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Becoming the expert constructing health knowledge in epistemic communities online
Department of Swedish and multilingualism, Stockholm University, Stockholm, Sweden.ORCID iD: 0000-0002-3183-8063
School of culture and education, Södertörn University, Stockholm, Sweden.ORCID iD: 0000-0003-1538-7095
2020 (English)In: Information, Communication and Society, ISSN 1369-118X, E-ISSN 1468-4462, Vol. 23, no 4, p. 507-522Article in journal (Refereed) Published
Abstract [en]

From a discourse analytic framework, the article analyses health blogs and patient’s forum discussions in which parents to children with congenital heart defects recontextualize medical professional knowledge and share their own experiences. The study show how the two types of online media may serve as a means for parents to attain expert status in their own case by sharing lay knowledge expressed as an amalgamation of the two key perspectives – professional and experienced – as an indivisible unit. Monological discourses, such as narrating, in blogs and more direct and immediate responses in forum discussions are noted as examples of differences in how medical facts are explained and negotiated, how advice is provided and how patient expertise is created. The study also show how blogs and especially forum discussions are used to problematize the validity of actions and opinions of medical staff. The role of developing patient expertise in epistemic communities online may therefore come with a risk of spreading misrepresentation of medical cases.

Place, publisher, year, edition, pages
Routledge, 2020. Vol. 23, no 4, p. 507-522
Keywords [en]
Blogs, online forums, patient expertise, epistemic communities, knowledge building
National Category
Languages and Literature
Identifiers
URN: urn:nbn:se:oru:diva-98720DOI: 10.1080/1369118X.2018.1518474ISI: 000521118600003Scopus ID: 2-s2.0-85053294395OAI: oai:DiVA.org:oru-98720DiVA, id: diva2:1654594
Projects
Hälsolitteracitet och kunskapsbyggande i informationssamhället
Funder
Swedish Research CouncilAvailable from: 2022-04-28 Created: 2022-04-28 Last updated: 2022-11-01Bibliographically approved

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Bellander, TheresLandqvist, Mats

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