Note

    Funding Agency:

    Public Dental Services of Västmanland and Örebro in Sweden

    Available from: 2014-05-05 Created: 2014-05-05 Last updated: 2023-12-08Bibliographically approved
    3. Experiences and perceptions of infant dental enucleation among Somali immigrants in Sweden: A phenomenographic study
    Open this publication in new window or tab >>Experiences and perceptions of infant dental enucleation among Somali immigrants in Sweden: A phenomenographic study
    (Swedish)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-54270 (URN)
    Available from: 2017-01-03 Created: 2017-01-03 Last updated: 2023-02-09Bibliographically approved
    4. Knowledge, experiences and attitudes of dental and health care personnel in Sweden towards infant dental enucleation
    Open this publication in new window or tab >>Knowledge, experiences and attitudes of dental and health care personnel in Sweden towards infant dental enucleation
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-54271 (URN)
    Available from: 2017-01-03 Created: 2017-01-03 Last updated: 2023-02-09Bibliographically approved
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  • 28.
    Barzangi, Jir
    et al.
    Örebro University, School of Health Sciences. Public Dental Health Service, Västmanland County Council, Västerås, Sweden.
    Arnrup, Kristina
    Örebro University, School of Health Sciences. Dental Research Department, Public Dental Helath Service, Region Örebro County, Örebro, Sweden.
    Unell, Lennart
    School of Helath Sciences, Örebro University, Örebro, Sweden; Dental Research Department, Public Dental Helath Service, Region Örebro County, Örebro, Sweden .
    Skovdahl, Kirsti
    Department of Nursing Science, University College of Southeast Norway, Drammen, Norway.
    Experiences and perceptions of infant dental enucleation among Somali immigrants in Sweden: A phenomenographic studyManuscript (preprint) (Other academic)
  • 29.
    Barzangi, Jir
    et al.
    Örebro University, School of Health Sciences. Public Dental Health Service, Västmanland County Council, Västerås, Sweden.
    Unell, Lennart
    School of Helath Sciences, Örebro University, Örebro, Sweden; Dental Research Department, Public Dental Helath Service, Region Örebro County, Örebro, Sweden .
    Skovdahl, Kirsti
    Department of Nursing Science, University College of Southeast Norway, Drammen, Norway.
    Arnrup, Kristina
    Örebro University, School of Health Sciences. Dental Research Department, Public Dental Helath Service, Region Örebro County, Örebro, Sweden.
    Knowledge, experiences and attitudes of dental and health care personnel in Sweden towards infant dental enucleationManuscript (preprint) (Other academic)
  • 30.
    Beijer, Evelina
    et al.
    Örebro University, School of Health Sciences.
    Hagman, Helén
    Örebro University, School of Health Sciences.
    Hör du vad jag säger?: En kvalitativ intervjustudie om hur en hörselnedsättning påverkar samtalet i en parrelation2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
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  • 31.
    Berg, Carolina
    et al.
    Örebro University, School of Health Sciences.
    Eklundh, My
    Örebro University, School of Health Sciences.
    Effekten av plugging som behandling av Superior Canal Dehiscence Syndrome: En systematisk litteraturstudie2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
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  • 32.
    Bergman, Stefan
    et al.
    Spenshult sjukhus Halmstad, Landstinget Halland, Sweden.
    Gerdle, Björn
    Linköpings universitet, Universitetssjukhuset i Linköping, Sweden.
    Hagberg, Mats
    Göteborgs universitet, Sahlgrenska universitetssjukhuset, Göteborg, Sweden.
    Jacobsson, Ulf
    Lunds universitet, Lund, Sweden.
    Linton, Steven J.
    Örebro University, School of Law, Psychology and Social Work.
    Strender, Lars-Erik
    Karolinska institutet, Huddinge, Sweden.
    Stålnacke, Britt-Marie
    Umeå universitet, Norrlands universitetssjukhus, Umeå, Sweden.
    Söderlund, Anne
    Mälardalens högskola, Hälsa och välfärd, Västerås, Sweden.
    Långvarig smärta i nacke, skuldror och rygg i Nationella riktlinjer för rörelseorganens sjukdomar 2010 – stöd för styrning och ledning: Preliminär version2010Report (Other academic)
    Abstract [sv]

    Nationella riktlinjer för rörelseorganens sjukdomar belyser områden där behovet av vägledning är stort på grund av att det finns praxisskillnader, kontroversiella frågor eller behov av kvalitetsutveckling.

    De här riktlinjerna berör åtgärder som utförs inom hälso- och sjukvården och utgår från diagnostik, behandling och rehabilitering. Nationella riktlinjer för rörelseorganens sjukdomar omfattar:

    • reumatoid artrit
    • ankyloserande spondylit
    • psoriasisartrit
    • artros i höft och knä
    • osteoporos (benskörhet)
    • långvarig smärta i nacke, skuldror och rygg
  • 33.
    Bjarnason, Sif
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Arbetsanpassning med arbetshjälpmedel2016In: Arbetsliv för alla: funktionsnedsättning och arbete / [ed] Berth Danermark & Susanna Larsson Tholén, Gleerups Utbildning AB, 2016, p. 179-192Chapter in book (Other academic)
  • 34.
    Bjarnason, Sif
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Danermark, Berth
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Möjligheter och hinder att nå arbetsmarknaden för personer med funktionsnedsättning: handikapprörelsen i civilsamhället2016In: Vägar till arbetsliv för personer med funktionsnedsättning / [ed] Susanna Larsson Tholén & Berth Danermark, Gleerups Utbildning AB, 2016, p. 85-100Chapter in book (Other academic)
  • 35.
    Bjarnason, Sif
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Larsson Tholén, Susanna
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Danermark, Berth
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Attityder till personer med funktionsnedsättning och interventioner för att påverka attityder: En systematisk kunskapsöversikt2015Report (Other academic)
    Download full text (pdf)
    Fulltext
  • 36.
    Björck-Åkesson, E
    et al.
    School of Education and Communication, Jönköping University, Jönköping, Sweden.
    Wilder, J
    School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Granlund, M
    School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Pless, M
    Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Simeonsson, R
    School of Education and Communication, Jönköping University, Jönköping, Sweden.
    Adolfsson, M
    School of Education and Communication, Jönköping University, Jönköping, Sweden.
    Almqvist, L
    School of Health Sciences, Jönköping University, Jönköping, Sweden.
    Augustine, L
    Swedish Institute of Public Health, Östersund, Sweden.
    Klang, N
    Academy for Education, Communication and Culture, Mälardalen University, Västerås, Sweden.
    Lillvist, Anne
    Academy for Education, Communication and Culture, Mälardalen University, Västerås, Sweden.
    The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention - feasibility and usefulness as a common language and frame of reference for practice2010In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 32, no S1, p. S125-S138Article in journal (Refereed)
    Abstract [en]

    Early childhood intervention and habilitation services for children with disabilities operate on an interdisciplinary basis. It requires a common language between professionals, and a shared framework for intervention goals and intervention implementation. The International Classification of Functioning, Disability and Health (ICF) and the version for children and youth (ICF-CY) may serve as this common framework and language. This overview of studies implemented by our research group is based on three research questions: Do the ICF-CY conceptual model have a valid content and is it logically coherent when investigated empirically? Is the ICF-CY classification useful for documenting child characteristics in services? What difficulties and benefits are related to using ICF-CY model as a basis for intervention when it is implemented in services? A series of studies, undertaken by the CHILD researchers are analysed. The analysis is based on data sets from published studies or master theses. Results and conclusion show that the ICF-CY has a useful content and is logically coherent on model level. Professionals find it useful for documenting children's body functions and activities. Guidelines for separating activity and participation are needed. ICF-CY is a complex classification, implementing it in services is a long-term project.

  • 37.
    Björck-Åkesson, Eva
    et al.
    School of Education and Communication, Jönköping University, Jönköping, Sweden.
    Wilder, Jenny
    School of Health Sciences, Jönköping University, Jönköping, Sweden .
    Granlund, Mats
    School of Health Sciences, Jönköping University, Jönköping, Sweden .
    Pless, Mia
    Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden .
    Simeonsson, Rune
    School of Education and Communication, Jönköping University, Jönköping, Sweden.
    Adolfsson, Margareta
    School of Education and Communication, Jönköping University, Jönköping, Sweden.
    Almqvist, Lena
    Swedish Institute of Public Health, Östersund, Sweden.
    Klang, Nina
    Academy for Education, Communication and Culture, Mälardalen University, Västerås, Sweden.
    Lillvist, Anne
    Academy for Education, Communication and Culture, Mälardalen University, Västerås, Sweden.
    The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention: Feasibility and usefulness as a common language and frame of reference for practice2010In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 32, no SUPPL. 1, p. 125-138Article in journal (Refereed)
    Abstract [en]

    Early childhood intervention and habilitation services for children with disabilities operate on an interdisciplinary basis. It requires a common language between professionals, and a shared framework for intervention goals and intervention implementation. The International Classification of Functioning, Disability and Health (ICF) and the version for children and youth (ICF-CY) may serve as this common framework and language. This overview of studies implemented by our research group is based on three research questions: Do the ICF-CY conceptual model have a valid content and is it logically coherent when investigated empirically? Is the ICF-CY classification useful for documenting child characteristics in services? What difficulties and benefits are related to using ICF-CY model as a basis for intervention when it is implemented in services? A series of studies, undertaken by the CHILD researchers are analysed. The analysis is based on data sets from published studies or master theses. Results and conclusion show that the ICF-CY has a useful content and is logically coherent on model level. Professionals find it useful for documenting children's body functions and activities. Guidelines for separating activity and participation are needed. ICF-CY is a complex classification, implementing it in services is a long-term project

  • 38.
    Boman, Tomas
    Örebro University, School of Health Sciences.
    Situationen på den svenska arbetsmarknaden för personer med funktionsnedsättning: en sekundäranalys om sysselsättning, yrkesnivå, diskriminering, stöd och anpassning för personer med olika typer av funktionsnedsättning2019Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this thesis is to explore how the labour market situation appears to persons with different types of disabilities in Sweden. Study I (n=4 359) examined the importance of the person’s type of disability for the possibility of having a job. Study II (n=3 396) examined whether there were differences in occupational attainment between persons with different types of disabilities and between persons with and without a disability (n=19 004). Study III (n=4 359) examined perceived discrimination in the workplace among persons with different types of disabilities. Study IV (n=2 268) examined whatsupport and adaptation persons with different types of disabilities need in their actual workplace or to enter the labour market. In studies I–III the respondents were divided into six disability types, and in study IV the respondents were divided into four disability types.

    Overall, it can be concluded that a person’s type of disability is of importance for the situation in the labour market, where persons with psychological disabilities encounter barriers to a greater extent than other groups, both difficulties at the present workplace and difficulties entering the labour market. Further, they were subjected to discrimination and they expressed a great need for adaptations to acquire employment and at their actual workplace. It can also be concluded that there are discriminatory mechanisms against women, who have more difficulties than men in acquiring employment, and that men, despite lower education, can more easily progress in the labour market. It is suggested that, in order to achieve inclusion and recognition, factors in the environment, such as existing support systems, need to be changed and developed, and social prejudices vis-à-vis people with disabilities must also be addressed.

    List of papers
    1. Employment opportunities for persons with different types of disability
    Open this publication in new window or tab >>Employment opportunities for persons with different types of disability
    2015 (English)In: Alter;European Journal of Disability Research ;Journal Europeen de Recherche Sur le Handicap, ISSN 1875-0672, E-ISSN 1875-0680, Vol. 9, no 2, p. 116-129Article in journal (Refereed) Published
    Abstract [en]

    The employment status of groups with different disabilities was analysed as were potentially important moderating factors (work ability, structural and individual factors). A secondary analysis was performed on 4359 respondents with disabilities from Statistics Sweden's Labour Market Investigation. The respondents were divided into six disability groups (communicative-hearing, communicative-speech-reading, communicative-vision, psychological disability, medical disability, physical disability). Logistic regression analyses showed that the probability of being employed was highest among respondents with hearing disabilities and respondents with psychological disabilities were least likely to be employed. Being a woman (very young or old) with only primary education and with partially or very impaired work ability, reduced employment opportunities. Higher education did not increase employment opportunities for respondents with impaired workability. In summary, the type of disability is essential for employment opportunities, and differences between disability groups cannot be explained by differences in other variables. The moderating factors studied were found to be of equal importance in all groups.

    Place, publisher, year, edition, pages
    Elsevier, 2015
    Keywords
    Type of disability, Employment, Self-estimated work ability, Education level
    National Category
    General Practice
    Research subject
    Family Medicine
    Identifiers
    urn:nbn:se:oru:diva-47084 (URN)10.1016/j.alter.2014.11.003 (DOI)000365124200003 ()2-s2.0-84928769973 (Scopus ID)
    Available from: 2015-12-15 Created: 2015-12-15 Last updated: 2020-03-11Bibliographically approved
    2. Can people with disabilities gain from education?: Similarities and differences between occupational attainment among persons with and without disabilities
    Open this publication in new window or tab >>Can people with disabilities gain from education?: Similarities and differences between occupational attainment among persons with and without disabilities
    2014 (English)In: Work: A journal of Prevention, Assessment and rehabilitation, ISSN 1051-9815, E-ISSN 1875-9270, Vol. 49, no 2, p. 193-204Article in journal (Refereed) Published
    Abstract [en]

    BACKGROUND: More knowledge is needed of occupational attainment of persons with disabilities, i.e. the relationship between their educational level and their profession, and factors of importance for this relationship.

    OBJECTIVE: To compare occupational attainment among persons with and without a disability.

    METHOD: 3396 informants with disabilities and 19004 non-disabled informants participated (control group) in a survey study by Statistics Sweden. The informants with disabilities were divided into six groups.

    RESULTS: Occupational attainment did not differ between the disability groups, neither between persons with and without a disability. Follow-up analysis showed that men with disabilities with primary or secondary school had an occupation above their educational level to a significantly larger extent than women with disabilities. This pattern was even clearer in comparison with the control group. Persons without disabilities, with secondary or higher education, were more successful in the labor market than persons with disabilities. Occupational attainment increased with age in both groups.

    CONCLUSIONS: Young women with disabilities who only have primary or secondary education run a higher risk of having a job that is below their educational level than men at the same educational level. This indicates discriminating mechanisms in the society related to gender and ability.

    Place, publisher, year, edition, pages
    IOS Press, 2014
    Keywords
    Discrimination, occupational attainment, educational level, self-estimated work ability
    National Category
    Medical and Health Sciences Occupational Therapy
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-39248 (URN)10.3233/WOR-131718 (DOI)000344347900004 ()24004782 (PubMedID)
    Available from: 2014-12-02 Created: 2014-12-02 Last updated: 2020-06-05Bibliographically approved
    3. Disability and discrimination in the workplace context: A comparative study between persons with different types of disabilities [Invalidité et discrimination sur le lieu de travail: Une étude comparative entre les personnes ayant diverses formes de handicap]
    Open this publication in new window or tab >>Disability and discrimination in the workplace context: A comparative study between persons with different types of disabilities [Invalidité et discrimination sur le lieu de travail: Une étude comparative entre les personnes ayant diverses formes de handicap]
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-77506 (URN)
    Available from: 2019-10-22 Created: 2019-10-22 Last updated: 2020-03-11Bibliographically approved
    4. The Need of Support and Adaptation in the Workplace for Persons with Different Types of Disabilities and Reduced Work Ability
    Open this publication in new window or tab >>The Need of Support and Adaptation in the Workplace for Persons with Different Types of Disabilities and Reduced Work Ability
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-77508 (URN)
    Available from: 2019-10-22 Created: 2019-10-22 Last updated: 2019-10-22Bibliographically approved
    Download full text (pdf)
    Situationen på den svenska arbetsmarknaden för personer med funktionsnedsättning: En sekundäranalys om sysselsättning, yrkesnivå, diskriminering, stöd och anpassning för personer med olika typer av funktionsnedsättning
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  • 39.
    Boman, Tomas
    et al.
    Faculty of Health and Occupational Studies, Department of Social Work and Criminology, University of Gävle, Gävle, Sweden; Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.
    Kjellberg, Anders
    Faculty of Engineering and Sustainable Development, Department of Building, Energy and Environmental Engineering, University of Gävle, Gävle, Sweden.
    Danermark, Berth
    Örebro University, School of Health Sciences. Swedish Institute for Disability Research.
    Boman, Anna
    Faculty of Health and Occupational Studies, Department of Occupational Health and Psychology, University of Gävle, Gävle.
    The Need of Support and Adaptation in the Workplace for Persons with Different Types of Disabilities and Reduced Work AbilityManuscript (preprint) (Other academic)
  • 40.
    Boman, Tomas
    et al.
    Faculty of Health and Occupational Studies, Department of Social Work and Criminology, University of Gävle, Gävle, Sweden; Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.
    Kjellberg, Anders
    Faculty of Engineering and Sustainable Development, Department of Building, Energy and Environmental Engineering, University of Gävle, Gävle, Sweden.
    Danermark, Berth
    Örebro University, School of Health Sciences. Swedish Institute for Disability Research.
    Boman, Eva
    Faculty of Health and Occupational Studies, Department of Occupational Health and Psychology, University of Gävle, Gävle.
    Disability and discrimination in the workplace context: A comparative study between persons with different types of disabilities [Invalidité et discrimination sur le lieu de travail: Une étude comparative entre les personnes ayant diverses formes de handicap]Manuscript (preprint) (Other academic)
  • 41.
    Boström, Marianne
    Örebro University, School of Health Sciences.
    Vardagslivets aktiviteter. Handlingen som terapeutiskt redskap vid återhämtning för personer med svårare psykiska funktionshinder: En analys av arbetsterapeuters berättelser med utgångspunkt i G H Meads teori om social handling2017Doctoral thesis, monograph (Other academic)
    Abstract [en]

    There is a need of community-based treatment methods with focus on everyday occupations, for persons with severe mental disabilities. The importance of occupation in achieving health has been highlighted in large mental hospitals and community-based service/support designed for people with severe mental disabilities who today live in society. Despite this support these people are in a vulnerable position, as they often have extensive difficulties in carrying out daily occupations which also leads to poorer well-being and health conditions. In the rehabilitation process, it is necessary to enable the person to use her own effort to perform activities. Occupational therapy has a unique role in community-based efforts for people with severe mental disabilities through their person-centered practices approaches and knowledge of daily occupations and how these can be used as therapeutic means of recovery and development of the self.

    The purpose of the study is to use theory about social action to contribute theoretical understanding about how everyday occupations are used as a therapeutic means for people with severe mental disabilities in occupational therapy, with the goal of contributing to their recovery and development of self. A qualitative, interpretative approach is used in the study to examine how everyday life can be used as a therapeutic tool. Empirical data of 11 events were generated from interviews with four occupational therapists. A theoretical tool developed by George Herbert Mead’s social psychological theory of the social act, were used as a frame for new-descriptions. Through abductive analyses reconstructed events are given new (theoretical) understanding.

    The result indicate that the social acts have met such difficulties that they have almost ceased and at the same time risk losing their meaning. The therapist adjusts the activity to find the level at which the person can participate with his/her own experience in the implementation of the everyday action. This gives the person with severe mental disabilities opportunities to use one self in the social process which eventually makes the person regain the ability to perform everyday activities

    Download full text (pdf)
    Vardagslivets aktiviteter. Handlingen som terapeutiskt redskap vid återhämtning för personer med svårare psykiska funktionshinder: En analys av arbetsterapeuters berättelser med utgångspunkt i G H Meads teori om social handling
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    Omslag
  • 42.
    Boudi, Zoubir
    et al.
    Emergency Medicine Department, Dr Sulaiman Alhabib Hospital, Dubai, UAE.
    Lauque, Dominique
    Emergency Medicine Department, Beth Israel Deaconess Medical Center, Teaching Hospital of Harvard Medical School, Harvard Medical School, Boston Massachusetts, United States of America; Emergency Medicine Department, Purpan Hospital and Toulouse III University, Toulouse, France.
    Alsabri, Mohamed
    Emergency Medicine Department, Beth Israel Deaconess Medical Center, Teaching Hospital of Harvard Medical School, Harvard Medical School, Boston Massachusetts, United States of America.
    Östlundh, Linda
    The National Medical Library, College of Medicine and Health Sciences, UAE University, Al Ain, UAE.
    Oneyji, Churchill
    Emergency Medicine Department, Beth Israel Deaconess Medical Center, Teaching Hospital of Harvard Medical School, Harvard Medical School, Boston Massachusetts, United States of America.
    Khalemsky, Anna
    Hadassah Academic College, Jerusalem, Israel.
    Rial, Carlos Lojo
    Emergency Medicine Department, St. Thomas’ Hospital, London, England, United Kingdom.
    Liu, Shan W.
    Department of Emergency Medicine, Massachusetts General Hospital, Harvard Medical School, Boston Massachusetts, United States of America.
    Camargo, Carlos A., Jr.
    Department of Emergency Medicine, Massachusetts General Hospital, Harvard Medical School, Boston Massachusetts, United States of America.
    Aburawi, Elhadi
    Department of Paediatrics, College of Medicine and Health Sciences, UAE University, Al Ain, UAE.
    Moeckel, Martin
    Division of Emergency and Acute Medicine, Campus Virchow Klinikum and Charite ́ Campus Mitte, Charite ́ Universita ̈tsmedizin Berlin, Germany.
    Slagman, Anna
    Division of Emergency and Acute Medicine, Campus Virchow Klinikum and Charite ́ Campus Mitte, Charite ́ Universita ̈tsmedizin Berlin, Germany.
    Christ, Michael
    Emergency Department, Lucerne, Switzerland.
    Singer, Adam
    Department of Emergency Medicine, Stony Brook University, Stony Brook NY, United States of America.
    Tazarourte, Karim
    Department of Emergency Medicine, University Hospital, Hospices Civils, Lyon, France.
    Rathlev, Niels K.
    Department of Emergency Medicine, University of Massachusetts Medical School, Baystate, Springfield, United States of America.
    Grossman, Shamai A.
    Emergency Medicine Department, Beth Israel Deaconess Medical Center, Teaching Hospital of Harvard Medical School, Harvard Medical School, Boston Massachusetts, United States of America.
    Bellou, Abdelouahab
    Emergency Medicine Department, Beth Israel Deaconess Medical Center, Teaching Hospital of Harvard Medical School, Harvard Medical School, Boston Massachusetts, United States of America; Global HealthCare Network & Research Innovation Institute LLC, Brookline Massachusetts, United States of America.
    Association between boarding in the emergency department and in-hospital mortality: A systematic review2020In: PLOS ONE, E-ISSN 1932-6203, Vol. 15, no 4, article id e0231253Article, review/survey (Refereed)
    Abstract [en]

    Importance: Boarding in the emergency department (ED) is a critical indicator of quality of care for hospitals. It is defined as the time between the admission decision and departure from the ED. As a result of boarding, patients stay in the ED until inpatient beds are available; moreover, boarding is associated with various adverse events.

    Study objective: The objective of our systematic review was to determine whether ED boarding (EDB) time is associated with in-hospital mortality (IHM).

    Methods: A systematic search was conducted in academic databases to identify relevant studies. Medline, PubMed, Scopus, Embase, Cochrane, Web of Science, Cochrane, CINAHL and PsychInfo were searched. We included all peer-reviewed published studies from all previous years until November 2018. Studies performed in the ED and focused on the association between EDB and IHM as the primary objective were included. Extracted data included study characteristics, prognostic factors, outcomes, and IHM. A search update in PubMed was performed in May 2019 to ensure the inclusion of recent studies before publishing.

    Results: From the initial 4,321 references found through the systematic search, the manual screening of reference lists and the updated search in PubMed, a total of 12 studies were identified as eligible for a descriptive analysis. Overall, six studies found an association between EDB and IHM, while five studies showed no association. The last remaining study included both ICU and non-ICU subgroups and showed conflicting results, with a positive association for non-ICU patients but no association for ICU patients. Overall, a tendency toward an association between EDB and IHM using the pool random effect was observed.

    Conclusion: Our systematic review did not find a strong evidence for the association between ED boarding and IHM but there is a tendency toward this association. Further well-controlled, international multicenter studies are needed to demonstrate whether this association exists and whether there is a specific EDB time cut-off that results in increased IHM.

  • 43.
    Brunnberg, Elinor
    Örebro University, Department of Behavioural, Social and Legal Sciences.
    'Då blev jag besviken': en fenomenologisk analys av fyra berättelser2007In: Välfärdspolitik i praktiken: om perspektiv och metoder i forskning, Uppsala: NSU Press , 2007, p. 65-86Chapter in book (Other academic)
    Abstract [sv]

    I det här kapitlet diskuteras fenomenologisk filosofi och dess influenser på olika forskningsmetoder som deskriptiv fenomenologi och fenomenografi. I kapitlet kommer även att visas hur man kan göra en deskriptiv fenomenologisk analys. Utgångspunkten för analysen är fyra korta berättelser som skrivits av fyra flickor som deltagit i en kurs inom ett s.k. individuellt program. Syftet med kapitlet är att visa hur en deskriptiv fenomenologisk analys kan ge en fördjupad förståelse för flickors erfarenheter av sociala relationer samt när och hur de upplevt besvikelser i relationer till andra.

  • 44.
    Carling, Anna
    et al.
    Örebro University, School of Medical Sciences. University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Department of Physiotherapy, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Nilsagård, Ylva
    Health Care Management, Region Örebro County, Örebro, Sweden.
    Forsberg, Anette
    Örebro University, School of Health Sciences. Örebro University Hospital. Department of Physiotherapy.
    Balance exercise facilitates everyday life for people with multiple sclerosis: A qualitative study2018In: Physiotherapy Research International, ISSN 1358-2267, E-ISSN 1471-2865, Vol. 23, no 4, article id e1728Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: The aim of this qualitative study was to describe the experience and perceived effects on everyday life for people with multiple sclerosis after participating in a balance exercise programme focusing on core stability, dual tasking, and sensory strategies (the CoDuSe programme).

    METHODS: A qualitative approach was chosen, using face-to-face interviews analysed with content analysis. Twenty-seven people with multiple sclerosis (20 women, 7 men) who had participated in the CoDuSe programme were included. All could walk 20 m with or without walking aids but could not walk further than 200 m. The CoDuSe programme was given twice weekly during a 7-week period.

    RESULTS: The analysis revealed five categories. Learning to activate the core muscles described how the participants gained knowledge of using their core muscles and transferred this core muscle activation into everyday life activities. Improved bodily confidence covered narratives of being more certain of the ability to control their bodies. Easier and safer activities showed how they could now perform activities in everyday life more safely and easily. Increased independence and participation involved the participants' improved ability and self-confidence to execute activities by themselves, as well as their increased participation in activities in daily living. Experiences of the balance exercise programme revealed that they found the programme novel and challenging. The overall theme was balance exercise facilitates everyday life.

    CONCLUSION: Participating in the CoDuSe programme was perceived to facilitate everyday life for people with multiple sclerosis. Taking part in the balance exercise programme taught the participants how to activate and use the core muscles, which increased their bodily confidence. Having increased bodily confidence helped them to perform everyday life activities with more ease and safety, which increased their independence and participation. The participants described the CoDuSe programme as novel and challenging, yet feasible.

  • 45.
    Carlsson, Per-Inge
    et al.
    Department of otorhioloaryngology, Central hospital, Karlstad, Sweden; Audiological Research Center, Örebro University Hospital, Örebro, Sweden.
    Hjaldahl, Jennie
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Audiological Research Center, Örebro university hospital, Örebro, Sweden.
    Magnuson, Anders
    Clinical epidemiology and biostatistics unit, Örebro university hospital, Örebro, Sweden.
    Ternevall, Elisabeth
    Department of audiology, Karolinska University hospital, Stockholm, Sweden.
    Edén, Margareta
    Department of hearing impairment and deafness, Mölndal hospital, Göteborg, Sweden.
    Skagerstrand, Åsa
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Audiological Research Center, Örebro university hospital, Örebro, Sweden.
    Jönsson, Radi
    Department of Otorhinolaryngology, Sahlgrenska university Hospital, Göteborg, Sweden.
    Severe to profound hearing impairment: quality of life, psychosocial consequences and audiological rehabilitation2014In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 37, no 20, p. 1849-1856Article in journal (Refereed)
    Abstract [en]

    Purpose: To study the quality of life (QoL) and psychosocial consequences in terms of sick leave and audiological rehabilitation given to patients with severe to profound hearing impairment.

    Method: A retrospective study of data on 2319 patients with severe to profound hearing impairment in The Swedish Quality Register of Otorhinolaryngology, followed by a posted questionnaire including The Hospital Anxiety and Depression Scale (HADS). 

    Results: The results indicate greater levels of anxiety and depression among patients with severe or profound hearing impairment than in the general population, and annoying tinnitus and vertigo had strong negative effects on QoL. The proportion of sick leave differed between the studied dimensions in the study. The proportion of patients who received extended audiological rehabilitation was 38% in the present study. 

    Conclusions: Treatment focused on anxiety, depression, tinnitus and vertigo must be given early in the rehabilitation process in patients with severe or profound hearing impairment. Because sick leave differs greatly within this group of patients, collaboration with the regional Social Insurance Agency is crucial part of the rehabilitation. The study also shows that presently, only a small proportion of patients in Sweden with severe to profound hearing impairment receive extended audiological rehabilitation. Implications for Rehabilitation

    • Greater levels of anxiety and depression have been found among patients with severe or profound hearing impairment than in the general population, and annoying tinnitus and vertigo have strong negative effects on QoL in this group of patients.

    • Only a small proportion of patients with severe to profound hearing impairment receive extended audiological rehabilitation today, including medical, technical and psychosocial efforts.

    • Extended audiological rehabilitation focused on anxiety, depression, tinnitus and vertigo must be given, together with technical rehabilitation, early in the rehabilitation process in patients with severe or profound hearing impairment.

  • 46.
    Chen, Rong
    et al.
    Department of Microbiology, Tumor and Cell Biology, Karolinska Institutet, Stockholm.
    Enberg, Gösta
    Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm.
    Klein, Gunnar O.
    Department of Microbiology, Tumor and Cell Biology, Karolinska Institutet, Stockholm; Department of Medicine, Karolinska Institutet, Stockholm.
    Julius: a template based supplementary electronic health record system2007In: BMC Medical Informatics and Decision Making, E-ISSN 1472-6947, Vol. 7, article id 10Article in journal (Refereed)
    Abstract [en]

    Background: EHR systems are widely used in hospitals and primary care centres but it is usually difficult to share information and to collect patient data for clinical research. This is partly due to the different proprietary information models and inconsistent data quality. Our objective was to provide a more flexible solution enabling the clinicians to define which data to be recorded and shared for both routine documentation and clinical studies. The data should be possible to reuse through a common set of variable definitions providing a consistent nomenclature and validation of data. Another objective was that the templates used for the data entry and presentation should be possible to use in combination with the existing EHR systems.

    Methods: We have designed and developed a template based system (called Julius) that was integrated with existing EHR systems. The system is driven by the medical domain knowledge defined by clinicians in the form of templates and variable definitions stored in a common data repository. The system architecture consists of three layers. The presentation layer is purely web-based, which facilitates integration with existing EHR products. The domain layer consists of the template design system, a variable/clinical concept definition system, the transformation and validation logic all implemented in Java. The data source layer utilizes an object relational mapping tool and a relational database.

    Results: The Julius system has been implemented, tested and deployed to three health care units in Stockholm, Sweden. The initial responses from the pilot users were positive. The template system facilitates patient data collection in many ways. The experience of using the template system suggests that enabling the clinicians to be in control of the system, is a good way to add supplementary functionality to the present EHR systems.

    Conclusion: The approach of the template system in combination with various local EHR systems can facilitate the sharing and reuse of validated clinical information from different health care units. However, future system developments for these purposes should consider using the openEHR/CEN models with shareable archetypes.

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  • 47.
    Chen, Rong
    et al.
    Department of Biomedical Engineering, Linköping University, Linköping.
    Garde, Sebastian
    Ocean Informatics UK, London, United Kingdom.
    Beale, Thomas
    Ocean Informatics UK, London, United Kingdom.
    Nyström, Mikael
    Department of Biomedical Engineering, Linköping University, Linköping.
    Karlsson, Daniel
    Department of Biomedical Engineering, Linköping University, Linköping.
    Klein, Gunnar
    Karolinska Institute, Stockholm.
    Ahlfeldt, Hans
    Department of Biomedical Engineering, Linköping University, Linköping.
    An archetype-based testing framework2008In: eHealth Beyond the Horizon: Get IT There, Amsterdam, Netherlands: IOS Press, 2008, Vol. 136, p. 401-6Conference paper (Refereed)
    Abstract [en]

    With the introduction of EHR two-level modelling and archetype methodologies pioneered by openEHR and standardized by CEN/ISO, we are one step closer to semantic interoperability and future-proof adaptive healthcare information systems. Along with the opportunities, there are also challenges. Archetypes provide the full semantics of EHR data explicitly to surrounding systems in a platform-independent way, yet it is up to the receiving system to interpret the semantics and process the data accordingly. In this paper we propose a design of an archetype-based platform-independent testing framework for validating implementations of the openEHR archetype formalism as a means of improving quality and interoperability of EHRs.

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  • 48.
    Chen, Rong
    et al.
    Department of Biomedical Engineering, Linköping University.
    Klein, Gunnar
    Department of Medicine, Karolinska Institutet, Stockholm.
    The openEHR Java reference implementation project2007In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 129, no Pt 1, p. 58-62Article in journal (Refereed)
    Abstract [en]

    The openEHR foundation has developed an innovative design for interoperable and future-proof Electronic Health Record (EHR) systems based on a dual model approach with a stable reference information model complemented by archetypes for specific clinical purposes.A team from Sweden has implemented all the stable specifications in the Java programming language and donated the source code to the openEHR foundation. It was adopted as the openEHR Java Reference Implementation in March 2005 and released under open source licenses. This encourages early EHR implementation projects around the world and a number of groups have already started to use this code. The early Java implementation experience has also led to the publication of the openEHR Java Implementation Technology Specification. A number of design changes to the specifications and important minor corrections have been directly initiated by the implementation project over the last two years. The Java Implementation has been important for the validation and improvement of the openEHR design specifications and provides building blocks for future EHR systems.

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    fulltext
  • 49.
    Chen, Rong
    et al.
    Linköping University, Linköping, Sweden; Cambio Healthcare System, Linköping, Sweden.
    Klein, Gunnar O.
    Karolinska Institutet, Solna, Sweden.
    Sundvall, Erik
    Linköping University, Linköping, Sweden.
    Karlsson, Daniel
    Linköping University, Linköping, Sweden.
    Åhlfeldt, Hans
    Linköping University, Linköping, Sweden.
    Archetype-based conversion of EHR content models: pilot experience with a regional EHR system2009In: BMC Medical Informatics and Decision Making, E-ISSN 1472-6947, Vol. 9, p. 33-, article id 33Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Exchange of Electronic Health Record (EHR) data between systems from different suppliers is a major challenge. EHR communication based on archetype methodology has been developed by openEHR and CEN/ISO. The experience of using archetypes in deployed EHR systems is quite limited today. Currently deployed EHR systems with large user bases have their own proprietary way of representing clinical content using various models. This study was designed to investigate the feasibility of representing EHR content models from a regional EHR system as openEHR archetypes and inversely to convert archetypes to the proprietary format.

    METHODS: The openEHR EHR Reference Model (RM) and Archetype Model (AM) specifications were used. The template model of the Cambio COSMIC, a regional EHR product from Sweden, was analyzed and compared to the openEHR RM and AM. This study was focused on the convertibility of the EHR semantic models. A semantic mapping between the openEHR RM/AM and the COSMIC template model was produced and used as the basis for developing prototype software that performs automated bi-directional conversion between openEHR archetypes and COSMIC templates.

    RESULTS: Automated bi-directional conversion between openEHR archetype format and COSMIC template format has been achieved. Several archetypes from the openEHR Clinical Knowledge Repository have been imported into COSMIC, preserving most of the structural and terminology related constraints. COSMIC templates from a large regional installation were successfully converted into the openEHR archetype format. The conversion from the COSMIC templates into archetype format preserves nearly all structural and semantic definitions of the original content models. A strategy of gradually adding archetype support to legacy EHR systems was formulated in order to allow sharing of clinical content models defined using different formats.

    CONCLUSION: The openEHR RM and AM are expressive enough to represent the existing clinical content models from the template based EHR system tested and legacy content models can automatically be converted to archetype format for sharing of knowledge. With some limitations, internationally available archetypes could be converted to the legacy EHR models. Archetype support can be added to legacy EHR systems in an incremental way allowing a migration path to interoperability based on standards.

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  • 50.
    Colliander, Karin
    et al.
    Örebro University, School of Health Sciences.
    Lind, Josefin
    Örebro University, School of Health Sciences.
    ”En kvinnas röst, har den betydelse?”: Signal-Brus-forhallande och psykometriska egenskaper for tal-ibrusmatning med en kvinnorost. - En experimentell studie2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
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