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  • 1.
    Alexopoulou, Sofia
    et al.
    Örebro University, School of Humanities, Education and Social Sciences.
    Fart, Frida
    Örebro University, School of Medical Sciences.
    Jonsson, Ann-Sofie
    Örebro University, School of Hospitality, Culinary Arts & Meal Science.
    Karni, Liran
    Örebro University, Örebro University School of Business.
    Kenalemang, Lame Maatla
    Örebro University, School of Humanities, Education and Social Sciences.
    Krishna, Sai
    Örebro University, School of Science and Technology.
    Lindblad, Katarina
    Örebro University, School of Music, Theatre and Art.
    Loutfi, Amy
    Örebro University, School of Science and Technology.
    Lundin, Elin
    Örebro University, School of Health Sciences.
    Samzelius, Hanna
    Örebro University, School of Humanities, Education and Social Sciences.
    Schoultz, Magnus
    Örebro University, School of Humanities, Education and Social Sciences.
    Spang, Lisa
    Örebro University, School of Health Sciences.
    Söderman, Annika
    Örebro University, School of Health Sciences.
    Tarum, Janelle
    Örebro University, School of Health Sciences.
    Tsertsidis, Antonios
    Örebro University, Örebro University School of Business.
    Widell, Bettina
    Örebro University, School of Humanities, Education and Social Sciences.
    Nilsson, Kerstin (Editor)
    Örebro University, School of Medical Sciences.
    Successful ageing in an interdisciplinary context: popular science presentations2018Book (Other (popular science, discussion, etc.))
    Download full text (pdf)
    Omslag
    Download full text (pdf)
    Successful ageing in an interdisciplinary context: popular science presentations
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    presentationsbild
  • 2.
    Karni, Liran
    et al.
    Örebro University, Örebro University School of Business.
    Memedi, Mevludin
    Örebro University, Örebro University School of Business.
    Klein, Gunnar O.
    Örebro University, Örebro University School of Business.
    Targeting Patient Empowerment via ICT interventions: An ICT-specific Analytical Framework2019In: AMCIS 2019 Proceedings, Cancun, Mexico: Association for Information Systems, 2019Conference paper (Refereed)
    Abstract [en]

    Empowerment of patients is today often an explicit goal of various ICT interventions where the patients themselves use ICT tools, often via the internet. This study is proposing a framework model for ICT interventions aiming to empower patients. Our new model includes different aspects of the Empowerment concept, general possible strategies to achieve Empowerment using different ICT services. Finally, the ICT services and the underlying strategic model can be used to define evaluations of such interventions where the aim is to demonstrate Empowerment. Our model is based on a review of various general models of Empowerment and the Behavioral Intervention Technology Model (BIT). The implications of our model are discussed using two case studies projects, the C3-Cloud EU project about empowering patients with 4 chronic diseases and the EMPARK project about Internet-of-Things sensors based real time feedback to Parkinson patients.

  • 3.
    Karni, Liran
    et al.
    Örebro University, Örebro University School of Business.
    Memedi, Mevludin
    Örebro University, Örebro University School of Business.
    Kolkowska, Ella
    Örebro University, Örebro University School of Business.
    Klein, Gunnar O.
    Örebro University, Örebro University School of Business.
    EMPARK: Internet of Things for Empowerment and Improved Treatment of Patients with Parkinson's Disease2018Conference paper (Other (popular science, discussion, etc.))
    Abstract [en]

    Objective: This study aims to assess the effects of patient-directed feedback from remote symptom, medication, and disease activity monitoring on patient empowerment and treatment in Parkinson’s disease (PD).

    Background: There is a need to empower patients with PD to be able to understand better and control their disease using prescribed medication and following recommendations on lifestyle. The research project EMPARK will develop an Internet of Things system of sensors, mobile devices to deliver real-time, 24/7 patient symptom information with the primary goal to support PD patients empowerment and better understanding of their disease. The system will be deployed in patient homes to continuously measure movements, time-in-bed and drug delivery from a micro-dose levodopa system. Subjective symptom scoring, time of meals and physical activities will be reported by the patients via a smartphone application. Interfaces for patients and clinicians are being developed based on the user center design methodology to ensure maximal user acceptance. 

    Methods: This is a randomized controlled trial where 30 PD patients from 2 university clinics in Sweden will be randomized to receive (intervention group) or not (control group) continuous feedback from the results of the EMPARK home monitoring for 2 weeks. Disease-specific (UPDRS, PDQ-39), Quality of Life (QoL) (modified EuroQoL EQ-5D) and empowerment questionnaires will be collected prior and after the intervention. The correlation of technology-based objective and patient-reported subjective parameters will be assessed in both groups. Interviews will be conducted with the clinicians and observations will be made about the patient-clinician interaction to assess the potential treatment benefits of the intervention.

    Results: Preliminary results from workshops with patients and clinicians show potential to improve patient empowerment and disease control among patients. Completion of the trial will show the degree of patient empowerment, individualized treatment, and patientclinician interactions.

    Conclusions: Raising patients’ awareness about disease activity and home medication is possible among PD patients by providing them with feedback from the results of a home monitoring system. This randomized, controlled trial aims to provide evidence that this approach leads to improved patient empowerment and treatment results.

    Download full text (pdf)
    EMPARK - Internet of Things for Patient Empowerment and Improved Treatment in Parkinson´s Disease
  • 4.
    Traore, Lamine
    et al.
    Inserm, Sorbonne Université, Univ Paris 13, Laboratoire d’Informatique Médicale et d’Ingénierie des Connaissances pour la e-Santé, LIMICS, Paris, France.
    Assélé Kama, Ariane
    Inserm, Sorbonne Université, Univ Paris 13, Laboratoire d’Informatique Médicale et d’Ingénierie des Connaissances pour la e-Santé, LIMICS, Paris, France.
    Lim Choi Keung, Sarah
    Institute of Digital Healthcare, WMG, University of Warwick, Coventry, UK.
    Karni, Liran
    Örebro University, Örebro University School of Business.
    Klein, Gunnar O.
    Örebro University, Örebro University School of Business.
    Lilja, Mikael
    Department of Public Health and Clinical Medicine, Unit of Research, Education, and Development Östersund Hospital, Umeå University, Umeå, Sweden.
    Scandurra, Isabella
    Örebro University, Örebro University School of Business.
    Verdoy, Dolores
    Asociacion Centro De Excelencia Internacional En Investigacion Sobre Cronicidad – Kronikgune, Spain.
    Yuksel, Mustafa
    SRDC Software Research Development & Consultancy Corp, Ankara, Turkey.
    Arvanitis, Theodoros N.
    Institute of Digital Healthcare, WMG, University of Warwick, Coventry, UK.
    Tsopra, Rosy
    Inserm, Sorbonne Université, Univ Paris 13, Laboratoire d’Informatique Médicale et d’Ingénierie des Connaissances pour la e-Santé, LIMICS, Paris, France; AP-HP, Assistance Publique des Hôpitaux de Paris, Paris, France.
    Jaulent, Marie-Christine
    Inserm, Sorbonne Université, Univ Paris 13, Laboratoire d’Informatique Médicale et d’Ingénierie des Connaissances pour la e-Santé, LIMICS, Paris, France.
    User-Centered Design of the C3-Cloud Platform for Elderly with Multiple Diseases - Functional Requirements and Application Testing2019In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 264, p. 843-847Article in journal (Refereed)
    Abstract [en]

    The number of patients with multimorbidity has been steadily increasing in the modern aging societies. The European C3-Cloud project provides a multidisciplinary and patient-centered “Collaborative Care and Cure-system” in the management of elderly with multimorbidity, enabling continous coordination of care activities between multidisciplinary care teams (MDTs), patients and informal care givers (ICG). In this paper, we report how various components of the infrastructure were tested to fulfill the functional requirements and how the entire system was subjected to an early application testing involving different groups of end-users. MDTs from participating European regions were involved in requirement elicitation and test formulation, resulting in 57 questions, distributed via an internet platform, to 48 test participants (22 MDTs, 26 patients) from three pilot sites. The results indicate an overall high level of satisfaction for all Information and Communication Technologie (ICT) components among the users. The early testing also provided user feedback important to consider for technical improvement of the entire system. 

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