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  • 1.
    Arvidsson, Patrik
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Assessment of participation in people with a mild intellectual disability2013Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this doctoral thesis was to explore an assessment of participation according to the International Classification of Functioning, Disability and Health (ICF) in people with a mild intellectual disability.

    Study I used secondary data and explored how participation can be assessed. Study II-IV explored participation empirically regarding 68 everyday activities from all nine life domains according to the ICF. Study II explored assessment of self-rated participation by investigating to what extent perceived ability, actual performance and perceived importance correlated. Study III-IV explored the contribution of perceived importance to an assessment of participation; study III by investigating frequencies of everyday activities regarding performance and importance separately as well as regarding combined measures of performance and perceived importance, and study IV by comparing proxy ratings with self-rated measures regarding ability and measures of participation. Study III also correlated measures of participation with a single-item measure of subjective general well-being and study II and IV investigated internal consistency in terms of Cronbach’s alpha. Study II and III included 55 and 69 individuals with intellectual disability respectively. Study IV included 40 individuals with intellectual disability and 40 proxy persons. The informants from the target group were partly the same.

    Study II and IV supported the suggestions from study I that participation should be assessed by self-ratings and study II found that this is an appropriate method also to people with a mild intellectual disability. Study III showed that participation is related to subjective well-being. Study III-IV found somewhat different results if measuring participation as performance solely or as a combination of performance and perceived importance. Overall, the results of the thesis suggest that performance solely might be sufficient to assess participation at a group level but in a clinical context, when the knowledge of a certain individual is of interest, the perceived aspect of involvement is necessary to include in an assessment of participation.

    List of papers
    1. Differentiating activity and participation of children and youth with disability in Sweden: a third qualifier in the International Classification of Functioning, Disability, and Health for Children and Youth?
    Open this publication in new window or tab >>Differentiating activity and participation of children and youth with disability in Sweden: a third qualifier in the International Classification of Functioning, Disability, and Health for Children and Youth?
    Show others...
    2012 (English)In: American Journal of Physical Medicine & Rehabilitation, ISSN 0894-9115, E-ISSN 1537-7385, Vol. 91, no 13 Suppl 1, p. s84-s96Article in journal (Refereed) Published
    Abstract [en]

    OBJECTIVE: This article discusses the use of a third qualifier, subjective experience of involvement, as a supplement to the qualifiers of capacity and performance, to anchor activity and participation as separate endpoints on a continuum of actions.

    DESIGN: Empirical data from correlational studies were used for secondary analyses. The analyses were focused on the conceptual roots of the participation construct as indicated by the focus of policy documents, the support for a third qualifier as indicated by correlational data, differences between self-ratings and ratings by others in measuring subjective experience of involvement, and the empirical support for a split between activity and participation in different domains of the activity and participation component.; RESULTS: Participation seems to have two conceptual roots, one sociologic and one psychologic. The correlational pattern between the qualifiers of capacity, performance, and subjective experience of involvement indicates a possible split between activity and participation. Self-ratings of participation provide information not obtained through ratings by others, and later domains in the activities and participation component fit better with measures of experienced involvement than earlier domains did.

    CONCLUSIONS: The results from secondary analyses provide preliminary support for the use of a third qualifier measuring subjective experience of involvement to facilitate the split between activity and participation in the International Classification of Functioning, Disability and Health, Children and Youth version, activity and participation domain.

    National Category
    Social Work
    Research subject
    Social Work
    Identifiers
    urn:nbn:se:oru:diva-32505 (URN)10.1097/PHM.0b013e31823d5376 (DOI)000208868800012 ()
    Available from: 2013-11-22 Created: 2013-11-22 Last updated: 2018-05-12Bibliographically approved
    2. International classification of functioning, disability and health categories explored for selfrated participation in swedish adolescents and adults with a mild intellectual disability
    Open this publication in new window or tab >>International classification of functioning, disability and health categories explored for selfrated participation in swedish adolescents and adults with a mild intellectual disability
    2012 (English)In: Journal of Rehabilitation Medicine, ISSN 1650-1977, E-ISSN 1651-2081, Vol. 44, no 7, p. 562-569Article in journal (Refereed) Published
    Abstract [en]

    Objective: To explore internal consistency and correlations between perceived ability, performance and perceived importance in a preliminary selection of self-reported items representing the activity/participation component of the International Classification of Functioning, Disability and Health (ICF).

    Design: Structured interview study. Subjects: Fifty-five Swedish adolescents and adults with a mild intellectual disability.

    Methods: Questions about perceived ability, performance and perceived importance were asked on the basis of a 3-grade Likert-scale regarding each of 68 items representing the 9 ICF domains of activity/participation.

    Results: Internal consistency for perceived ability (Cron-bach's alpha for all 68 items): 0.95 (values for each domain varied between 0.57 and 0.85), for performance: 0.86 (between 0.27 and 0.66), for perceived importance: 0.84 (between 0.27 and 0.68). Seventy-two percent of the items showed correlations >0.5 (mean =0.59) for performance vs perceived importance, 41% >0.5 (mean =0.47) for perceived ability vs performance and 12% >0.5 (mean =0.28) for perceived ability vs perceived importance.

    Conclusion: Measures of performance and perceived importance may have to be based primarily on their estimated clinical relevance for describing aspects of the ICF participation concept. With a clinimetric approach, parts of the studied items and domains may be used to investigate factors related to different patterns and levels of participation, and outcomes of rehabilitation.

    Place, publisher, year, edition, pages
    Uppsala, Sweden: Foundation Rehabilitation Information, 2012
    Keywords
    Clinimetrics, psychometrics, rehabilitation
    National Category
    Social Work
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-32541 (URN)10.2340/16501977-0976 (DOI)000305814900008 ()22674238 (PubMedID)2-s2.0-84865971822 (Scopus ID)
    Available from: 2013-11-26 Created: 2013-11-26 Last updated: 2018-05-12Bibliographically approved
    3. Important aspects of participation and participation restrictions in people with a mild intellectual disability
    Open this publication in new window or tab >>Important aspects of participation and participation restrictions in people with a mild intellectual disability
    (English)Manuscript (preprint) (Other academic)
    Abstract [en]

    Purpose This study explored a possibility to assess the concepts of participation and participation restrictions in the International Classification of Functioning, Disability and Health (ICF) by combining self-ratings of the perceived importance with the actual performance of different everyday activities in people with a mild intellectual disability.

    Method Structured interviews regarding 68 items from the ICF activity/participation domain were conducted (n=69). The items were ranked by perceived importance, performance and by combined measures. Also, the measures were related to a single question about subjective general well-being.

    Results Rankings of performance highlighted about the same items as ‘important participation’, while rankings of low performance addressed quite different items compared with ‘important participation restriction’. Significant correlations were found between subjective general well-being and: high performance (r=0.56), high performance/high importance (‘important participation’) (r=0.56), low performance (r=-0.56), and low performance/high importance (‘important participation restriction’ (r=-0.55).

    Conclusions The results support the clinical relevance of the ICF and the studied selection of 68 items. Although performance only may sometimes be a relevant aspect, knowledge about the relationship between the perceived importance and the actual performance is essential for clinical interventions and for research aiming to understand specific needs regarding participation.

    Keywords
    Assessment, ICF, intellectual disability, participation, self-ratings
    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-32543 (URN)
    Available from: 2013-11-26 Created: 2013-11-26 Last updated: 2017-10-17Bibliographically approved
    4. The relation between proxy-ratings and self-ratings of participation in people with a mild intellectual disability
    Open this publication in new window or tab >>The relation between proxy-ratings and self-ratings of participation in people with a mild intellectual disability
    (English)Manuscript (preprint) (Other academic)
    Abstract [en]

    Background: In people with intellectual disability, knowledge about ability and participation is highly relevant for support planning and intervention evaluation. Self-rated aspects of participation might not be the same as those obtained from a proxy-person (relative, peer or staff person).

    Specific Aims: This study explored the relation between self-ratings and proxyratings regarding some clinically important aspects of ability and participation.

    Method: A structured interview study of 40 individuals with intellectual disability and 40 proxy-persons within a Swedish municipality. Data were analysed regarding internal consistency, correlations and comparisons of mean scores.

    Findings: Internal consistency in terms of Cronbach’s alpha showed high levels and similar patterns between self-ratings and proxyratings of ability, performance and importance. Correlations between self-ratings and proxyratings showed significant positive correlations for ability and performance, as well as for the combined measures ‘important participation’ and ‘important participation restriction’. Mean scores of self-rated importance and self-rated ‘important participation restriction’ was significantly higher than the same proxy-rated measures. The mean score of self-rated ability was significantly higher than proxy-rated ability. The mean scores of performance and ‘important participation’ were almost identical.

    Discussion: The findings showed that selfratings and proxy-ratings are correlated but that there are differences in the levels of ratings of ability and ‘important participation restriction’. Knowledge about both perspectives is important but the study indicates that the perceived aspect of the person with intellectual disability and ratings by a proxy-person are not interchangeable. The study does not evaluate the results in terms of right or wrong, but highlights that awareness about similarities and differences between self-ratings and proxy-ratings is essential in clinical practices.

    Keywords
    participation, ICF, intellectual disabilities, self-ratings and proxy ratings
    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-32544 (URN)
    Available from: 2013-11-26 Created: 2013-11-26 Last updated: 2017-10-17Bibliographically approved
  • 2.
    Bjarnason, Sif
    Örebro University, School of Health and Medical Sciences.
    Jobbet är kommunikation: om användning av arbetshjälpmedel för personer med hörselnedsättning2011Licentiate thesis, monograph (Other academic)
    Abstract [en]

    To facilitate participation in hearing situations at work sites persons with hearing loss may use assistive listening devices (ALDs). Compared to personal hearing aids ALDs have received little research attention. The aim of this study was dual; firstly to describe ALD-users in Sweden and the usefulness of various equipment in relation to specified hearing situations at work. Secondly, to describe favorable and non favorable conditions for using ADL at everyday situations at work. Seventy ADL-users answered a questionnaire and eleven of these persons were subsequently interviewed. The concept of stigma has been identified in research on hearing loss as a strong factor of denial and resistance for the use of both hearing aids and ALDs, depending on the negative connotations related to visible means for hearing. In this study overcoming stigmatization was further analyzed using social recognition as a theoretical approach. In a concluding discussion, where both categorizations and themes from the interviews were used, it issuggested that the use of visible ALDs is a way of overcoming stigmatization and that their visibility function as a mechanism in developing mutual social recognition in the work group.Though the results show a fairly high degree of usefulness from ALDs, work place adaptations should to a greater extent pay attention to environmental factors (e.g. noise and bad acoustics) influencing the use of this technology. More information on such factors is needed from studies of realistic situations at concrete work sites. Conclusions from this study are mainly valid for this sample; knowledge of the population is small due to lack of registers kept by the providers of this technology. To facilitate further studies on employed persons with hearing loss available statistics could be significantly improved by keeping records on both medical data and all kinds of rehabilitative adaptations measures.

  • 3.
    Boström, Katrin
    Örebro University, Department of Nursing and Caring Sciences.
    Living with deteriorating and hereditary disease: experiences over ten years of persons with muscular dystrophy and their next of kin2005Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this thesis was to elucidate haw persona with muscular dystrophy (MD) and their next of kin experience and describe their daily lives over the last ten years. MD is a group of inherited disorders characterised by muscular weakness caused by muscle wasting. Both qualitative and quantitative methods were used. Forty-isx individuals with MD and 36 next of kin were interviewed (Studies I, III, IV). Both groups completed the questionnaire Subjective Quality of Life (SQoL), (Study V). Persons with MD also completed the questionnaires Sickness Impact Profile and Self-report ADL (Study II). The interviews were subjected to qualitative content analysis. The persons with MD described the change from being independent to being an individual in need of assistive devices and/or personal support to manage activities of every day life (StudyI). Besides muscular weakness persons with MD have hte strain it means to have a hereditary disease, which also affects the family (Study III). The deterioration during a decennium was primarily with regard to ambulation. The number of persons walking without assistive devices has decreased from 40 to 23 and that of those working has almost been halved, from 21 to 11 (Study II). Next of kin have a special vulnerability in form of an emotional and practical lonliness in addition to actual and anticipatory losses. The relationship was described as related to obligation and/or love. To have an orientation towards tasks (obligation) was linked to a feeling of being weighed down by demands, while having an orientation towards relationship (love) was linked to a feeling of quality in life (Study IV). The persons with MD scored lower on most items in the SQoL than the next of kin (Study V). Patients without a partner scored lower on QoL as a whole than those with a partner. Those with an early onset of disease scored lower on personal economy. Next of kin who gave daily help assessed their relationships to friends lower than those who gave weekly help (Study V). This thesis provides knowledge of the trajectory with MD over time on the basis of a ten-year follow up. It also broadens the knowledge of how the hereditary aspect is experienced both by those with MD and their next of kin. How the next of kin of adult persons with MD experience their situation is an issue that has been overlooked in previous research.

    List of papers
    1. Living with a chronic deteriorating disease: the trajectory with muscular dystrophy over ten years
    Open this publication in new window or tab >>Living with a chronic deteriorating disease: the trajectory with muscular dystrophy over ten years
    2004 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 26, no 23, p. 1388-1398Article in journal (Refereed) Published
    Abstract [en]

    Purpose: The aim of the study was to elucidate experiences of living with muscular dystrophy in terms of consequences for activity over 10 years. Methods: The study population was identified in a prevalence study in a county of Sweden. Forty-six persons of this cohort with MD were interviewed. A qualitative research approach was chosen. The World Health Organization's International Classification of Functioning, Disability and Health (ICF) was used for categorization. Results: Nearly all the subjects experienced a deterioration of physical capacity. Most obvious were the restrictions on mobility and increased fatigue and feebleness. The persons described psychosocial consequences of the muscular dystrophy as well as stigma when the disability had become more obvious. In spite of reported distress several persons experienced better psychological adaptation over time. The image of the future was often dark but several focus on today and avoid thoughts about the future. ICF showed some limitation with regard to temporal aspects, emotions and the subjective perspective. Conclusions: The knowledge of the trajectory with MD is important in order to offer the best possible treatment and support. Repeated assessment by ICF can serve as a valuable source of such knowledge, and a development of the classification would increase its usefulness in future analysis of functioning and disability.

    National Category
    Nursing Social Sciences Interdisciplinary
    Research subject
    Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-2818 (URN)10.1080/0963-8280400000898 (DOI)
    Available from: 2005-05-04 Created: 2005-05-04 Last updated: 2018-01-13Bibliographically approved
    2. Sickness impact in people with muscular dystrophy: a longitudinal study over 10 years
    Open this publication in new window or tab >>Sickness impact in people with muscular dystrophy: a longitudinal study over 10 years
    2005 (English)In: Clinical Rehabilitation, ISSN 0269-2155, E-ISSN 1477-0873, Vol. 19, no 6, p. 686-694Article in journal (Refereed) Published
    Abstract [en]

    OBJECTIVE: To describe changes of function in terms of sickness impact over 10 years in adult patients with different types of muscular dystrophy. DESIGN: Patients with muscular dystrophy answered the Sickness Impact Profile and Self-report ADL questionnaires in 1991 and 2001. SETTING: The study population was identified in a comprehensive prevalence study in the county of Orebro, Sweden. SUBJECTS: The study group comprised 44 people grouped according to whether they had myotonic dystrophy or muscular dystrophy with proximal or distal muscles affected. MAIN MEASURES: Comparison was made between assessments of sickness impact in terms of function at the two time points. RESULTS: Most obvious deterioration over time was in activities of daily living that require finger and arm strength. Ambulation was significantly decreased in myotonic dystrophy and proximal muscular dystrophy. Those walking without assistive devices decreased from 91% to 52%, and the number with a disability pension increased from 36 to 55%. There was a relatively small influence with regard to psychosocial dysfunction assessed by the Sickness Impact Profile. CONCLUSIONS: This longitudinal study shows the deteriorating functions reported by patients with muscular dystrophy. This knowledge could be used to formulate new interventions in order to offer appropriate support and treatment to this patient group.

    Place, publisher, year, edition, pages
    London: Edward Arnold, 2005
    National Category
    Social Sciences Interdisciplinary Nursing
    Research subject
    Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-2819 (URN)10.1191/0269215505cr866oa (DOI)16180606 (PubMedID)
    Note
    Artikelns titel i avhandlingen: Sickness impact among persons with muscular dystrophy: a longitudinal study over ten yearsAvailable from: 2005-05-04 Created: 2005-05-04 Last updated: 2018-01-13Bibliographically approved
    3. Living with a hereditary disease: persons with muscular dystrophy and their next of kin
    Open this publication in new window or tab >>Living with a hereditary disease: persons with muscular dystrophy and their next of kin
    2005 (English)In: American Journal of Medical Genetics, ISSN 0148-7299, E-ISSN 1096-8628, Vol. 136A, no 1, p. 17-24Article in journal (Refereed) Published
    Abstract [en]

    This qualitative study describes conceptions and experiences of the hereditary aspect of muscular dystrophy (MD) from both the patients' and the next of kin's perspective. Different diagnoses of MD are included: dystrophia myotonica, myopathia distalis tarda hereditaria, Becker MD, facioscapulohumeral MD, limb-girdle MD, Emery-Dreifuss and undetermined proximal MD (Duchenne MD is not included). Interviews were conducted with 46 persons with MD and 36 next of kin. The interviews were subjected to inductive content analysis. Only two in each group did not spontaneously mention anything related to the fact that MD is disease with dominant or recessive inheritance. It was found that heredity has a prominent place in the thoughts and feelings of the family. These thoughts were classified as Becoming aware of MD and its hereditary nature, looking into the pedigree, acquiring an understanding of MD, thoughts about genetic testing, interpreting the risk, whether to have children or not, feelings related to the future, and feelings of responsibility and guilt. Families with MD need medical information and the opportunity for genetic testing as well as support and counseling in coming to terms with living with a hereditary disease, whether or not that includes a decision to take a test.

    Place, publisher, year, edition, pages
    Hoboken, N.J.: Wiley-Liss, 2005
    National Category
    Social Sciences Interdisciplinary Nursing
    Research subject
    Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-2820 (URN)10.1002/ajmg.a.30762 (DOI)15889411 (PubMedID)
    Available from: 2005-05-04 Created: 2005-05-04 Last updated: 2018-01-13Bibliographically approved
    4. Being kin of an adult person with muscular dystrophy
    Open this publication in new window or tab >>Being kin of an adult person with muscular dystrophy
    (English)Manuscript (preprint) (Other academic)
    National Category
    Social Sciences Interdisciplinary Nursing
    Research subject
    Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-2821 (URN)
    Available from: 2005-05-04 Created: 2005-05-04 Last updated: 2018-01-13Bibliographically approved
    5. Quality of life in patients with muscular dystrophy and their next of kin
    Open this publication in new window or tab >>Quality of life in patients with muscular dystrophy and their next of kin
    2005 (English)In: International Journal of Rehabilitation Research, ISSN 0342-5282, E-ISSN 1473-5660, Vol. 28, no 2, p. 103-109Article in journal (Refereed) Published
    Abstract [en]

    The aims of this study were to investigate quality of life (QoL) among adult patients with muscular dystrophy (n=46) and their next of kin (n=36) and to investigate the influence of disease-related and demographic factors on QoL. The questionnaire 'Subjective estimation of quality of life' was used. The results show that patients had lower QoL than their next of kin regarding having no work or meaningful occupation, energy, self-assuredness, self-acceptance and emotional experiences. Age of onset of disease had an impact on QoL. The need for a ventilator had an influence only on assessment of energy. Patients without a partner assessed lower than those who had a partner. In the case of a person who is young and single the onset of muscular dystrophy reduces the likelihood of having a partner or children and affects personal economy negatively. Assessment of relationship to friends was lower among next of kin who provided daily help than among those who provided help once a week. There is a need for recurrent rehabilitation during life-long disabilities and a need to give particular support to those with early onset of disease, those who are single and those who are childless. It is also important to include the patient's close relations when giving rehabilitation.

    National Category
    Social Sciences Interdisciplinary Nursing
    Research subject
    Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-2822 (URN)15900179 (PubMedID)
    Available from: 2005-05-04 Created: 2005-05-04 Last updated: 2018-01-13Bibliographically approved
  • 4.
    Boström, Marianne
    Örebro University, School of Health Sciences.
    Vardagslivets aktiviteter. Handlingen som terapeutiskt redskap vid återhämtning för personer med svårare psykiska funktionshinder: En analys av arbetsterapeuters berättelser med utgångspunkt i G H Meads teori om social handling2017Doctoral thesis, monograph (Other academic)
    Abstract [en]

    There is a need of community-based treatment methods with focus on everyday occupations, for persons with severe mental disabilities. The importance of occupation in achieving health has been highlighted in large mental hospitals and community-based service/support designed for people with severe mental disabilities who today live in society. Despite this support these people are in a vulnerable position, as they often have extensive difficulties in carrying out daily occupations which also leads to poorer well-being and health conditions. In the rehabilitation process, it is necessary to enable the person to use her own effort to perform activities. Occupational therapy has a unique role in community-based efforts for people with severe mental disabilities through their person-centered practices approaches and knowledge of daily occupations and how these can be used as therapeutic means of recovery and development of the self.

    The purpose of the study is to use theory about social action to contribute theoretical understanding about how everyday occupations are used as a therapeutic means for people with severe mental disabilities in occupational therapy, with the goal of contributing to their recovery and development of self. A qualitative, interpretative approach is used in the study to examine how everyday life can be used as a therapeutic tool. Empirical data of 11 events were generated from interviews with four occupational therapists. A theoretical tool developed by George Herbert Mead’s social psychological theory of the social act, were used as a frame for new-descriptions. Through abductive analyses reconstructed events are given new (theoretical) understanding.

    The result indicate that the social acts have met such difficulties that they have almost ceased and at the same time risk losing their meaning. The therapist adjusts the activity to find the level at which the person can participate with his/her own experience in the implementation of the everyday action. This gives the person with severe mental disabilities opportunities to use one self in the social process which eventually makes the person regain the ability to perform everyday activities

  • 5.
    Edvardsson, Tanja
    Örebro University, School of Health and Medical Sciences.
    Consequences of brain tumours from the perspective of the patients and of their next of kin2008Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    A disease has consequences not only for the afflicted person but also for those who interact with him or her. A low-grade glioma is a brain tumour whose regarding its psychosocial implications for adult patients and their next of kin has received little attention in the literature. In the light of this the overall aim of the present thesis was to provide increased knowledge about how patients with low-grade glioma and their next of kin experience and deal with everyday life.

    The methods of the studies were mainly qualitative. Thirty-nine patients and 28 next of kin were interviewed and all except one next of kin completed a quality of life questionnaire.

    The onset of low-grade glioma was described from the patients’ perspective as a process, either rapid (up to a few months) or prolonged over several years. This phase of low-grade glioma encompassed repeated visits to physicians and care institutions. The onset of low-grade glioma was accompanied by stress, anxiety and uncertainty in the case of both the patients and those nearest. The symptoms and problems the patients experienced covered a broad range of consequences, physical, psychological and social. The patients presented a wide range of ways to cope with illness-related problems.

    The next of kin were often deeply involved in the patients’ situation and many of them experienced extremely stressful emotions mainly in the early period of the illness. They had experience of positive encounters in health care but more often they had had a sense both of powerlessness and of being invisible and neglected. Relations and roles changed in ways that mostly were experienced as negative. Enabling strength in everyday life had to do with alleviation of strain and having a positive outlook upon life. By means of the questionnaire Subjective estimation of Quality of Life (SQoL) the patients and those nearest estimated their quality of life as being comparatively high. Only one variable, among the patients the absence of work/meaningful occupation and among the next of kin the absence of own children, being estimated at below 60% of the maximum score.

    List of papers
    1. Experiences of onset and diagnosis of low-grade glioma from the patient's perspective
    Open this publication in new window or tab >>Experiences of onset and diagnosis of low-grade glioma from the patient's perspective
    2006 (English)In: Cancer nursing, ISSN 0162-220X, Vol. 29, no 5, p. 415-422Article in journal (Refereed) Published
    Abstract [en]

    The aim of this study was to describe adult patients' experiences of falling ill and being diagnosed with low-grade glioma. Information concerning such experiences is lacking in the literature. The study population were adults identified within a well-defined population. Interviews were conducted with 27 patients. The interview texts were analyzed using inductive content analysis. Illness onset was described as a sequence of events. Nineteen patients narrated rapid onset and 8 patients prolonged onset. The most commonly described symptoms in both types of onset were headache, epileptic seizures, vomiting, and vision changes. Racing thoughts, depression, and tinnitus were 3 of the more uncommon symptoms. The most prominent negative experiences regarding healthcare included disrespectful encounters and a lack of opportunity for participation. The salient negative life-situation consequences included a lack of social support and attitudes expressing a lack of understanding. However, to some extent, positive experiences also emerged in the interviews concerning healthcare and life situation despite the onset of the illness. In conclusion, most of the patients in the study experienced the illness onset as stressful. Healthcare staff need particular knowledge to understand the vulnerability of the patient in the onset of low-grade glioma.

    National Category
    Social Sciences Interdisciplinary Nursing Social Work
    Research subject
    Nursing Science; Disability Research
    Identifiers
    urn:nbn:se:oru:diva-2884 (URN)17006116 (PubMedID)
    Available from: 2008-02-08 Created: 2008-02-08 Last updated: 2018-01-13Bibliographically approved
    2. Illness-related problems and coping among persons with low-grade glioma
    Open this publication in new window or tab >>Illness-related problems and coping among persons with low-grade glioma
    2005 (English)In: Psycho-Oncology, ISSN 1057-9249, Vol. 14, no 9, p. 728-737Article in journal (Refereed) Published
    Abstract [en]

    The literature reveals no qualitative study concerning the consequences of low-grade glioma in adults. The aim of the present study was to describe perceived illness-related problems in persons with low-grade glioma and the coping used in everyday living. The study was cross-sectional within a well-defined population. A semi-structured qualitative interview was conducted with each of 39 persons, and the data were subjected to inductive content analysis. There was a wide range of perceived problems, mainly concerning bodily functions, memory, cognition, emotion, communication and perception. Several coping strategies emerged, the most frequent being searching for a solution, which was often related to memory and communication problems. One characteristic of communication was the creation of new words. Other common strategies were refraining from and avoiding and laughing and joking. Caring about self involved prioritizing of personal needs. A striving to feel a sense of solidarity within seeking social affinity was coping with a novel content. The study provides vivid narratives about previously unreported phenomena, conveying a deeper understanding. The variety and endurance of problems revealed verifies the need of support from several professionals, including in the form of out-patient post-medical care.

    National Category
    Social Sciences Interdisciplinary Nursing Social Work
    Research subject
    Nursing Science; Disability Research
    Identifiers
    urn:nbn:se:oru:diva-2885 (URN)10.1002/pon.898 (DOI)
    Available from: 2008-02-08 Created: 2008-02-08 Last updated: 2018-01-13Bibliographically approved
    3. Being the next of kin of a person with a low-grade glioma
    Open this publication in new window or tab >>Being the next of kin of a person with a low-grade glioma
    2008 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 17, no 6, p. 584-591Article in journal (Refereed) Published
    Abstract [en]

    There is a paucity of knowledge for health-care professionals who come into contact with next of kin of persons diagnosed with low-grade gliomas. Therefore, the aim of this study was to explore the experience of being the next of kin of an adult person diagnosed with a low-grade glioma. Twenty-eight next of kin of persons with a low-grade glioma were interviewed. The data were subjected to qualitative content analysis. A quantitative data analysis was added to explore how the themes from the qualitative analysis occurred among different next of kin. Four main themes emerged: Extremely stressful emotions, Being invisible and neglected, Changed relations and roles, and Enabling strength in everyday life. The first of these occurred mainly in the early period of illness. This theme was especially predominant in the case of the patient's parents. The theme of Changed relations and roles occurred more often among next of kin some years after the person's diagnosis. The most statements occurred in all four themes were by female next of kin. Many next of kin requested emotional support for themselves and indicated that it is important that health-care staff should not forget them.

    National Category
    Medical and Health Sciences Cancer and Oncology Nursing
    Research subject
    Nursing Science
    Identifiers
    urn:nbn:se:oru:diva-2886 (URN)10.1002/pon.1276 (DOI)000257874100009 ()
    Note

    Part of thesis: http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-1742

    Available from: 2008-02-08 Created: 2008-02-08 Last updated: 2017-12-14Bibliographically approved
    4. Subjective quality of life in persons with low-grade glioma and their next of kin
    Open this publication in new window or tab >>Subjective quality of life in persons with low-grade glioma and their next of kin
    2009 (English)In: International Journal of Rehabilitation Research, ISSN 0342-5282, E-ISSN 1473-5660, Vol. 32, no 1, p. 64-70Article in journal (Refereed) Published
    Abstract [en]

    Patients with low-grade glioma have a longer survival than patients with highly malignant glioma, and for this reason questions of quality of life (QoL) are of particular importance to such patients as well as to their next of kin. No studies have been found in which both adult patients with low-grade glioma and their next of kin have estimated their own QoL. This study was therefore designed to investigate the subjective QoL of these two groups. Thirty-nine patients with low-grade glioma selected from a well-defined county population and 27 next of kin participated in the study. The questionnaire used in the study was the subjective estimation of QoL. The main results and conclusions are as follows: the variable absence of work/meaningful occupation showed statistically significant lower ratings among patients than among next of kin. The results show significant influence mainly on the patients' and their next of kin's internal psychological condition; related to background variables but the pattern in the results was inconsistent. There is a need for recurrent rehabilitation during this long-term disease, and a need to give vocational rehabilitation to support the patient's desire to have a meaningful occupation. It is also of importance to include the patient's next of kin when offering rehabilitation.

    Place, publisher, year, edition, pages
    Baltimore, Md.: Lippincott Williams & Wilkins, 2009
    National Category
    Social Sciences Interdisciplinary Nursing Social Work
    Research subject
    Nursing Science; Disability Science
    Identifiers
    urn:nbn:se:oru:diva-2887 (URN)10.1097/MRR.0b013e32830bfa8c (DOI)000264360000008 ()19648803 (PubMedID)2-s2.0-67650870170 (Scopus ID)
    Available from: 2008-02-08 Created: 2008-02-08 Last updated: 2018-01-13Bibliographically approved
  • 6.
    Englund, Ulrika
    Örebro University, School of Health Sciences.
    Samverkansprojekt, och sen då?: en uppföljande studie av samverkansprocessen kring barn och unga som far illa eller riskerar att fara illa2017Doctoral thesis, monograph (Other academic)
    Abstract [en]

    Satisfactory collaboration regarding children and youth in need of a comprehensive support is particularly important. Despite extensive research on collaborative work, knowledge of long term development of the collaboration process is lacking. The present thesis concerns inter-organizational collaboration within the framework of a former Swedish policy effort – focusing collaboration between schools, social services, police and the child and youth psychiatry – for the benefit of children and young people in distress or at risk. Applying a critical realist perspective, the overall aim of the thesis is to describe how former collaboration projects develop over time, and to identify significant mechanisms within this development. Through three questionnaire studies, the collaborative process development within the same collaborative settings is described (n=66) over a period of close to seven years. Estimations of 58 collaboration quality indicators within three categories *rules and regulations, *structural aspects and *shared perspectives/ consensus were collected at baseline in 2008, after one year at the final project stage in 2009, as well as five years after the project period (and the policy effort) ended, in 2014 (n=38). Two developmental trends occur: I) an overall positive trend and II) a negative trend on a comprehensive level. I) Collaboration on the target group has increased over time, are mainly incorporated into permanent organizational structures and is judged to have worked well/very well over time. II) Overall deteriorations of high estimates of the 58 quality indicators for collaborations is seen over the five year period, following the project period. However, less dramatic changes is noted on quality indicators concerning shared perspectives/consensus than on matters regarding rules and regulations and structural aspects. Five mechanisms of particular importance for the collaboration development are identified: anchoring, holistic perspectives, engagement, knowledge and clarity.

  • 7.
    Frölander, Hans-Erik
    Örebro University, School of Health Sciences.
    Deafblindness: Theory-of-mind, cognitive functioning and social network in Alström syndrome2016Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    This thesis addresses young adults with Alström syndrome (AS). AS causes acquired deafblindness, a severe, progressive, combined auditory and visual impairment affecting daily life and self-reliance to a degree that full participation depends on help from others and society. AS is an autosomal, recessively inherited single-gene disorder that affects the ALMS1 gene. AS has a multi-systemic pathology including a high incidence of additional multiple endocrine abnormalities, cardiomyopathy, pulmonary fibrosis, restrictive lung disease and progressive hepatic and renal failure leading to reduced life expectancy. The focus in the present thesis is on the development of Theory-of-mind (ToM) and on how ToM relates to the development of certain cognitive skills and the characteristics of the individual social network. ToM refers to the ability to understand the thoughts and feelings of others.

    The results reveal that individuals with AS displayed a significantly higher degree of heterogeneity in the performance of ToM tasks, and some individuals with AS performed on an equal level with nondisabled individuals. ToM performance was predicted by verbal ability and executive functioning (EF), whereas working memory capacity (WM) proved to be an indirect predictor. Later onset of visual loss further characterized AS individuals with better ToM. The sizes of the social networks of individuals with AS were smaller relative to those of nondisabled individuals, and many of the acquaintances were professionals working with individuals with AS. The number of friends correlated with ToM performance.

    Methods to improve verbal ability and EF, and interventions to enhance social participation in childhood of individuals with AS might prove to be fruitful. In addition assistive technology to establish and maintain friendships in adulthood is required.

    List of papers
    1. Theory-of-mind in adolescents and young adults with Alström Syndrome
    Open this publication in new window or tab >>Theory-of-mind in adolescents and young adults with Alström Syndrome
    Show others...
    2014 (English)In: International Journal of Pediatric Otorhinolaryngology, ISSN 0165-5876, E-ISSN 1872-8464, Vol. 78, no 3, p. 530-537Article in journal (Refereed) Published
    Abstract [en]

    Objective: The study focuses on theory-of-mind in adolescents and young adults with Alström syndrome (ALMS). ALMS, an autosomal recessive syndrome causes juvenile blindness, sensorineural hearing loss, cardiomyopathy, endocrinological disorders and metabolic dysfunction. Theory-of-mind (ToM) refers to the ability to impute mental states to one self and to others. Clinical observations have revealed an increased occurence of deviances in mental state understanding in ALMS. In the present study ToM will be examined and related to working memory (WM), verbal ability and sensory loss.

    Methods: Twelve young individuals (16-37 years) with ALMS and 24 nondisabled individuals matched on age, gender and educational level participated. ToM was assessed by means of a multiple task that taxes the ability to understand thoughts and feelings of story chraracters´. WM was examined by means of a reading span task and verbal ability by means of a vocabulary test.

    Results: The ALMS group performed at significantly lower levels in ToM tasks and displayed a higher variability in performance than the control group. Individuals with ALMS and a relatively poor level performance provided fewer correct mental state inferences in ToM tasks than ALMS individuals with relatively higher performance levels. ALMS individuals with relatively high performance levels made as many correct inferences in ToM tasks as the control group, but their inferences were more often incomplete. Vocabulary skills and educational level, but not WM-capacity predicted ToM performance. Degree of deafblindness did not have an impact on ToM. Age of onset of visual loss but not hearing loss related to ToM.

    Conclusions: The individuals with ALMS display a high degree of heterogeneity in terms of ToM, where some individuals reached performance levels comparable to nondisabled individuals. The results are discussed with respect to how cognitive and verbal abilities and factors related to the disability affect ToM.

    Place, publisher, year, edition, pages
    Elsevier, 2014
    Keywords
    Alström syndrome (ALMS), Deafblindness, Theory-of-mind, Working memory, Verbal ability, Dual sensory loss
    National Category
    Otorhinolaryngology Pediatrics
    Identifiers
    urn:nbn:se:oru:diva-33957 (URN)10.1016/j.ijporl.2013.12.038 (DOI)000334394400026 ()24485176 (PubMedID)2-s2.0-84893729756 (Scopus ID)
    Note

    Funding Agencies:

    Linnaeus Centre HEAD

    JDM

    NIH

    Available from: 2014-02-27 Created: 2014-02-27 Last updated: 2018-06-05Bibliographically approved
    2. Theory of mind and cognitive function in adults with Usher or Alström syndrome
    Open this publication in new window or tab >>Theory of mind and cognitive function in adults with Usher or Alström syndrome
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-49433 (URN)
    Available from: 2016-03-18 Created: 2016-03-18 Last updated: 2017-10-17Bibliographically approved
    3. Theory-of-mind in individuals with Alström syndrome is related to executive functions, and verbal ability
    Open this publication in new window or tab >>Theory-of-mind in individuals with Alström syndrome is related to executive functions, and verbal ability
    Show others...
    2015 (English)In: Frontiers in Psychology, ISSN 1664-1078, E-ISSN 1664-1078, Vol. 6, article id 1426Article in journal (Refereed) Published
    Abstract [en]

    Objective: This study focuses on cognitive prerequisites for the development of theory-of-mind (ToM), the ability to impute mental states to self and others in young adults with Alström syndrome (AS). AS is a rare and quite recently described recessively inherited ciliopathic disorder which causes progressive sensorineural hearing loss and juvenile blindness, as well as many other organ dysfunctions. Two cognitive abilities were considered; Phonological working memory (WM) and executive functions (EF), both of importance in speech development.                                                                                              

    Methods: Ten individuals (18–37 years) diagnosed with AS, and 20 individuals with no known impairment matched for age, gender, and educational level participated. Sensory functions were measured. Information about motor functions and communicative skills was obtained from responses to a questionnaire. ToM was assessed using Happés strange stories, verbal ability by a vocabulary test, phonological WM by means of an auditory presented non-word serial recall task and EF by tests of updating and inhibition.                                           

    Results: The AS group performed at a significantly lower level than the control group in both the ToM task and the EF tasks. A significant correlation was observed between recall of non-words and EF in the AS group. Updating, but not inhibition, correlated significantly with verbal ability, whereas both updating and inhibition were significantly related to the ability to initiate and sustain communication. Poorer performance in the ToM and EF tasks were related to language perseverance and motor mannerisms.                                                     

    Conclusion: The AS group displayed a delayed ToM as well as reduced phonological WM, EF, and verbal ability. A significant association between ToM and EF, suggests a compensatory role of EF. This association may reflect the importance of EF to perceive and process input from the social environment when the social interaction is challenged by dual sensory loss. We argue that limitations in EF capacity in individuals with AS, to some extent, may be related to early blindness and progressive hearing loss, but maybe also to gene specific abnormalities.

    Keywords
    Alström syndrome (AS), ciliopathy, deafblindness, theory-of-mind, verbal ability, executive functions
    National Category
    Psychology (excluding Applied Psychology)
    Research subject
    Psychology
    Identifiers
    urn:nbn:se:oru:diva-46002 (URN)10.3389/fpsyg.2015.01426 (DOI)000361813000001 ()26441796 (PubMedID)
    Funder
    NIH (National Institute of Health), HDO36878
    Note

    Funding Agency:

    Linnaeus Centre HEAD

    Available from: 2015-10-02 Created: 2015-10-02 Last updated: 2018-07-02Bibliographically approved
    4. Theory-of-mind in young adults with Alström syndrome is affected by social relationships
    Open this publication in new window or tab >>Theory-of-mind in young adults with Alström syndrome is affected by social relationships
    Show others...
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-49434 (URN)
    Available from: 2016-03-18 Created: 2016-03-18 Last updated: 2017-10-17Bibliographically approved
  • 8.
    Germundsson, Per
    Örebro University, School of Health and Medical Sciences.
    Lärare, socialsekreterare och barn som far illa: om sociala representationer och interprofessionell samverkan2011Doctoral thesis, monograph (Other academic)
    Abstract [en]

    The aim of the thesis is, through use of the theory of social representations, to increase knowledge about the meeting between social workers and teachers, as professional groups, during collaboration with regard to the target group, children at risk. The thesis intends to capture the parties’ perceptions of one another and of that about which they are cooperating, as well as to discuss possible consequences of these perceptions in the context of interprofessional collaboration on children at risk. Empirical data was collected through an association study. The informants consisted of 200 teachers and social workers who had participated in various collaborative projects concerning the target group of children at risk.

    The study shows that the two professional groups have similar representations of children at risk. The social workers’ representations of the teachers are mostly positive, but the teachers are perceived, in many cases, to lack knowledge about social workers and their field of expertise. Teachers’ representations of social workers are colored to a much greater extent by negative associations. The negative image is primarily related to social services as an organization, not to social workers as individuals. In relation to the specific area of interprofessional collaboration on children at risk, the study indicates that the involved parties’ social representations play a significant role in the collaboration process. The research of this thesis has shown that the theory of social representations provides an effective framework for the study of the collaborating professionals’ group perceptions of one another and of children at risk. A preliminary model that seeks to illuminate the role of social representations, trust, and communication in the collaborative process has been presented.

  • 9.
    Granberg, Sarah
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Functioning and disability in adults with hearing loss: the preparatory studies in the ICF Core sets for hearing loss project2015Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Hearing loss (HL) is a health condition that affects more than 360 million people worldwide. The findings from previous research point at the adverse relationship between adults with hearing loss and important aspects of everyday life such as social relations, communication and work-related tasks. However, the overall picture concerning the functional and disabling aspects of adults with HL re- mains incomplete. To identify the functional and disabling aspects, a conceptual and/or theoretical framework is required. The International Classification of Functioning, Disability and Health (ICF) offer a multidimensional framework based on bio-psycho-social assumptions about health. In previous research inves- tigations in which the ICF has been used, some utility problems in the linking (relating) of data to the classification have been highlighted.

    The aims of the present thesis were to explore the areas of functioning and disability of relevance for adults with HL and to explore how audiological data can be linked to ICF. The aims were explored by applying the methodology of the ‘interdisciplinary evidence-based approach to functioning and disability in adults with HL’, acknowledging the merging of three perspectives designated the Researcher, the Patient and the Professional perspective. Four studies that focus on the three perspectives were conducted. All results were linked to the ICF classification. The results were merged into a model designated ‘the integrative model of functioning and disability in adults with HL’.

    When the three perspectives were linked, the results revealed several aspects of relevance for the target group. Bodily (individual) dimensions, such as hear- ing, auditory perception, memory, attention, energy, and emotions, were acknowledged. Aspects of everyday life such as conversations, the usage of communication strategies, family relationships and work, were highlighted. Influential environmental factors, such as noise, assistive technical devices, the design of public buildings, social support and the attitudes of people in the envi- ronment, were also identified. In conclusion, interactions seemed to be vital as almost all identified aspects highlighted or were tied to this dimension of human functioning. Further, concerning the linking of the data it was acknowledged that the ICF and the research area of adult HL do not fully comply. Suggestions for improvements in future revisions of the ICF were highlighted and discussed.

    List of papers
    1. The ICF Core Sets for hearing loss - researcher perspective. Part I: Systematic review of outcome measures identified in audiological research
    Open this publication in new window or tab >>The ICF Core Sets for hearing loss - researcher perspective. Part I: Systematic review of outcome measures identified in audiological research
    Show others...
    2014 (English)In: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 53, no 2, p. 65-76Article, review/survey (Refereed) Published
    Abstract [en]

    Objective: To review the literature in order to identify outcome measures used in research on adults with hearing loss (HL) as part of the ICF Core Sets development project, and to describe study and population characteristics of the reviewed studies.

    Design: A systematic review methodology was applied using multiple databases. A comprehensive search was conducted and two search pools were created, pool I and pool II.

    Study sample: The study population included adults (>= 18 years of age) with HL and oral language as the primary mode of communication.

    Results: 122 studies were included. Outcome measures were distinguished by 'instrument type', and 10 types were identified. In total, 246 (pool I) and 122 (pool II) different measures were identified, and only approximately 20% were extracted twice or more. Most measures were related to speech recognition. Fifty-one different questionnaires were identified. Many studies used small sample sizes, and the sex of participants was not revealed in several studies.

    Conclusion: The low prevalence of identified measures reflects a lack of consensus regarding the optimal outcome measures to use in audiology. Reflections and discussions are made in relation to small sample sizes and the lack of sex differentiation/descriptions within the included articles.

    Place, publisher, year, edition, pages
    London, UK: Informa Healthcare, 2014
    Keywords
    Hearing loss, audiology, ICF, ICF core sets, outcome assessment, systematic literature review
    National Category
    Other Health Sciences Otorhinolaryngology
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-33754 (URN)10.3109/14992027.2013.851799 (DOI)000329834600001 ()24313738 (PubMedID)2-s2.0-84892578224 (Scopus ID)
    Note

    Funding Agencies:

    Oticon Foundation  

    Stinger Foundation

    Available from: 2014-02-14 Created: 2014-02-14 Last updated: 2018-09-12Bibliographically approved
    2. The ICF Core Sets for hearing loss: researcher perspective, Part II: Linking outcome measures to the International Classification of Functioning, Disability and Health (ICF)
    Open this publication in new window or tab >>The ICF Core Sets for hearing loss: researcher perspective, Part II: Linking outcome measures to the International Classification of Functioning, Disability and Health (ICF)
    Show others...
    2014 (English)In: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 53, no 2, p. 77-87Article, review/survey (Refereed) Published
    Abstract [en]

    Objective: To link outcome measures used in audiological research to the ICF classification and thereby describe audiological research from the ICF perspective.

    Design: Through a peer-reviewed or a joint linking procedure, link outcome measures to the ICF classification system using standardized ICF linking rules. Additional linking rules were developed in combination with the established rules to overcome difficulties when connecting audiological data to ICF. Absolute and relative frequencies of ICF categories were reported.

    Study sample: The identified outcome measures from the previous study (Part I) constituted the empirical material. Results: In total, 285 ICF categories were identified. The most prevalent categories were related to listening, hearing functions, auditory perceptions, emotions and the physical environment, such as noise and hearing aids. Categories related to communication showed lower relative frequencies, as did categories related to the social and attitudinal environment.

    Conclusions: Based on the linked outcome measures, communication as a research topic is subordinated to other research topics. The same conclusion can be drawn for research targeting the social and attitudinal environment of adults with HL. Difficulties in the linking procedure were highlighted and discussed, and suggestions for future revisions of the ICF from the audiological perspective were described.

    Place, publisher, year, edition, pages
    Informa Healthcare, 2014
    Keywords
    Hearing loss, audiology, ICF, linking, ICF core sets
    National Category
    Other Health Sciences Otorhinolaryngology
    Research subject
    Medicine
    Identifiers
    urn:nbn:se:oru:diva-33755 (URN)10.3109/14992027.2013.858279 (DOI)000329834600002 ()24329490 (PubMedID)2-s2.0-84892619855 (Scopus ID)
    Note

    Funding Agencies:

    Oticon Foundation  

    Stinger Foundation

    Available from: 2014-02-14 Created: 2014-02-14 Last updated: 2018-09-12Bibliographically approved
    3. The ICF core sets for hearing loss project: International expert survey on functioning and disability of adults with hearing loss using the International classification of functioning, disability, and health (ICF)
    Open this publication in new window or tab >>The ICF core sets for hearing loss project: International expert survey on functioning and disability of adults with hearing loss using the International classification of functioning, disability, and health (ICF)
    Show others...
    2014 (English)In: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 53, no 8, p. 497-506Article in journal (Refereed) Published
    Abstract [en]

    Objective: To identify relevant aspects of functioning, disability, and contextual factors for adults with hearing loss (HL) from hearing health professional perspective summarized using the ICF classification as reference tool.

    Design: Internet-based cross-sectional survey using open-ended questions. Responses were analysed using a simplified content analysis approach to link concept to ICF categories according to linking rules.

    Study sample: Hearing health professionals (experts) recruited through e-mail distribution lists of professional organizations and personal networks of ICF core set for hearing loss steering committee members. Stratified sampling according to profession and world region enhanced the international and professional representation.

    Results: Sixty-three experts constituted the stratified sample used in the analysis. A total of 1726 meaningful concepts were identified in this study, resulting in 209 distinctive ICF categories, with 106 mentioned by 5% or more of respondents. Most categories in the activities & participation component related to communication, while the most frequent environmental factors related to the physical environment such as hearing aids or noise. Mental functions, such as confidence or emotional functions were also frequently highlighted.

    Conclusions: More than half (53.3%) of the entire ICF classification categories were included in the expert survey results. This emphasizes the importance of a multidimensional tool, such as the ICF, for assessing persons with hearing loss.

    Place, publisher, year, edition, pages
    Informa Healthcare, 2014
    Keywords
    Hearing loss; audiology; ICF; ICF core sets; hearing health professionals; expert survey
    National Category
    Other Health Sciences Otorhinolaryngology
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-34834 (URN)10.3109/14992027.2014.900196 (DOI)000339630500001 ()24754459 (PubMedID)2-s2.0-84904126425 (Scopus ID)
    Note

    Funding Agencies:

    Oticon Foundation

    Hörselforskningsfonden (Swedish hearing research foundation)

    Available from: 2014-04-24 Created: 2014-04-24 Last updated: 2018-06-05Bibliographically approved
    4. The ICF core sets for hearing loss project: Functioning and disability from the patient perspective
    Open this publication in new window or tab >>The ICF core sets for hearing loss project: Functioning and disability from the patient perspective
    Show others...
    2014 (English)In: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 53, no 11, p. 777-786Article in journal (Refereed) Published
    Abstract [en]

    Objective: To explore areas of functioning, disability, and environmental factors of adults with hearing loss (HL) by using the ICF classification as a tool to determine and document each element. Design: A qualitative study applying mainly focus-group methodology was applied.

    Study sample: Thirty-six Dutch and South African adults (18 years of age) with HL (20–95 dB HL) who used oral communication as first communication. Summative content analysis was performed on the transcripts by linkage to appropriate ICF categories.

    Results: 143 ICF categories were identified, most of which belonged to the Activities & Participation (d) component, closely followed by the Environmental factors component. Participants specifically mentioned categories related to oral communication and interaction. Assistive technology (such as hearing aids), noise, and support by and attitudes of others in the environment of the participants were considered highly influential for functioning and disability.

    Conclusions: The present study illustrates the complex and encompassing nature of aspects involved in functioning and disability of adults with HL. Findings highlight the necessity of using a multidimensional tool, such as the ICF, to map functioning and disability with hearing loss, allowing consideration and evaluation of aspects that are both internal and external.

    Place, publisher, year, edition, pages
    London, UK: Informa Healthcare, 2014
    Keywords
    ICF, ICF core sets, focus groups, qualitative study, patient perspective
    National Category
    Other Health Sciences Otorhinolaryngology
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-39251 (URN)10.3109/14992027.2014.938370 (DOI)000343928200001 ()25311099 (PubMedID)2-s2.0-84911460995 (Scopus ID)
    Note

    Funding Agency:

    Oticon Foundation  

    Available from: 2014-12-02 Created: 2014-12-02 Last updated: 2019-03-01Bibliographically approved
  • 10.
    Gustafsson, Johanna
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Supported employment i en svensk kontext: förutsättningarnär personer med funktionsnedsättning når,får och behåller ett arbete2014Doctoral thesis, monograph (Other academic)
    Abstract [en]

    The overall aim of this thesis is to discover, to value and to explain, if and why Supported Employment functions in a Swedish context and to also highlight those mechanisms which provide meaningful conditions within that context, when a person with a disability reaches, procures and retains employment. The empirical part consists of four studies that examine (1) whether SE has an effect on the employment rate, disposable income and sum of allowances, (2) the employer´s perspective of employing people with disabilities, (3) how employers perceive support from SE in the employment process and (4) how employees with disabilities perceive their work situation and social inclusion in the workplace. The studies within the thesis show that in a Swedish context, SE is encompassed by norm structures, production structures and economical structures which affect conditions for people with disabilities to reach, procure and retain employment. Supported Employment’s mode of practice and the ability to meet, co-exist and co-operate with these social structures has, in many ways, affected the prerequisites for people with disabilities to reach employment. These structures do not in themselves however, constitute a sufficient frame of ideas to enable an understanding of how SE works in a Swedish context, or how to explain the factors that affect conditions when people with disabilities reach, procure and retain employment. In the qualitative studies, trust features prominently and is considered an important mechanism in holding the process together.

  • 11.
    Hillborg, Helene
    Örebro University, School of Health and Medical Sciences.
    Erfarenheter av rehabiliteringsprocessen mot ett arbetsliv: brukarens och de professionellas perspektiv2010Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Erfarenheter av rehabiliteringsprocessen mot ett arbetsliv - brukarens och de professionellas perspektiv. Örebro, Studies from the Swedish Institute of Disability Research No 34, 107 pp.The overall aim of this dissertation is to (1) describe and analyse perceived barriers and opportunities from the perspective of the individual receiving vocational rehabilitation services as a result of unemployment and psychiatric disability (2) describe and analyse perceived barriers and opportunities in services for unemployed people with psychiatric disabilities from the perspective of professionals working in the area of vocational rehabilitation and (3) utilize empowerment theory to explore and develop a deeper understanding of the experiences and perceptions described by these individuals and professionals. The data consists of open-ended interviews with service users and professionals’ working in the area of vocational rehabilitation. A content analysis together with an interpretive approach was used to analyse the data. The results revealed that support and the psychosocial work environment are important factors that influence the rehabilitation process for the individual. These factors can facilitate opportunities to develop skills in contacts with fellow employees, increase belief in one’s own abilities, and can contribute to the achievement of specified goals. These factors are also seen as supporting empowerment and active participation in the rehabilitation process. However, the results also revealed that the rehabilitation process is negatively effected by environmental factors to which the professionals and their organizations contributed. Barriers related to interagency collaboration contributed to barriers to a successful rehabilitation for the individual. The professionals were consistent in what they viewed as enabling factors in the rehabilitation process but the results also showed how difficult it was for the service system to create a rehabilitation context in line with their knowledge and experience.Keywords: Psychiatric disabilities, vocational rehabilitation, empowerment, interagency collaboration, support system.

    List of papers
    1. Expectations, visions and sense of empowerment: in the face of a vocational rehabilitation process for people with psychiatric disabilities 
    Open this publication in new window or tab >>Expectations, visions and sense of empowerment: in the face of a vocational rehabilitation process for people with psychiatric disabilities 
    2010 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 12, no 2, p. 109-124Article in journal (Refereed) Published
    Abstract [en]

    The aim of this study is to reveal the meaning some people with psychiatric disabilities assigned to important experiences related to long periods of participation restrictions owing to unemployment and sick leave. The data comprise open-ended interviews with eight informants. A hermeneutic approach together with a comparative analysis was used to analyze the data. The results showed six types of mechanisms important for the outcome of the rehabilitation process: support, understanding, time, control, self-image and vision of the future. Our results indicate that environmental factors such as experience of support and understanding of professionals and time-efficacy seemed to have a great effect on the individuals' attitudes concerning the activities and measures they expected to carry out during their coming rehabilitation. These experiences seemed to affect their belief in their own abilities, their sense of control, and their belief in successful performance. Theories about empowerment closely related to social emotions like pride and shame are also discussed in an attempt to deepen the understanding of the studied phenomena.

    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-6411 (URN)10.1080/15017410903478931 (DOI)
    Available from: 2009-04-29 Created: 2009-04-29 Last updated: 2017-12-13Bibliographically approved
    2. Towards a working life?: Experiences in a rehabilitation process for people with psychiatric disabilities
    Open this publication in new window or tab >>Towards a working life?: Experiences in a rehabilitation process for people with psychiatric disabilities
    2010 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 17, no 2, p. 149-161Article in journal (Refereed) Published
    Abstract [en]

    The aim of this study was to reveal the meaning some people with psychiatric disabilities assigned to important personal experiences in relation to an ongoing rehabilitation process. The data comprises open-ended interviews of eight participants. A hermeneutic approach together with a content analysis was used to analyse the data. The results indicated the importance of not relying on simplified prognoses early in a rehabilitation process when assessing rehabilitation measures and/or work capacity. The phenomenon of rehabilitation seemed to be very complex, diverse, and changed over time depending on different circumstances that arose during the rehabilitation process. These circumstances arose on individual, contextual as well as structural levels and all had an impact on the outcomes. The results also indicated that it seemed to be possible to achieve success, change attitudes, and create a positive image of a future related to a working life if the support was perceived as relevant and the activities undertaken were perceived as contributing to achievement of the individual's goals. Regardless of which path the informants later chose these factors were seen to support an empowerment process and active participation in their own rehabilitation.

    Place, publisher, year, edition, pages
    London, United Kingdom: Informa Healthcare, 2010
    Keywords
    Vocational rehabilitation, return to work, empowerment, psychiatric disabilities
    National Category
    Social Sciences Social Sciences Sociology
    Research subject
    Sociology
    Identifiers
    urn:nbn:se:oru:diva-6410 (URN)10.3109/11038120902906303 (DOI)000278023300006 ()19452352 (PubMedID)
    Available from: 2009-04-29 Created: 2009-04-29 Last updated: 2018-04-18Bibliographically approved
    3. Interagency collaboration in vocational rehabilitation for persons with mental health problems: the perspective of the service users and the professionals
    Open this publication in new window or tab >>Interagency collaboration in vocational rehabilitation for persons with mental health problems: the perspective of the service users and the professionals
    2011 (English)In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 26, no 6, p. 699-713Article in journal (Refereed) Published
    Abstract [en]

    There is an aspiration and policy within the European Union to fully involve persons with disabilities in the community; this implies an opportunity to gainful employment. A large percentage of disabled persons remain unemployed despite this policy, especially persons with mental health problems. This study aims at investigating how people with mental health problems and caseworkers in different agencies experience the vocational rehabilitation process from an interagency collaboration perspective. The study reveals a number of hindering factors portrayed and discussed in six themes – the time available for rehabilitation, management, new ways of working, absence of an actor, continuity and consensus – and also tables the implications for interagency collaboration in the field of vocational rehabilitation.

    Place, publisher, year, edition, pages
    Routledge, 2011
    National Category
    Social Work
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-15529 (URN)10.1080/09687599.2011.602862 (DOI)000299630100003 ()2-s2.0-80052581499 (Scopus ID)
    Available from: 2011-05-10 Created: 2011-05-10 Last updated: 2017-12-11Bibliographically approved
    4. Professionals' perceptions and views about vocational rehabilitation for people with psychiatric disabilities
    Open this publication in new window or tab >>Professionals' perceptions and views about vocational rehabilitation for people with psychiatric disabilities
    2013 (English)Manuscript (preprint) (Other academic)
    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-15530 (URN)
    Available from: 2011-05-10 Created: 2011-05-10 Last updated: 2017-10-17Bibliographically approved
  • 12.
    Jerlinder, Kajsa
    Örebro University, Department of Nursing and Caring Sciences.
    Rättvis idrottsundervisning för elever med rörelsehinder: dilemma kring omfördelning och erkännande2005Licentiate thesis, monograph (Other academic)
    Abstract [en]

    Licentiate dissertation, written in Swedish with an English abstract.

    The educational goal of “a school for all” creates many challenges. Issues of socialjustice and equity are central tenets of the concept of inclusive education. Despitethe goal of comprehensive education for all children, for many pupils with physicaldisabilities in an inclusive school system PE (Physical Education) teaching canresult in experiences of injustice. In the struggle to achieve social equity and createeducational experiences where disability does not matter, it seams to matter verymuch.The aim of this study is to illustrate a dilemma and its potential outcomeswhere demands for justice for pupils with physical disabilities are raised in inclusivephysical education. In the study, based on theories of redistribution andrecognition, two empirical examples are presented.The first example, in the context of the decentralisation of Swedish compulsoryschools, illustrates degrees of awareness about numbers of pupils with physicaldisabilities attending compulsory schools located in a case municipality. Foursources, with varying responsibilities for disabled children, all reported differentnumbers of pupils. Thus, with no congruent data at municipality level, distribu-tion and redistribution of necessary resources becomes difficult.In the second example of a ten year old boy with a physical disability,experiences of participation in inclusive physical education are described, fromthe perspective of five different actors (the boy himself, his PE teachers (2), hisparents, classmates, and his personal assistant).Data for this case study was gathered through interviews and systematic ob-servation. In this particular case, the outcome of inclusive PE was judged to besuccessful. The example illustrates the importance of recognition needing to befulfilled at several distributive levels. The positive outcome is discussed in terms ofthe combination of identification of particular special needs, sensitive adaptation,and general respect for the child with physical disability.Dilemmas of justice for disabled pupils in physical education are best studiedwithin a multi-level context. Recognition and redistribution demands need to besimultaneously addressed in order to fulfil the goal of equitable education forpupils with physical disabilities attending PE within the compulsory school sys-tem. An attempt to combine these different ideological approaches is discussedfrom the perspective of social status.The outcome of the two empirical examples presented in this study illustrategeneral dilemmas reaching beyond the educational challenges facing pupils withphysical disabilities and the responses of the compulsory school system to them.

  • 13.
    Jerlinder, Kajsa
    Örebro University, School of Health and Medical Sciences.
    Social rättvisa i inkluderande idrottsundervisning för elever med rörelsehinder: en utopi?2010Doctoral thesis, comprehensive summary (Other academic)
    List of papers
    1. Normative approaches to justice in physical education for pupils with physical disabilities: dilemmas of recognition and redistribution
    Open this publication in new window or tab >>Normative approaches to justice in physical education for pupils with physical disabilities: dilemmas of recognition and redistribution
    2009 (English)In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 24, no 3, p. 331-342Article in journal (Refereed) Published
    Abstract [en]

    Seeking social justice in education for pupils with disabilities creates certain dilemmas. A 'school for all' means that educators are faced with the dilemma whereby the notion of 'disability' is perceived as ought not to matter but where in actual fact it seems to matter very much! This article explores ways out of this general educational dilemma using the context of physical education (PE) for pupils with physical disabilities within the compulsory school as an example. Justice theories of resource distribution and cultural recognition affect educational outcomes, where the demand is for justice and equity. Fraser's notion of 'social status', together with a pluralistic approach to identities where personal experiences are given a place, is used to suggest a solution to the dilemma. It is concluded that a redistribution of economic resources and social recognition is necessary if social justice within PE is to become a reality.

    Place, publisher, year, edition, pages
    Routledge, 2009
    National Category
    Pedagogy Social Work
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-6408 (URN)10.1080/09687590902789495 (DOI)000265293300006 ()2-s2.0-74949110548 (Scopus ID)
    Available from: 2009-04-28 Created: 2009-04-28 Last updated: 2017-12-13Bibliographically approved
    2. Systematic review and analysis of general physical education teachers' attitudes to inclusion
    Open this publication in new window or tab >>Systematic review and analysis of general physical education teachers' attitudes to inclusion
    (English)Manuscript (preprint) (Other academic)
    Keywords
    review, physical education, teachers, attitudes, inclusion, disability, social justive, social recognition, redistribution
    National Category
    Sport and Fitness Sciences Social Work Pedagogy
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-10499 (URN)
    Available from: 2010-04-26 Created: 2010-04-26 Last updated: 2017-10-18Bibliographically approved
    3. Swedish primary-school teachers' attitudes to inclusion: the case of PE and pupils with physical disabilities
    Open this publication in new window or tab >>Swedish primary-school teachers' attitudes to inclusion: the case of PE and pupils with physical disabilities
    2010 (English)In: European Journal of Special Needs Education, ISSN 0885-6257, E-ISSN 1469-591X, Vol. 25, no 1, p. 45-57Article in journal (Refereed) Published
    Abstract [en]

    Teachers play a decisive role in making inclusive education a reality. The particular case of inclusion in physical education (PE) poses a specific challenge to teaching practice. How PE teachers view inclusion may provide special insights into teachers' general attitudes toward inclusion and inclusive practices in the general school curriculum. The aim of this study is to investigate Swedish PE teachers' attitudes to inclusion of pupils with physical disabilities in mainstream PE classes at primary school. The sampling frame was members of the Swedish Teachers' Union who had registered themselves as PE teachers and who indicated a current e-mail address (n = 560). Respondents were invited to complete an e-mail questionnaire with questions covering demographics, general attitudes, support from school management and staff, possible hindrances and personal experiences of inclusion. A total of 221 teachers (39%) responded, equal numbers of males and females with a bimodal age distribution (means of 28 and 44) with an average of eight years of service. On average, Swedish PE teachers are very positive to inclusion of pupils with physical disabilities into general PE. Gender, age, years of service and work satisfaction had no impact on general opinions of inclusive PE. PE teachers with actual previous experience of teaching pupils with physical disabilities were slightly more positive to inclusive PE. Stepwise multiple regressions were used to establish a predictive model of positive attitudes to inclusion based on: (1) having adequate training; (2) having general school support (from management and staff); and (3) demands on resources. This yielded an adjusted R2 that explained 33% of variation in attitudes.

    Place, publisher, year, edition, pages
    London: Routledge, 2010
    Keywords
    attitudes, physical education, inclusion, primary teacher
    National Category
    Pedagogy Pedagogical Work Sport and Fitness Sciences
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-10497 (URN)10.1080/08856250903450830 (DOI)
    Available from: 2010-04-26 Created: 2010-04-26 Last updated: 2017-12-12Bibliographically approved
    4. Rättvis idrottsundervisning för elever med rörelsehinder?: En empirisk illustration
    Open this publication in new window or tab >>Rättvis idrottsundervisning för elever med rörelsehinder?: En empirisk illustration
    (Swedish)Manuscript (preprint) (Other academic)
    Keywords
    social rättvisa, idrott och hälsa, inklusion, rörelsehinder, barn i behov av extra stöd
    National Category
    Social Work Pedagogy Sport and Fitness Sciences
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-10501 (URN)
    Available from: 2010-04-26 Created: 2010-04-26 Last updated: 2017-10-18Bibliographically approved
  • 14.
    Klang, Nina
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Applicability of the ICF-CY to describe functioning and environment of children with disabilities2012Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The aim of the thesis, with four empirical studies, was to explore the applicability of the International Classification of Functioning, Disability and Health, version for children and youth (ICF-CY) to describe functioning and environment of children with disabilities. The components and categories in the ICF-CY were explored by studying items in ICF-CY based questionnaires in studies I and II and by linking texts of individual habilitation plans to the ICF-CY in studies III and IV. Professionals’ perceptions of the applicability of the ICF-CY and the ICFCY questionnaire were investigated in study II. In study IV changes in focus on ICF-CY components in documentation of individual habilitation plans were explored after in-service training in the ICF-CY. Studies I and II found variations in ratings of questionnaire items based on the performance qualifier in component Activities and participation. The variations may be explained by the context in which ratings were made and by expectations and perceptions of those who made ratings. The results indicated challenges in constructing universal measures of the performance qualifier. The studies also indicated limitations in the use of items based on Environmental factors, when used separately from items in Activities and participation. Studies II and III found that the categories in the components Body functions and Activities and participation were interrelated. Study III indicated challenges in describing family situation and children’s psychosocial environment in the Environmental factors. In study II the professionals described advantages and challenges in the use of the ICFCY and suggested necessary changes to the ICF-CY questionnaire. Study IV found that the professionals in child and youth habilitation described children’s functioning more precisely and in more detail after in-service training. Overall, the results suggest both advantages and challenges of the ICFCY when used to describe functioning and environment of children with disabilities. The results call for a need of a combined use of the categories from all the ICF-CY the components.

    List of papers
    1. The utility of ICF for describing interaction in non-speaking children with disabilities: caregiver ratings and perceptions
    Open this publication in new window or tab >>The utility of ICF for describing interaction in non-speaking children with disabilities: caregiver ratings and perceptions
    2007 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 29, no 22, p. 1689-1700Article in journal (Refereed) Published
    Abstract [en]

    PURPOSE: The purpose of the study is to explore the utility of the International Classification of Functioning, Disability and Health (ICF) when assessing caregivers' perceptions of interaction and factors related to interaction in non-speaking children with disability.

    METHOD: A questionnaire with focus on interaction and related factors was constructed by linking questions in existing instruments to ICF and was completed by 208 professionals and parents of 195 non-speaking children with disabilities in Russia. Caregivers' descriptions of interaction in open-ended questions were qualitatively analysed and compared to selected caregivers' ratings of children's functioning and environment in the questionnaire based on ICF.

    RESULTS: In the open-ended questions about interaction the caregivers described modes of communication children used, situations in which interactions took place, positive and negative aspects of interactions. Thirty eight respondents described interaction with children negatively, 66 neutrally, and 76 positively. Statistical analyses revealed significant differences among the three groups of respondents concerning their ratings of children's functioning and environment in the ICF-based questionnaire.

    CONCLUSIONS: The ICF-related items in the questionnaire corresponded to caregivers' perceptions of interaction, which shows their relevance for the description of interactions. ICF is feasible in describing of interaction and interaction-related factors in non-speaking children with disabilities in Russia.

    Place, publisher, year, edition, pages
    Informa Healthcare, 2007
    Keywords
    ICF-CY, communication, interaction, non-speaking children with disabilities
    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-22664 (URN)10.1080/09638280601056186 (DOI)17852237 (PubMedID)
    Available from: 2012-04-25 Created: 2012-04-25 Last updated: 2017-12-07Bibliographically approved
    2. Field trial of ICF version for children and youth (ICF-CY) in Sweden: logical coherence, developmental issues and clinical use
    Open this publication in new window or tab >>Field trial of ICF version for children and youth (ICF-CY) in Sweden: logical coherence, developmental issues and clinical use
    2009 (English)In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431, Vol. 12, no 1, p. 3-11Article in journal (Refereed) Published
    Abstract [en]

    Introduction: For ICF-CY to be used in clinical practice several issues have to be resolved concerning the logical coherence in the model, developmental and functional issues as well as clinical feasibility. Purpose: The aim is to investigate feasibility of ICF-CY as expressed by ICF-CY questionnaires in assessment prior to intervention. 

    Methods: One hundred and thirty-nine professionals working with intervention for children with disabilities used ICF-CY questionnaires in assessment. The professionals rated and commented on the feasibility of ICF-CY and ICF-CY questionnaire. Logical coherence, developmental issues and clinical use were investigated. 

    Results: The logical coherence on component level was good (KMO = 0.126, p<0.005). To investigate developmental and functional issues in the model children, four age groups were compared with the help of one-way ANOVA. Significant differences were found between children younger than 3 and children 3-6 and 7-12 in four chapters in the component Activities/Participation. Professionals consider that ICF-CY is feasible in intervention but experience difficulties when using the components and qualifiers in the ICF-CY and suggest changes. 

    Discussion: ICF-CY as expressed in ICF-CY questionnaires is a feasible tool in assessment and intervention. However, several issues can be developed and discussed to facilitate implementation of ICF-CY in clinical practice.

    Place, publisher, year, edition, pages
    Informa Healthcare, 2009
    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-22668 (URN)10.1080/17518420902777001 (DOI)000207787600002 ()19283529 (PubMedID)
    Available from: 2012-04-25 Created: 2012-04-25 Last updated: 2017-12-07Bibliographically approved
    3. Using content analysis to link texts on assessment and intervention to the international classification of functioning, disability and health: version for children and youth (ICF-CY)
    Open this publication in new window or tab >>Using content analysis to link texts on assessment and intervention to the international classification of functioning, disability and health: version for children and youth (ICF-CY)
    Show others...
    2011 (English)In: Journal of Rehabilitation Medicine, ISSN 1650-1977, E-ISSN 1651-2081, Vol. 43, no 8, p. 728-733Article in journal (Refereed) Published
    Abstract [en]

    Objective: To explore how content analysis can be used together with linking rules to link texts on assessment and intervention to the International Classification of Functioning, Disability and Health – version for children and youth (ICF-CY).

    Methods: Individual habilitation plans containing texts on assessment and intervention for children with disabilities and their families were linked to the ICF-CY using content analysis. Texts were first divided into meaning units in order to extract meaningful concepts. Meaningful concepts that were difficult to link to ICF-CY codes were grouped, and coding schemes with critical attributes were developed. Meaningful concepts that could not be linked to the ICF-CY were assigned to the categories “not-definable” and “not-covered”, using coding schemes with mutually exclusive categories.

    Results: The size of the meaning units selected resulted in different numbers and contents of meaningful concepts. Coding schemes with critical attributes of ICF-CY codes facilitated the linking of meaningful concepts to the most appropriate ICF-CY codes. Coding schemes with mutually exclusive categories facilitated the classification of meaningful concepts that could or could not be linked to the ICF-CY.

    Conclusion: Content analysis techniques can be applied together with linking rules in order to link texts on assessment and intervention to the ICF-CY.

    Place, publisher, year, edition, pages
    Foundation of Rehabilitation Information, 2011
    Keywords
    documentation, assessment, intervention, ICF-CY, children, disabilities
    National Category
    Social Work
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-22669 (URN)10.2340/16501977-0831 (DOI)000293314100011 ()21732007 (PubMedID)
    Available from: 2012-04-25 Created: 2012-04-25 Last updated: 2018-05-03Bibliographically approved
    4. Changes in individual habilitation plans after in-service training in International classificationof functioning, disability and health, version for children and youth (ICF-CY): a document analysis
    Open this publication in new window or tab >>Changes in individual habilitation plans after in-service training in International classificationof functioning, disability and health, version for children and youth (ICF-CY): a document analysis
    (English)Manuscript (preprint) (Other academic)
    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-22670 (URN)
    Note
    Submitted to Clinical RehabilitationAvailable from: 2012-04-25 Created: 2012-04-25 Last updated: 2017-10-17Bibliographically approved
  • 15.
    Matérne, Marie
    Örebro University, School of Health Sciences.
    Återgång i arbete efter förvärvad hjärnskada: livskvalitet, möjligheter och hinder2018Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    In Sweden, about 35–40 percent of people who acquire a brain injury can return to work. To be able to help people with acquired brain injury to return to work, it is important to know about experiences and factors that facilitate return to work and how they affect quality of life. The overall aim of this thesis is to investigate the opportunities and barriers for people with acquired brain injury to return to work, as well as the importance of returning to work for their quality of life. Four studies were conducted: two interview studies and two register studies, giving qualitative and quantitative data.The major finding in this thesis was that people with acquired brain injury who could return to work had high functioning in all levels of the biopsychosocial model. The opportunities increased if the return to work was individually adapted in all phases of the process and if the person was motivated and supported by support persons with commitment, cooperation and adaptation. Those who had a university education, got their driver’s license reinstated, had high motor function and could return towork showed the greatest increase in their quality of life.Return to work is a complex process for people with acquired brain injury that could be successful if they are motivated, can balance the internal and external demands to return to work, get individual adaptation, and receive committed support. Their quality of life also increased more if theywere able to return to work.

    List of papers
    1. Opportunities and barriers for successful return to work after acquired brain injury: A patient perspective
    Open this publication in new window or tab >>Opportunities and barriers for successful return to work after acquired brain injury: A patient perspective
    2017 (English)In: Work: A journal of Prevention, Assessment and rehabilitation, ISSN 1051-9815, E-ISSN 1875-9270, Vol. 56, no 1, p. 125-134Article in journal (Refereed) Published
    Abstract [en]

    Background: Many people who suffer an acquired brain injury (ABI) are of working age. There are benefits, for the patient, the workplace, and society, to finding factors that facilitate successful return to work (RTW).

    Objective: The aim was to increase knowledge of opportunities and barriers for a successful RTW in patients with ABI.

    Method: Five men and five women with ABI participated. All had successfully returned to work at least 20 hours a week. Their experiences were gathered by semi-structured interviews, which were subsequently subjected to qualitative content analysis.

    Results: Three themes that influenced RTW were identified: individually adapted rehabilitation; motivation for RTW; and cognitive and social abilities. An individually adapted rehabilitation was judged important because the patients were involved in their own rehabilitation and required individually adapted support from rehabilitation specialists, employers, and colleagues. A moderate level of motivation for RTW was needed. Awareness of the person's cognitive and social abilities is essential, in finding compensatory strategies and adaptations.

    Conclusions: It seems that the vocational rehabilitation process is a balancing act in individualized planning and support, as a partnership with the employer needs to be developed, motivation needs to be generated, and awareness built of abilities that facilitate or hinder RTW.

    Place, publisher, year, edition, pages
    Amsterdam, The Netherlands: IOS Press, 2017
    Keywords
    Content analysis, vocational rehabilitation, qualitative interviews
    National Category
    Occupational Therapy Other Medical Sciences
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-54393 (URN)10.3233/WOR-162468 (DOI)000396547500014 ()28035941 (PubMedID)2-s2.0-85012225058 (Scopus ID)
    Note

    Funding Agencies:

    University Health Care Research Center

    Region Örebro County Sweden

    Swedish Association of Brain Injured and Families

    Available from: 2017-02-07 Created: 2017-01-10 Last updated: 2018-11-19Bibliographically approved
    2. Support Persons' Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden
    Open this publication in new window or tab >>Support Persons' Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden
    2016 (English)In: Journal of Social Work in Disability & Rehabilitation, ISSN 1536-710X, E-ISSN 1536-7118, Vol. 15, no 3-4, p. 351-369Article in journal (Refereed) Published
    Abstract [en]

    The aim is to explore the perception of being a support person for clients with acquired brain injury undergoing vocational rehabilitation. Nine support persons, identified by clients with brain injury, were interviewed. Interviews were analyzed using qualitative content analysis, resulting in three themes for assisting the client: (i) commitment; (ii) adaptation; and (iii) cooperation. Within each theme, multiple dimensions were identified, reflecting the complexity of vocational rehabilitation following acquired brain injury. Commitment built on social relations is linked to sustainability of support. The included support persons' role was especially valuable in contexts where adaptation and cooperation were required.

    Place, publisher, year, edition, pages
    Routledge, 2016
    Keywords
    Acquired brain injury, content analysis, empathy and support, inclusion, rehabilitation, return to work, support person, vocational rehabilitation
    National Category
    Social Work Other Health Sciences
    Research subject
    Social Work; Disability Science
    Identifiers
    urn:nbn:se:oru:diva-51616 (URN)10.1080/1536710X.2016.1220880 (DOI)000387348600010 ()27494552 (PubMedID)2-s2.0-84987662485 (Scopus ID)
    Available from: 2016-08-09 Created: 2016-08-09 Last updated: 2019-03-26Bibliographically approved
    3. Change in quality of life in relation to returning to work after acquired brain injury: a population-based register study
    Open this publication in new window or tab >>Change in quality of life in relation to returning to work after acquired brain injury: a population-based register study
    2018 (English)In: Brain Injury, ISSN 0269-9052, E-ISSN 1362-301X, Vol. 32, no 13-14, p. 1731-1739Article in journal (Refereed) Published
    Abstract [en]

    PURPOSE: This study investigated changes in quality of life (QoL) in relation to return to work among patients with acquired brain injury (ABI).

    METHOD: The sample consisted of 1487 patients with ABI (63% men) aged 18-66 years (mean age 52) from the WebRehab Sweden national quality register database. Only patients who worked at least 50% at admission to hospital and were on full sick leave at discharge from hospital were included. QoL was measured by the EuroQol EQ-5D questionnaire.

    RESULTS: Patients who returned to work perceived a larger improvement in QoL from discharge to follow-up one year after injury compared to patients who had not returned to work. This difference remained after adjustment for other factors associated with improved QoL, such as having a university education, increased Extended Glasgow Outcome Scale scores and getting one's driving licence reinstated.

    CONCLUSION: Return to work is an important factor for change in QoL among patients with ABI, even after adjusting for other factors related to QoL. This is consistent with the hypothesis that having employment is meaningful, increases self-esteem and fosters participation in society. Thus, helping patients with ABI return to work has a positive influence on QoL.

    Place, publisher, year, edition, pages
    Taylor & Francis Group, 2018
    Keywords
    Stroke, life satisfaction, rehabilitation, traumatic brain injury, vocational rehabilitation
    National Category
    Neurology Occupational Therapy
    Identifiers
    urn:nbn:se:oru:diva-69466 (URN)10.1080/02699052.2018.1517224 (DOI)000453393600016 ()30296173 (PubMedID)2-s2.0-85054574457 (Scopus ID)
    Note

    Funding Agency:

    University Health Care Research Centre, Region Örebro County, Sweden

    Available from: 2018-10-09 Created: 2018-10-09 Last updated: 2019-01-08Bibliographically approved
    4. Risk markers for not returning to work among patients with acquired brain injury: a population-based register study
    Open this publication in new window or tab >>Risk markers for not returning to work among patients with acquired brain injury: a population-based register study
    (English)Manuscript (preprint) (Other academic)
    National Category
    Other Health Sciences
    Identifiers
    urn:nbn:se:oru:diva-70255 (URN)
    Available from: 2018-11-19 Created: 2018-11-19 Last updated: 2018-11-20Bibliographically approved
  • 16.
    Mineur, Therése
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Skolformens komplexitet: elevers erfarenheter av skolvardag och tillhörighet i gymnasiesärskolan2013Doctoral thesis, monograph (Other academic)
    Abstract [en]

    The Swedish upper secondary education consists of different types of schools. One type of school is the upper secondary for pupils who have assessed as having an intellectual disability. The aim of this study is to increase the knowledge and understanding of pupils’ experiences of everyday life in school, and how they perceive the significance of their sense of belonging to this type of school. An additional aim of the study is to increase the knowledge about different ways of organizing the education and teaching. The collection of data started with a national questionnaire survey which was directed to headteachers at the schools. Based on the results from the survey five schools were selected. By participant observations at the schools and repeated interviews with 14 young women and 12 young men, the first person perspective has been studied and analysed through an interpretive approach. The analysis showed that knowledge about the schools different ways of organizing the teaching are of importance, to understand pupils’ diverse experiences of school life. As an example it has an impact on how the pupils evaluate different types of knowledge, but also how they view their future opportunities. Any clear connection between the schools different ways of organizing the education and teaching and pupils’ experiences of their sense of belonging to this type of school has not emerged. Instead pupils’ awareness, confidence, uncertainty, dejection and determination are to be seen as a framework of understanding, telling us about their experiences of their school affiliation. Together they demonstrate a complexity surrounding pupils’ situation, associated to both advantages and disadvantages in school, but also their thoughts about identity and how they perceive being categorized as deviant by others. The analysis also showed that expectations on the pupils, and their possibilities in the school context, are related to a special school culture and to gender differences.

  • 17.
    Möller, Kerstin
    Örebro University, School of Health and Medical Sciences.
    Impact on participation and service for persons with deafblindness2008Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Persons with deafblindness experience difficulties in daily life and they experience service to sometimes barrier. The overall aim of this thesis is therefore to discover, evaluate and explain: 1. mechanisms that might have impact on participation restrictions for people who have visual and hearing impairment i.e. deafblindness and 2. mechanisms that might barrier service to these people. Service is used as an umbrella term for health care, education and certain service for persons with disabilities. Materials from multiple sources have been used: literature (Study I No 96 papers). Interviews (Study I and V) with 32 and 3 adults with deafblindness respectively. Questionnaires (Study II and III): answered by 33 and 34 adults and youth with deafblindness. Patient records (Study IV and V): records from 9 and 3 adult females with USH I respectively. Materials mostly retrospectively cover the period from 2005 and about 40–50 years. Both quantitative and qualitative methods were used. International Classification of Functioning, Disability and Health (ICF) were consequently used as a framework to describe as well as a tool to analyze mechanisms. Further, the Ecological approach, Disability as a laminated system and Life course approach were used in order to evaluate and explain mechanisms. The conclusions that can be drawn from an ecological, laminated and life course approach are: Participation restrictions for people with deafblindness are far-reaching and are embedded in a complex process of interaction between the person with deafblindness and the environment. Services entail systematical barriers. In order to improve service it is extremely important to understand the role of participation restrictions in deafblindness. Primary activity limitation is to not see and hear enough for comprehension. Hence, not taking part in the visible and audible world is primary participation restriction. Performing activities without basic information includes risk. One important aspect of deafblindness is exposure. Persons with deafblindness require rehabilitation in a life perspective. In order to increase people’s participation and protection requirement of individually adapted support and assistive devices is necessary. ICF and the UN convention support service alterations.

    List of papers
    1. The impact of combined vision and hearing impairment and of deafblindness
    Open this publication in new window or tab >>The impact of combined vision and hearing impairment and of deafblindness
    2005 (English)In: The impact of genetic hearing impairment / [ed] Dafydd Stephens, Lesley Jones, London: Whurr , 2005, p. 165-194Chapter in book (Other academic)
    Place, publisher, year, edition, pages
    London: Whurr, 2005
    National Category
    Social Work
    Research subject
    Medical Disability Research
    Identifiers
    urn:nbn:se:oru:diva-2956 (URN)1-86156-437-6 (ISBN)
    Available from: 2008-04-04 Created: 2008-04-04 Last updated: 2017-10-18Bibliographically approved
    2. Deafblindness: a challenge for assessment - is the ICF a useful tool?
    Open this publication in new window or tab >>Deafblindness: a challenge for assessment - is the ICF a useful tool?
    2003 (English)In: International Journal of Audiology, ISSN 1499-2027, E-ISSN 1708-8186, Vol. 42, no Supplement 1, p. S140-S142Article in journal (Refereed) Published
    National Category
    Social Work
    Research subject
    Medical Disability Research
    Identifiers
    urn:nbn:se:oru:diva-2957 (URN)
    Available from: 2008-04-04 Created: 2008-04-04 Last updated: 2017-12-14Bibliographically approved
    3. Social recognition, participation, and the dynamic between the environment and personal factors of students with deafblindness
    Open this publication in new window or tab >>Social recognition, participation, and the dynamic between the environment and personal factors of students with deafblindness
    2007 (English)In: American Annals of the Deaf, ISSN 0002-726X, E-ISSN 1543-0375, Vol. 152, no 1, p. 42-55Article in journal (Refereed) Published
    Abstract [en]

    The study describes environmental and personal factors that, from the student perspective, impede participation in education in secondary upper schools by students with postlingual deafblindness. The discussion is framed by the International Classification of Functioning, Disability, and Health. The researchers use the theory of social recognition as a theoretical tool in understanding the dynamics between personal factors and environment in the context of secondary upper-school education. Thirty-four students with deafblindness responded to a questionnaire; the survey's findings indicate experiences of barriers in the natural and social environments that restrict participation. Experience of considerateness—such as concern for the special requirements of students with deafblindness—and experience of the lack of considerateness are the most important factors. Negative roles adapted by some students for themselves may be interpreted as resulting from a lack of recognition, in the form of denigration or insults.

    Place, publisher, year, edition, pages
    Washington: Conference of Executives of American Schools for the Deaf, 2007
    National Category
    Medical and Health Sciences Public Health, Global Health, Social Medicine and Epidemiology Social Work
    Research subject
    Social Medicine; Disability Research
    Identifiers
    urn:nbn:se:oru:diva-2958 (URN)10.1353/aad.2007.0012 (DOI)
    Available from: 2008-04-04 Created: 2008-04-04 Last updated: 2017-12-14Bibliographically approved
    4. Long-term ophthalmic health care in Usher syndrome type I from an ICF perspective
    Open this publication in new window or tab >>Long-term ophthalmic health care in Usher syndrome type I from an ICF perspective
    Show others...
    2009 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 31, no 15, p. 1283-1292Article in journal (Refereed) Published
    Abstract [en]

     

    PURPOSE: The aim was to explore ophthalmic health care in female patients with Usher Syndrome type I (USH I) over 20 years and to evaluate the relationship between the ophthalmic health care and the health state of the patients from a health perspective. METHODS: A retrospective study of records from ophthalmology departments (OD) and low vision clinics (LVC) from 1985 to 2004. Assessment of the reports was performed based on the International Classification of Functioning, Disability and Health (ICF). Findings were analysed by manifest content analysis with ICF as a framework and using four themes: health care system, procedure examinations, patient's functioning and disability and procedure actions. RESULTS: The records of nine female patients (aged 25-39 years, 1985) with USH I were selected from the national database of USH. A great number of notes were collected (OD 344 and LVC 566). Procedure examinations were exclusively oriented towards body structure and function. All patients showed aggravated visual impairment over and above the hearing and vestibular impairment. Procedure actions were oriented towards environmental factors. No correlation was found between procedures performed and patient's experience of disability. CONCLUSIONS: The high degree of resource allocation was not correlated to the patients' impairment. The study indicates that the ophthalmic health care was characterised by inefficiency. This conclusion is very serious because patients very likely face severe disability and emotional difficulties. ICF is ought to be incorporated in ophthalmic health care strategy to improve the health care.

    Place, publisher, year, edition, pages
    Taylor & Francis, 2009
    National Category
    Medical and Health Sciences
    Research subject
    Medicine
    Identifiers
    urn:nbn:se:oru:diva-2959 (URN)10.1080/09638280802519669 (DOI)000268212200008 ()19280439 (PubMedID)2-s2.0-70350437864 (Scopus ID)
    Available from: 2008-04-04 Created: 2008-04-04 Last updated: 2017-12-14Bibliographically approved
    5. Participation in people with deafblindness: an ICF and the life course perspective
    Open this publication in new window or tab >>Participation in people with deafblindness: an ICF and the life course perspective
    (English)Manuscript (Other academic)
    National Category
    Social Work
    Research subject
    Medical Disability Research
    Identifiers
    urn:nbn:se:oru:diva-2960 (URN)
    Available from: 2008-04-04 Created: 2008-04-04 Last updated: 2017-10-18Bibliographically approved
  • 18.
    Pavli, Antonia
    Örebro University, School of Health Sciences.
    Creative Disability Classification Systems: The case of Greece, 1990-20152017Doctoral thesis, monograph (Other academic)
    Abstract [en]

    Disability classification systems belong to the core of states’ social/disability policies through which persons with disabilities are classified as eligible or ineligible for having access to disability allowances. The study of disability classification systems has stimulated the interest of several scholars from the broader area of disability studies. Either by conducting comparative studies between different states and describing the similarities and differences of these systems around the world or by conducting studies focusing on the politics and semantics in the development of disability classification systems in specific states, all studies have shown a pluralism in the systems for assessing and certifying disability. In Greece, the development of disability classification systems for social welfare reasons emerged as a controversy that lasted for almost twenty years. One factor that strengthened the controversy was the outbreak of the economic crisis late in 2009 followed by the announcement by the governmental authorities of the enactment of a new system for assessing and certifying disability as part of the austeritydriven policies that the Greek state would enact for facing the consequences of the economic crisis. Drawing on an interdisciplinary approach, the overall aim of this study is to describe and analyze the enactment of disability classification systems in the context of Greek social policy from 1990 to 2015. For the collection of empirical material, a qualitative research method was employed, consisting of interviews, written material, and newspaper articles. The main findings of this thesis are: I) the involvement of the political parties in the development of the systems for certifying and assessing disability; II) the involvement of the disability movement in policymaking; III) the “creative” use of statistics by governmental authorities for the enactment of disability/social policies; IV) how the concept of “disability fraud” has been constructed as a “threat” to the society; and V) the vulnerability of disability classification systems in times of austerity.

  • 19.
    Rydberg, Emelie
    Örebro University, School of Health and Medical Sciences.
    Deaf people and the labour market in Sweden: education - employment - economy2010Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    This thesis focuses on deaf people’s educational attainment, position on the labour market and sources of revenue. These issues are interrelated, for instance a higher level of educational attainment seems to be associated with a lower unemployment rate and higher levels of income. The national context is Sweden and the Swedish welfare state in 2005.

    All studies in the thesis compare a deaf population, consisting of 2,144 persons born between 1941 and 1980 who have attended a school for the deaf in Sweden, with a general reference population, consisting of 100,000 randomly chosen persons from the total Swedish population born between 1941 and 1980. Data for all studies consisted of registered information about the persons in the year 2005.

    The results show that there are differences between the deaf and the reference population regarding level of educational attainment, position on the labour market and sources of revenue and disposable income, with the deaf population having a poorer position than the reference population in all areas. There are also differences between the workplaces of the deaf and the people in the reference population, and it is twice as common for people in the deaf population than for people in the reference population to have a higher level of educational attainment than is required for their occupation.

    These differences between the deaf and the reference population cannot be associated with differences in the independent factors, as for instance sex, age and immigration background, for which the results have been adjusted. This thesis shows that being part of the deaf population appears to be of importance. Factors in conjunction with deafness that can increase our understanding of the differences between the deaf and the reference populations in an educational context, labour market context and economic context are discussed in the thesis.

    List of papers
    1. Toward an equal level of educational attainment between deaf and hearing people in Sweden?
    Open this publication in new window or tab >>Toward an equal level of educational attainment between deaf and hearing people in Sweden?
    2009 (English)In: Journal of Deaf Studies and Deaf Education, ISSN 1081-4159, E-ISSN 1465-7325, Vol. 14, no 3, p. 312-323Article in journal (Refereed) Published
    Abstract [en]

    Various educational reforms in Sweden have resulted in a formally equivalent educational system for deaf and hearing pupils. Has this resulted in equal levels of educational attainment? This article compares 2,144 people born between 1941 and 1980 who attended a special education program for the deaf and 100,000 randomly chosen individuals from the total population born between 1941 and 1980. Data consist of registered information about the individuals in the year 2005. Results demonstrate that the deaf population has a lower level of educational attainment than the reference population. Women have a higher level of educational attainment than men, and younger people have a higher level than older people in each population. Neither sex, age category, nor immigrant background accounts for the variance in the level of educational attainment between the populations. The educational reforms have not been sufficient to reduce the unequal level of educational attainment between deaf and hearing people.

    Education in Sweden for deaf and hearing people has differed historically. A significant difference is that deaf pupils attend special schools. However, the government has strived for equal education for the deaf and hearing. Various educational reforms have resulted in a formally equivalent educational system for deaf and hearing pupils. Has such formal equivalence also resulted in equal levels of educational attainment? The study presented here focuses on this question. Lower levels of unemployment and higher levels of income are associated with high levels of educational attainment (Welsh & Foster, 1991; Welsh & MacLeod-Gallinger, 1992).

    To be defined as deaf in this article, a person is to have a hearing loss at an early age and to have attended a special school for the deaf. The definition of deaf used in other sources referred to here varies in parts such as Education in Sweden and Level of Educational Attainment for Deaf People, but most define a deaf person as one who has attended a special educational program for the deaf.

    Place, publisher, year, edition, pages
    Oxford: Oxford University Press, 2009
    National Category
    Social Work
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-8026 (URN)10.1093/deafed/enp001 (DOI)000266957600004 ()19221118 (PubMedID)2-s2.0-67449103902 (Scopus ID)
    Available from: 2009-09-29 Created: 2009-09-29 Last updated: 2017-12-13Bibliographically approved
    2. The position of the deaf in the Swedish labor market
    Open this publication in new window or tab >>The position of the deaf in the Swedish labor market
    2010 (English)In: American Annals of the Deaf, ISSN 0002-726X, E-ISSN 1543-0375, Vol. 155, no 1, p. 68-77Article in journal (Refereed) Published
    Abstract [en]

    The position of deaf people in the Swedish labor market is described and analyzed. A population of 2,144 people born from 1941 to 1980 who attended special education programs for the deaf was compared to 100,000 randomly chosen individuals from the total Swedish population born during the same period. Data on these individuals consisted of registered information from 2005. It was found that the labor market position of the deaf population was not as good as that of the reference population. It was also found that differences in sex, age, immigration background, level of educational attainment, and region of residence did not affect the difference between the two populations in regard to labor market position. Instead, deafness itself appeared to be a crucial factor. The study also indicated difficulties in finding long-term solutions to the deaf population’s problems finding employment.

    Place, publisher, year, edition, pages
    Washington, USA: Gallaudet University Press, 2010
    Keywords
    Deaf, labor market, employment, Sweden
    National Category
    Social Work
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-10386 (URN)10.1353/aad.0.0130 (DOI)000277689400006 ()20503908 (PubMedID)2-s2.0-77952061200 (Scopus ID)
    Available from: 2010-04-15 Created: 2010-04-15 Last updated: 2017-12-12Bibliographically approved
    3. Deaf people’s employment and workplaces: similarities and differences in comparison with a reference population
    Open this publication in new window or tab >>Deaf people’s employment and workplaces: similarities and differences in comparison with a reference population
    2011 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 13, no 4, p. 327-345Article in journal (Refereed) Published
    Abstract [en]

    This study aims to describe and analyze the characteristics of deaf people in employment and their workplaces in Sweden. A population of 2144 people born 1941-80 who attended a school for the deaf was compared to 100,000 randomly chosen individuals from the total Swedish population born 1941-80. Data on these persons consisted of registered information from the year 2005. Results showed that there are differences between the workplaces of people in the deaf and the reference population. For instance, deaf people were more commonly employed in the public sector. People in employment showed similar findings in both populations concerning sex, age and level of educational attainment: the higher the level of educational attainment, the higher the employment rate. However, deaf people more often had a higher level of educational attainment than was required for their occupation, which is an indication of discrimination in the labour market.

    Keywords
    deaf, employment, workplace, occupation level, Sweden
    National Category
    Social Work
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-10387 (URN)10.1080/15017419.2010.507375 (DOI)
    Available from: 2010-04-15 Created: 2010-04-15 Last updated: 2017-12-12Bibliographically approved
    4. Deaf people’s sources of revenue and disposable income in Sweden
    Open this publication in new window or tab >>Deaf people’s sources of revenue and disposable income in Sweden
    (English)Manuscript (preprint) (Other academic)
    Keywords
    deaf, disposable income, sources of revenue, register information
    National Category
    Social Work
    Research subject
    Disability Science
    Identifiers
    urn:nbn:se:oru:diva-10388 (URN)
    Available from: 2010-04-15 Created: 2010-04-15 Last updated: 2017-10-18Bibliographically approved
  • 20.
    Rönnåsen, Berit
    Örebro University, School of Health and Medical Sciences, Örebro University, Sweden.
    Aspekter på lärande vid dövblindhet: möjligheter och begränsningar för personer med Alström syndrom2015Licentiate thesis, comprehensive summary (Other academic)
    List of papers
    1. Auditory and vestibular pathology in Alström syndrome
    Open this publication in new window or tab >>Auditory and vestibular pathology in Alström syndrome
    Show others...
    (English)Manuscript (preprint) (Other academic)
    National Category
    Learning Other Medical Sciences not elsewhere specified
    Research subject
    Disability Research
    Identifiers
    urn:nbn:se:oru:diva-44681 (URN)
    Available from: 2015-05-22 Created: 2015-05-22 Last updated: 2017-10-17Bibliographically approved
    2. Aspects of Learning from the Perspective of People With Alström Syndrome
    Open this publication in new window or tab >>Aspects of Learning from the Perspective of People With Alström Syndrome