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  • 201.
    Matérne, Marie
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för juridik, psykologi och socialt arbete.
    Strandberg, Thomas
    Örebro universitet, Institutionen för juridik, psykologi och socialt arbete.
    Support Persons’ Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden: 2018Inngår i: Contemporary Perspectives on Social Work in Acquired Brain Injury / [ed] Grahame K. Simpson, Francis K. Yuen, Routledge , 2018, 1, s. 183-201Kapittel i bok, del av antologi (Fagfellevurdert)
  • 202.
    Matérne, Marie
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Faculty of Medicine and Health, The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper. The Swedish Institute for Disability Research.
    Strandberg, Thomas
    Örebro universitet, Institutionen för juridik, psykologi och socialt arbete. The Swedish Institute for Disability Research.
    Support Persons' Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden2016Inngår i: Journal of Social Work in Disability & Rehabilitation, ISSN 1536-710X, E-ISSN 1536-7118, Vol. 15, nr 3-4, s. 351-369Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim is to explore the perception of being a support person for clients with acquired brain injury undergoing vocational rehabilitation. Nine support persons, identified by clients with brain injury, were interviewed. Interviews were analyzed using qualitative content analysis, resulting in three themes for assisting the client: (i) commitment; (ii) adaptation; and (iii) cooperation. Within each theme, multiple dimensions were identified, reflecting the complexity of vocational rehabilitation following acquired brain injury. Commitment built on social relations is linked to sustainability of support. The included support persons' role was especially valuable in contexts where adaptation and cooperation were required.

  • 203.
    Matérne, Marie
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center.
    Strandberg, Thomas
    Örebro universitet, Institutionen för juridik, psykologi och socialt arbete. University Health Care Research Center.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper. 1University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden.
    Risk markers for not returning to work among patients with acquired brain injury: a population-based register studyManuskript (preprint) (Annet vitenskapelig)
  • 204.
    Matérne, Marie
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Faculty of Medicine and Health.
    Strandberg, Thomas
    Örebro universitet, Institutionen för juridik, psykologi och socialt arbete.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center.
    Risk Markers for Not Returning to Work Among Patients with Acquired Brain Injury: A Population-Based Register Study2019Inngår i: Journal of occupational rehabilitation, ISSN 1053-0487, E-ISSN 1573-3688, Vol. 29, nr 4, s. 728-739Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose: The aim of this study is to investigate person-related, injury-related, activity-related and rehabilitation-related risk markers for not return to work among patients with acquired brain injury (ABI).

    Methods: Retrospective data from the Quality register, WebRehab Sweden, on an ABI cohort of 2008 patients, was divided into two groups: those who had returned to work (n = 690) and those who had not returned to work (n = 1318) within a year of the injury.

    Results: Risk ratio analyses showed that several factors were risk markers for not returning to work: personal factors, including being a woman, being born outside of Sweden, having a low education level, and not having children in the household; injury-related factors, including long hospital stay (over 2 months), aphasia, low motor function, low cognitive function, high pain/discomfort, and high anxiety/depression; activity-related factors, including low function in self-care, inability to perform usual activities, and not having a driver's license; and rehabilitation-related factors, including being dissatisfied with the rehabilitation process and the attentiveness of the staff having limited influence over the rehabilitation plan, or not having a rehabilitation plan at all. Conclusion Several factors in different aspects of life were risk markers for not returning to work among patients with ABI. This suggests that rehabilitation and interventions need to address not only direct injury-related issues, but also person-related, activity-related, and rehabilitation-related factors in order to increase the patient's opportunities to return to work.

  • 205.
    Menon, Preetha
    et al.
    Institute of Public Health, United Arab Emirates University, College of Medicine and Health Sciences, Al Ain, UAE.
    EI-Sadig, Mohamed
    Institute of Public Health, United Arab Emirates University, College of Medicine and Health Sciences, Al Ain, UAE.
    A B Khan, Moien
    Department of Family Medicine, UAE University College of Medicine and Health Sciences, Al Ain, Abu Dhabi, UAE.
    Östlundh, Linda
    National Medical Library, United Arab Emirates University College of Medicine and Health Sciences, Al Ain, Abu Dhabi, UAE.
    El-Deyarbi, Marwan
    Department of Pharmacology, United Arab Emirates University College of Medicine and Health Sciences, Al Ain, UAE.
    Al-Rifai, Rami H.
    Institute of Public Health, United Arab Emirates University, College of Medicine and Health Sciences, Al Ain, UAE.
    Grivna, Michal
    Institute of Public Health, United Arab Emirates University, College of Medicine and Health Sciences, Al Ain, UAE.
    Risk factors associated with quad bike crashes: a protocol for systematic review of observational studies2021Inngår i: BMJ Open, E-ISSN 2044-6055, Vol. 11, nr 4, artikkel-id e044456Artikkel, forskningsoversikt (Fagfellevurdert)
    Abstract [en]

    Introduction: Quad bikes are four-wheeled vehicles, driven off-road on uneven terrains by farmers for work or young adults for leisure. Quad bike accidental crashes result mostly due to the unique ecosystem of uneven terrain, where these unstable vehicles are commonly driven, in addition to numerous distinctive sociodemographic characteristics related to drivers. This is a protocol for a systematic review of observational studies from all geographical regions and demographic groups in the world to summarise the common risk factors relating to quad bike crashes.

    Methods and analysis: A comprehensive search for the literature on quad bike crashes and related injuries will be conducted in six electronic databases: PubMed, Embase, Scopus, Web of Science, IEEE and PsycINFO. Proquest Dissertation and Thesis, OpenGrey and BASE will be searched for grey literature. Five researchers will be involved in the screening, and the review of full text articles, using the inclusion and exclusion criteria. Disagreements between reviewers will be resolved by discourse. Three researchers will help resolving conflicts that may arise during the screening process and will resolve eventual conflicts identified in the process with the help of the systematic review software 'Covidence' for automatic deduplication and blinded screening. Information on crashes leading to injuries and death, target population characteristics and risk factors involved will be extracted from eligible articles in addition to the assessment of the quality of the researched articles.

    Ethics and dissemination: Since this is a systematic review of published literature, a formal ethical approval is not needed. Results of the review will be disseminated through peer-reviewed publications, conference presentations and reports to the concerned authorities.

    PROSPERO registration number: CRD42020170245.

  • 206.
    Menon, Preetha
    et al.
    Institute of Public Health, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    El-Deyarbi, Marwan
    Department of Pharmacology, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    Khan, Moien AB.
    Department of Family Medicine, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    Al-Rifai, Rami H.
    Institute of Public Health, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    Grivna, Michal
    Institute of Public Health, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    Östlundh, Linda
    National Medical Library, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    EI-Sadig, Mohamed
    Institute of Public Health, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain, United Arab Emirates.
    Risk factors associated with quadbike crashes: a systematic review2022Inngår i: World Journal of Emergency Surgery, E-ISSN 1749-7922, Vol. 17, nr 1, artikkel-id 27Artikkel, forskningsoversikt (Fagfellevurdert)
    Abstract [en]

    Background: Quadbikes or all-terrain vehicles are known for their propensity for crashes resulting in injury, disability, and death. The control of these needless losses resulting from quadbike crashes has become an essential contributor to sustainable development goals. Understanding the risk factors for such injuries is essential for developing preventive policies and strategies. The aim of this review was to identify the risk factors associated with quadbike crashes at multiple levels through a systematic review of a wide range of study designs.

    Methods: The study incorporated a mixed-method systematic review approach and followed the PRISMA 2020 guidelines for reporting systematic reviews, including a peer reviewed protocol. This systematic review included observational studies investigating the risk factors associated with quadbike crashes, injuries, or deaths. Seven electronic databases were searched from inception to October 2021. Studies were screened and extracted by three researchers. Quality appraisal was conducted using the Mixed Methods Appraisal Tool (MMAT). Due to extensive heterogeneity, meta-analysis was not conducted. All the risk factors have been presented in a narrative synthesis for discussion following the guidelines for Synthesis without Meta-analysis (SWiM).

    Results: Thirty-nine studies combining an aggregate of 65,170 participants were included in this systematic review. The results indicate that modifiable risk factors, such as the increasing age of driving initiation, reducing substance use, and the use of organized riding parks, could reduce quadbike injuries. Riding practices such as avoiding passengers, avoiding nighttime riding, and using helmets could significantly reduce crashes and injuries among riders. Vehicle modifications such as increasing the wheelbase and limiting engine displacement could also help reduce crash incidence. Traditional interventional methods, such as legislation and training, had a weak influence on reducing quadbike injuries.

    Conclusion: Multiple risk factors are associated with quadbike injuries, with most of them modifiable. Strengthening policies and awareness to minimize risk factors would help in reducing accidents associated with quadbikes.

    PROSPERO registration number: CRD42020170245

  • 207.
    Mineur, Therése
    Örebro universitet, Institutionen för hälsovetenskap och medicin.
    Skolformens komplexitet: elevers erfarenheter av skolvardag och tillhörighet i gymnasiesärskolan2013Doktoravhandling, monografi (Annet vitenskapelig)
    Abstract [en]

    The Swedish upper secondary education consists of different types of schools. One type of school is the upper secondary for pupils who have assessed as having an intellectual disability. The aim of this study is to increase the knowledge and understanding of pupils’ experiences of everyday life in school, and how they perceive the significance of their sense of belonging to this type of school. An additional aim of the study is to increase the knowledge about different ways of organizing the education and teaching. The collection of data started with a national questionnaire survey which was directed to headteachers at the schools. Based on the results from the survey five schools were selected. By participant observations at the schools and repeated interviews with 14 young women and 12 young men, the first person perspective has been studied and analysed through an interpretive approach. The analysis showed that knowledge about the schools different ways of organizing the teaching are of importance, to understand pupils’ diverse experiences of school life. As an example it has an impact on how the pupils evaluate different types of knowledge, but also how they view their future opportunities. Any clear connection between the schools different ways of organizing the education and teaching and pupils’ experiences of their sense of belonging to this type of school has not emerged. Instead pupils’ awareness, confidence, uncertainty, dejection and determination are to be seen as a framework of understanding, telling us about their experiences of their school affiliation. Together they demonstrate a complexity surrounding pupils’ situation, associated to both advantages and disadvantages in school, but also their thoughts about identity and how they perceive being categorized as deviant by others. The analysis also showed that expectations on the pupils, and their possibilities in the school context, are related to a special school culture and to gender differences.

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  • 208.
    Molin, Lisette
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Nilsson, Hanna
    Örebro universitet, Institutionen för hälsovetenskaper.
    Tillgänglighet för alla – förlåt, vad sa du?: En enkätstudie om tillgänglighet på vårdcentraler för personer med hörselnedsättning inom region Örebro län2018Independent thesis Basic level (degree of Bachelor), 10 poäng / 15 hpOppgave
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  • 209.
    Müllerdorf, Maria
    et al.
    Mälardalen Univiversity, Eskilstuna, Sweden.
    Ivarsson, Ann-Britt
    Örebro universitet, Institutionen för hälsovetenskap och medicin.
    The use of creative activities in occupational therapy practice in Sweden2012Inngår i: Occupational Therapy International, ISSN 0966-7903, E-ISSN 1557-0703, Vol. 19, nr 3, s. 127-134Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this study was to describe the prevalence of creative activities in occupational therapy in Sweden and how often Swedish occupational therapists use creative activities as a means of intervention. A web-mail survey was sent to 2975 Swedish occupational therapists working in health care at regional, county council or primary health care level, and those working in vocational rehabilitation. A total of 1867 (63%) answered the questionnaire and showed that 44% did use creative activities as a means of intervention and most often by practitioners working in psychiatric health care. The most commonly used form of creative activity was arts and crafts followed by gardening. This web-mail survey was based on a limited amount of items regarding creative activities. Further research should focus on in-depth inquiries about how occupational therapists and their patients perceive the use of creative activities as a means of treatment in occupational therapy.

  • 210.
    Müllersdorf, Maria
    et al.
    Mälardalen University, Västerås, Sweden.
    Ivarsson, Ann-Britt
    Örebro universitet, Institutionen för hälsovetenskaper.
    What, Why, How: Creative Activities in Occupational Therapy Practice in Sweden2016Inngår i: Occupational Therapy International, ISSN 0966-7903, E-ISSN 1557-0703, Vol. 23, nr 4, s. 369-378Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Creative activities have historically been used in occupational therapy, and although their usage has declined in recent decades, they are still used in Swedish practice. The aim of this study was to better understand how occupational therapists use creative activities in practice. A web-based survey was sent to 520 occupational therapists, of which 304 (58.5%) responded. The main reason identified for using creative activities was to strengthen the client's occupational performance, well-being and self-esteem. The expected outcomes of applying creative activities were to support the client in self-expression and experiencing joy and desire. More than half of the occupational therapist respondents did not use creative activities to the extent they desired. Creative activities in occupational therapy are still used as a vital treatment to strengthen the clients' occupational performance abilities. The survey has looked at only a professional perspective on effectiveness of applying creative activities in occupational therapy. More research is needed to evaluate how occupational therapists internationally apply creative activities. There is also a need to gain information from the client's perspective on the therapeutic value of creative activities.

  • 211.
    Nakeva von Mentzer, Cecilia
    Dept Neuroscience, Unit for SLP, Uppsala University, Uppsala, Sweden.
    Phonemic discrimination and reproduction in 4-5-year-old children: Relations to hearing2020Inngår i: International Journal of Pediatric Otorhinolaryngology, ISSN 0165-5876, E-ISSN 1872-8464, Vol. 133, artikkel-id 109981Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: The long-term objective of this research is to highlight the importance of speech perception assessment in children with developmental language disorder (DLD), and to investigate how hearing contributes to speech and language skills. As a first step in fulfilling this aim, the present study explored relations between phonemic discrimination and reproduction, and sensitive measures of hearing in young healthy children.

    Methods: The American Listen-Say test was developed and served as speech perception tool. This test reports speech discrimination of phonemic contrasts quantitatively for both quiet and in noise conditions, along with reproduction scores, all measured within one session. Speech tokens were perceptually homogenized in noise. Forty-one 4-5-year-old American children participated. Phonemic discrimination (quiet and speech shaped noise) and phonemic reproduction, audiometric thresholds in the conventional (1–8 kHz) and extended high frequency (EHF; 10–16 kHz) range, and distortion product otoacoustic emissions (DPOAEs) were examined.

    Results: All children had normal hearing thresholds within the conventional range (mean PTA bilaterally 8.6 dB HL). Ten (24.3%) of the children had elevated EHF thresholds (> 20 dB HL) for one or more frequencies or ears, and six (14.6%) had DPOAE signal to noise ratios (SNR) < 6 dB. EHF thresholds and DPOAE SNRs were significantly associated. Children's phonemic discrimination was impaired in noise, relative to quiet. There was a moderate, significant correlation between overall phonemic discrimination in noise and EHF audiometric thresholds.

    Conclusions: Overall, the present study showed that sensitive hearing measures enabled the detection of subtle hearing difficulties in young healthy children. In particular, phonemic discrimination in noise showed associations with hearing. Implications of including sensitive hearing measures in children with DLD are discussed.

  • 212.
    Nakeva von Mentzer, Cecilia
    Linköpings universitet, Handikappvetenskap.
    Rethinking Sound: Computer-assisted reading intervention with a phonics approach for deaf and hard of hearing children using cochlear implants or hearing aids2014Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    In the present thesis, computer-assisted reading intervention with a phonics approach was examined in deaf and hard of hearing children (DHH) aged 5, 6 or 7 years old using cochlear implants, hearing aids or a combination of both. Children with normal hearing (NH), matched for non-verbal intelligence and age, served as a reference group. Deaf and hard of hearing children constitute a heterogenetic population regarding cognitive and academic achievement. Many of them do not reach age appropriate levels in language and reading ability during their school years, with negative consequences for later training facilities and job opportunities. Finding relevant intervention methods to promote early language learning and literacy development that are easy to implement is therefore of great importance. In this thesis three aspects of cognitive ability (phonological processing skills, lexical access and working memory capacity), and reading ability was examined at three points in time; baseline 1, pre intervention and post intervention. Additionally, computer-assisted training delivered by  means of the Internet in the children’s homes was explored in order to determine whether it would be a useful and efficient method for the DHH population. Overall, the results from the present thesis support the notion that offering a computer-assisted intervention program delivered at home, is an alternative way to support not only NH children with reading difficulties but also to support DHH children’s phonological development and decoding proficiency.

  • 213.
    Nakeva von Mentzer, Cecilia
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. Uppsala University, Uppsala, Sweden.
    Kalnak, N.
    Lund University, Lund, Sweden.
    Jennische, M.
    Uppsala University, Uppsala, Sweden.
    Intensive computer-based phonics training in the educational setting of children with Down syndrome: An explorative study2021Inngår i: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309, Vol. 25, nr 4, s. 636-660Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Children with Down syndrome (DS) using intensive computer-based phonics (GraphoGame, GG) were studied. The children's independence and improvement in phonological processing, letter knowledge, word decoding, and reading strategies were investigated. Seventeen children (5-16 years) with DS participated in a crossover design through 8 weeks (one period), with three test sessions separated by 4 weeks. Children were randomly assigned to GG intervention or regular schooling (RS). All children completed one period and eight children completed two periods. A majority gradually became independent in managing GG. At the group level, very little benefit was found from working with GG. At the individual level, several children with mild to severe intellectual disabilities showed increased decoding of trained words. After one period of GG and RS, an increase in alphabetically decoded words was found. The finding suggests that when individual challenges are considered, computer-based phonics may be beneficial for children with DS in their educational setting.

  • 214.
    Nakeva von Mentzer, Cecilia
    et al.
    Department of Behavioral Sciences and Learning, Swedish Institute for Disability Research, Linöping University, Linköping, Sweden.
    Lyxell, Björn
    Department of Behavioral Sciences and Learning, Swedish Institute for Disability Research, Linöping University, Linköping, Sweden.
    Sahlén, Birgitta
    Humanities laboratory, Cognition, Communication & Learning, Lund University.
    Dahlström, Örjan
    Department of Behavioral Sciences and Learning, Swedish Institute for Disability Research, Linöping University, Linköping, Sweden.
    Lindgren, Magnus
    Cognition, Communication & Learning, Linneaus Centre, Lund University, Lund, Sweden; Department of Psychology, Lund University, Lund, Sweden.
    Ors, Marianne
    Cognition, Communication & Learning, Linneaus Centre, Lund University, Lund, Sweden.
    Kallioinen, Petter
    Department of Linguistics, Stockholm University, Stockholm, Sweden.
    Engström, Elisabet
    Department of Audiology and Neurootology, Karolinska Institutet (CLINTEC), Karolinska University Hospital, Stockholm, Sweden.
    Uhlén, Inger
    Department of Audiology and Neurootology, Karolinska Institutet (CLINTEC), Karolinska University Hospital, Stockholm, Sweden.
    Segmental and suprasegmental properties in nonword repetition: An explorative study of the associations with nonword decoding in children with normal hearing and children with bilateral cochlear implants2015Inngår i: Clinical Linguistics & Phonetics, ISSN 0269-9206, E-ISSN 1464-5076, Vol. 29, nr 3, s. 216-235Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The present study explored nonword repetition (NWR) and nonword decoding in normalhearing (NH) children and in children with cochlear implants (CIs). Participants were 11 children with bilateral CIs, 5:0-7:11 years (M = 6.5 yrs.), and 11 NH children, individually age-matched to the children with CIs. The purpose was twofold; to thoroughly describe aspects of repetition and decoding of novel words and to study possible associations between them. All children were assessed after having practiced with a computer-assisted reading intervention with a phonics approach during four weeks. Results showed that NH children outperformed children with CIs on the majority of aspects of NWR. The analysis of syllable length in NWR revealed that children with CIs made more syllable omissions than did the NH children, and predominantly in prestressed positions. Additionally, the consonant cluster analysis showed significantly more consonant omissions and substitutions in children with CIs suggesting that reaching fine- grained levels of phonological processing was particularly difficult for these children. No significant difference was found for decoding accuracy between the groups, as measured by percent nonwords and percent phonemes correctly decoded, but differences were observed regarding error patterns. Further, phoneme deletions and lexicalizing of nonwords occurred more often in children with CIs than in those with NH. The correlation analysis revealed that the ability to repeat consonant clusters in NWR had the strongest associations to nonword decoding in both groups.

  • 215.
    Nilsson, Mats T
    et al.
    Karolinska Institutet, Department of Tumor Biology, Stockholm, Sweden.
    Klein, Gunnar O
    Karolinska Institutet, Department of Tumor Biology, Stockholm, Sweden.
    SEQ-ED - AN INTERACTIVE COMPUTER-PROGRAM FOR EDITING, ANALYSIS AND STORAGE OF LONG DNA-SEQUENCES1985Inngår i: COMPUTER APPLICATIONS IN THE BIOSCIENCES, ISSN 0266-7061, Vol. 1, nr 1, s. 29-34Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The rapidly growing body of sequenced DNA demands efficient computer programs for its analysis and storage. The program described in this paper, SEQ-ED, has been designed to handle a large number of DNA sequences up to 200 kilobases [kb] long stored in a sequence library. In order to minimize the required storage space, the sequences are stored in a compressed format using three binary digits per base. In the development of this program, special care has been given to make it easy to use for molecular biologists without any previous computer experience.

  • 216.
    Nordstrand, Linda
    et al.
    Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden.
    Holmefur, Marie
    Örebro universitet, Institutionen för hälsovetenskap och medicin.
    Kits, Annika
    Department of Neuroradiology, Karolinska University Hospital, Stockholm, Sweden.
    Eliasson, Ann-Christin
    Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden.
    Improvements in bimanual hand function after baby-CIMT in two-year old children with unilateral cerebral palsy: a retrospective study2015Inngår i: Research in Developmental Disabilities, ISSN 0891-4222, E-ISSN 1873-3379, Vol. 41-42, s. 86-93Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The common assumption that early-onset intensive intervention positively affects motor development has rarely been investigated for hand function in children with unilateral cerebral palsy (CP). This retrospective study explored the possible impact of baby constraint-induced movement therapy (baby-CIMT) on hand function at two years of age. We hypothesized that baby-CIMT in the first year of life would lead to better bimanual hand use at two years of age than would not receiving baby-CIMT. The Assisting Hand Assessment (AHA) was administered at age 21 months (SD 2.4 months) in 72 children with unilateral CP, 31 of who received baby-CIMT. When dividing the children into four functional levels based on AHA, the proportional distribution differed between the groups in favour of baby-CIMT. Logistic regression analysis indicated that children in the baby-CIMT group were more likely than were children in the no baby-CIMT group to have a high functional level, even when controlling for the effect of brain lesion type (OR 5.83, 95% CI 1.44-23.56, p = 0.001). However, no difference was found between groups in the odds of having a very low functional level (OR 0.31, 95% CI 0.08-1.17, p = 0.084). The result shows that baby-CIMT at early age can have a positive effect. Children who received baby-CIMT were six times more likely to have a high functional level at two years of age than were children in the no baby-CIMT group.

  • 217.
    Norlén, Tobias
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Stridsman, Andrea
    Örebro universitet, Institutionen för hälsovetenskaper.
    Orsaker till ljudkänslighet hos personer med autism - en systematisk litteraturstudie2018Independent thesis Basic level (degree of Bachelor), 10 poäng / 15 hpOppgave
    Fulltekst (pdf)
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  • 218.
    Norén, Paulina
    Örebro universitet, Institutionen för hälsovetenskaper.
    Measurement properties of the Swedish self-administered version of the World Health Organization Disability Assessment Schedule 2.02023Licentiatavhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) is a leading patient-reported outcome measure of disability. However, patients' perspective of the WHODAS 2.0 self-administered Swedish version have not been sufficiently described. Similarly, knowledge of its construct validity in the general population is missing. This creates a gap because updated norm data to use as reference is also missing. The overall aim of this study was to establish evidence of the measurement properties of the self-administered Swedish version of the WHODAS 2.0.

    Both qualitative and quantitative methods were adopted. In Study I, interviews with patients (n = 12) with orthopaedic or psychiatric conditions were performed and data were analysed by deductive content analysis. In Study II, a cross-sectional general population survey (n = 3 482) was conducted, and statistical methods based on classical test theory were used in the data analysis.

    The results show that the items were well understood, acceptable and easy to answer by outpatients, with the exception of six items (Study I).The internal consistency reliability was good or excellent and the construct validity was overall acceptable, with partial support for the factor structure in the general populations (Study II).

    The self-administered Swedish 36-item version of the WHODAS 2.0 is comparable to other language versions of the instrument. Some of the previous known weaknesses of its construct validity in relation to the item content and insufficient instructions were confirmed. The evidence of overall good content and construct validity together with available norm data supports its use in clinical settings and research.

    Delarbeid
    1. The Swedish self-administered version of WHODAS 2.0: Content validity among patients with physical or mental health problems
    Åpne denne publikasjonen i ny fane eller vindu >>The Swedish self-administered version of WHODAS 2.0: Content validity among patients with physical or mental health problems
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-110555 (URN)
    Tilgjengelig fra: 2023-12-29 Laget: 2023-12-29 Sist oppdatert: 2023-12-29bibliografisk kontrollert
    2. Psychometric evaluation of the WHODAS 2.0 and prevalence of disability in a Swedish general population
    Åpne denne publikasjonen i ny fane eller vindu >>Psychometric evaluation of the WHODAS 2.0 and prevalence of disability in a Swedish general population
    Vise andre…
    2023 (engelsk)Inngår i: Journal of patient-reported outcomes, E-ISSN 2509-8020, Vol. 7, nr 1, artikkel-id 36Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    BACKGROUND: The World Health Organization Disability Assessment Schedule (WHODAS 2.0) is a generic questionnaire that captures health and disability-related functioning information corresponding to six major life domains: Cognition, Mobility, Self-care, Getting along, Life activities, and Participation. The WHODAS 2.0 is used in a wide range of international clinical and research settings. A psychometric evaluation of WHODAS 2.0, Swedish version, in the general population is lacking, together with national reference data to enable interpretation and comparison. This study aims to evaluate the psychometric properties of the Swedish 36-item version of WHODAS 2.0 and describe the prevalence of disability in a Swedish general population.

    METHODS: A cross-sectional survey was performed. Internal consistency reliability was assessed with Cronbach's alpha. The construct validity was evaluated with item-total correlation, Pearson's correlation between the WHODAS 2.0 domains and the RAND-36 subscales, analysis of known groups by one-way ANOVA, and analysis of the factor structure by confirmatory factor analysis.

    RESULTS: Three thousand four hundred and eighty two adults aged 19-103 years (response rate 43%) participated. Significantly higher degrees of disability were reported by the oldest age group (≥ 80 years), adults with a low level of education, and those on sick leave. Cronbach's alpha was from 0.84 to 0.95 for the domain scores and 0.97 for the total score. The item-scale convergent validity was satisfactory, and the item-scale discriminant validity was acceptable except for the item about sexual activity. The data partially supported the factor structure, with borderline fit indices.

    CONCLUSION: The psychometric properties of the self-administered Swedish 36-item version of the WHODAS 2.0 are comparable to those of other language versions of the instrument. Data of the prevalence of disability in Swedish general population enables normative comparisons of WHODAS 2.0 scores of individuals and groups within clinical practice. The instrument has certain limitations that could be improved on in a future revision. The test-retest reliability and responsiveness of the Swedish version of WHODAS 2.0 for different somatic patient populations remain to be evaluated.

    sted, utgiver, år, opplag, sider
    Springer, 2023
    Emneord
    Disability evaluation, Health surveys, Patient-reported outcome measures, RAND-36, Reference values, Validity and reliability
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-105444 (URN)10.1186/s41687-023-00580-0 (DOI)000963677200001 ()37020121 (PubMedID)2-s2.0-85152640756 (Scopus ID)
    Forskningsfinansiär
    Örebro UniversityRegion Örebro County, OLL-506801
    Tilgjengelig fra: 2023-04-14 Laget: 2023-04-14 Sist oppdatert: 2024-01-02bibliografisk kontrollert
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  • 219.
    Norén, Paulina
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Centre, Örebro University hospital, Örebro, Sweden.
    Svanborg, Cecilia
    Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden.
    Hermansson, Liselotte
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Centre, Örebro University hospital, Örebro, Sweden.
    The Swedish self-administered version of WHODAS 2.0: Content validity among patients with physical or mental health problemsManuskript (preprint) (Annet vitenskapelig)
  • 220.
    Nyberg, Jonna
    Örebro universitet, Institutionen för hälsovetenskaper.
    Förändringar i transportrelaterad välfärd och myndighetsförtroende: en studie om personer som fått sitt körkort återkallat på grund av synfältsbortfall2021Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    Access to transport, and thus accessibility to desired and needed activities, is of importance for the individual's welfare and subjective well-being. In many western contexts, land use and infrastructure are configured for the benefit of cars. A withdrawn driving license (WDL) might thereby affect welfare and subjective well-being. Further, if the WDL is perceived as unfair, trust for authorities involved in the WDL process can be affected. The overall aim is to explore changes of having a WDL due to visual field loss (VFL), concerning transport-related welfare and trust in authorities. Four studies were conducted, and both qualitative and quantitative methods have been used. The results showed that the WDL had led to negative welfare consequences for the respondents, such as ended careers, limited or ceased opportunities for leisure activities, and difficulties managing daily errands. These consequences can be explained by lacking or unsatisfactory alternative transport arrangements (study I). Also, the WDL had led to worsen overall subjective wellbeing. This can, for example, be explained by the respondents' perception of unsatisfactory access to transport means, to live a life to be satisfied with (study II). The respondents perceived the vision tests on which the WDL isbased as unfair, as they do not measure individual driving ability related to traffic safety. Perceptions of outcomes and processes were fueled by experiences of deficiencies regarding, for example, performance and information, leading to a decrease in trust in the authorities involved in the process of WDL due to VFL: the Health Care (the physician being obligated to report the VFL to the Swedish Transport Agency), the Swedish Transport Agency (decisions on WDL), and the Judicial system (decisions in cases of appeals) (study III). Gender had no effect on trust for none of these authorities. Though, diagnosis (reasons for VFL) had effect, and differences in degree oftrust for each of the three authorities were seen, related to type of diagnosis. The results also showed that low trust related to WDL process can generate lower trust in authorities in general (53%) (study IV). Finally, the thesis contributes to insights of goal conflicts that driving license withdrawals can entail, dealing with issues of safety, accessibility, and justice.

    Delarbeid
    1. Welfare consequences for individuals whose driving licenses are withdrawn due to visual field loss: A Swedish example
    Åpne denne publikasjonen i ny fane eller vindu >>Welfare consequences for individuals whose driving licenses are withdrawn due to visual field loss: A Swedish example
    2019 (engelsk)Inngår i: Journal of Transport and Health, ISSN 2214-1405, E-ISSN 2214-1405, Vol. 14, artikkel-id 100591Artikkel, forskningsoversikt (Fagfellevurdert) Published
    sted, utgiver, år, opplag, sider
    Elsevier, 2019
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-77444 (URN)10.1016/j.jth.2019.100591 (DOI)000487982100049 ()2-s2.0-85068748172 (Scopus ID)
    Merknad

    Funding Agency:

    Swedish Transport Agency 

    Tilgjengelig fra: 2019-10-18 Laget: 2019-10-18 Sist oppdatert: 2021-11-30bibliografisk kontrollert
    2. How does driving license withdrawal affect subjective well-being? A Swedish comparative survey study of visual field loss
    Åpne denne publikasjonen i ny fane eller vindu >>How does driving license withdrawal affect subjective well-being? A Swedish comparative survey study of visual field loss
    Vise andre…
    2021 (engelsk)Inngår i: European Transport Research Review, ISSN 1867-0717, E-ISSN 1866-8887, Vol. 13, nr 1, artikkel-id 51Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Research has found strong relationships between access to transport, accessibility of activities, and subjective well-being (SWB), and society is said to be car dependent. Accordingly, this study investigates, in a Swedish context, whether and how withdrawal of a driving license for a private car due to visual field loss (VFL) affects SWB. A web survey was used for statistical comparisons of three respondent groups (n = 436): people with a driving license, people with a driving license and VFL, and people whose driving license was withdrawn due to VFL. The inclusion criterion for all participants was that they should have a diagnosis that could cause VFL. The no-license group had lower overall SWB than did respondents with driving licenses. The no-license group also perceived less access to transport means in order to live a life to be satisfied with than did the other groups. The most used transport means in the no-license group was getting a lift in a car, though this group had a strong desire to drive a car. Few respondents in the license groups wanted to use specific transport means to a greater extent, car driving being the most used transport means. Some inter-group differences were seen regarding how access to activities (measured by frequency of actual trips) affected SWB. This study found a significant negative effect of driving license withdrawal on SWB. However, the results imply that qualitative aspects other than the relationship between the frequencies of trips and activities might also affect SWB, and more research on this subject is needed.

    sted, utgiver, år, opplag, sider
    Springer, 2021
    Emneord
    Accessibility, Transport disadvantage, Car dependence, Impairment, License cessation, Mobility
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-94661 (URN)10.1186/s12544-021-00511-4 (DOI)000696207500002 ()2-s2.0-85115066346 (Scopus ID)
    Merknad

    Funding agency:

    Swedish Transport Agency

    Tilgjengelig fra: 2021-09-30 Laget: 2021-09-30 Sist oppdatert: 2021-11-30bibliografisk kontrollert
    3. Distrust of Authorities: Experiences of Outcome and Processes of People Who Had Their Driving License Withdrawn Due to Visual Field Loss
    Åpne denne publikasjonen i ny fane eller vindu >>Distrust of Authorities: Experiences of Outcome and Processes of People Who Had Their Driving License Withdrawn Due to Visual Field Loss
    Vise andre…
    2021 (engelsk)Inngår i: Social Sciences, E-ISSN 2076-0760, Vol. 10, nr 2, artikkel-id 76Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Citizens’ trust of authorities is of general importance, as it can affect trust in society as awhole. The Swedish Transport Agency is a state administrative authority responsible for drivinglicense withdrawal. If withdrawals are experienced as unfair by those affected, this might leadto decreased trust in the agency and in other actors involved. This study accordingly examineshow the experiences of people who have had their driving license for a private car withdrawndue to visual field loss might affect their distrust of the authorities, as related to outcomes andprocesses. Follow-up interviews were conducted with nine people from a previous study. Contentanalysis revealed one overarching theme, struggling for justice within a system perceived as unfair, whichcomprised four identified categories: preparedness for and understanding of the withdrawn driving license(WDL); perceptions of assessment methods, reactions and actions regarding the decision, and perceptions ofthe authorities’ performance. In sum, the vision tests on which withdrawals are based were perceivedas unfair, as they did not measure individual driving ability. Furthermore, rejections of appeals led tofeelings of hopelessness. Distrust regarding outcomes and processes related to the withdrawals wasalso fueled by experiences of deficiencies regarding, for example, performance and information.

    sted, utgiver, år, opplag, sider
    MDPI, 2021
    Emneord
    visual impairment, driving cessation, transport justice, public trust, citizen compliance
    HSV kategori
    Forskningsprogram
    Handikappvetenskap
    Identifikatorer
    urn:nbn:se:oru:diva-92748 (URN)10.3390/socsci10020076 (DOI)000683763800047 ()2-s2.0-85123024968 (Scopus ID)
    Merknad

    Funding Agency:

    Swedish Transport Agency TSA 2018-356

    Tilgjengelig fra: 2021-06-30 Laget: 2021-06-30 Sist oppdatert: 2023-12-08bibliografisk kontrollert
    4. Experienced processes and outcomes of driving license withdrawal due to visual fieldloss: A Swedish survey study of trust in authorities
    Åpne denne publikasjonen i ny fane eller vindu >>Experienced processes and outcomes of driving license withdrawal due to visual fieldloss: A Swedish survey study of trust in authorities
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-95571 (URN)
    Tilgjengelig fra: 2021-11-24 Laget: 2021-11-24 Sist oppdatert: 2021-11-30bibliografisk kontrollert
    Fulltekst (pdf)
    Förändringar i transportrelaterad välfärd och myndighetsförtroende: En studie om personer som fått sitt körkort återkallat på grund av synfältsbortfall
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  • 221.
    Nyberg, Jonna
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. Swedish National Road and Transport Research Institute, Linköping, Sweden.
    Andersson, Jan
    Swedish National Road and Transport Research Institute, Linköping, Sweden.
    Strandberg, Thomas
    Örebro universitet, Institutionen för juridik, psykologi och socialt arbete. The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; School of Health and Welfare, Dalarna University, Falun, Sweden.
    Experienced processes and outcomes of driving license withdrawal due to visual fieldloss: A Swedish survey study of trust in authoritiesManuskript (preprint) (Annet vitenskapelig)
  • 222.
    Olsson, Sylvia
    et al.
    Division of Social Work, School of Health, care and Social Welfare, Mälardalens university, Eskilstuna, Sweden.
    Dag, Munir
    Division of Social Work, School of Health, care and Social Welfare, Mälardalens university, Eskilstuna, Sweden.
    Kullberg, Christian
    Division of Social Work, School of Health, care and Social Welfare, Mälardalens university, Eskilstuna, Sweden.
    Deaf and hard-of-hearing adolescents' experiences of inclusion and exclusion in mainstream and special schools in Sweden2018Inngår i: European Journal of Special Needs Education, ISSN 0885-6257, E-ISSN 1469-591X, Vol. 33, nr 4, s. 495-509Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This study examines the question of which school environment - special or mainstream school - is more favourable for deaf and hard-of-hearing students in Sweden, when it comes to their well-being, and their social and academic inclusion. The aim is threefold: first to compare the well-being of adolescents who are deaf or hard-of-hearing, who are deaf or hard-of-hearing and have additional disabilities, and who have no disabilities; second to compare the adolescents from the two deaf and hard-of-hearing groups and their experiences of inclusion and exclusion in school; and third to ascertain if any gender differences exist between the two groups of deaf and hard-of-hearing students concerning their experiences of inclusion and exclusion. A total of 7865 adolescents (13-18 years of age) answered a total survey about the life and health of young people in a county in Sweden. The results show that both boys and girls in the hard-of-hearing groups rated their well-being lower and were less satisfied with their lives than pupils without disabilities. They also show that the hard-of-hearing boys and girls attending special school were more satisfied with their lives and to a greater extent felt included both socially and academically than students in mainstream school.

  • 223.
    Pavli, Antonia
    Örebro universitet, Institutionen för hälsovetenskaper.
    Creative Disability Classification Systems: The case of Greece, 1990-20152017Doktoravhandling, monografi (Annet vitenskapelig)
    Abstract [en]

    Disability classification systems belong to the core of states’ social/disability policies through which persons with disabilities are classified as eligible or ineligible for having access to disability allowances. The study of disability classification systems has stimulated the interest of several scholars from the broader area of disability studies. Either by conducting comparative studies between different states and describing the similarities and differences of these systems around the world or by conducting studies focusing on the politics and semantics in the development of disability classification systems in specific states, all studies have shown a pluralism in the systems for assessing and certifying disability. In Greece, the development of disability classification systems for social welfare reasons emerged as a controversy that lasted for almost twenty years. One factor that strengthened the controversy was the outbreak of the economic crisis late in 2009 followed by the announcement by the governmental authorities of the enactment of a new system for assessing and certifying disability as part of the austeritydriven policies that the Greek state would enact for facing the consequences of the economic crisis. Drawing on an interdisciplinary approach, the overall aim of this study is to describe and analyze the enactment of disability classification systems in the context of Greek social policy from 1990 to 2015. For the collection of empirical material, a qualitative research method was employed, consisting of interviews, written material, and newspaper articles. The main findings of this thesis are: I) the involvement of the political parties in the development of the systems for certifying and assessing disability; II) the involvement of the disability movement in policymaking; III) the “creative” use of statistics by governmental authorities for the enactment of disability/social policies; IV) how the concept of “disability fraud” has been constructed as a “threat” to the society; and V) the vulnerability of disability classification systems in times of austerity.

    Fulltekst (pdf)
    Creative Disability Classification Systems: The case of Greece, 1990-2015
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  • 224.
    Pettersson, Cecilia
    Faculty of Medicine, Department of Health Sciences, Lund University, Lund, Sweden.
    Powered Mobility Device Use: Participation and Accessibility2014Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    This thesis elucidates the use of powered mobility devices in a Swedish context. The overall aim was to increase and deepen the knowledge on powered mobility device use in relation to participation and accessibility in different environments and among different user groups, with a specific focus on independence and autonomy. An additional aim was to contribute to the knowledge base regarding the optimization of use of such devices. The thesis is based on four studies in which different research approaches were applied through the combination of different types of data in order to interpret the complexity of powered mobility device use. Quantitative, qualitative and mixed methods were utilized. The first study was a prospective cohort study in which data was collected using structured interviews at baseline and two follow-ups. The second study was an exploratory multiple longitudinal case study. A focusgroup methodology with a descriptive design was used in the third study. The fourth study was a cross-sectional study based on survey data collected from people with spinal cord injury. The main contribution of the studies that constitute the empirical basis of this thesis is that the purpose of providing people with powered mobility devices is mostly fulfilled in that such devices provide their users’ with greater opportunities for participation. Nevertheless, there are also problems in terms of accessibility in various environmental arenas that have an impact on mobility. An additional important contribution is that the results show that the experiences of users of powered mobility devices should be taken seriously as they convey different aspects of how the use of such devices could be optimized. In conclusion, this thesis contributes to our understanding of the use of powered mobility devices and has the potential to optimize independence in terms of mobility and participation among users of such devices. Finally, the results have practical implications for occupational therapy in the provision of powered mobility devices. Likewise, this new knowledge about the needs of powered mobility device users in terms of accessibility are of importance to politicians, professionals and other stakeholders engaged in housing provision and physical planning.

  • 225.
    Pettersson, Cecilia
    et al.
    Department of Health Sciences, Lund University, Lund, Sweden.
    Iwarsson, Susanne
    Department of Health Sciences, Lund University, Lund, Sweden.
    Brandt, Åse
    The National Board of Social Services, Odense, Denmark.
    Norin, Lizette
    Department of Health Sciences, Lund University, Lund, Sweden.
    Månsson Lexell, Eva
    Department of Health Sciences, Lund University, Lund, Sweden; Department of Neurology and Rehabilitation Medicine, Skåne University Hospital, Lund, Sweden.
    Men's and women's perspectives on using a powered mobility device: benefits and societal challenges2014Inngår i: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 21, nr 6, s. 438-446Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    OBJECTIVE: To describe how men and women experience their use of powered wheelchairs (PW) and powered scooters (PS) in everyday occupations, in the home and in society at large.

    METHODS: A qualitative research approach with focus-group methodology was used. Four focus groups were created, with men and women as well as PW and PS users in different groups. Applying a descriptive approach, data were analysed according to the principles described by Krueger.

    FINDINGS: Three categories emerged and revealed that even though use of PW and PS increased independence and enabled everyday occupations, participants struggled to be independent powered mobility device (PMD) users. They experienced many accessibility problems in dwellings and in society, described similarly by users of PW and PS. Men and women experienced their use of (PMD) differently, especially in relation to the service delivery process.

    CONCLUSIONS: The study contributes with new knowledge on accessibility for PW and PS users and related service delivery processes, stating that gender differences regarding provision and training must be taken into account. Occupational therapists can contribute to an enhanced understanding of PMD users' challenges in person-environment-occupation transactions in the home and society, and thereby promote occupational justice for PMD users.

  • 226.
    Philipson, Anna
    Örebro universitet, Institutionen för hälsovetenskaper.
    Health economic aspects of emotional problems and pain symptoms in childhood and adolescence: Long-term outcomes, efficacy and cost-effectiveness of interventions2022Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    Emotional problems and pain symptoms among children and adolescents are a global public health challenge that imposes a great burden on the individuals affected and on society. Because resources are limited, allocation and prioritization are needed. Health economic analysis can constitute a foundation for such decisions.

    The overall aim of this thesis is to estimate long-term outcomes associated with adolescent depression and to evaluate interventions for emotional problems and pain symptoms in childhood and adolescence from a health economic perspective. The thesis is based on four papers: paper I is a longitudinal cohort study of 539 participants, showing that adolescent depression is associated with reduced earnings in adulthood, papers II, III, and IV are based on two randomized controlled trials of interventions. In paper II, a dance intervention for 112 adolescent females with internalizing symptoms were evaluated. A cost–utility analysis was performed, indicating that the intervention was costeffective given a willingness-to-pay threshold of USD 50,000 with an incremental cost-effectiveness ratio of USD 3830/quality-adjusted life year. Papers III and IV evaluated a dance and yoga intervention for 121 girls, 9–13 years old, with functional abdominal pain disorders. Paper III showed that the intervention group decreased their abdominal pain more than did the control group. In paper IV, the cost–utility analysis of the trial indicated a negative incremental cost-effectiveness ratio, investigated from a societal perspective, over both one and ten years.

    In conclusion, this thesis identifies a need for preventive as well as treatment interventions for emotional problems in adolescence, to decrease the prevalence of emotional problems and mitigate negative outcomes. Dance or dance and yoga combined can be effective and cost-effective early treatment interventions for emotional problems and pain symptoms among females in childhood and adolescence. These findings may assist decision-makers in resource allocation within this area

    Delarbeid
    1. Adolescent depression and subsequent earnings across early to middle adulthood: a 25-year longitudinal cohort study
    Åpne denne publikasjonen i ny fane eller vindu >>Adolescent depression and subsequent earnings across early to middle adulthood: a 25-year longitudinal cohort study
    Vise andre…
    2020 (engelsk)Inngår i: Epidemiology and Psychiatric Sciences, ISSN 2045-7960, E-ISSN 2045-7979, Vol. 29, artikkel-id e123Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    AIMS: The few available studies on early-onset depression and future earnings offer ambiguous findings, and potential sources of heterogeneity are poorly understood. We examined the differences in adult earnings of males and females with and without a history of depressive disorder in adolescence, with specific focuses on (1) future earnings in clinical subtypes of adolescent depression; (2) the growth and distribution of earnings over time within these subgroups and (3) the mediating role of subsequent depressive episodes occurring in early adulthood.

    METHODS: Data were drawn from the Uppsala Longitudinal Adolescent Depression Study, a community-based cohort study initiated in Uppsala, Sweden, in the early 1990s. Comprehensive diagnostic assessments were conducted at age 16-17 and in follow-up interviews 15 years later, while consecutive data on earnings for the years 1996 to 2016 (ages 20-40) were drawn from population-based registries. The current study included participants with a history of persistent depressive disorder (PDD) (n = 175), episodic major depressive disorder (MDD) (n = 82), subthreshold depression (n = 64) or no depression (n = 218) in adolescence. The association of adolescent depression with earnings in adulthood was analysed using generalised estimating equations. Estimates were adjusted for major child and adolescent psychiatric comorbidities and parental socioeconomic status. The indirect (mediated) effect of depression in early adulthood (ages 19-30) on earnings in mid-adulthood (31-40) was estimated in mediation analysis. The study followed the 'STrengthening the Reporting of OBservational studies in Epidemiology' (STROBE) guidelines.

    RESULTS: Earnings across early to middle adulthood were lower for participants with a history of a PDD in adolescence than for their non-depressed peers, with an adjusted ratio of mean earnings of 0.85 (0.77-0.95) for females and 0.76 (0.60-0.95) for males. The differences were consistent over time, and more pronounced in the lower percentiles of the earnings distributions. The association was partially mediated by recurrent depression in early adulthood (48% in total; 61% for females, 29% for males). No reduction in earnings was observed among participants with episodic MDD in adolescence, while results for subthreshold depression were inconclusive.

    CONCLUSIONS: Our findings suggest that future earnings of adolescents with depressive disorders are contingent on the duration and natural long-term course of early-onset depression, emphasising the need for timely and effective interventions to avoid loss of human capital.

    sted, utgiver, år, opplag, sider
    Cambridge University Press, 2020
    Emneord
    Adolescents, depression, economic issues, epidemiology, mental health
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-81455 (URN)10.1017/S2045796020000360 (DOI)000529152600001 ()32345393 (PubMedID)2-s2.0-85084107314 (Scopus ID)
    Forskningsfinansiär
    Swedish Research CouncilVinnova, 2014-10092Swedish Research Council FormasForte, Swedish Research Council for Health, Working Life and Welfare
    Merknad

    Funding Agencies:

    Uppsala-Örebro Regional Research Council  RFR-652841 RFR-738411 RFR-840891

    Uppsala County Council's Funds for Clinical Research  LUL-713161 LUL-828241

    Tilgjengelig fra: 2020-05-04 Laget: 2020-05-04 Sist oppdatert: 2024-01-02bibliografisk kontrollert
    2. Cost-utility analysis of a dance intervention for adolescent girls with internalizing problems
    Åpne denne publikasjonen i ny fane eller vindu >>Cost-utility analysis of a dance intervention for adolescent girls with internalizing problems
    2013 (engelsk)Inngår i: Cost Effectiveness and Resource Allocation, E-ISSN 1478-7547, Vol. 11, nr 1, s. 4-Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Background: The increasing prevalence of psychological health problems among adolescent girls is alarming. Knowledge of beneficial effects of physical activity on psychological health is widespread. Dance is a popular formof exercise that could be a protective factor in preventing and treating symptoms of depression. The aim of thisstudy was to assess the cost-effectiveness of a dance intervention in addition to usual school health services foradolescent girls with internalizing problems, compared with usual school health services alone.

    Methods: A cost-utility analysis from a societal perspective based on a randomized controlled intervention trial wasperformed. The setting was a city in central Sweden with a population of 130 000. A total of 112 adolescent girls, 13–18 years old, with internalizing problems participated in the study. They were randomly assigned to intervention (n =59) or control (n = 53) group. The intervention comprised dance twice weekly during eight months in addition to usualschool health services. Costs for the stakeholder of the intervention, treatment effect and healthcare costs wereconsidered. Gained quality-adjusted life-years (QALYs) were used to measure the effects. Quality of life was measuredwith the Health Utility Index Mark 3. Cost-effectiveness ratios were based on the changes in QALYs and net costs forthe intervention group compared with the control group. Likelihood of cost-effectiveness was calculated.

    Results: At 20 months, quality of life had increased by 0.08 units more in the intervention group than in the controlgroup (P = .04), translating to 0.10 gained QALYs. The incremental cost-effectiveness ratio was USD $3,830 per QALYand the likelihood of cost-effectiveness was 95%.

    Conclusions: Intervention with dance twice weekly in addition to usual school health services may be consideredcost-effective compared with usual school health services alone, for adolescent girls with internalizing problems.

    Emneord
    Internalizing problems, Adolescent girls, Physical activity, Dance, Cost-utility analysis
    HSV kategori
    Forskningsprogram
    Företagsekonomi
    Identifikatorer
    urn:nbn:se:oru:diva-38723 (URN)10.1186/1478-7547-11-4 (DOI)23425608 (PubMedID)2-s2.0-84873979104 (Scopus ID)
    Merknad

    Trial registration:

    Name of the trial registry: “Influencing Adolescent Girls’ With Creative Dance Twice Weekly”

    Trial registration number: NCT01523561

    Tilgjengelig fra: 2014-11-18 Laget: 2014-11-18 Sist oppdatert: 2024-01-02bibliografisk kontrollert
    3. Dance and Yoga Reduced Functional Abdominal Pain in Young Girls: A Randomized Controlled Trial
    Åpne denne publikasjonen i ny fane eller vindu >>Dance and Yoga Reduced Functional Abdominal Pain in Young Girls: A Randomized Controlled Trial
    Vise andre…
    2022 (engelsk)Inngår i: European Journal of Pain, ISSN 1090-3801, E-ISSN 1532-2149, Vol. 26, nr 2, s. 336-348Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Background: Functional abdominal pain disorders (FAPDs) affect children, especially girls, all over the world. The evidence for existing treatments is mixed, and effective accessible treatments are needed. Dance, a rhythmic cardio-respiratory activity, combined with yoga, which enhances relaxation and focus, may provide physiological and psychological benefits that could help to ease pain.

    Objectives: The aim with this study was to evaluate the effects of a dance and yoga intervention on maximum abdominal pain in 9- to 13-year- old girls with FAPDs.

    Methods: This study was a prospective randomised controlled trial with 121 participants recruited from outpatient clinics as well as the general public. The intervention group participated in dance and yoga twice weekly for 8 months; controls received standard care. Abdominal pain, as scored on the Faces Pain Scale–Revised, was recorded in a pain diary. A linear mixed model was used to estimate the outcomes and effect sizes.

    Results: Dance and yoga were superior to standard healthcare alone, with a medium to high between-group effect size and significantly greater pain reduction (b = −1.29, p = 0.002) at the end of the intervention.

    Conclusions: An intervention using dance and yoga is likely a feasible and beneficial complementary treatment to standard health care for 9- to 13-year-old girls with FAPDs.

    Significance:  FAPDs affect children, especially girls, all over the world. The negative consequences such as absence from school, high consumption of medical care and depression pose a considerable burden on children and their families and effective treatments are needed. This is the first study examining a combined dance/yoga intervention for young girls with FAPDs and the result showed a reduction of abdominal pain. These findings contribute with new evidence in the field of managing FAPDs in a vulnerable target group. 

    sted, utgiver, år, opplag, sider
    John Wiley & Sons, 2022
    Emneord
    Abdominal pain, Dance, Yoga
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-94449 (URN)10.1002/ejp.1862 (DOI)000697940600001 ()34529293 (PubMedID)2-s2.0-85115140284 (Scopus ID)
    Prosjekter
    Just in Time
    Forskningsfinansiär
    Fredrik och Ingrid Thurings Stiftelse, 2016-00243
    Merknad

    Funding:

    Uppsala-Örebro Regional Research Council [RFR-655161, RFR-740981, RFR-839811]

    Nyckelfonden [OLL-689081]

    Örebro Research Committee [OLL-615471]

    Tilgjengelig fra: 2021-09-17 Laget: 2021-09-17 Sist oppdatert: 2022-05-12bibliografisk kontrollert
    4. The cost-effectiveness of a dance and yoga intervention for girls with functional abdominal pain disorders
    Åpne denne publikasjonen i ny fane eller vindu >>The cost-effectiveness of a dance and yoga intervention for girls with functional abdominal pain disorders
    Vise andre…
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-96756 (URN)
    Tilgjengelig fra: 2022-01-27 Laget: 2022-01-27 Sist oppdatert: 2024-01-02bibliografisk kontrollert
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  • 227.
    Philipson, Anna
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center.
    Hagberg, Lars
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. University Health Care Research Center.
    Duberg, Anna
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. University Health Care Research Center.
    Högström, Sofie
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Universitetssjukhuset Örebro, Örebro.
    Lindholm, Lars
    Umeå University, Epidemiology and Global Health, Department of Public Health and Clinical Medicine, Umeå, Sweden.
    Möller, Margareta
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center, Universitetssjukhuset Örebro .
    Ryen, Linda
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. University Health Care Research Center.
    The cost-effectiveness of a dance and yoga intervention for girls with functional abdominal pain disordersManuskript (preprint) (Annet vitenskapelig)
  • 228.
    Poikonen, Hanna
    et al.
    Professorship for Learning Sciences and Higher Education, Department of Humanities, Social and Political Sciences, ETH Zurich, Switzerland; University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
    Duberg, Anna
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. University Health Care Research Center.
    Eriksson, Mats
    Örebro universitet, Institutionen för hälsovetenskaper.
    Eriksson Crommert, Martin
    Örebro universitet, Institutionen för medicinska vetenskaper. Region Örebro län. University Health Care Research Center.
    Lund, Majja
    Örebro universitet, Institutionen för hälsovetenskaper.
    Möller, Margareta
    Örebro universitet, Institutionen för hälsovetenskaper.
    Msghina, Mussie
    Örebro universitet, Institutionen för medicinska vetenskaper.
    InMotion – Mixed physical exercise with creative movement as an intervention for people with schizophrenia2023Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Schizophrenia (SCZ) is among the world’s top ten causes of long-term disability (World Health Organization, 2004). The major symptoms of SCZ include hallucinations, delusions, affective flattening, and cognitive impairment, and their treatment with antipsychotic medications is far from optimal.Creative and body awareness training (dance/movement therapy, body psychotherapy) and physical training (aerobic and strength training) improve SCZ symptoms (e.g Martin et al., 2016, 2017; Girdler et al., 2019; Millman et a., 2021). In our novel intervention, we bring together creativity and self-awareness with physical training. The 12-week 24-session intervention with 30 participants (Figure 1) includes components like visualization, cardio and strength training, and social interaction. We will measure the impact with standardized clinical questionnaires, EEG-fNIRS, motion capture, and cognitive, affective, and physical tests. We expect our intervention to improve the quality of life and negative symptoms of SCZ by balancing the brain functions and bodily state related to self-awareness, social interaction, and physical fitness. In my talk, I will cover brain dysfunctions related to self-awareness in SCZ (Ferri et al., 2012; Ebisch et al., 2013) and describe the scientific rationale for each component included in our novel intervention (e.g. Lee et al., 2015; Firth et al., 2017).

  • 229.
    Ramsten, Camilla
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Västerås, Sweden.
    Martin, Lene
    Mälardalen University, School of Health, Careand Social Welfare, Eskilstuna, Sweden.
    Dag, Munir
    Mälardalen University, School of Health, Careand Social Welfare, Eskilstuna, Sweden.
    Marmstål Hammar, Lena
    Dalarna University, School of Education, Health and Social Studies, Falun, Sweden.
    A Balance of Social Inclusion and Risks: Staff Perceptions of Information and Communication technology in the Daily Life of Young Adults with Mild to Moderate Intellectual Disability in a Social Care Context2019Inngår i: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 16, nr 3, s. 171-179Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Information and communication technology (ICT) has increased in importance and facilitates participation in several life areas throughout society. However, young adults with mild to moderate intellectual disability make less use ICT than the general population. Disability services staff play a central role in supporting and enabling service users in daily life, and their perceptions of ICT are important to their role in service provision.

    Aim: To describe staff perceptions of the role of ICT and how it affects daily life in young adults with mild to moderate intellectual disability living in residential homes.

    Method: Focus group interviews and individual interviews were conducted with staff working in residential homes in which young adults with mild to moderate intellectual disability live. All materials were transcribed verbatim and analysed using latent content analysis.

    Findings: Staff perceived ICT and, more specifically, the Internet as being supportive of both daily life and social relationships of these young adults, but they also viewed ICT as posing social risks. Perceptions of and support for ICT were related to staff perceptions about what is appropriate and manageable in relation to an individual resident’s functioning level. Staff members also considered the views of parents about appropriate content when providing support.

    Discussion: Staff in residential homes for young adults with mild to moderate intellectual disability use their implicit moral judgement about the use of ICT by residents. Their enablement of and support for ICT are not primarily based on the service user’s wishes or interests. This finding implies a risk that the organization of a conflict-free service provision is a higher priority than service users’ participation in social life.

  • 230.
    Ranjbar, Parivash
    et al.
    Örebro universitet, Akademin för naturvetenskap och teknik.
    Anderzén-Carlsson, Agneta
    Örebro universitet, Hälsovetenskapliga institutionen.
    Neovius, Lennart
    Saven Hitech AB.
    Johansson, Camilla
    Audiologiska forskningscentrum.
    Borg, Erik
    Audiologiska forskningscentrum, USÖ.
    Vibrotactile detection, identification and directional perception of signal-processed sounds from environmental events: a pilot field evaluation in five cases2008Inngår i: Iranian Rehabilitation Journal, ISSN 1735-3602, E-ISSN 1735-3610, Vol. 6, nr 1, s. 89-107Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: Conducting field tests of a vibrotactile aid for deaf/deafblind persons for detection, identification and directional perception of environmental sounds.

    Method: Five deaf (3F/2M, 22–36 years) individuals tested the aid separately in a home environment (kitchen) and in a traffic environment. Their eyes were blindfolded and they wore a headband and holding a vibrator for sound identification. In the headband, three microphones were mounted and two vibrators for signalling direction of the sound source. The sounds originated from events typical for the home environment and traffic. The subjects were inexperienced (events unknown) and experienced (events known). They identified the events in a home and traffic environment, but perceived sound source direction only in traffic.

    Results: The detection scores were higher than 98% both in the home and in the traffic environment. In the home environment, identification scores varied between 25%-58% when the subjects were inexperienced and between 33%-83% when they were experienced. In traffic, identification scores varied between 20%-40% when the subjects were inexperienced and between 22%-56% when they were experienced. The directional perception scores varied between 30%-60% when inexperienced and between 61%-83% when experienced.

    Conclusion: The vibratory aid consistently improved all participants’ detection, identification and directional perception ability.

  • 231.
    Ranjbar, Parivash
    et al.
    Region Örebro län. Örebro universitet, Institutionen för hälsovetenskaper.
    Stranneby, Dag
    Örebro universitet, Institutionen för naturvetenskap och teknik.
    Borg, Erik
    Ready-Ride: A tactile communications aid to improve the mobility of persons with deafblindness in a riding arena2018Inngår i: International Journal of Engineering Technology and Scientific Innovation, ISSN 2456-1851, Vol. 3, nr 1, s. 56-62Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Persons with severe visual impairment (VI), blindness (B) and deafblindness (DB) have difficulties in mobility and thereby poor leisure time. Activities as horseback riding become difficult especially for persons with DB who communicate with an assistant/instructor via tactile sign language and need to stop and get information/feedback.

    Ready-Ride, a tactile communications system can improve the mobility of the persons with B and DB by making distance communication possible. It consists of transmitter with four buttons which communicates via Bluetooth with a receiver connected to four vibrators via cables. The button(s) are used to activate the specific vibrator(s). The messages can consist of simple "right" or "left" or more complex codes for any needed instruction.

    Ready-Ride has been evaluated in the riding arena by persons with B and DB who consider it as mobile, easy to use and no need for long introduction or installation of any software/hardware. The vibrations are intuitive, easy to detect and distinguish. The system gives the rider information tactually without disturbing other persons or horses nearby. Using Ready-Ride they got more time to ride and the quality was increased since they could communicate while riding and get immediate feedback directly.

    One of the riders with DB has been using the system during a long period, in average one lesson a week and participated in different competitions with good results. She says that the use of Ready- Ride is crucial for continued riding, "Ready-Ride is a MUST BEE".

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    Abstract
  • 232.
    Rasoal, Dara
    Örebro universitet, Institutionen för hälsovetenskaper.
    Perspectives on clinical ethics support and ethically difficult situations: reflections and experiences2017Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    Healthcare personnel encounter ethically difficult situations in their everyday work and clinical ethics support might be important to support healthcare personnel to deal with these situations. The overall aim of this thesis was to describe perspectives on clinical ethics support, experiences of being in ethically difficult situations and experiences of facilitating ethics reflection. Methods. Study I had a descriptive design in which research articles were reviewed (n=54). In study II audio-recorded moral case deliberation (n=70) in 10 Swedish workplaces in hospitals and community care were analysed. In study III interviews were conducted with facilitators (n=11) of moral case deliberation. Study IV used non-participant observation during three weeks as well as informal conversations with healthcare personnel (n=12) in community home healthcare. Results and conclusion. In study I, two perspectives emerged on clinical ethics support, a “Top-down” perspective, where an individual or a group of “experts” in ethics could recommend the best course of action and a “Bottom-up” perspective that allows healthcare personnel to manage ethically difficult situations through ethical reflections led by a facilitator. Studies II and IV showed how ethically difficult situations on different levels are often connected with emotions and uncertainties. Study III showed the role of the facilitator to be fundamental in creating a space for self-reflection among healthcare personnel. Study IV showed that healthcare personnel face complex demands and expectations from the healthcare organization regarding the provision of care as well as having to meet the needs of patients and their next-of-kin. To conclude, healthcare personnel needed to find a balance among demands and expectations in order to satisfy those stakeholders involved and they had to seek compromise. There is a need for clinical ethics support that helps healthcare personnel reflect individually and collectively on ethically difficult situations they encounter in their everyday clinical practice. From this standpoint, a “Bottom-up” perspective may reduce the risk of moral distress among healthcare personnel and promote care based on person-centred values.

    Delarbeid
    1. Clinical ethics support for healthcare personnel: An integrative literature review
    Åpne denne publikasjonen i ny fane eller vindu >>Clinical ethics support for healthcare personnel: An integrative literature review
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-57636 (URN)
    Tilgjengelig fra: 2017-05-11 Laget: 2017-05-11 Sist oppdatert: 2017-10-18bibliografisk kontrollert
    2. What healthcare teams find ethically difficult: Captured in 70 moral case deliberations
    Åpne denne publikasjonen i ny fane eller vindu >>What healthcare teams find ethically difficult: Captured in 70 moral case deliberations
    2016 (engelsk)Inngår i: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 23, nr 8, s. 825-837Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Background: Ethically difficult situations are frequently encountered by healthcare professionals. Moral case deliberation is one form of clinical ethics support, which has the goal to support staff to manage ethical difficulties. However, little is known which difficult situations healthcare teams need to discuss.

    Aim: To explore which kinds of ethically difficult situations interprofessional healthcare teams raise during moral case deliberation.

    Research design: A series of 70 moral case deliberation sessions were audio-recorded in 10 Swedish workplaces. A descriptive, qualitative approach was applied, using thematic content analysis.

    Ethical considerations: An advisory statement specifying no objections to the study was provided from an Ethical Review Board, and consent to be recorded was assumed by virtue of participation in the moral case deliberation.

    Findings: Three themes emerged: powerlessness over managing difficult interactions with patients and next-of-kin, unease over unsafe and unequal care, and uncertainty over who should have power over care decisions. The powerlessness comprised feelings of insufficiency, difficulties to respond or manage patient's/next-of-kin's emotional needs or emotional outbursts and discouragement over motivating patients not taking responsibility for themselves. They could be uncertain over the patient's autonomy, who should have power over life and death, disclosing the truth or how much power next-of-kin should have.

    Discussion: The findings suggest that the nature of the ethically difficult situations brought to moral case deliberations contained more relational-oriented ethics than principle-based ethics, were permeated by emotions and the uncertainties were pervaded by power aspects between stakeholders.

    Conclusion: MCD can be useful in understanding the connection between ethical issues and emotions from a team perspective.

    sted, utgiver, år, opplag, sider
    London, United Kingdom: Sage Publications, 2016
    Emneord
    Clinical ethics, ethically difficult situations, ethics consultation, healthcare professionals, moral case deliberation
    HSV kategori
    Forskningsprogram
    Etik
    Identifikatorer
    urn:nbn:se:oru:diva-44848 (URN)10.1177/0969733015583928 (DOI)000391461900002 ()25991657 (PubMedID)2-s2.0-85007109749 (Scopus ID)
    Merknad

    Funding Agency:

    Stiftelsen Olle Engqvist Byggmästare 

    Tilgjengelig fra: 2015-06-05 Laget: 2015-06-05 Sist oppdatert: 2021-05-10bibliografisk kontrollert
    3. ‘It’s like sailing’- experiences of the role as facilitator during moral case deliberation
    Åpne denne publikasjonen i ny fane eller vindu >>‘It’s like sailing’- experiences of the role as facilitator during moral case deliberation
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-57637 (URN)
    Tilgjengelig fra: 2017-05-11 Laget: 2017-05-11 Sist oppdatert: 2017-10-18bibliografisk kontrollert
    4. Balancing different expectations in ethically difficult situations while providing community home health care services: A focused ethnographic approach
    Åpne denne publikasjonen i ny fane eller vindu >>Balancing different expectations in ethically difficult situations while providing community home health care services: A focused ethnographic approach
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-57639 (URN)
    Tilgjengelig fra: 2017-05-11 Laget: 2017-05-11 Sist oppdatert: 2017-10-18bibliografisk kontrollert
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  • 233.
    Rasoal, Dara
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Kihlgren, Annica
    Örebro universitet, Institutionen för hälsovetenskaper.
    Skovdahl, Kirsti
    Department of Nursing and Health Sciences, University College in Southeast Norway, Campus Drammen, Norway.
    Balancing different expectations in ethically difficult situations while providing community home health care services: A focused ethnographic approachManuskript (preprint) (Annet vitenskapelig)
  • 234.
    Rasoal, Dara
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Skovdahl, Kirsti
    Department of Nursing and Health Sciences, University College in Southeast Norway, Campus Drammen, Norway.
    Gifford, Mervyn
    Örebro universitet, Institutionen för hälsovetenskaper.
    Kihlgren, Annica
    Örebro universitet, Institutionen för hälsovetenskaper.
    Clinical ethics support for healthcare personnel: An integrative literature reviewManuskript (preprint) (Annet vitenskapelig)
  • 235.
    Rasoal, Dara
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Svantesson, Mia
    Örebro universitet, Institutionen för hälsovetenskaper.
    Kihlgren, Annica
    Örebro universitet, Institutionen för hälsovetenskaper.
    ‘It’s like sailing’- experiences of the role as facilitator during moral case deliberationManuskript (preprint) (Annet vitenskapelig)
  • 236.
    Roshanai, Afsaneh
    et al.
    Uppsala University, Uppsala, Sweden.
    Janeslatt, Gunnel
    Uppsala University, Uppsala, Sweden.
    White, Suzanne Marie
    Alithia D. Alleyne, Brooklyn, NY, USA.
    Lidström-Holmqvist, Kajsa
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. University Health Care Research Center.
    Holmefur, Marie
    Örebro universitet, Institutionen för hälsovetenskaper.
    Psychometric Properties of the Original Version of the Assessment of Time Management Skills2021Inngår i: American Journal of Occupational Therapy, ISSN 0272-9490, E-ISSN 1943-7676, Vol. 75, nr Suppl. 2, artikkel-id 7512500038Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [en]

    Time management is a key OT intervention component. Valid and reliable instruments are essential for evaluating rehabilitation and OT interventions. The results of this study show that the Assessment of Time Management Skills has good measurement properties and consistent and replicable items and is useful in English-speaking countries. It can provide valid measures of time management skills, organization and planning skills, and regulation of emotion in a general population and presumably also a population with cognitive impairment.

  • 237.
    Rossen, Jenny
    et al.
    Sophiahemmet University, Stockholm, Sweden; Department of Clinical Sciences and Education, Södersjukhuset, Karolinska Institutet, Stockholm, Sweden.
    Yngve, Agneta
    Örebro universitet, Restaurang- och hotellhögskolan. Sophiahemmet University, Stockholm, Sweden.
    Hagströmer, Maria
    Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm, Sweden; Department of Physical Therapy, Karolinska University Hospital, Stockholm, Sweden.
    Brismar, Kerstin
    Department of Molecular Medicine and Surgery, Karolinska Institutet, Stockholm, Sweden; Rolf Luft Research Center for Diabetes and Endocrinology, Karolinska University Hospital, Stockholm, Sweden.
    Ainsworth, Barbara E
    School of Nutrition and Health Promotion, Arizona State University, Phoenix AZ, United States.
    Iskull, Christina
    Sophiahemmet Hospital, Stockholm, Sweden.
    Möller, Peter
    Sophiahemmet Hospital, Stockholm, Sweden.
    Johansson, Unn-Britt
    Sophiahemmet University, Stockholm, Sweden; Department of Clinical Sciences and Education, Södersjukhuset, Karolinska Institutet, Stockholm, Sweden.
    Physical activity promotion in the primary care setting in pre- and type 2 diabetes - the Sophia step study, an RCT2015Inngår i: BMC Public Health, E-ISSN 1471-2458, Vol. 15, artikkel-id 647Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Physical activity prevents or delays progression of impaired glucose tolerance in high-risk individuals. Physical activity promotion should serve as a basis in diabetes care. It is necessary to develop and evaluate health-promoting methods that are feasible as well as cost-effective within diabetes care. The aim of Sophia Step Study is to evaluate the impact of a multi-component and a single component physical activity intervention aiming at improving HbA1c (primary outcome) and other metabolic and cardiovascular risk factors, physical activity levels and overall health in patients with pre- and type 2 diabetes.

    METHODS/DESIGN: Sophia Step Study is a randomized controlled trial and participants are randomly assigned to either a multi-component intervention group (A), a pedometer group (B) or a control group (C). In total, 310 patients will be included and followed for 24 months. Group A participants are offered pedometers and a website to register steps, physical activity on prescription with yearly follow-ups, motivational interviewing (10 occasions) and group consultations (including walks, 12 occasions). Group B participants are offered pedometers and a website to register steps. Group C are offered usual care. The theoretical framework underpinning the interventions is the Health Belief Model, the Stages of Change Model, and the Social Cognitive Theory. Both the multi-component intervention (group A) and the pedometer intervention (group B) are using several techniques for behavior change such as self-monitoring, goal setting, feedback and relapse prevention. Measurements are made at week 0, 8, 12, 16, month 6, 9, 12, 18 and 24, including metabolic and cardiovascular biomarkers (HbA1c as primary health outcome), accelerometry and daily steps. Furthermore, questionnaires were used to evaluate dietary intake, physical activity, perceived ability to perform physical activity, perceived support for being active, quality of life, anxiety, depression, well-being, perceived treatment, perceived stress and diabetes self- efficacy.

    DISCUSSION: This study will show if a multi-component intervention using pedometers with group- and individual consultations is more effective than a single- component intervention using pedometers alone, in increasing physical activity and improving HbA1c, other metabolic and cardiovascular risk factors, physical activity levels and overall health in patients with pre- and type 2 diabetes.

    TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT02374788 . Registered 28 January 2015.

  • 238.
    Rönnåsen, Berit
    Örebro universitet, Institutionen för hälsovetenskap och medicin.
    Aspekter på lärande vid dövblindhet: möjligheter och begränsningar för personer med Alström syndrom2015Licentiatavhandling, med artikler (Annet vitenskapelig)
    Delarbeid
    1. Auditory and vestibular pathology in Alström syndrome
    Åpne denne publikasjonen i ny fane eller vindu >>Auditory and vestibular pathology in Alström syndrome
    Vise andre…
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Forskningsprogram
    Handikappvetenskap
    Identifikatorer
    urn:nbn:se:oru:diva-44681 (URN)
    Tilgjengelig fra: 2015-05-22 Laget: 2015-05-22 Sist oppdatert: 2017-10-17bibliografisk kontrollert
    2. Aspects of Learning from the Perspective of People With Alström Syndrome
    Åpne denne publikasjonen i ny fane eller vindu >>Aspects of Learning from the Perspective of People With Alström Syndrome
    Vise andre…
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    Emneord
    Alström syndrome (AS), deafblindness, dual sensory loss, learning, sensoneural progressive hearing loss, vision loss
    HSV kategori
    Forskningsprogram
    Handikappvetenskap
    Identifikatorer
    urn:nbn:se:oru:diva-44682 (URN)
    Tilgjengelig fra: 2015-05-22 Laget: 2015-05-22 Sist oppdatert: 2024-01-03bibliografisk kontrollert
    Fulltekst (pdf)
    Inledningskapitel
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    Omslag
  • 239.
    Rönnåsen, Berit
    et al.
    Örebro universitet, Institutionen för hälsovetenskap och medicin. The Swedish Institute for Disability Research, Linköping, Sweden; Audiological Research Centre, Örebro University Hospital.
    Möller, Kerstin
    Örebro universitet, Institutionen för hälsovetenskap och medicin. The Swedish Institute for Disability Research, Linköping, Sweden; Audiological Research Centre, Örebro University Hospital.
    Möller, Claes
    Örebro universitet, Institutionen för hälsovetenskap och medicin. The Swedish Institute for Disability Research, Linköping, Sweden; Audiological Research Centre, Örebro University Hospital; Department of Behavioural Science and Learning, Linköping University.
    Lyxell, Björn
    Department of Behavioural Science and Learning, Linköping University.
    Anderzen-Carlsson, Agneta
    Örebro universitet, Institutionen för hälsovetenskap och medicin. The Swedish Institute for Disability Research, Linköping, Sweden; Audiological Research Centre, Örebro University Hospital.
    Aspects of Learning from the Perspective of People With Alström SyndromeManuskript (preprint) (Annet vitenskapelig)
  • 240.
    Rönnåsen, Berit
    et al.
    School of Health and Medical Sciences, Örebro University, The Swedish Institute for Disability Research, Örebro, Sweden; Audiological Research Centre, Örebro University Hospital, Örebro, Sweden.
    Möller, Kerstin
    Örebro universitet, Institutionen för hälsovetenskap och medicin. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden.
    Möller, Claes
    Örebro universitet, Institutionen för hälsovetenskap och medicin. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden.
    Lyxell, Björn
    Department of Behavioural Science and Learning, Linköping University, Linköping, Sweden.
    Anderzén Carlsson, Agneta
    Örebro universitet, Institutionen för hälsovetenskap och medicin. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden.
    Aspects of learning from the perspective of people with Alström syndrome2016Inngår i: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 38, nr 7, s. 644-652Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Purpose: The aim of the study was to explore aspects of learning, from a lifelong perspective, in individuals with Alstro ̈m syndrome (AS). AS is an autosomal recessive disorder causing early blindness, progressive sensorineural hearing loss, cardiomyopathy, endocrine disorders, metabolic dysfunction, and abbreviated lifespan.

    Method: Eleven individuals with AS participated. The study had a qualitative explorative design, giving voice to the participants’ perspectives on their situation. Data were collected using semi-structured interviews, which were subjected to conventional (inductive) qualitative content analysis.

    Results: The analysis revealed in the participants a quest for independence and an image of themselves as capable people willing to learn, but in constant need of support to continue learning throughout their lives to be as independent as possible.

    Conclusion: Based on the levels of functioning, i.e. personal resources, revealed in the interviews, supervisors, caregivers, and teachers are encouraged to allow people with AS to be their own advocates, as they know best how, what, and with whom they learn, and what type of sensory material – tactile, auditory, visual, or a combination – is most helpful. Implications for RehabilitationIndividuals with AS strive for independence, and to be independent they need to continue to learn throughout their lives.Individuals with AS know best how they learn, and should be asked what modalities are the most effective for them.The tactile modality for learning will continue throughout life and should be emphasized early in the individual's education and rehabilitation.

  • 241.
    Selvin, Mikael
    Örebro universitet, Institutionen för hälsovetenskaper.
    Patient participation and quality of forensic psychiatric care2022Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    The aims of this thesis were to investigate the quality of forensic psychiatric care, to describe the concept of patient participation from a patient and health care professional perspective, and to initiate the development of an instrument for measuring participation from a patient perspective.Forensic psychiatric care is a specialized form of care where patients who have committed a crime that would normally have led to prison, instead are treated for a serious mental disorder. In study I patients’ and professionals’ experiences of quality of forensic psychiatric care were measured, and one of the findings was that questions regarding participation was rated as low by both patients and staff. In Study II the patients perceived the concept of patient participation as: Influence by having good communication and being involved; Confidence by mutual trust and trusting the care; Own responsibility by taking part in activities and to take own initiative. The findings in Study III highlights the importance as a professional to create prerequisites for patient participation by using good communication and inviting the patient to be involved, whilst at the same time adjusting for the forensic psychiatric conditions by taking professional responsibility and assessing the patients’ current capacity. If used correctly, patient participation encourages the patient to become more independent. In study IV, the initial development of an instrument for measuring participation in forensic care from a patient perspective was described. 

    The findings contribute with important knowledge that can encourage reflection and accordingly help mental health professionals and decision makers to create an environment that promotes patient participation in forensic psychiatric care. Further research should investigate the longterm effects of increasing the participation, such as cost effectiveness, treatment times and risk of committing new crimes. 

    Delarbeid
    1. Patient and staff experiences of quality in Swedish forensic psychiatric care: a repeated cross-sectional survey with yearly sampling at two clinics
    Åpne denne publikasjonen i ny fane eller vindu >>Patient and staff experiences of quality in Swedish forensic psychiatric care: a repeated cross-sectional survey with yearly sampling at two clinics
    Vise andre…
    2019 (engelsk)Inngår i: International Journal of Mental Health Systems, E-ISSN 1752-4458, Vol. 13, artikkel-id 8Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Background: Systematic efforts to improve the quality, safety and value of health care have increased over the last decades. Even so, it is hard to choose priorities and to know when the desired results are reached, especially in forensic psychiatric care where there can be a discrepancy between patient and staff expectations of what good quality of care is and how it should be reached. The aim of the present study was to describe and compare patient and staff experiences of quality of care in two forensic psychiatric clinics over a period of 4years.

    Methods: A quantitative design was used and yearly between 2011 and 2014, a total of 105 questionnaires were answered by patients and 598 by staff.

    Results: The sample consisted of four different groups; patient and staff in Clinic A and Clinic B respectively. The repeated measurements showed that quality of care, as described by the patients, varied over time, with significant changes over the 4years. The staff evaluations of the quality of care were more stable over time in both clinics compared with the patients. Generally, the staff rated the quality as being better than the patients but these differences tended to decrease when efforts were made to improve the care.

    Conclusions: It is important to highlight both what staff and patients perceive as both high and low quality care. With regular measurements and sufficient resources, training, support and leadership, the chances of successful improvement work increase. This knowledge is important in forensic nursing practice, for teaching and for management and decision makers in the constant work of improving forensic psychiatric care.

    sted, utgiver, år, opplag, sider
    BMC, 2019
    Emneord
    Forensic psychiatry, Forensic nursing, Quality improvement
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-72424 (URN)10.1186/s13033-019-0265-z (DOI)000457489600001 ()30733827 (PubMedID)2-s2.0-85061003262 (Scopus ID)
    Tilgjengelig fra: 2019-02-14 Laget: 2019-02-14 Sist oppdatert: 2023-10-02bibliografisk kontrollert
    2. The Concept of Patient Participation in Forensic Psychiatric Care: The Patient Perspective
    Åpne denne publikasjonen i ny fane eller vindu >>The Concept of Patient Participation in Forensic Psychiatric Care: The Patient Perspective
    2016 (engelsk)Inngår i: Journal of Forensic Nursing, ISSN 1939-3938, E-ISSN 1556-3693, Vol. 12, nr 2, s. 57-63Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    The importance of patient participation is advocated in medical treatment and nursing care and has been linked to increased quality of care, increased patient satisfaction, and treatment adherence. Still, patients in forensic psychiatric care often report being unhappy with their experienced level of participation. The concept of patient participation is complex and has several definitions, thus it is important to investigate it from different perspectives in different contexts. The aim of this study was to describe patients' perceptions of the concept of patient participation in forensic psychiatric care. A qualitative design with a phenomenographic approach was used, and interviews with 19 participants in a Swedish setting were completed. The participants described the concept of patient participation in forensic psychiatric care as follows: influence, to have good communication and to be involved; confidence, to trust the treatment and to have mutual trust; and own responsibility, to participate in activities and to take the initiative. On the basis of the results of this study, improved patient participation in forensic psychiatric care may be achieved with active communication, by building up and maintaining trust for the professional competence and by encouraging patients' own responsibility. It is important that knowledge about patients' views of the concept of patient participation is included in the planning and improvement of forensic care.

    sted, utgiver, år, opplag, sider
    Philadelphia, USA: Lippincott Williams & Wilkins, 2016
    Emneord
    Coercive care, forensic psychiatric care, patient participation, patient perspective
    HSV kategori
    Forskningsprogram
    Omvårdnadsvetenskap
    Identifikatorer
    urn:nbn:se:oru:diva-49870 (URN)10.1097/JFN.0000000000000107 (DOI)000385299400003 ()27088759 (PubMedID)2-s2.0-84973354122 (Scopus ID)
    Tilgjengelig fra: 2016-04-19 Laget: 2016-04-19 Sist oppdatert: 2022-05-23bibliografisk kontrollert
    3. Patient participation in forensic psychiatric care: Mental health professionals' perspective
    Åpne denne publikasjonen i ny fane eller vindu >>Patient participation in forensic psychiatric care: Mental health professionals' perspective
    2021 (engelsk)Inngår i: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 30, nr 2, s. 461-468Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Patient participation is a central concept in modern health care and an important factor in theories/models such as person-centred care, shared decision-making, human rights approaches, and recovery-oriented practice. Forensic psychiatric care involves the treatment of patients with serious mental illnesses who also have committed a crime, and there are known challenges for mental health staff to create a health-promoting climate. The aim of the present study was to describe mental health professionals' perceptions of the concept of patient participation in forensic psychiatric care. Interviews were conducted with 19 professionals and were analysed with a phenomenographic approach. The findings are presented as three descriptive categories comprising five conceptions in an hierarchic order: 1. create prerequisites - to have good communication and to involve the patient, 2. adapt to forensic psychiatric care conditions - to take professional responsibility and to assess the patient's current ability, and 3. progress - to encourage the patient to become more independent. The findings highlight the need for professionals to create prerequisites for patient participation through good communication and involving the patient, whilst adapting to forensic psychiatric care conditions by taking professional responsibility, assessing the patient's ability, and encouraging the patient to become more independent without adding any risks to the care process. By creating such prerequisites adapted to the forensic psychiatric care, it is more likely that the patients will participate in their care and take more own responsibility for it, which also may be helpful in the patient recovery process.

    sted, utgiver, år, opplag, sider
    John Wiley & Sons, 2021
    Emneord
    Forensic psychiatry, inpatients, patient participation, psychiatric nursing, quality of health care
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-86800 (URN)10.1111/inm.12806 (DOI)000581624800001 ()33098186 (PubMedID)2-s2.0-85093509715 (Scopus ID)
    Tilgjengelig fra: 2020-10-26 Laget: 2020-10-26 Sist oppdatert: 2023-12-08bibliografisk kontrollert
    4. Patient Participation in Forensic Psychiatric Care (PPFPC): The initial development and content validity of a new instrument
    Åpne denne publikasjonen i ny fane eller vindu >>Patient Participation in Forensic Psychiatric Care (PPFPC): The initial development and content validity of a new instrument
    Vise andre…
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-99073 (URN)
    Tilgjengelig fra: 2022-05-19 Laget: 2022-05-19 Sist oppdatert: 2022-05-19bibliografisk kontrollert
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  • 242.
    Selvin, Mikael
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center.
    Almqvist, Kjerstin
    Department for Social and Psychological studies, Karlstad University, Sweden.
    Fogelkvist, Maria
    Örebro universitet, Institutionen för medicinska vetenskaper. Region Örebro län. University Health Care Research Center.
    Lundqvist, Lars-Olov
    Örebro universitet, Institutionen för hälsovetenskaper. University Health Care Research Center.
    Schröder, Agneta
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län. University Health Care Research Center, Faculty of Medicine and Health, Örebro University, Sweden; Department of Nursing, Faculty of Health, Care and Nursing, Norwegian University of Science and Technology (NTNU), Gjövik, Norway .
    Patient Participation in Forensic Psychiatric Care (PPFPC): The initial development and content validity of a new instrumentManuskript (preprint) (Annet vitenskapelig)
  • 243.
    Simic, David
    Örebro universitet, Institutionen för hälsovetenskaper. Region Örebro län.
    Wideband Acoustic Immittance (WAI) Measurements: Normative Clinical Data for Adults: Bredbandstympanometri: Normativ klinisk data för vuxna2021Independent thesis Advanced level (degree of Master (Two Years)), 10 poäng / 15 hpOppgave
    Fulltekst (pdf)
    fulltext
  • 244.
    Sjöberg, Jessica
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Tidman Elme, Fredrika
    Örebro universitet, Institutionen för hälsovetenskaper.
    Attityder och vanor – en studie om ungdomars förhållningssätt till höga ljudnivåer2018Independent thesis Basic level (degree of Bachelor), 10 poäng / 15 hpOppgave
    Fulltekst (pdf)
    fulltext
  • 245.
    Sjöberg, Lis
    Örebro universitet, Institutionen för hälsovetenskaper.
    Healthcare interventions in children with congenital limb reduction deficiency: long term outcomes and experiences of decisions made during childhood2021Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    The overall aim of this thesis was to describe experiences and long-term outcomes of healthcare interventions for children with congenital limb reduction deficiency (CLRD). 

    The four studies included were conducted with descriptive designs. Semi-structured interviews were carried out with parents (n=17) in study I and adolescents (n=10) in study III. Data were analyzed using a qualitativecontent analysis (study I) and a phenomenographic approach (study III). Study II was conducted with a prospective case-control design, where data from cases (n=9) and controls (n= 27) concerning prosthesis use and skills were collected for 17 years and analyzed with independentsamples tests. In study IV, a cross-sectional survey was conducted, using a study-specific questionnaire, analyzed with chi-square tests and descriptive statistics. 

    The involvement of parents in decision-making and treatment for their child with a CLRD generates several roles derived from the child’s and family’s needs, with tasks assigned to the parents by HCPs. Concerning young children’s development of prosthetic skills and prosthesis use over time, our results show no additional advantages from fitting a myoelectric hand prosthesis before the age of 2½ years. The treatment received during childhood had shaped the adolescents by creating opportunities, allowing them to choose their own paths, and enabling a sense of belonging in a context. The majority of children with CLRD will, as adults, have a life situation with opportunities for education, employment, and social life, a life situation that corresponds well to the Swedish population as a whole.

    This thesis shows that decisions made at an early stage for the treatment of children with CLRD contribute to physical and social skills that shape the children through their later choices and appear to be important for their future life situation. Despite different constraints people with CLRD have similar lives to their peers.

    Delarbeid
    1. Swedish parents' experiences of their role in treatment for children with congenital limb reduction deficiency: Decision‐making and treatment support
    Åpne denne publikasjonen i ny fane eller vindu >>Swedish parents' experiences of their role in treatment for children with congenital limb reduction deficiency: Decision‐making and treatment support
    2020 (engelsk)Inngår i: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 46, nr 6, s. 723-732Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Background: Parents of children with congenital limb reduction deficiency have an essential role in making treatment decisions during their child's first years of life. Treatment options usually concern surgical and/or prosthetic treatment. To tailor treatment options to fit different family values and priorities, the family‐centred approach indicates the importance of understanding the parental role in partnership with health care professionals. The aim of this study was to describe parents' experiences of their role in decision‐making and treatment for children with congenital limb reduction deficiency.

    Methods: A descriptive design with a qualitative approach was used. Semi‐structured interviews were conducted with 17 parents (12 mothers and 5 fathers) of children with upper and/or lower limb deficiency (mean age 5.9 years). The interview data were analysed using qualitative content analysis with an inductive approach.

    Results: Two major themes emerged from the data. The first theme, being a decision maker for someone else, was described as an ambivalent parental role, including collaboration within the family and with health care professionals. The second theme, becoming and being a treatment supporter in the child's everyday life, was made up of four categories: being a supporter of the child in everyday activities, mentoring the child to handle encounters with others, becoming a coordinator of information and being an ‘extended arm’ of the health care provision for the child.

    Conclusions: This study enhances our understanding of the parental role in decision‐making and treatment for children with congenital limb reduction deficiency. The results may contribute to the continued development of the family‐centred service approach by providing guidelines for treatment programmes, with the goal of improving decision support and broadening the support for parents during treatment for these children.

    sted, utgiver, år, opplag, sider
    John Wiley & Sons, 2020
    Emneord
    family-centred service, paediatric rehabilitation, parental role, qualitative
    HSV kategori
    Forskningsprogram
    Arbetsterapi
    Identifikatorer
    urn:nbn:se:oru:diva-84974 (URN)10.1111/cch.12802 (DOI)000560146800001 ()32789897 (PubMedID)2-s2.0-85089484429 (Scopus ID)
    Merknad

    Funding Agencies:

    Faculty of Medicine and Health, Örebro University, Örebro, Sweden  

    Research Committee, Region Örebro County, Sweden  

    Norrbacka-Eugenia Foundation, Stockholm, Sweden 

    Tilgjengelig fra: 2020-08-19 Laget: 2020-08-19 Sist oppdatert: 2024-03-04bibliografisk kontrollert
    2. Long-term results of early myoelectric prosthesis fittings: A prospective case-control study
    Åpne denne publikasjonen i ny fane eller vindu >>Long-term results of early myoelectric prosthesis fittings: A prospective case-control study
    2018 (engelsk)Inngår i: Prosthetics and Orthotics International, ISSN 0309-3646, E-ISSN 1746-1553, Vol. 42, nr 5, s. 527-533Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    BACKGROUND: Different recommendations exist regarding what age is best for first-time fitting of myoelectric hand prostheses in children.

    OBJECTIVES: To compare prosthetic skill, prosthetic use and risk for rejection over time between children fitted with myoelectric hand prostheses before or after 2½ years of age.

    STUDY DESIGN: Prospective case-control design.

    METHODS: The cases were nine children fitted with myoelectric hand prostheses before the age of 2½ years, whereas the controls were 27 children who were fitted with myoelectric hand prostheses after the age of 2½ years. The Skills Index Ranking Scale was used to classify prosthetic skill, and prosthetic use was categorised based on wearing time and pattern. Independent samples tests were used to compare data between groups. To estimate and compare the risk of prosthesis rejection between groups and over time, survival analysis was used.

    RESULTS: Cases showed prosthetic skill early, but controls had caught up by the age of 3½ years. Cases had a significant ( p = 0.046) decrease in prosthetic use at the age of 9 years. In the long term, cases had a higher percentage of prosthesis rejection.

    CONCLUSIONS: Considering young children's development of prosthetic skill and prosthetic use over time, this study shows no additional advantages from fitting a myoelectric hand prosthesis before 2½ years of age. Clinical relevance Children may be fitted with myoelectric hand prostheses to assist in daily tasks and to prevent future over-use problems. Most children fitted with myoelectric hand prostheses before 4 years of age become regular users. No advantages of fitting myoelectric hand prostheses before 2½ years of age were observed.

    sted, utgiver, år, opplag, sider
    London, United Kingdom: Sage Publications, 2018
    Emneord
    Children, fitting time, limb deficiency, myoelectric prosthesis
    HSV kategori
    Forskningsprogram
    Arbetsterapi; Medicin
    Identifikatorer
    urn:nbn:se:oru:diva-63815 (URN)10.1177/0309364617729922 (DOI)000444981600009 ()28905686 (PubMedID)2-s2.0-85041538469 (Scopus ID)
    Tilgjengelig fra: 2018-01-04 Laget: 2018-01-04 Sist oppdatert: 2021-12-15bibliografisk kontrollert
    3. Adolescents with congenital limb reduction deficiency: perceptions of treatment during childhood and its meaning for their current and future situation
    Åpne denne publikasjonen i ny fane eller vindu >>Adolescents with congenital limb reduction deficiency: perceptions of treatment during childhood and its meaning for their current and future situation
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-93687 (URN)
    Tilgjengelig fra: 2021-08-17 Laget: 2021-08-17 Sist oppdatert: 2024-03-04bibliografisk kontrollert
    4. Life situation of adults with congenital limb reduction deficiency in Sweden
    Åpne denne publikasjonen i ny fane eller vindu >>Life situation of adults with congenital limb reduction deficiency in Sweden
    2014 (engelsk)Inngår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 38, nr 18, s. 1562-1571Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Purpose: To describe the current life situation of adults with congenital limb reduction deficiencies (CLRD), living in Sweden, regarding their main daily occupation, leisure activities and self-reported general health.

    Method: A cross-sectional survey was conducted using a study-specific questionnaire, sent by post. A hundred and seventeen persons with different extent, forms, and levels of CLRD (mean age 33 years) responded to the questionnaire.

    Results: Work or study was the main occupation for 86 % of the participants and 50 % had completed a college or university education. Seven per cent were unemployed and three per cent were on sick leave. The participants were highly involved in social and physical activities during leisure time. The majority reported good or very good general health.

    Conclusion: This study is the first investigation of the life situation of adults with CLRD described with a perspective from Swedish society. The participants were educated and worked to a great extent, which corresponds well to the Swedish population as a whole. Further research is needed especially with a focus on the internal perspective of life situation, different aspects of work capacity, occurences of strain injuries and the benefit of assistive devices among adults with CLRD.

    sted, utgiver, år, opplag, sider
    Informa Healthcare, 2014
    Emneord
    adults, congenital limb reduction deficiency, daily occupation, life situation
    HSV kategori
    Forskningsprogram
    Arbetsterapi
    Identifikatorer
    urn:nbn:se:oru:diva-32602 (URN)10.3109/09638288.2013.854839 (DOI)000341971300013 ()24236497 (PubMedID)2-s2.0-84907061453 (Scopus ID)
    Merknad

    Funding agencies:

    Norrbacka Eugenia-foundation, Stockholm  

    Centre for Health Care Sciences, Örebro University Hospital

    Tilgjengelig fra: 2013-12-03 Laget: 2013-12-03 Sist oppdatert: 2024-03-04bibliografisk kontrollert
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  • 246.
    Sjöberg, Lis
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Hermansson, Liselotte
    Örebro universitet, Institutionen för hälsovetenskaper. Department of Prosthetics and Orthotics; University Health Care Center.
    Lindner, Helen
    Örebro universitet, Institutionen för hälsovetenskaper.
    Fredriksson, Carin
    Örebro universitet, Institutionen för hälsovetenskaper.
    Adolescents with congenital limb reduction deficiency: perceptions of treatment during childhood and its meaning for their current and future situationManuskript (preprint) (Annet vitenskapelig)
  • 247.
    Sjöberg, Lis
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Lindner, Helen Y.
    Örebro universitet, Institutionen för hälsovetenskaper.
    Hermansson, Liselotte
    Region Örebro län. Örebro universitet, Institutionen för hälsovetenskaper. Department of Prosthetics and Orthotics.
    Long-term results of early myoelectric prosthesis fittings: A prospective case-control study2018Inngår i: Prosthetics and Orthotics International, ISSN 0309-3646, E-ISSN 1746-1553, Vol. 42, nr 5, s. 527-533Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Different recommendations exist regarding what age is best for first-time fitting of myoelectric hand prostheses in children.

    OBJECTIVES: To compare prosthetic skill, prosthetic use and risk for rejection over time between children fitted with myoelectric hand prostheses before or after 2½ years of age.

    STUDY DESIGN: Prospective case-control design.

    METHODS: The cases were nine children fitted with myoelectric hand prostheses before the age of 2½ years, whereas the controls were 27 children who were fitted with myoelectric hand prostheses after the age of 2½ years. The Skills Index Ranking Scale was used to classify prosthetic skill, and prosthetic use was categorised based on wearing time and pattern. Independent samples tests were used to compare data between groups. To estimate and compare the risk of prosthesis rejection between groups and over time, survival analysis was used.

    RESULTS: Cases showed prosthetic skill early, but controls had caught up by the age of 3½ years. Cases had a significant ( p = 0.046) decrease in prosthetic use at the age of 9 years. In the long term, cases had a higher percentage of prosthesis rejection.

    CONCLUSIONS: Considering young children's development of prosthetic skill and prosthetic use over time, this study shows no additional advantages from fitting a myoelectric hand prosthesis before 2½ years of age. Clinical relevance Children may be fitted with myoelectric hand prostheses to assist in daily tasks and to prevent future over-use problems. Most children fitted with myoelectric hand prostheses before 4 years of age become regular users. No advantages of fitting myoelectric hand prostheses before 2½ years of age were observed.

  • 248.
    Skagerstrand, Åsa
    Örebro universitet, Institutionen för hälsovetenskaper.
    Perception of disturbing sounds: Investigations of people with hearing loss and normal hearing2018Doktoravhandling, med artikler (Annet vitenskapelig)
    Abstract [en]

    The present thesis concerns the daily sound environment and the human perception of the same. The sound environment affects the possibility to be active in a communication. With background noise, it may be harder to hear desired signals, and when suffering from a hearing loss, negative effects of the background noise increase. Previous research has explored, that persons with hearing loss benefit from hearing aid usage, but there is a risk of non-usage due to low sound quality. The non-usage of hearing aids has furthermore been described as a cause of isolation and social withdrawal for persons with hearing loss.

    The general aim of the present thesis is to explore the concept of disturbing sounds in a daily sound environment and to examine the influence of hearing loss and hearing aid usage. Disturbing sounds were investigated in means of perception of loudness and annoyance, where loudness concerned the acoustical properties, mainly sound level, whereas annoyance concerned the psychological phenomenon, defined as an individual adverse reaction to noise. The results of studies I and II showed, that hearing aid users experience disturbing sounds more or less daily, and that those sounds resulted in a decreased usage of hearing aids. The effect of disturbing sounds seemed to rely on several factors, acoustical as well as psychological, and there was not one single factor providing a full explanation of disturbance. In study III and IV, the perception of sounds in normal hearing and hearing impaired persons were thoroughly examined and revealed that hearing thresholds affect the perceived loudness and annoyance. Furthermore, the effect of hearing aids on loudness and annoyance perception was investigated. The results showed that hearing aids restored the loudness and annoyance to levels comparable to people with normal hearing function. The results of the studies stress that additional research should focus on the implementation of knowledge of disturbing sounds in audiological rehabilitation, in order to increase the benefit of hearing aid usage.

    Delarbeid
    1. Sounds perceived as annoying by hearing-aid users in their daily soundscape
    Åpne denne publikasjonen i ny fane eller vindu >>Sounds perceived as annoying by hearing-aid users in their daily soundscape
    2014 (engelsk)Inngår i: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 53, nr 4, s. 259-269Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    Background: The noises in modern soundscapes continue to increase and are a major origin for annoyance. For a hearing-impaired person, a hearing aid is often beneficial, but noise and annoying sounds can result in non-use of the hearing aid, temporary or permanently.

    Objective: The purpose of this study was to identify annoying sounds in a daily soundscape for hearing-aid users.

    Design: A diary was used to collect data where the participants answered four questions per day about annoying sounds in the daily soundscape over a two-week period.

    Study sample: Sixty adult hearing-aid users. Results: Of the 60 participants 91% experienced annoying sounds daily when using hearing aids. The annoying sound mentioned by most users, was verbal human sounds, followed by other daily sound sources categorized into 17 groups such as TV/radio, vehicles, and machine tools. When the hearing-aid users were grouped in relation to age, hearing loss, gender, hearing-aid experience, and type of signal processing used in their hearing aids, small and only few significant differences were found when comparing their experience of annoying sounds.

    Conclusions: The results indicate that hearing-aid users often experience annoying sounds and improved clinical fitting routines may reduce the problem.

    sted, utgiver, år, opplag, sider
    London: Informa Healthcare, 2014
    Emneord
    Soundscape, annoying sounds, hearing aid, hearing-aid fitting
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-34849 (URN)10.3109/14992027.2013.876108 (DOI)000332867100007 ()24495276 (PubMedID)2-s2.0-84896353214 (Scopus ID)
    Tilgjengelig fra: 2014-04-28 Laget: 2014-04-25 Sist oppdatert: 2024-03-04bibliografisk kontrollert
    2. Acoustic analysis of real-life sounds that affect hearing aid usage
    Åpne denne publikasjonen i ny fane eller vindu >>Acoustic analysis of real-life sounds that affect hearing aid usage
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Forskningsprogram
    Handikappvetenskap
    Identifikatorer
    urn:nbn:se:oru:diva-65013 (URN)
    Tilgjengelig fra: 2018-02-15 Laget: 2018-02-15 Sist oppdatert: 2024-03-04bibliografisk kontrollert
    3. Loudness and annoyance of disturbing sounds: perception by normal hearing subjects
    Åpne denne publikasjonen i ny fane eller vindu >>Loudness and annoyance of disturbing sounds: perception by normal hearing subjects
    2017 (engelsk)Inngår i: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 56, nr 10, s. 775-783Artikkel i tidsskrift (Fagfellevurdert) Published
    Abstract [en]

    OBJECTIVE: Sounds in the daily environment may cause loudness and annoyance. The present study investigated the perception of loudness and annoyance for eight different sounds present in a daily sound environment and at nine different levels varying by ±20 dB around the recorded level. The outcomes were related to tests of participants' auditory and cognitive abilities.

    DESIGN: The participants undertook auditory and working memory (WM) tests prior to ratings of everyday sounds previously shown to be disturbing for persons with hearing impairment (hearing aid users).

    STUDY SAMPLE: Twenty-one participants aged between 24 and 71 years, with normal hearing threshold levels.

    RESULTS: Both perceived loudness and annoyance were primarily driven by the sound level. Sounds emitted from paper were rated as having greater loudness and being more annoying than the other sound sources at the same sound level. Auditory and cognitive abilities did not influence the perception of loudness and annoyance.

    CONCLUSIONS: Loudness and annoyance ratings were mainly driven by sound level. Expectations of a sound seemed to influence the assessment of loudness and annoyance while auditory performance and WM capacity showed no influence on the ratings.

    sted, utgiver, år, opplag, sider
    Taylor & Francis, 2017
    Emneord
    Psychoacoustics/hearing science; noise; psycho-social/emotional; behavioural measures
    HSV kategori
    Identifikatorer
    urn:nbn:se:oru:diva-60890 (URN)10.1080/14992027.2017.1321790 (DOI)000416642900009 ()28485649 (PubMedID)2-s2.0-85019114085 (Scopus ID)
    Tilgjengelig fra: 2017-09-19 Laget: 2017-09-19 Sist oppdatert: 2024-03-04bibliografisk kontrollert
    4. Loudness and annoyance of disturbing sounds: Perception by people with hearing loss
    Åpne denne publikasjonen i ny fane eller vindu >>Loudness and annoyance of disturbing sounds: Perception by people with hearing loss
    (engelsk)Manuskript (preprint) (Annet vitenskapelig)
    HSV kategori
    Forskningsprogram
    Handikappvetenskap
    Identifikatorer
    urn:nbn:se:oru:diva-65014 (URN)
    Tilgjengelig fra: 2018-02-15 Laget: 2018-02-15 Sist oppdatert: 2024-03-04bibliografisk kontrollert
    Fulltekst (pdf)
    Perception of disturbing sounds: Investigations of people with hearing loss and normal hearing
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  • 249.
    Skagerstrand, Åsa
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linnaeus Centre HEAD, Swedish Institute for Disability Research, Sweden .
    Köbler, Susanne
    Örebro universitet, Institutionen för hälsovetenskaper. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linnaeus Centre HEAD, Swedish Institute for Disability Research, Sweden .
    Stenfelt, Stefan
    Linnaeus Centre HEAD, Swedish Institute for Disability Research, Sweden; Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden .
    Acoustic analysis of real-life sounds that affect hearing aid usageManuskript (preprint) (Annet vitenskapelig)
  • 250.
    Skagerstrand, Åsa
    et al.
    Örebro universitet, Institutionen för hälsovetenskaper. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linnaeus Centre HEAD, Swedish Institute for Disability Research, Linköping University, Linköping, Sweden .
    Köbler, Susanne
    Örebro universitet, Institutionen för hälsovetenskaper. Audiological Research Centre, Örebro University Hospital, Örebro, Sweden; Linnaeus Centre HEAD, Swedish Institute for Disability Research, Linköping University, Linköping, Sweden .
    Stenfelt, Stefan
    Linnaeus Centre HEAD, Swedish Institute for Disability Research, Linköping University, Linköping, Sweden; Department of Clinical and Experimental Medicine, Linköping University, Linköping Sweden.
    Loudness and annoyance of disturbing sounds: Perception by people with hearing lossManuskript (preprint) (Annet vitenskapelig)
234567 201 - 250 of 304
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