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  • 1.
    Arnell, Susann
    Örebro universitet, Institutionen för hälsovetenskaper.
    Participation in physical activity among adolescents with autism spectrum disorder: the perspectives of adolescents, parents and professionals2022Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    Findings from previous research show generally lower levels of physical activity (PA) among adolescents with autism spectrum disorder (ASD). The reasons for the low PA participation are complex and depend on several factors, often described as barriers to PA. However, the overall picture concerning participation in PA among adolescents with ASD remains incomplete, as it lacks the adolescents’ own perspectives. The mission to promote healthy PA habits is shared by several actors, including the family or parents and the education, health and municipal services. In order to understand and comprehensively describe these adolescents’ PA participation, different PA contexts and perspectives need to be included. The overall aim of this thesis was therefore to study participation in PA among adolescents with ASD from the adolescents’ (study I), parents’ (study II) and professionals’ (study III) perspectives. The findings from study I showed a conditional participation behaviour in PA among adolescents with ASD. In studies II and III, the results revealed a need to give PA issues increased priority and support through collaborative efforts. Complementary roles are needed to promote participation in PA. In study IV, the feasibility of using a Q-sort tool to map conditions for participation in PA was investigated. The results showed that Q-sort is a feasible method that can be used to offer tailored support according to the adolescents’ individual-specific conditions for participation. In conclusion, a condition-controlled behaviour when participating in PA was described in all four studies. When promoting participation in PA, these individual-specific conditions for participation need to be recognized and tailored support offered. 

    Delarbeid
    1. Perceptions of Physical Activity Participation Among Adolescents with Autism Spectrum Disorders: A Conceptual Model of Conditional Participation
    Åpne denne publikasjonen i ny fane eller vindu >>Perceptions of Physical Activity Participation Among Adolescents with Autism Spectrum Disorders: A Conceptual Model of Conditional Participation
    2018 (engelsk)Inngår i: Journal of autism and developmental disorders, ISSN 0162-3257, E-ISSN 1573-3432, Vol. 48, nr 5, s. 1792-1802Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Adolescents with an autism spectrum disorder (ASD) are less physically active compared to typically developing peers. The reasons for not being physically active are complex and depend on several factors, which have not been comprehensively described from the adolescent's perspective. Therefore, the aim was to describe how adolescents with an ASD perceive, experience and reflect on their participation in physical activity. Interviews with 24 adolescents diagnosed with high-functioning ASD, aged 12-16 years, were analysed with qualitative content analysis with an inductive approach. They expressed a variety of reasons determining their willingness to participate, which were conceptualized as: Conditional participation in physical activities. The present study presents an alternative perspective on participation in physical activity, with impact on intervention design.

    sted, utgiver, år, opplag, sider
    New York, NY, USA: Springer, 2018
    Emneord
    Autism spectrum disorder; Adolescent; Physical activity; Participation
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-63403 (URN)10.1007/s10803-017-3436-2 (DOI)000429476300029 ()29236210 (PubMedID)2-s2.0-85037992493 (Scopus ID)
    Merknad

    Funding Agencies:

    Sunnerdahls Handikappfond  

    Kempe-Carlgrenska fonden  

    Region Örebro County, Sweden 

    Tilgjengelig fra: 2017-12-19 Laget: 2017-12-19 Sist oppdatert: 2022-11-02bibliografisk kontrollert
    2. Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder
    Åpne denne publikasjonen i ny fane eller vindu >>Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder
    2020 (engelsk)Inngår i: Autism, ISSN 1362-3613, E-ISSN 1461-7005, Vol. 24, nr 8, s. 2243-2255, artikkel-id 1362361320942092Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits, and they possess important knowledge about the adolescents' needs when it comes to enhancing participation in physical activity. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe parents' perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. The interviews were analyzed using an inductive content analysis approach. The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation. Lay abstract What is already known about the topic?The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe the parental perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. What this paper adds?The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. Implications for practice, research, or policy.The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation.

    sted, utgiver, år, opplag, sider
    Sage Publications, 2020
    Emneord
    adolescent, autism spectrum disorder, family, parent, participation, physical activity
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-85046 (URN)10.1177/1362361320942092 (DOI)000552729100001 ()32713182 (PubMedID)2-s2.0-85088439335 (Scopus ID)
    Merknad

    Funding Agency:

    Region Örebro County, Sweden

    Tilgjengelig fra: 2020-08-27 Laget: 2020-08-27 Sist oppdatert: 2022-11-02bibliografisk kontrollert
    3. Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder
    Åpne denne publikasjonen i ny fane eller vindu >>Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder
    2022 (engelsk)Inngår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, nr 9, s. 1728-1736Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    PURPOSE: Various stakeholders contribute to the development of healthy physical activity habits in adolescents with autism spectrum disorder (ASD). Parents and stakeholders seek collaborative actions but little is still known about such efforts. The purpose of this study was thus to explore how professionals from different services experience stakeholder collaboration when promoting participation in physical activity for these adolescents.

    METHOD: Five focus group discussions were held with 17 professionals from education, health care, community, and sports organizations, engaged in the promotion of physical activity in adolescents with ASD. The data were analyzed with qualitative content analysis.

    RESULTS: . The professionals though experienced that this collaboration was hampered by the low priority given to physical activity issues within different organizations, by limited resources, lack of knowledge, and unclear roles.

    CONCLUSIONS: Notwithstanding the professionals' different roles, all agreed that physical activity issues need to be prioritized and that each stakeholder needs to acknowledge the shared responsibility of collaboration. However, more clear routines for collaboration that include joined efforts but also highlight the organization-specific responsibilities might enhance the collaborative efforts.

    • In-depth understanding of both the adolescents' needs and the environments in which physical activity is promoted is required if participation in physical activity among adolescents with ASD is to be enhanced.
    • Families and professionals within different organizations need to be supported to collaborate when mapping and meeting the adolescents' physical activity needs.
    • Issues regarding developing physical activity habits need to be prioritized.
    • Professionals, such as education, health, and community professionals who are important for the promotion of healthy physical activity habits need to be included in multi-stakeholder meetings.
    sted, utgiver, år, opplag, sider
    Informa Healthcare, 2022
    Emneord
    Autism spectrum disorder, adolescent, collaboration, participation, physical activity
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-89922 (URN)10.1080/09638288.2021.1887944 (DOI)000620890000001 ()33621137 (PubMedID)2-s2.0-85101405257 (Scopus ID)
    Merknad

    Funding Agency:

    Region Örebro County, Sweden 

    Tilgjengelig fra: 2021-02-25 Laget: 2021-02-25 Sist oppdatert: 2023-12-08bibliografisk kontrollert
    4. Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorder
    Åpne denne publikasjonen i ny fane eller vindu >>Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorder
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-100810 (URN)
    Tilgjengelig fra: 2022-08-24 Laget: 2022-08-24 Sist oppdatert: 2022-11-02bibliografisk kontrollert
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  • 2.
    Arnell, Susann
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center (UFC) Region Örebro County, Örebro, Sweden.
    Jerlinder, K.
    Faculty of Health and Occupational Studies, University of Gävle, Gävle , Sweden.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för juridik, psykologi och socialt arbete. University Health Care Research Center (UFC) Region Örebro County, Örebro, Sweden.
    Participation in physical activities: a multilevel challenge for adolescents with autism spectrum disorders2017Konferansepaper (Annet vitenskapelig)
    Abstract [en]

    Introduction: Physical inactivity is one of the biggest current public health problems. Few adolescents with autism spectrum disorder (ASD) achieve the recommendation of daily physical activity (PA). The reasons for not being physically active depend on several complex factors, yet not comprehensively described from the adolescents’point of view. The absence of their perspective means that intervention strategies for health enhancing physical activity may not encompass the experiences of the adolescents themselves. Therefore the purpose of this study was to develop an understanding of the perceptions, experiences and reflections of adolescents with ASDs’participation in PA.

    Participants and methods: Twenty-four adolescents, diagnosed with ASD without a co-occurring intellectual disability, aged 12-16 years, participated in the study.Data was collected using qualitative interviews and inductively analyzed using qualitative content analysis.

    Results: Adolescents with ASD were a heterogeneous group in regard to their current PA habits and preferences. Their willingness to participate in PA was conditioned regarding; what, where, when and with whom. They described challenges in the activity and the social context during PA, especially during the mandatory physical education. Perceived demands, freedom of choice, physical ability and sense of control affected their PA participation.

    Conclusion: Findings indicate that the adolescents’willingness to participate was associated with interacting and individual-related conditions, which can be misinterpreted as unwillingness to participate in PA. Thus aspects of autonomy and knowledge about individual conditions and needs have to be recognized when intervention strategies for health enhancing physical activities are planned for this population.

  • 3.
    Arnell, Susann
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Örebro University, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden.
    Jerlinder, Kajsa
    The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden; Faculty of Health and Occupational Studies, University of Gävle, Gävle, Sweden.
    Geidne, Susanna
    Örebro universitet, Institutionen för hälsovetenskaper.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Örebro University, Örebro, Sweden; The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden.
    Experiences of stakeholder collaboration when promoting participation in physical activity among adolescents with autism spectrum disorder2022Inngår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, nr 9, s. 1728-1736Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    PURPOSE: Various stakeholders contribute to the development of healthy physical activity habits in adolescents with autism spectrum disorder (ASD). Parents and stakeholders seek collaborative actions but little is still known about such efforts. The purpose of this study was thus to explore how professionals from different services experience stakeholder collaboration when promoting participation in physical activity for these adolescents.

    METHOD: Five focus group discussions were held with 17 professionals from education, health care, community, and sports organizations, engaged in the promotion of physical activity in adolescents with ASD. The data were analyzed with qualitative content analysis.

    RESULTS: . The professionals though experienced that this collaboration was hampered by the low priority given to physical activity issues within different organizations, by limited resources, lack of knowledge, and unclear roles.

    CONCLUSIONS: Notwithstanding the professionals' different roles, all agreed that physical activity issues need to be prioritized and that each stakeholder needs to acknowledge the shared responsibility of collaboration. However, more clear routines for collaboration that include joined efforts but also highlight the organization-specific responsibilities might enhance the collaborative efforts.

    • In-depth understanding of both the adolescents' needs and the environments in which physical activity is promoted is required if participation in physical activity among adolescents with ASD is to be enhanced.
    • Families and professionals within different organizations need to be supported to collaborate when mapping and meeting the adolescents' physical activity needs.
    • Issues regarding developing physical activity habits need to be prioritized.
    • Professionals, such as education, health, and community professionals who are important for the promotion of healthy physical activity habits need to be included in multi-stakeholder meetings.
  • 4.
    Arnell, Susann
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Jerlinder, Kajsa
    Faculty of Health and Occupational Studies, University of Gävle, Gävle, Sweden.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper.
    Feasibility of Using Q-Sort to Map Conditional Participation in Physical Activity in Adolescents With Autism Spectrum Disorder2023Inngår i: Adapted Physical Activity Quarterly, ISSN 0736-5829, E-ISSN 1543-2777, Vol. 40, nr 1, s. 63-85Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Participation in physical activity among adolescents with autism is often conditional. However, there is a lack of methods for identifying these specific conditions. Therefore, the purpose of this study was to develop and investigate the feasibility of a Q-sort tool to map individual-specific conditions for participation in physical activity among adolescents with autism and to identify different viewpoints regarding conditions for such participation.

    METHOD: An exploratory mixed-methods design was employed to investigate the feasibility of using Q methodology and the Q-sort procedure to identify what individual-specific conditions are important for participation in physical activity for adolescents with autism.

    RESULTS: The adolescents ranked the statements with varying levels of ease. Two viewpoints were identified: Autonomous participation without surprises and Enjoyment of activity in a safe social context.

    CONCLUSION: Q-sort is a feasible method for mapping conditions for participation, which can guide the development of tailored physical activity interventions.

  • 5.
    Arnell, Susann
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Jerlinder, Kajsa
    Faculty of Health and Occupational Studies, University of Gävle, Gävle, Sweden.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper. The Swedish Institute for Disability Research (SIDR).
    Feasibility of using Q-sort to map conditional participation in physical activity in adolescents with autism spectrum disorderManuskript (preprint) (Annet vitenskapelig)
  • 6.
    Arnell, Susann
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Jerlinder, Kajsa
    Örebro University, Örebro, Sweden; University of Gävle, Gävle, Sweden.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper.
    Parents' perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder2020Inngår i: Autism, ISSN 1362-3613, E-ISSN 1461-7005, Vol. 24, nr 8, s. 2243-2255, artikkel-id 1362361320942092Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits, and they possess important knowledge about the adolescents' needs when it comes to enhancing participation in physical activity. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe parents' perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. The interviews were analyzed using an inductive content analysis approach. The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation. Lay abstract What is already known about the topic?The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe the parental perceptions of their adolescent child's participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12-16 years with autism spectrum disorder were interviewed. What this paper adds?The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. Implications for practice, research, or policy.The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents' physical activity participation.

  • 7.
    Arnell, Susann
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Jerlinder, Kajsa
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper.
    Participation in physical activities among adolescents with an Autism Spectrum Disorder: experiences from a parental perspective2019Konferansepaper (Annet vitenskapelig)
  • 8.
    Arnell, Susann
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. Faculty of Medicine and Health, University Health Care Research Center, Örebro University, Örebro, Sweden; School of Health Sciences, The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden; School of Health Sciences, The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden.
    Jerlinder, Kajsa
    School of Health Sciences, The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden; Faculty of Health and Occupational Studies, University of Gävle, Gävle, Sweden.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper. Faculty of Medicine and Health, University Health Care Research Center, Örebro University, Örebro, Sweden; School of Health Sciences, The Swedish Institute for Disability Research (SIDR), Örebro University, Örebro, Sweden .
    Perceptions of Physical Activity Participation Among Adolescents with Autism Spectrum Disorders: A Conceptual Model of Conditional Participation2018Inngår i: Journal of autism and developmental disorders, ISSN 0162-3257, E-ISSN 1573-3432, Vol. 48, nr 5, s. 1792-1802Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Adolescents with an autism spectrum disorder (ASD) are less physically active compared to typically developing peers. The reasons for not being physically active are complex and depend on several factors, which have not been comprehensively described from the adolescent's perspective. Therefore, the aim was to describe how adolescents with an ASD perceive, experience and reflect on their participation in physical activity. Interviews with 24 adolescents diagnosed with high-functioning ASD, aged 12-16 years, were analysed with qualitative content analysis with an inductive approach. They expressed a variety of reasons determining their willingness to participate, which were conceptualized as: Conditional participation in physical activities. The present study presents an alternative perspective on participation in physical activity, with impact on intervention design.

  • 9.
    Danielsson, Henrik
    et al.
    Department of Behavioural Sciences and Learning (IBL), Linköping University, Linköping, Sweden.
    Imms, Christine
    Apex Australia Chair of Neurodevelopment and Disability, Melbourne, Australia; The University of Melbourne, Murdoch Children’s Research Institute, Melbourne, Australia.
    Ivarsson, Magnus
    Department of Behavioural Sciences and Learning (IBL), Linköping University, Linköping, Sweden.
    Almqvist, Lena
    Mälardalen University, Västerås, Sweden; Jönköping University, Jönköping, Sweden.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper.
    King, Gillian
    Bloorview Research Institute, Toronto, Canada; Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada.
    Lyngbäck, Liz Adams
    Stockholm University, Stockholm, Sweden; FUB Swedish National Association for People with Intellectual Disability, Stockholm, Sweden.
    Andersson, Anna Karin
    Jönköping University, Jönköping, Sweden.
    Arnell, Susann
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län.
    Arvidsson, Patrik
    Centre for Research & Development Region Gävleborg, Gävle, Sweden; Centre for Augmentative and Alternative Communication, University of Pretoria, Pretoria, South Africa.
    Augustine, Lilly
    Jönköping University, Jönköping, Swedenvvvv.
    Brooks, Rob
    Faculty of Health Studies, University of Bradford, Bradford, UK.
    Eldh, Maria
    Norrköping Habilitation Centre, Region Östergötland, Norrköping, Sweden.
    Engde, Lisa
    Linköping Habilitation Centre, Region Östergötland, Linköping, Sweden.
    Engkvist, Helena
    Jönköping University, Jönköping, Sweden.
    Berglund, Ingalill Gimbler
    Jönköping University, Jönköping, Sweden.
    Green, Dido
    Jönköping University, Jönköping, Sweden; College of Health Medicine and Life Sciences, Brunel University London, Uxbridge, UK.
    Huus, Karina
    Jönköping University, Jönköping, Sweden.
    Karlsson, Charlotte
    Jönköping University, Jönköping, Sweden.
    Lygnegård, Frida
    Jönköping University, Jönköping, Sweden.
    Sjödin, Linda
    Jönköping University, Jönköping, Sweden; Jönköping Habilitation Centre, Region Jönköpings län, Jönköping, Sweden.
    Granlund, Mats
    Jönköping University, Jönköping, Sweden; Norwegian University of Natural Sciences and Technology, Trondheim, Gjøvik and Ålesund, Norway.
    A Systematic Review of Longitudinal Trajectories of Mental Health Problems in Children with Neurodevelopmental Disabilities2024Inngår i: Journal of Developmental and Physical Disabilities, ISSN 1056-263X, E-ISSN 1573-3580, Vol. 36, s. 203-242Artikkel, forskningsoversikt (Fagfellevurdert)
    Abstract [en]

    To review the longitudinal trajectories - and the factors influencing their development - of mental health problems in children with neurodevelopmental disabilities. Systematic review methods were employed. Searches of six databases used keywords and MeSH terms related to children with neurodevelopmental disabilities, mental health problems, and longitudinal research. After the removal of duplicates, reviewers independently screened records for inclusion, extracted data (outcomes and influencing factors), and evaluated the risk of bias. Findings were tabulated and synthesized using graphs and a narrative. Searches identified 94,662 unique records, from which 49 publications were included. The median publication year was 2015. Children with attention deficit hyperactivity disorder were the most commonly included population in retrieved studies. In almost 50% of studies, trajectories of mental health problems changed by < 10% between the first and last time point. Despite multiple studies reporting longitudinal trajectories of mental health problems, greater conceptual clarity and consideration of the measures included in research is needed, along with the inclusion of a more diverse range of populations of children with neurodevelopmental disabilities.

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