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  • 1.
    Höglund, Erik
    et al.
    Örebro University, School of Health Sciences. University Health Care Research Center.
    Schröder, Agneta
    Örebro University, School of Health Sciences.
    Möller, Margareta
    Örebro University, School of Health Sciences. University Health Care Research Center.
    Andersson-Hagiwara, Magnus
    Borås University, Borås, Sweden.
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. University Health Care Research Center.
    The ambulance nurse experiences of non-conveying patients2019In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 28, no 1-2, p. 235-244Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES: To explore ambulance nurses' (ANs) experiences of non-conveying patients to alternate levels of care.

    BACKGROUND: Increases in ambulance utilisation and in the number of patients seeking ambulance care who do not require medical supervision or treatment during transport have led to increased nonconveyance (NC) and referral to other levels of care.

    DESIGN: A qualitative interview study was conducted using an inductive research approach.

    METHODS: The study was conducted in a region in the middle of Sweden during 2016-2017. Twenty nurses were recruited from the ambulance departments in the region. A conventional content analysis was used to analyse the interviews. The study followed the COREQ checklist.

    RESULTS: The ANs experienced NC as a complex and difficult task that carried a large amount of responsibility. They wanted to be professional, spend time with the patient and find the best solution for him or her. These needs conflicted with the ANs' desire to be available for assignments with a higher priority. The ANs could feel frustrated when they perceived that ambulance resources were being misused and when it was difficult to follow the NC guidelines.

    CONCLUSION: If ANs are expected to nonconvey patients seeking ambulance care, they need a formal mandate, knowledge and access to primary health care.

    RELEVANCE TO CLINICAL PRACTICE: This study provides new knowledge regarding the work situation of ANs in relation to NC. These findings can guide future research and can be used by policymakers and ambulance organisations to highlight areas that need to evolve to improve patient care.

  • 2.
    Höglund, Erik
    et al.
    Örebro University, School of Health Sciences.
    Schröder, Agneta
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Möller, Margareta
    Örebro University, School of Health Sciences.
    Hagiwara, Magnus
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Ambulance nurses experiences of non-conveying patients to another level of care2018Conference paper (Refereed)
  • 3.
    Höglund, Erik
    et al.
    Örebro University, School of Health Sciences.
    Schröder, Agneta
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Möller, Margareta
    Örebro University, School of Health Sciences.
    Hagiwara, Magnus
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Hänvisning till annan vårdnivå: En prehospital patientsäkerhetsstudie2018Conference paper (Refereed)
  • 4.
    Höglund, Erik
    et al.
    Örebro University, School of Health Sciences.
    Schröder, Agneta
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Möller, Margareta
    Örebro University, School of Health Sciences.
    Hagiwara, Magnus
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. Örebro University Hospital.
    The ambulance nurse experinces of non-conveying patients2018Conference paper (Refereed)
  • 5.
    Langegard, Ulrica
    et al.
    Institute of Health and Care Sciences of Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Johansson, Birgitta
    Department of Immunology, Genetics, and Pathology, Uppsala University, Uppsala, Sweden.
    Björk-Eriksson, Thomas
    Regional Cancer Center West, Gothenburg, Sweden.
    Fransson, Per
    Department of Nursing, Umeå University, Umeå, Sweden.
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. Örebro University Hospital. University Healthcare Research Centre.
    Sjövall, Katarina
    Department of Oncology, Skåne University Hospital, Lund, Sweden.
    Ahlberg, Karin
    Institute of Health and Care Sciences of Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Symptom Clusters in Patients With Brain Tumors Undergoing Proton Beam Therapy2019In: Oncology Nursing Forum, ISSN 0190-535X, E-ISSN 1538-0688, Vol. 46, no 3, p. 349-363Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: To explore symptom clusters during proton beam therapy in patients with primary brain tumors and investigate associations among symptom clusters, demographic variables, and comorbidity in this patient population.

    SAMPLE & SETTING: Data were collected from 187 adult patients with primary brain tumors during their treatment periods in the Skandion Clinic in Uppsala, Sweden. Symptoms were assessed with the Radiotherapy-Related Symptoms Assessment Scale, and comorbidity was evaluated with the Self-Administered Comorbidity Questionnaire.

    METHODS & VARIABLES: The study used a quantitative and longitudinal design. Exploratory factor analysis was used to determine the underlying structure of symptom clusters.

    RESULTS: Three clusters were identified: mood, reduced appetite, and reduced energy. The mood cluster had the highest factor loadings (0.71-0.86). In addition, demographic and comorbidity characteristics were associated with symptom clusters in this group of patients.

    IMPLICATIONS FOR NURSING: Building knowledge about how these symptoms interact and are clustered will support healthcare professionals to more efficiently relieve symptom clusters during proton beam therapy.

  • 6.
    Langegård, Ulrica
    et al.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Ahlberg, Karin
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Björk-Eriksson, Thomas
    Department of Oncology, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Sweden; Regional Cancer Center West, Gothenburg, Sweden; The Skandion Clinic, Uppsala, Sweden.
    Fransson, Per
    Department of Nursing, Umeå University, Umeå, Sweden; Department of Cancercentrum, Norrlands University Hospital, Umeå, Sweden.
    Johansson, Birgitta
    Experimental Oncology, Department of Immunology, Genetics and Pathology, Uppsala University, Uppsala, Sweden; Uppsala University Hospital, Uppsala, Sweden.
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. Örebro University Hospital. University Healthcare Research Centre.
    Witt-Nyström, Petra
    The Skandion Clinic, Uppsala, Sweden; Department of Immunology, Genetics and Pathology, Section of Oncology, Uppsala University, Uppsala, Sweden.
    Sjövall, Katarina
    Department of Oncology, Skåne University Hospital, Sweden; Department of Oncology, Lund University, Lund, Sweden.
    The Art of Living With Symptoms: A Qualitative Study Among Patients With Primary Brain Tumors Receiving Proton Beam Therapy2020In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 43, no 2, p. E79-E86Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Symptom management in conjunction with proton beam therapy (PBT) from patient's perspective has not been explored. Such knowledge is essential to optimize the care in this relatively new treatment modality.

    OBJECTIVE: The aim of this study was to explore the process of symptom management in patients with brain tumor receiving PBT.

    METHODS: Participants were 22 patients with primary brain tumor who received PBT, recruited in collaboration with a national center for proton therapy and 2 oncology clinics at 2 university hospitals in Sweden. Interviews using open-ended questions were conducted before, during, and/or after treatment. Verbatim interview transcripts were analyzed using classic Grounded Theory.

    RESULTS: "The art of living with symptoms" emerged as the core concept. This encompassed 3 interconnected symptom management concepts: "Adapting to limited ability," "Learning about oneself," and "Creating new routines." These concepts were summarized in a substantive theoretical model of symptom management. Despite the struggle to manage symptoms, participants lived a satisfactory life.

    CONCLUSIONS: Symptom management in conjunction with PBT comprises a process of action, thoughts, and emotions. The concepts that emerged indicated patients' symptom management strategies were based on their own resources.

    IMPLICATIONS FOR PRACTICE: It is important that PBT facilities develop an approach that facilitates the symptom management process based on patients' experiences of symptoms, as well as their actions and available resources.

  • 7.
    Langegård, Ulrica
    et al.
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Göteborg, Sweden.
    Ahlberg, Karin
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Göteborg, Sweden.
    Fransson, Per
    Department of Nursing, Umeå University, Umeå, Sweden; Cancercentrum, Norrlands University Hospital, Umeå, Sweden .
    Johansson, Birgitta
    Experimental Oncology, Department of Immunology, Genetics and Pathology, Uppsala University Hospital, Uppsala University, Uppsala, Sweden.
    Sjövall, Katarina
    Department of Oncology, Skåne University Hospital, Scania, Sweden; Department of Oncology, Lund University, Lund, Sweden.
    Björk-Eriksson, Thomas
    Department of Oncology, Institute of Clinical Sciences, Sahlgrenska Academy at University of Gothenburg, Gothenburg, Sweden; The Skandion Clinic, Uppsala, Sweden; Regional Cancer Center West, Gothenburg, Sweden.
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. Örebro University Hospital. University Healthcare Research Centre.
    Evaluation of quality of care in relation to health-related quality of life of patients diagnosed with brain tumor: a novel clinic for proton beam therapy2019In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 27, no 7, p. 2679-2691Article in journal (Refereed)
    Abstract [en]

    Purpose: Patients with brain tumors constitute a vulnerable group, and it is important that they receive the highest quality of care (QoC). The study aim was to describe the perceptions of QoC and its association with health-related quality of life in brain tumor patients undergoing proton beam therapy in a newly established clinic.

    Method: Data were collected at the start of treatment and after 3 and 6weeks. Adult patients (18years old) with brain tumors (n=186) completed two self-administered questionnaires: a modified Quality from the Patients' Perspective, which measures perceived reality and subjective importance of care, and the EORTC QLQ-C30. Data were analyzed using parametric and non-parametric statistical tests.

    Results: The perceived QoC was highest for treatment information and lowest for dietician and smoking information, whereas interaction with doctors and nurses was rated as the most important aspect of quality of care. Subjective importance ratings were significantly higher than perceived reality ratings for 60% of items. A better global health was moderately correlated with a higher perceived support for fatigue.

    Conclusions: A need for quality improvement was identified for several aspects of patient care. Greater symptom distress during the treatment period led to greater perceived importance of symptom support. Ensuring QoC is complex and collaboration with other health care professionals is essential.

    Relevance to clinical practice: The clinic could improve QoC regarding information about possible symptoms, adjust care according to patient perceptions of importance, and involve patients in care decisions.

  • 8.
    Möllerberg, Marie-Louise
    et al.
    RI.SE (Research Institute of Sweden), Lund, Sweden.
    Langegård, Ulrica
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Ohlsson Nevo, Emma
    Örebro University, School of Health Sciences. Örebro University Hospital.
    Fransson, Per
    Department of Nursing, Umeå University, Umeå, Sweden; Department of Cancercentrum, Norrlands University Hospital, Umeå, Sweden.
    Johansson, Birgitta
    Experimental Oncology, Department of Immunology, Genetics and Pathology, Uppsala University, Uppsala University Hospital, Uppsala, Sweden.
    Ahlberg, Karin
    Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
    Sjövall, Katarina
    Department of Oncology, Skåne University Hospital, Lund, Sweden; Department of Oncology, Lund University, Lund, Sweden.
    Managing an altered social context-Patients experiences of staying away from home while undergoing proton beam therapy2020In: Nursing Open, E-ISSN 2054-1058Article in journal (Refereed)
    Abstract [en]

    Aim: To illuminate the experience of an altered social context for patients with primary brain tumours living away from home while undergoing proton beam therapy.

    Design: A descriptive, qualitative cross-sectional interview study.

    Methods: Nineteen patients were interviewed between December 2015-August 2016, either during (N = 7) or before and after (N = 12) their proton beam therapy. A hermeneutical analysis was performed.

    Results: Participants made adjustments to achieve control and well-being during the treatment period. The analysis also revealed two interrelated patterns that helped participants adjust: being part of the family from a distance and seeking affinity.

    Conclusion: It is important that patients receiving treatment far from home find a way to remain a part of their family and find affinity in the altered social context. Health professionals can prepare patients for the treatment period and can implement interventions to promote well-being for both patients and their relatives.

  • 9.
    Ohlsson Nevo, Emma
    et al.
    Örebro University, School of Health Sciences. Örebro University Hospital. Department of Surgery.
    Alkebro, Ingrid
    Department of Oncology, Örebro University Hospital, Örebro, Sweden.
    Ahlgren, Johan
    Department of Oncology, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Regional Oncological Centre Uppsala-Örebro, Uppsala, Sweden.
    Cancer patients' interest in participating in cancer rehabilitation2019In: Acta Oncologica, ISSN 0284-186X, E-ISSN 1651-226X, Vol. 58, no 12, p. 1676-1683Article in journal (Refereed)
    Abstract [en]

    Introduction: Rehabilitation for cancer patients aims at preventing and reducing the physical, mental, social and existential consequences of a cancer disease and its treatment. The aim of this study is to describe the patients' self-perceived interest in participating in cancer rehabilitation (CR).

    Material and methods: A total of 1179 cancer patients, diagnosed with 28 different cancer diagnoses, from November 2015 to October 2016, were identified via the national cancer quality registers. A questionnaire was developed for the purpose of this study, the Cancer Rehabilitation Interest. The questionnaire comprises 16 different rehabilitation activities. This study describes what activities the patients are interested to participate in.

    Results: The response rate was 62% and the final sample comprised 728 patients. The rehabilitation activities wanted by the cancer patients were Psychoeducational support group together with others with the same cancer diagnosis, Open lectures on cancer, Individual weight training with a physiotherapist and Personal support from a social worker. Most interested in cancer rehabilitation were women, younger patients, university educated patients and those who had received their diagnosis >= 12 months prior. Patients with a mandatory educational level had the lowest interest in all suggested activities compared with those having medium or high education.

    Conclusions: The interest of cancer rehabilitation of all approached patients in this study were 21%. Most interested were women, young patients, university educated and those who received their diagnosis >= 12 months earlier. About 30% of the participating cancer patients reported an interest of information and supportive groups, physical training and support from a hospital social worker. Patients with low level of education reported a low interest in CR. There are limitations in rehabilitation accessibility and that might affect a person's motivation to participate in this study.

  • 10.
    Ohlsson Nevo, Emma
    et al.
    Örebro University, School of Health Sciences. Örebro University Hospital, Örebro, Sweden; Centre for Health Care Sciences, Örebro County Council, Örebro, Sweden.
    Alkebro, Ingrid
    Örebro University Hospital, Örebro, Sweden.
    Ahlgren, Johan
    Örebro University Hospital, Örebro, Sweden; Faculty of Medicine and Health, Örebro University, Örebro, Sweden; Centre for Health Care Sciences, Örebro County Council, Örebro, Sweden.
    Cancer Patients Interest in Participating in Cancer Rehabilitation: A Postal Survey2018Conference paper (Refereed)
  • 11.
    Ohlsson Nevo, Emma
    et al.
    Örebro University, School of Health Sciences.
    Andershed, Birgitta
    Faculty of Health, Care and Nursing, Norwegian University of Science and Technology, Gjovik, Norway.
    Nilsson, Ulrica
    Örebro University, School of Health Sciences.
    Psycho-educational intervention on mood in patients suffering from colorectal and anal cancer: A randomized controlled trial2017In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 37, no 3, p. 135-142Article in journal (Refereed)
    Abstract [en]

    Psycho-educational interventions can moderate the negative impact of cancer on patients’ mental wellbeing, although studies of the effect on colorectal cancer (CRC) patients are scarce. Hence, the primary aim of this study was to test whether a nurse-led psycho-educational programme (PEP) could affect the emotional wellbeing of persons being treated for CRC and anal cancer. A secondary aim was to test whether there were any differences in emotional wellbeing in the patients before undergoing a PEP compared to a subset of the Swedish population. A randomized controlled trial was used. In total, 86 patients were randomized either to a PEP comprising seven lectures followed by discussions and reflections with peers or to standard treatment. Mental wellbeing was measured with the Mood Adjective Check List. The PEP significantly (p<0.04) increased the patients’ overall mood one month after the end of the intervention. The PEP seemed to have a short-term effect on patients’ overall mood. Other outcomes such as self-efficacy could be useful measures when evaluating PEP.

  • 12.
    Ohlsson Nevo, Emma
    et al.
    Örebro University, School of Health Sciences. Örebro University Hospital. Department of Surgery.
    Andersson, Gunnel
    Örebro University, School of Health Sciences.
    Nilsing Strid, Emma
    Örebro University, School of Medical Sciences. Örebro University Hospital. University Health Care Research Centre.
    In the hands of nurses: A focus group study of how nurses perceive and promote inpatients' needs for physical activity2020In: Nursing Open, E-ISSN 2054-1058, Vol. 7, no 1, p. 334-344Article in journal (Refereed)
    Abstract [en]

    Aims: To describe how nurses perceive and promote inpatients' needs for physical activity during their stay at the ward.

    Design: A qualitative descriptive design was employed providing an exploration of how nurses perceive and promote inpatients' need for physical activity.

    Methods: Seven semi-structured focus group discussions were held between November 2016 and February 2017 with 29 nurses in three hospitals in Sweden. Both interaction analysis and content analysis of the data were conducted.

    Results: Patients are dependent on nurses' prioritizations and promotions to be sufficiently physically active during their stay at the ward. The external environment and the integration of physical activity affected the promotion of physical activity. The nurses perceived that understanding the patient's expectations was important and that promotion of physical activity was a joint responsibility of patient, relatives and healthcare professionals. The interaction analysis revealed no clear hierarchical pattern as all members in each focus group took initiative to open the discussions. The Registered Nurses contributed with more new ideas.

  • 13.
    Ohlsson Nevo, Emma
    et al.
    Centre for Health Care Sciences, Örebro County Council, Örebro, Sweden.
    Andersson, Gunnel
    Örebro University, School of Health Sciences.
    Nilsing Strid, Emma
    Örebro University, School of Medical Sciences. Örebro University Hospital. Centre for Health Care Sciences.
    Nurses’ perceptions of hospitalized patients’ need for progressed physical activity: a focus group study2018Conference paper (Refereed)
    Abstract [en]

    Background: Patients enrolled in wards at hospitals spend time in bed even if rest is not medically indicated. The inactivity in the hospital reduces muscle strength and can create a need for assistants that did not exist before or justified by the treated condition. Early and progressive mobilization is a key factor to maintain physical functioning during the care period in hospital. Despite the knowledge of the importance of physical activity, patients are not sufficiently mobilized. Reasons why patients are not mobilized are related to organizational factors as well as patient and nurse personal characteristics. With an understanding of nurses’ experiences, interventions to enhance patients’ physical activity can be develop aiming at reducing the risk of physical deterioration due to inactivity.

    Objective: The aim of the study was to describe how nurses perceive hospitalized patients’ needs for progressed physical activity during their stay at the wards.

    Method: A total of seven focus group discussions were conducted in seven wards at three different hospitals in Sweden. A total of 16 nurses and 14 nurse assistants participated. The analysis was conducted in two steps; First an interaction analysis of the communication and respond pattern in the focus groups and thereafter a content analysis of the transcribed text.

    Results: The analysis is in progress and the results will be presented at the conference.

  • 14.
    Ohlsson Nevo, Emma
    et al.
    Örebro University, School of Health Sciences. School of Health Sciences, Department of Surgery, Örebro University Örebro, Örebro, Sweden; Faculty of Medicine and Health, University Health Care Research Center, Örebro University, Örebro, Sweden.
    Karlsson, Jan
    Örebro University, School of Medical Sciences. Örebro University Hospital. University Health Care Research Center.
    Impact of health-related stigma on psychosocial functioning in the general population: Construct validity and Swedish reference data for the Stigma-related Social Problems scale (SSP)2019In: Research in Nursing & Health, ISSN 0160-6891, E-ISSN 1098-240X, Vol. 42, no 1, p. 72-81Article in journal (Refereed)
    Abstract [en]

    Felt stigma is an internalized sense of shame about having an unwanted condition, along with fear of discrimination. The Stigma-related Social Problems (SSP) scale was constructed to measure the impact of health-related stigma on psychosocial functioning in people with different diseases and disorders. The performance of the SSP scale was tested in 3,422 subjects from the general population (Mid-Swed Health Survey) and in subgroups according to gender, age, occupation, and education. The homogeneity and construct validity of the Distress and Avoidance scales were confirmed by exploratory factor analysis and the two factors were accurately reproduced across gender and age subgroups. The internal consistency reliability was high for both the Distress and Avoidance scales. Reliability coefficients were above the 0.90 standard for the Distress scale in all subgroups and for the Avoidance scale in most subgroups. The SSP scale is an instrument with sound psychometric properties that can be used to identify psychosocial disturbances.

  • 15.
    Ohlsson Nevo, Emma
    et al.
    Örebro University, School of Health Sciences.
    Karlsson, Jan
    Örebro University, School of Medical Sciences. Örebro University Hospital.
    Impact of health-related stigma on psychosocial functioning in the general population: construct validity of the Stigma-related Social Problems scale2018Conference paper (Refereed)
    Abstract [en]

    Background: Felt stigma is an internalized sense of shame about having an unwanted condition along with fear of discrimination due to imputed inferiority or unacceptability. Various illnesses and symptoms of disease are associated with health-related stigma and individuals may experience stigma that strongly affects their quality of life. The Stigmarelated Social Problems scale (SSP) was developed for measuring the impact of health-related stigma on social functioning in people with different diseases and disorders.

    Objective: The aim of the study was to evaluate the validity of SSP in the general Swedish population.

    Method: In 2015, SSP was sent to a random population sample (n=8140). Tests of the internal consistency reliability of scale scores (Cronbach’s alpha), the unidimensionality and homogeneity of scales (factor analysis), item-scale convergent validity, ceiling and floor effects, and known group analysis were conducted.

    Results: The response rate was 42%. Reliability coefficients were high (< 0.93) for both scales. Factor analyses confirmed the unidimensionality. Item-scale correlations for both scales indicated satisfactory item-scale convergent validity (r ≥ 0.40). The proportion of subjects scoring at the lowest possible score level (floor effect) was 25% for the Distress scale and 28% for the Avoidance scale, while ceiling effects were marginal (<1%). The proportion of missing items was generally low, ranging from 0.8-1.5%.

  • 16.
    Ohlsson Nevö, Emma
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Surgery, Örebro University Hospital, Örebro, Sweden; Centre for Health Care Sciences, Region Örebro County, Örebro, Sweden.
    Karlsson, Jan
    Faculty of Medicine and Health, Centre for Health Care Sciences, Örebro University, Örebro, Sweden; Faculty of Medicine and Health, Department of Medicine, Örebro University, Örebro, Sweden.
    Nilsson, Ulrica
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Effects of a psycho-educational programme on health-related quality of life in patients treated for colorectal and anal cancer: a feasibility trial2016In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 21, p. 181-188Article in journal (Refereed)
    Abstract [en]

    Purpose: Colorectal cancer (CRC) may have a negative impact on a person's quality of life. Psycho-educational interventions for patients with CRC are rarely studied. The purpose of this feasibility trial was to evaluate the effect of a psycho-educational programme (PEP) on the health-related quality of life (HRQL) of patients treated for CRC and anal cancer.

    Methods: Patients with CRC and anal cancer were randomly assigned to a PEP (n = 47) or standard treatment (n = 39). The PEP included informative lectures, discussion, and reflection. HRQL was evaluated using the SF-36 at baseline and 1, 6, and 12 months after the end of the PEP.

    Results: Patients in the PEP group had significantly better Mental Health scores after 1 month and significantly better Bodily Pain scores after 6 months compared with patients who received standard care.

    Conclusion: The results of this study indicate that a PEP can have a short-term effect on the mental health and bodily pain of patients treated for CRC and anal cancer when comparing with a control group. The article discusses the methodological difficulties of evaluating an intervention such as this PEP in a clinical setting.

  • 17.
    Ohlsson-Nevo, Emma
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Colorectal cancer: patients’ and next-of-kin’s experiences and the effects of a psycho-educational program2013Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Purpose: To test whether a psycho-educational program affects mental wellbeing in persons treated for colorectal cancer and their next-of-kin.

    Design: A prospective, longitudinal, randomized controlled trial.

    Setting: Surgical clinic at a university hospital in Sweden.

    Sample: 105 colorectal cancer patients and 71 next-of-kin were allocated to a psycho­educational program or to standard care.

    Methods: Mental wellbeing was evaluated with the Mood Adjective Check List and The Hospital Anxiety and Depression Scale at baseline and at 1, 6, and 12 months. The program consisted of seven meetings, including lecture and time for reflection with other patients/next­of-kin.

    Main Research Variable: Overall mood, activity, calmness, pleasantness, anxiety, and depression.

    Findings: The psycho-educational program increased overall mood, calmness, and pleasantness among patients after one month but had no effect on activity, anxiety, or depression. The program had no effect on the overall mood, activity, calmness, pleasantness, anxiety, or depression among next-of-kin.

    Conclusion: The psycho-educational program had a short-term effect on overall patient mood, calmness, and pleasantness but not on next-of-kin. Implications for Nursing: A psycho-educational program including lecture and time for reflection can be used with a colorectal cancer patient population to improve some aspects of their mental wellbeing.

    List of papers
    1. Life is back to normal and yet not: partners' and patient's experiences of life of the first year after colorectal cancer surgery
    Open this publication in new window or tab >>Life is back to normal and yet not: partners' and patient's experiences of life of the first year after colorectal cancer surgery
    2012 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 3-4, p. 555-563Article in journal (Refereed) Published
    Abstract [en]

    Aim: To describe the experience of life the first year after surgery from the perspective of persons treated for colorectal cancer and their partners.

    Background: Colorectal cancer is a common cancer form, and treatment can cause unpleasant side effects such as sexual dysfunction and bowel problems. Partners struggle to keep family life normal and provide support. Little is known about couples' experiences a year after treatment for colorectal cancer.

    Design: Qualitative descriptive. Methods. Individual semi-structured interviews with 13 persons treated for colorectal cancer and their partners, a total of 26 participants.

    Results: One theme was identified in the study; ` Life is back to normal and yet not': participants described living a normal but different life than before. Three subthemes were identified; ` Life has a shadow of death', ` The treated body sets the rules' and ` To share or not share the illness'.

    Conclusions: Findings showed that both the patients' and their partners' lives were influenced by uncertainty and the condition of the patient. Attitudes varied towards sharing the illness. It was found that information needs varied both within and between couples. A future challenge to healthcare personnel is the obligation to meet the needs of both patients and their partners on the illness trajectory and recovery after treatment for colorectal cancer.

    Relevance to clinical practice: Findings enhance the understanding of the impact of colorectal cancer on both patients and partners. Healthcare personnel need to assess both the patient's and partner's need for information, support and assistance. Support groups could be an effective tool for providing information, communication and support. Future studies are needed to evaluate such groups.

    Place, publisher, year, edition, pages
    Hoboken, USA: Wiley-Blackwell, 2012
    Keywords
    Colorectal cancer, couples, nurses, nursing, partners, patients, qualitative study
    National Category
    Nursing
    Research subject
    Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-22130 (URN)10.1111/j.1365-2702.2011.03830.x (DOI)000298793400026 ()21883573 (PubMedID)2-s2.0-84855358473 (Scopus ID)
    Available from: 2012-03-16 Created: 2012-03-16 Last updated: 2018-05-08Bibliographically approved
    2. Effects of a psycho-educational programme on Health-Related Quality of Life in patients treated for colorectal and anal cancer and their next-of-kin: a randomized controlled study
    Open this publication in new window or tab >>Effects of a psycho-educational programme on Health-Related Quality of Life in patients treated for colorectal and anal cancer and their next-of-kin: a randomized controlled study
    (English)Manuscript (preprint) (Other academic)
    National Category
    Medical and Health Sciences
    Research subject
    Medicine
    Identifiers
    urn:nbn:se:oru:diva-32413 (URN)
    Available from: 2013-11-15 Created: 2013-11-15 Last updated: 2017-10-17Bibliographically approved
    3. Effects of a psycho-educational intervention on mood, anxiety and depression in colorectal & anal cancer patients and their next-of-kin: a randomized controlled trial
    Open this publication in new window or tab >>Effects of a psycho-educational intervention on mood, anxiety and depression in colorectal & anal cancer patients and their next-of-kin: a randomized controlled trial
    (English)Manuscript (preprint) (Other academic)
    Abstract [en]

    Purpose: To test whether a psycho-educational program affects mental wellbeing in persons treated for colorectal cancer and their next-of-kin.

    Design: A prospective, longitudinal, randomized controlled trial.

    Setting: Surgical clinic at a university hospital in Sweden.

    Sample: 105 colorectal cancer patients and 71 next-of-kin were allocated to a  sychoeducational program or to standard care.

    Methods: Mental wellbeing was evaluated with the Mood Adjective Check List and The Hospital  nxiety and Depression Scale at baseline and at 1, 6, and 12 months. The program consisted of seven meetings, including lecture and time for reflection with other patients/nextof- kin.

    Main Research Variable: Overall mood, activity, calmness, pleasantness, anxiety, and depression.

    Findings: The psycho-educational program increased overall mood, calmness, and pleasantness among patients after one month but had no effect on activity, anxiety, or depression. The program had no effect on the overall mood, activity, calmness, pleasantness, anxiety, or depression among next-of-kin.

    Conclusion: The psycho-educational program had a short-term effect on overall patient mood, calmness, and pleasantness but not on next-of-kin. Implications for Nursing: A psycho-educational program including lecture and time for reflection can be used with a colorectal cancer patient population to improve some aspects of their mental wellbeing.

    Keywords
    colorectal cancer, caregiver, next-of-kin, psycho-educational program, cancer rehabilitation, RCT
    National Category
    Medical and Health Sciences
    Research subject
    Medicine
    Identifiers
    urn:nbn:se:oru:diva-32412 (URN)
    Available from: 2013-11-15 Created: 2013-11-15 Last updated: 2017-10-17Bibliographically approved
    4. Finding a wider horizon: experiences of being a next-of-kin of a person suffering from colorectal cancer as told after having participated in a psychoeducational program
    Open this publication in new window or tab >>Finding a wider horizon: experiences of being a next-of-kin of a person suffering from colorectal cancer as told after having participated in a psychoeducational program
    2013 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 17, no 3, p. 324-330Article in journal (Refereed) Published
    Abstract [en]

    Aim

    The aim of this study was twofold: first, to describe the experience of being the next-of-kin of a person suffering from colorectal cancer (CRC), and second, to describe how a psychoeducational program (PEP) might contribute to the next-of-kin's life experience. Psychosocial interventions for next-of-kin to cancer patients are effective in improving quality of life issues, although there are conflicting results in previous studies. Most studies have evaluated the effects of PEP for mixed cancer groups but there is little knowledge about how next-of-kin to a person treated for CRC describe their experience of life and their experience of participating in a PEP.

    Methods

    The study used a qualitative descriptive design. Individual, open-ended interviews with each of the 18 next-of-kin, of persons receiving treatment for CRC, who participated in a PEP. Data were analyzed using content analysis.

    Results

    Based on the experiences described by the next-of-kin to a person treated for CRC, the subtheme; Facing a personal challenge was developed. From their described experiences of participating in a PEP, the subtheme Obtaining New Insights and Perspectives emerged. One main theme was finally identified; Finding a Wider Horizon. The study illuminates the importance of integrating the next-of-kin/family in the colorectal cancer care.

    Conclusion

    The findings from this study can be used to plan future interventions for next-of-kin to patients with CRC as it offers possibilities to understand the next-of-kin's situation and experience from participating in a PEP.

    Keywords
    colorectal cancer, patient, next-of-kin, psychoeducational program, content analysis, caregiver
    National Category
    Nursing
    Research subject
    Caring sciences
    Identifiers
    urn:nbn:se:oru:diva-26793 (URN)10.1016/j.ejon.2012.09.001 (DOI)000318466500010 ()23036312 (PubMedID)2-s2.0-8487630177 (Scopus ID)
    Available from: 2013-01-07 Created: 2013-01-07 Last updated: 2018-08-27Bibliographically approved
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  • 18.
    Ohlsson-Nevo, Emma
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Department of Surgery.
    Andershed, Birgitta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; Department of Nursing, Gjøvik University College, Gjøvik, Norway.
    Nilsson, Ulrica
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Centre for Health Care Sciences, Örebro Country Council, Örebro, Sweden; Department of Nursing, Umeå University, Umeå, Sweden.
    Anderzen-Carlsson, Agneta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Centre for Health Care Sciences.
    Life is back to normal and yet not: partners' and patient's experiences of life of the first year after colorectal cancer surgery2012In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 3-4, p. 555-563Article in journal (Refereed)
    Abstract [en]

    Aim: To describe the experience of life the first year after surgery from the perspective of persons treated for colorectal cancer and their partners.

    Background: Colorectal cancer is a common cancer form, and treatment can cause unpleasant side effects such as sexual dysfunction and bowel problems. Partners struggle to keep family life normal and provide support. Little is known about couples' experiences a year after treatment for colorectal cancer.

    Design: Qualitative descriptive. Methods. Individual semi-structured interviews with 13 persons treated for colorectal cancer and their partners, a total of 26 participants.

    Results: One theme was identified in the study; ` Life is back to normal and yet not': participants described living a normal but different life than before. Three subthemes were identified; ` Life has a shadow of death', ` The treated body sets the rules' and ` To share or not share the illness'.

    Conclusions: Findings showed that both the patients' and their partners' lives were influenced by uncertainty and the condition of the patient. Attitudes varied towards sharing the illness. It was found that information needs varied both within and between couples. A future challenge to healthcare personnel is the obligation to meet the needs of both patients and their partners on the illness trajectory and recovery after treatment for colorectal cancer.

    Relevance to clinical practice: Findings enhance the understanding of the impact of colorectal cancer on both patients and partners. Healthcare personnel need to assess both the patient's and partner's need for information, support and assistance. Support groups could be an effective tool for providing information, communication and support. Future studies are needed to evaluate such groups.

  • 19.
    Ohlsson-Nevo, Emma
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Department of Surgery, Örebro University Hospital, Örebro, Sweden.
    Andershed, Birgitta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Palliative Care Research, Ersta Sköndal University College, Stockholm, Sweden; Department of Nursing, Gjøvik University College, Gjøvik, Norway.
    Nilsson, Ulrica G
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Anderzen-Carlsson, Agneta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital.
    Finding a wider horizon: experiences of being a next-of-kin of a person suffering from colorectal cancer as told after having participated in a psychoeducational program2013In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 17, no 3, p. 324-330Article in journal (Refereed)
    Abstract [en]

    Aim

    The aim of this study was twofold: first, to describe the experience of being the next-of-kin of a person suffering from colorectal cancer (CRC), and second, to describe how a psychoeducational program (PEP) might contribute to the next-of-kin's life experience. Psychosocial interventions for next-of-kin to cancer patients are effective in improving quality of life issues, although there are conflicting results in previous studies. Most studies have evaluated the effects of PEP for mixed cancer groups but there is little knowledge about how next-of-kin to a person treated for CRC describe their experience of life and their experience of participating in a PEP.

    Methods

    The study used a qualitative descriptive design. Individual, open-ended interviews with each of the 18 next-of-kin, of persons receiving treatment for CRC, who participated in a PEP. Data were analyzed using content analysis.

    Results

    Based on the experiences described by the next-of-kin to a person treated for CRC, the subtheme; Facing a personal challenge was developed. From their described experiences of participating in a PEP, the subtheme Obtaining New Insights and Perspectives emerged. One main theme was finally identified; Finding a Wider Horizon. The study illuminates the importance of integrating the next-of-kin/family in the colorectal cancer care.

    Conclusion

    The findings from this study can be used to plan future interventions for next-of-kin to patients with CRC as it offers possibilities to understand the next-of-kin's situation and experience from participating in a PEP.

  • 20.
    Ohlsson-Nevo, Emma
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Department of Surgery, Örebro University Hospital, Örebro, Sweden; Centre for Health Care Sciences, Örebro County Council; Örebro, Sweden.
    Karlsson, Jan
    Centre for Health Care Sciences, Örebro County Council; Örebro, Sweden; Department of Medicine, Örebro University Hospital, Örebro, Sweden.
    Nilsson, Ulrica
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Effects of a psycho-educational intervention on mood, anxiety and depression in colorectal & anal cancer patients and their next-of-kin: a randomized controlled trialManuscript (preprint) (Other academic)
    Abstract [en]

    Purpose: To test whether a psycho-educational program affects mental wellbeing in persons treated for colorectal cancer and their next-of-kin.

    Design: A prospective, longitudinal, randomized controlled trial.

    Setting: Surgical clinic at a university hospital in Sweden.

    Sample: 105 colorectal cancer patients and 71 next-of-kin were allocated to a  sychoeducational program or to standard care.

    Methods: Mental wellbeing was evaluated with the Mood Adjective Check List and The Hospital  nxiety and Depression Scale at baseline and at 1, 6, and 12 months. The program consisted of seven meetings, including lecture and time for reflection with other patients/nextof- kin.

    Main Research Variable: Overall mood, activity, calmness, pleasantness, anxiety, and depression.

    Findings: The psycho-educational program increased overall mood, calmness, and pleasantness among patients after one month but had no effect on activity, anxiety, or depression. The program had no effect on the overall mood, activity, calmness, pleasantness, anxiety, or depression among next-of-kin.

    Conclusion: The psycho-educational program had a short-term effect on overall patient mood, calmness, and pleasantness but not on next-of-kin. Implications for Nursing: A psycho-educational program including lecture and time for reflection can be used with a colorectal cancer patient population to improve some aspects of their mental wellbeing.

  • 21.
    Ohlsson-Nevo, Emma
    et al.
    Örebro University, School of Humanities, Education and Social Sciences. Department of Surgery, Örebro University Hospital, Örebro, Sweden; Centre for Health Care Sciences, Örebro County Council; Örebro, Sweden.
    Karlsson, Jan
    Centre for Health Care Sciences, Örebro County Council; Örebro, Sweden; Department of Medicine, Örebro University Hospital, Örebro, Sweden.
    Nilsson, Ulrica
    Effects of a psycho-educational programme on Health-Related Quality of Life in patients treated for colorectal and anal cancer and their next-of-kin: a randomized controlled studyManuscript (preprint) (Other academic)
1 - 21 of 21
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