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  • 1.
    Anita, Johansson
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Ändlös omsorg och utmätt hälsa: Föräldraskapets paradoxer när ett vuxet barn har långvarig psykisk sjukdom2014Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this thesis was to deepen knowledge of what it means to be a parent of an adult child who suffers from long-term mental illness. Data collection in studies I-III consisted of qualitative interviews with 26 parents. In study I, 16 mothers and, in study II, 10 fathers were interviewed about the way in which their everyday life was affected when an adult child suffers from long-term mental illness. Data were analysed using qualitative content analysis. In study III, the same 26 parents participated as in studies I-II. The aim of the study was to investigate parents’ conceptions of the mental health care. Data were analysed by means of the phenomenographic method. Study IV is based on questionnaires completed by 151 parents. The aim was to investigate mothers’ and fathers’ health related quality of life (HRQOL) focusing on self-rated symptoms of anxiety, depression and burden as well as their experiences of encounters with the mental health services. Data were analysed for the most part by means of non-parametric method.

    The mothers’ everyday life was characterized by constant preparedness to adapt their life situation to the needs of their child (I). The fathers’ inherent ongoing struggle to ensure the child’s well-being required both strength and courage. Fathers attempted to maintain a good balance in life; this balancing act depended on collaboration between those involved in the child’s life, the family, the healthcare services and other authorities (II). The parents described feeling excluded from professional care and questioned its quality and accessibility (III). Mothers’ self-rated HRQOL was lower and they were also affected by burden and mental ill health to a greater extent than the fathers (IV).

    The results highlight shortcomings in the interaction between parents and mental health professionals. This highlights the importance of interventions that support and strengthen cooperation between parents and mental health professionals in the care of children who suffer from mental illness.

    List of papers
    1. Mothers' Everyday Experiences of Having an Adult Child Who Suffers from Long-Term Mental Illness
    Open this publication in new window or tab >>Mothers' Everyday Experiences of Having an Adult Child Who Suffers from Long-Term Mental Illness
    2010 (English)In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 31, no 11, p. 692-699Article in journal (Refereed) Published
    Abstract [en]

    This paper aims to describe everyday life experiences of mothers who have an adult child with a long-term mental illness. Sixteen mothers were interviewed. A content analysis resulted in one main theme: My adult child who is struggling with mental illness is always on my mind, and three subthemes: (1) living a life under constant strain, (2) living with an emotional burden, and (3) seeing light in the darkness despite difficulties. Knowledge of mothers’ everyday life experiences is of great importance in order to support them and thereby increase the possibility of these mothers being a source of strength for their child.

    National Category
    Humanities
    Research subject
    Caring sciences
    Identifiers
    urn:nbn:se:oru:diva-27597 (URN)10.3109/01612840.2010.515768 (DOI)20936890 (PubMedID)2-s2.0-77958097228 (Scopus ID)
    Available from: 2013-03-22 Created: 2013-02-16 Last updated: 2018-04-24Bibliographically approved
    2. Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness
    Open this publication in new window or tab >>Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness
    2012 (English)In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 3, no 2, p. 109-117Article in journal (Refereed) Published
    Abstract [en]

    The purpose of this study is to describe the everyday life experiences of fathers of adult children who have various forms of long-term mental illness. Ten fathers were interviewed. Content analysis revealed one main theme: Maintaining a strong façade while balancing on a thin line, and two sub-themes: (1) A constant struggle and (2) A feeling of powerlessness. The fathers demonstrated great engagement and good will to participate in their child's life. A sense of powerlessness and frustration at not having or being allowed freedom of action emerged. Cooperation between children, parents, the care service providers, and the authorities could increase the parents’ abilities to provide adequate support to the child as well as helping them to understand and make the incomprehensible manageable.

    Place, publisher, year, edition, pages
    Philadelphia, USA: Taylor & Francis, 2012
    National Category
    Medical and Health Sciences Nursing
    Research subject
    Medicine
    Identifiers
    urn:nbn:se:oru:diva-27598 (URN)10.3109/01612840.2011.627106 (DOI)22273345 (PubMedID)2-s2.0-84856368647 (Scopus ID)
    Available from: 2013-03-22 Created: 2013-02-16 Last updated: 2018-05-12Bibliographically approved
    3. Conceptions of mental health care: from the perspective of parents’ of adult children suffering from mental illness
    Open this publication in new window or tab >>Conceptions of mental health care: from the perspective of parents’ of adult children suffering from mental illness
    2014 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 3, p. 496-504Article in journal (Refereed) Published
    Abstract [en]

    The aim of this study was to describe parents' conceptions of the mental health care provided to adult children suffering from mental illness. Data were collected using qualitative research interviews with a purposive sample of sixteen mothers and ten fathers. Phenomenographic analysis was used to identify conceptions and formulate descriptive categories. The first category, questioning the availability of care, describes mental health care as being unequal in terms of accessibility and lacking in continuity. The second category, disapproval of parental exclusion, illustrates conceptions that mental healthcare professionals disregard parents and do not provide them with adequate information. The third category, questioning the quality of care, encompasses conceptions of lack of trust in the professionals' competence, an unsatisfactory environment as well as inadequate cooperation with other healthcare providers and authorities. Positive aspects, such as being seen and confirmed, were mentioned as valuable by the parents.

    Place, publisher, year, edition, pages
    Wiley-Blackwell, 2014
    Keywords
    mother, father, parent, adult child, mental illness, mental health care, phenomenography.
    National Category
    Nursing
    Research subject
    Health and Medical Care Research; Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-34617 (URN)10.1111/scs.12074 (DOI)000340288100009 ()23980612 (PubMedID)2-s2.0-84904999092 (Scopus ID)
    Note

    Accepterad juli 2013.

    In thesis named "Parents’ conceptions of adult mental health care: aphenomenographic study"

    Available from: 2014-04-08 Created: 2014-04-08 Last updated: 2018-06-05Bibliographically approved
    4. Health-Related Quality of Life: from the perspective of mothers and fathers of adult children suffering from longterm mental disorders
    Open this publication in new window or tab >>Health-Related Quality of Life: from the perspective of mothers and fathers of adult children suffering from longterm mental disorders
    Show others...
    2015 (English)In: Archives of Psychiatric Nursing, ISSN 0883-9417, E-ISSN 1532-8228, Vol. 9, no 3, p. 180-185Article in journal (Refereed) Published
    Abstract [en]

    There is a lack of studies on mothers' and fathers' experiences of Health-Related Quality of Life (HRQOL) associated with caregiving of adult children suffering from mental disorder. A cross-sectional study was therefore carried out with 108 mothers and 43 fathers. Data were collected by means of the Short Form Health Survey (SF-36), the Hospital Anxiety and Depression Scale (HADS), the Family Involvement and Alienation Questionnaire (FIAQ) and the Burden Assessment Scale (BAS). Mothers' HRQOL was affected more than fathers' and lower compared to Swedish age related norms. HRQOL was predominantly related to ratings on HADS and BAS.

    Place, publisher, year, edition, pages
    Saunders Elsevier, 2015
    National Category
    Medical and Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-34618 (URN)10.1016/j.apnu.2015.02.002 (DOI)000355642600010 ()26001718 (PubMedID)2-s2.0-84929701991 (Scopus ID)
    Note

    Funding agencies:

    Division of Psychiatry, Skaraborg Hospital  

    Research Fund at Skaraborg Hospital  

    Skaraborg Research and Development Council 

     Skaraborg Institute for Research and Development  

    Research Committee, Orebro County Council 

    Available from: 2014-04-08 Created: 2014-04-08 Last updated: 2018-02-20Bibliographically approved
  • 2.
    Johansson, Anita
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Div Psychiat, Skaraborg Hosp, Skövde, Sweden.
    Andershed, Birgitta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Enheten för forskning i palliativ vård, Ersta Sköndal högskola, Stockholm, Sweden; Ersta Hosp, Stockholm, Sweden; Sektionen för sykepleie, Högskolen i Gjövik, Norge.
    Anderzen-Carlsson, Agneta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Örebro University Hospital. Centre for Health Care Sciences, Örebro University, Örebro, Sweden.
    Conceptions of mental health care: from the perspective of parents’ of adult children suffering from mental illness2014In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 3, p. 496-504Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe parents' conceptions of the mental health care provided to adult children suffering from mental illness. Data were collected using qualitative research interviews with a purposive sample of sixteen mothers and ten fathers. Phenomenographic analysis was used to identify conceptions and formulate descriptive categories. The first category, questioning the availability of care, describes mental health care as being unequal in terms of accessibility and lacking in continuity. The second category, disapproval of parental exclusion, illustrates conceptions that mental healthcare professionals disregard parents and do not provide them with adequate information. The third category, questioning the quality of care, encompasses conceptions of lack of trust in the professionals' competence, an unsatisfactory environment as well as inadequate cooperation with other healthcare providers and authorities. Positive aspects, such as being seen and confirmed, were mentioned as valuable by the parents.

  • 3.
    Johansson, Anita
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Andershed, Birgitta
    Enheten för forskning i palliativ vård, Ersta Sköndal högskola, Stockholm, Sverige; Sektionen för sykepleie, Högskolen i Gjövik, Gjövik, Norge.
    Anderzen-Carlsson, Agneta
    Vårdvetenskapligt forskningscentrum, Örebro Läns Landsting, Örebro, Sverige.
    Åhlin, Arne
    Margretelunds Ungdomshem, Statens Institutionsstyrelse (National Board of Institutional Care), Lidköping, Sverige.
    Mothers' Everyday Experiences of Having an Adult Child Who Suffers from Long-Term Mental Illness2010In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 31, no 11, p. 692-699Article in journal (Refereed)
    Abstract [en]

    This paper aims to describe everyday life experiences of mothers who have an adult child with a long-term mental illness. Sixteen mothers were interviewed. A content analysis resulted in one main theme: My adult child who is struggling with mental illness is always on my mind, and three subthemes: (1) living a life under constant strain, (2) living with an emotional burden, and (3) seeing light in the darkness despite difficulties. Knowledge of mothers’ everyday life experiences is of great importance in order to support them and thereby increase the possibility of these mothers being a source of strength for their child.

  • 4.
    Johansson, Anita
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Division of Psychiatry, Skaraborg Hospital, Skövde, Sweden.
    Anderzen-Carlsson, Agneta
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden. Vårdvetenskapligt forskningscentrum, Örebro Läns Landsting, Örebro, Sweden.
    Åhlin, Arne
    Margretelunds Ungdomshem, Statens Institutionsstyrelse (National Board of Institutional Care), Lidköping, Sweden.
    Andershed, Birgitta
    Department of Nursing, NTNU (Norges teknisk-naturvetenskapliga universitet), Gjøvik, Norway; Ersta Sköndal University College, Stockholm, Sweden.
    Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness2012In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 3, no 2, p. 109-117Article in journal (Refereed)
    Abstract [en]

    The purpose of this study is to describe the everyday life experiences of fathers of adult children who have various forms of long-term mental illness. Ten fathers were interviewed. Content analysis revealed one main theme: Maintaining a strong façade while balancing on a thin line, and two sub-themes: (1) A constant struggle and (2) A feeling of powerlessness. The fathers demonstrated great engagement and good will to participate in their child's life. A sense of powerlessness and frustration at not having or being allowed freedom of action emerged. Cooperation between children, parents, the care service providers, and the authorities could increase the parents’ abilities to provide adequate support to the child as well as helping them to understand and make the incomprehensible manageable.

  • 5.
    Johansson, Anita
    et al.
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Mats, Ewertzon
    Ersta Sköndal Högskola, Stockholm.
    Andershed, Birgitta
    Enheten för forskning i palliativ vård, Ersta Sköndal högskola, Stockholm och Sektionen för sykepleie, Högskolen i Gjövik, Norge.
    Anderzen-Carlsson, Agneta
    Vårdvetenskapligt forskningscentrum, Örebro Läns Landsting, Örebro.
    Nasic, Salmir
    FoU beredningsgrupp, Skaraborgs sjukhus i Skövde.
    Åhlin, Arne
    Southern district Health Board, New Zealand.
    Health-Related Quality of Life: from the perspective of mothers and fathers of adult children suffering from longterm mental disorders2015In: Archives of Psychiatric Nursing, ISSN 0883-9417, E-ISSN 1532-8228, Vol. 9, no 3, p. 180-185Article in journal (Refereed)
    Abstract [en]

    There is a lack of studies on mothers' and fathers' experiences of Health-Related Quality of Life (HRQOL) associated with caregiving of adult children suffering from mental disorder. A cross-sectional study was therefore carried out with 108 mothers and 43 fathers. Data were collected by means of the Short Form Health Survey (SF-36), the Hospital Anxiety and Depression Scale (HADS), the Family Involvement and Alienation Questionnaire (FIAQ) and the Burden Assessment Scale (BAS). Mothers' HRQOL was affected more than fathers' and lower compared to Swedish age related norms. HRQOL was predominantly related to ratings on HADS and BAS.

1 - 5 of 5
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