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  • 1.
    Anderzén-Carlsson, Agneta
    Örebro universitet, Institutionen för hälsovetenskap och medicin. Region Örebro län. Audiological Research Centre, Region Örebro County, Örebro University Hospital, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro, Sweden.
    CHARGE syndrome: a five case study of the syndrome characteristics and health care consumption during the first year in life2015Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 30, nr 1, s. 6-16Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    CHARGE syndrome is characterized by impaired vision and hearing, as well as physical malformations. The aim of this study is to describe the characteristics of the malformations and the health care consumption during the first year, in a Swedish sample having CHARGE syndrome. Three of the five individuals fulfilled all the traditional criteria for a clinical diagnosis of CHARGE syndrome. All infants were hospitalized from 26 to 230. days, subjected to 10-34 different diagnostic procedures and prescribed 10-28 different medications during their first year. Coordinated and individually adapted care is urged, as these infants and their families are in of need multiple health care contacts.

  • 2.
    Anderzén-Carlsson, Agneta
    et al.
    Örebro universitet, Institutionen för klinisk medicin.
    Kihlgren, Mona
    Skeppner, Gunnar
    Sörlie, Venke
    How physicians and nurses handle fear in children with cancer2007Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 22, nr 1, s. 71-80Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Previous research on fear in children with cancer has often focused on interventions to alleviate fear related to medical procedures and less on how to meet the challenges related to existential fear. This study aimed to describe how experienced nurses and physicians handle fear in children with cancer. Ten nurses and physicians with more than 10 years of experience in child oncology from a university hospital in Sweden were interviewed, and a qualitative content analysis was performed on the data. Nurses' and physicians' handling of fear encompasses commitment and closeness and yet also a distancing from fear and its expressions

  • 3.
    Anderzén-Carlsson, Agneta
    et al.
    Örebro universitet, Institutionen för klinisk medicin. Örebro University Hospital, Örebro, Sweden.
    Kihlgren, Mona
    Örebro University Hospital, Örebro, Sweden.
    Svantesson, Mia
    Örebro University, Örebro, Sweden; Örebro University Hospital, Örebro, Sweden.
    Sorlie, Venke
    Örebro university Hospital, Örebro, Sweden; Dept Social Sci, Bodo Univ, Bodo, Norway.
    Parental handling of fear in children with cancer: caring in the best interests of the child2010Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 25, nr 5, s. 317-326Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to gain a deeper understanding of how parents of children with cancer handle the fear in their children. Fifteen parents of 11 children participated in focus-group interviews. Data were analyzed by a phenomenological hermeneutical method. The results suggest that the parents' handling was equivalent with caring in the best interests of the child. This included striving for the security and well-being of the child up to a certain point where the parents instead used their authority to maintain the child's physical health rather than trying to prevent or relieve the child's fear.

  • 4.
    Anderzén-Carlsson, Agneta
    et al.
    Örebro universitet, Institutionen för klinisk medicin.
    Kihlgren, Mona
    Svantesson, Mia
    Örebro universitet, Institutionen för klinisk medicin.
    Sörlie, Venke
    Children's fear as experienced by the parents of children with cancer2007Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 22, nr 3, s. 233-244Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    It is known that children with cancer experience and express fear, but little is found in the literature about how the parents experience their child's fear. This study aimed to highlight the parents' lived experience and understanding of their child's fear. Focus group interviews with 15 parents were performed. Data were analyzed through a phenomenological hermeneutic method. Fear in children with cancer is described by the parents as a multidimensional phenomenon, which is somehow difficult to identify. It appears in contrast to the absence of fear. The comprehensive understanding of the results reveals that the parents experience their children's fear as both a suffering and an ethical demand for the parents to answer.

  • 5.
    Leibring, Ingela
    et al.
    Faculty of Health, Science and Technology, Institution for Health, Karlstad University, Karlstad, Sweden.
    Anderzen-Carlsson, Agneta
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. Faculty of Health, Science and Technology, Institution for Health, Karlstad University, Karlstad, Sweden; University Health Care Research Center, School of Health and Medical Sciences, Örebro University, Örebro, Sweden.
    Fear and coping in children 5-9 years old treated for acute lymphoblastic leukemia: A longitudinal interview study2019Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 46, s. E29-E36Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PURPOSE: The aim of this study was to describe the fears of 5- to 9-year-old children related to having acute lymphoblastic leukemia (ALL) and their strategies for coping with those fears.

    DESIGN AND METHODS: The study had a qualitative descriptive longitudinal design and included a total of 35 interviews with 13 children at three different times during their treatment period. Data were analyzed using a matrix-based method inspired by the work of Miles et al.

    RESULTS: Initially, most children reported a fear of needles, but during the treatment period, fewer children reported this fear. Children's coping strategies also changed over time, as they wanted more involvement and control during needle-related procedures. Other fears were having adhesive tapes removed, having a nasogastric tube, and taking tablets. During the treatment period, existential fears related to the seriousness of ALL and its consequences, such as having impaired physical fitness and being different from before and different from others, became more prominent and caused feelings of loneliness and alienation.

    CONCLUSIONS: The children described various fears through their treatment period, which they coped with using cognitive, emotional, and functional strategies. Over the 2.5-year period, their strategies changed.

    PRACTICAL IMPLICATIONS: Because fears changed over time and varied among these different children, each child must be approached individually and attentively in every encounter.

  • 6.
    Lindström, Caisa
    et al.
    Department of Pediatrics, Örebro University Hospital, Örebro, Sweden.
    Åman, Jan
    School of Health and Medical Sciences, Örebro University, Örebro, Sweden.
    Norberg, Annika Lindahl
    Unit of Occupational Medicine, Institute of Environmental Medicine, Stockholm, Sweden; Childhood Cancer Research Unit, Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
    Forssberg, Maria
    Department of Pediatrics, Central Hospital, Karlstad, Sweden.
    Anderzen-Carlsson, Agneta
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. University Health Care Research Center, Region Örebro County, Örebro, Sweden.
    "Mission Impossible"; the Mothering of a Child With Type I Diabetes: From the Perspective of Mothers Experiencing Burnout2017Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 36, s. 149-156Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: To explore how mothers experiencing burnout describe their mothering of a child with type 1 diabetes mellitus (T1DM), with a focus on their experienced need for control and self-esteem.

    Methods: This study used a qualitative, descriptive design and aimed to reveal the experience of mothering a child with diabetes when experiencing burnout. Twenty-one mothers of children with T1DM who were experiencing burnout participated in this study. Data were collected via semi-structured interviews, and content analysis was performed.

    Results: The main results (latent content of the data) were interpreted in one theme, Mission impossible, an inner feeling derived from an extremely challenging experience of mothering, encompassing involuntary responsibility and constant evaluation. Two sub-themes emerged: Forced to provide extraordinary mothering and Constant evaluation of the mothering.

    Conclusions: In addition to monitoring the health of the child with T1DM, it is important for clinicians to pay attention to how mothers experience their daily life in order to support those who are at risk of developing burnout, as well as those who are experiencing burnout. The wellbeing of the mother could influence the wellbeing of the child, as well as the entire family. Further research on perceived parental responsibility, gender differences, psychosocial factors, and burnout is needed.

    Practice Implications: Knowledge and understanding of how mothers suffering from burnout experience mothering a child with diabetes could help nurses, social workers, psychologists and counselors conducting pediatric diabetes care become more attentive to the mother's situation and have procedures for counseling interventions. (C) 2017 Elsevier Inc. All rights reserved.

  • 7.
    Nordheim, Trond
    et al.
    Department of Pediatric and Adolescent Medicine, Akershus University Hospital, Nordbyhagen, Norway; Institute for Clinical Medicine, Campus Ahus, University of Oslo, Nordbyhagen, Norway.
    Anderzen-Carlsson, Agneta
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. Department of Health Sciences, Nursing, Faculty of Health, Science, and Technology, Karlstad University, Karlstad, Sweden.
    Nakstad, Britt
    Department of Pediatric and Adolescent Medicine, Akershus University Hospital, Nordbyhagen, Norway; Institute for Clinical Medicine, Campus Ahus, University of Oslo, Nordbyhagen, Norway.
    A Qualitative Study of the Experiences of Norwegian Parents of Very Low Birthweight Infants Enrolled in a Randomized Nutritional Trial2018Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 43, s. E66-E74Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: The aim of this studywas to examine howparents of very lowbirthweight (VLBW) infants experienced having their newborn infant enrolled in a randomized controlled intervention trial (RCT).

    Design and Methods: A qualitative descriptive design was used. Data were collected through individual semistructured interviews with 15 parents of 9 participating VLBW infants. The data were then made the object of an inductive qualitative content analysis.

    Results: The parents expressed trust in the competence and motivation of the researchers and were confident that participating in the project would do no harm, but insteadwould potentially benefit their infant. The parents felt privileged for being given the chance to participate, to commit to the project; theywerewilling to invest their time and effort in the project. Participation could be stressful for the parents, ranging from minor irritation to situations in which they felt overwhelmed and not entirely in control. Many families lived stressful lives, and participation, particularly the follow-up after being discharged, may have added to this.

    Conclusions: Infant participation in an RCT can be a positive experience, making the parents feel that they are given a chance to both contribute and receive something special. Participation can also be stressful because of conditions both related and unrelated to the RCT.

    Practice Implications: We identified several issues that researchers in future trials with VLBWinfants need to address to minimize parental stress. Recruitment to intervention studies within the immediate period around birth should be avoided, if possible. (C) 2018 Elsevier Inc. All rights reserved.

  • 8.
    Olsson, Emma
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. Department of Pediatrics, Örebro University Hospital, Örebro, Sweden.
    Eriksson, Mats
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län.
    Anderzen-Carlsson, Agneta
    Region Örebro län. Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Region Örebro County, Örebro, Sweden.
    Skin-to-Skin Contact Facilitates More Equal Parenthood: A Qualitative Study From Fathers' Perspective2017Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 34, nr May-Jun 2017, s. e2-e9Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Design and Methods: A descriptive design was used where 20 fathers of premature infants were interviewed using a semi-structured interview-guide. The guide contained the following five topics: the fathers' feelings about and experiences of using skin-to-skin contact (SSC), the physical environment at the Neonatal Intensive Care unit, staff attitudes, and whether SSC had any impact on the relationship with their partner and other children in the family. The interviews were analyzed using directed qualitative content analysis and the results compared with those of a qualitative systematic review by Anderzén-Carlsson and colleagues.

    Results: The result shows that the fathers' overall experience of SSC was positive and as in the aforementioned review, they described experiences that were both gratifying and challenging. They felt more included and just as important as the mother because SSC and the demands placed on them by the premature birth helped them to achieve more equal parenthood.

    Conclusion: The fathers' overall experiences of SSC were positive as they felt included in their infants' care and just as important as the mothers. To a great degree the theoretical model tested was supported, although some weaknesses and differences were identified.

    Practical Implications: It is important to include fathers in neonatal care and recognize that they feel equally important as mothers in caring for premature infants.

1 - 8 av 8
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